Breakdown

ProfessorSleep · Post by **ProfessorSleep** » Mon Nov 07, 2005 9:13 pm

How about the IFKA (Interface formerly known as Aura)?

another_guest · Post by **another_guest** » Mon Nov 07, 2005 9:45 pm

as I think more about this a letter from college girl's doctor at home to the college's physician, her dean, or even university president indicating the need for some intervention with suggestions of what might be reasonable time table for her to make up for missing work(without disclosing the details of the condition) might help

most students I had dealt with had come into the semester with the student disabilities office already working with them - suggestions I would get would be on the order of providing a note taker (I used overheads so made copies for students if they wanted them or loaned them to make copies elsewhere), extra testing time, testing in another location, alternative testing

however during the semester we always had to deal with student emergencies, funerals, accidents, illness, and documentation from a person in the know was crucial - we had to deal so often with bogus excuses that the student health center notes of visits weren't good enough unless they indicated the problem was "urgent" because going there didn't mean the student was sick - however when a chairman, dean, university vice president or the student services office told us to help this student out because of something going on - well - you know we had to listen

Sleepless on LI · Post by **Sleepless on LI** » Mon Nov 07, 2005 9:49 pm

Born Tired wrote:Guess I can't say it is ROOTB since I did have to shorten the back strap to fit and bend the nasal loop.

Esther,

If that's all you've had to do, I consider you ahead of the game. Glad to hear you are doing well.

Severeena · Post by **Severeena** » Mon Nov 07, 2005 10:17 pm

College Girl I use the Hans Rudolph with 0.0L/S to 0.08L/S

You may want to check this mask out at http://www.rudolphkc.com

You can get all the information on this mask mailed to you including a caliper for correct measuring.

This mask is silcone rubber with the only had part the swivel the hose fits on.

I sure hope you can get all of the issues resolved.

Guest · Post by **Guest** » Mon Nov 07, 2005 11:44 pm

Some of these ideas for work place accomodation may apply to academic environments as well:
http://www.apneasupport.org/about379.html

Guest · Post by **Guest** » Mon Nov 07, 2005 11:56 pm

Also:
http://www.specialneeds.com/books.asp?id=11082

Who knows, might even be at your university library!

CollegeGirl · Post by **CollegeGirl** » Tue Nov 08, 2005 1:23 am

Wow, you all have truly overwhelmed me with your support. I don't know what I'd do without all of you.

Some of you asked - Yes, my college has an Office of Disability Services. I also have an RA. I'm going to talk with my RA, my class dean (again), and the ODS sometime in the next couple of days and just make sure everyone's informed on what's going on, and to see what can be done. I *don't* want to withdraw from classes at this point - I had to jump through a lot of hoops to be accepted to a study abroad program in Spain this spring, and it will be my last/only chance. I don't want to miss out on such an amazing experience.

Lori, you asked about why I'm using a FFM. The answer is that I'm a mouth breather. Unless/until I see an ENT and am told that that's fixable, I'll have to use an FFM. I just don't get enough air in through my nose. When (if?!) I ever get to see the sleep doc, I'll have him refer me to an ENT (though goodness knows when I'll get to see THAT person!).

Unfortunately, I can't just show up at their office. I would have to skip all my classes and work to spend all day there, and I'd have to pay $20 for a cab. I don't really want to pay that much for a cab unless I *know* I'm going to be seen. I will, however, be calling them DAILY until they fit me in. The squeaky wheel gets the grease.

Guest 12:56, that particular book wasn't in our school's library system, but I found it on half.com for $15, and I've ordered it. It looks like it might have some valuable information.

To all of you - again, thank you SO much for all your support. It means so much to me.

Edit: *Sigh.* I hate brain fog and what it does to my posting capabilities.

rock and roll · Post by **rock and roll** » Tue Nov 08, 2005 5:01 am

Well college girl, I have always found the squeakiest wheel gets all the grease and the more pain in the butt you are, they quicker they will do something. Or maybe it would be worthwhile to find another and now even if you have to drive aways. sometimes you just have to take a bull by the horns and out stubborn them. Do not let your self go from straight A's to failing, young lady for college will be for naught.

