First, thank you to every one who replied to my need to increase the pressure on the REMstar pro. I was able to increase the pressure and get a good nite's sleep. This is indeed a great forum and everyone is as helpful as they can be. I was just amazed both the public and private posts I received. (Almost 20.) A big thank you to Lisa who wanted to make sure I got the info. However, here is a very important warning for those of us who choose to increase the pressure on our own. Although I do not remember exactly what my DR said could happen if the pressure is too high, (even by a couple of points,) I remember I suddenly understood the danger in doing so, that it could lead to a major medical injury. Altho' I was told last week by the Clinician who did my study, that he went up to 16 (from 10) I felt that was too high when I set it there, and dropped it down to 13. (Still three points up from where it originally was.) Even at a study two years ago, when '12' appeared to be the correct setting, my DR, after reviewing every thing, determined that 10 was adequate. (Even 12, only two points up, he determined, was a gamble he didn't want to take.) So, with this in mind, I just wanted every one to be aware that although my pressure definitely needed to be increased, I did have a number from my study last week, and I chose to be safe, and reduce from their highest setting, to where I believed I was safe from possible 'harm.' When I go back to my DR next, I'll be sure to ask him exactly what the danger is, and post it here for all to see.
Thanks again to everyone,
Peter
Thanks to all and a warning to all
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alaskagal
very interested
Waiting for your next post, my pressure is at 20 and I've had problems with my sinuses clogging, vertigo, and woke up with small amount of blood on my tongue, wondering if this pressure could be dangerous, but it is what the dr. ordered. And she is a good doc. But she's attributing my sinus problems to a cold (which I don't have, just the common runny nose and sneezing, cleared up with flonase) and prescribed a decongestant and the flonanse and antibiotics in case of infection. Please post what your doc says about too much pressure can be dangerous. Thanks,
tk
tk
I too will be very interested to hear what the doc says. As I hired an Aout Set Spirit that was faulty and instead if my usual pressure of 13 it ramped to 18/19.
The company I got the machine from argued that maybe I needed that pressure and suggested I perseveared, despite my assureing them that I really did not think that I needed such high pressure and that it made me feel really ill.
I believe the company should have been guided by the client (at the end of the day the client is always right) and I should have been advised not to use the machine any more and return it for tests. I do not believe the company shoud have told me to persevere.I then was finally given another machine and it hovered between 12 and 13.
On those high pressures I felt really ill. I was on those high pressures that I did not need for 3 NIGHTS. I woke up several times during the night feeling very ill. My chest hurt my stomach was so full of air I thought it was going to explode and my gut felt the same, I was very vey bloated.
At that time, I had not even discovered Cpap Talk, and was given not given the instruction manuals of how to alter the pressure, by Resmed the hire company . I was stuck with it.
I now wonder if I could have sustained some permanent damage from those high pressures?
The company I got the machine from argued that maybe I needed that pressure and suggested I perseveared, despite my assureing them that I really did not think that I needed such high pressure and that it made me feel really ill.
I believe the company should have been guided by the client (at the end of the day the client is always right) and I should have been advised not to use the machine any more and return it for tests. I do not believe the company shoud have told me to persevere.I then was finally given another machine and it hovered between 12 and 13.
On those high pressures I felt really ill. I was on those high pressures that I did not need for 3 NIGHTS. I woke up several times during the night feeling very ill. My chest hurt my stomach was so full of air I thought it was going to explode and my gut felt the same, I was very vey bloated.
At that time, I had not even discovered Cpap Talk, and was given not given the instruction manuals of how to alter the pressure, by Resmed the hire company . I was stuck with it.
I now wonder if I could have sustained some permanent damage from those high pressures?
For Alaska Gal
I have an appointment on the 18th. I'll see if I can't get a few answers and then I'll post them under this topic. Be sure to check back then.
Peter
Peter
Thank you Peter.
This happened about a month ago. I have had pains to my chest and lower back part of my lungs since, but it is difficult to know what may be causing this or