If it were me, or if my son was in your boat at school, I as a parent would be all over everybody like glue at the school and the doctor and would give them hell until they did what I want and need to just get rid of me. Quit being nice and when they ask why, IT'S BECAUSE OF WHAT YOU HAVE BEEN IGNORING, SO FIX IT!

another_guest · Post by **another_guest** » Tue Nov 08, 2005 9:40 am

once the student is 18 and/or in higher education - don't quote me as this being law - you can try to decipher what we were reminded of every semester - the Buckley Act - actually Family Educational Right to Privacy Act (Buckley Amendment) - how current it is I don't know since I am retired - parents don't get the same rights they did for a student in grade or high school -

parents can deal with administrators (they were allegedly more kept up to date on regulations) but a faculty member who divulged anything to a parent (or perhaps someone posing as a parent), or another adult on how a student was doing in the course, even attending, and all - well ------ that is a No No at least where I had worked - concern go so tight on privacy we weren't even allowed to post course grades at the end of the semester

The only way I could talk to parents was to tell them what administrator could best handle their issue. That doesn't mean I didn't violate that and offer a sympathetic ear at times. There was one semester I had state rehab call me about a student who was my advisee - even though he said he had a release from the student and I had no reason to doubt him, all I could do was refer him to the student disability office and tell him that I would be glad to answer questions sent in via that office or engage in a conference call with them on the line

this whole issue of what is and isn't allowed is very tricky - and I know a parents wants the best for their child and sometimes the school the student is going to isn't the best place to meet special needs

ProfessorSleep · Post by **ProfessorSleep** » Tue Nov 08, 2005 10:40 am

The Buckley act is alive and well-- all hail FERPA! That doesn't preclude parental involvement at the initiation of the student, however, just that the school cannot give out anything other than "public" information without additional consent. From my perspective, however, I think there are likely to be much better results when students take on their own challenges and personal advocacy and not call in the parental backup unit. My experience is that you will get a better response waging your own campaign. Calling in the parents only ups the tension and animosity in the situation, and tends to put the student as an outsider rather than as a respectable individual who has rights and knows what they are. Just my two cents. Deal with the folks as an adult, not as a child who has angry parents.

Guest · Post by **Guest** » Tue Nov 08, 2005 11:13 am

What an amazing think tank these message boards can be! I shouldn't have digressed but I just couldn't help it.

Wulfman · Post by **Wulfman** » Tue Nov 08, 2005 12:18 pm

Guest wrote:What an amazing think tank these message boards can be!

Is this a great site, or WHAT???

Just shows what brain cells can do when they have more oxygen and can get out of the "fog" with more quality sleep.

Lots of GOOD people here!!!

Den

Rodrugg · Post by **Rodrugg** » Tue Nov 08, 2005 12:50 pm

All I can say is this: do NOT curl up in a ball. Curling up in a ball is good for getting attacked but it is NOT good for sleeping. You will wake up in pain and you will regret it. Anyways, my Uncle Stanley failed 8th grade two times and 9th grade 1 time and now he invents stuff. He is pretty good at inventing stuff and he can make anything out of pipe cleaners. One time he made some angels out of pipe cleaners and sold them at the flea market. He can make all the angels including Michael and Gabriel and Jasmine. He made about $50 in just one day! He tried to go to college and he hated it and they hated him. Now he just invents stuff and he never curls up in a ball.

Guest · Post by **Guest** » Tue Nov 08, 2005 1:16 pm

Thanks for the comic relief, Roddrugg. I'm sure College Girl appreciates it too.

rock and roll · Post by **rock and roll** » Tue Nov 08, 2005 7:30 pm

Amazing though, my son is 21 and a junior in college but when I call, they listen as they know who pays their overblown tuition and it is not my son. I figure I write the checks, I have a say.

Mask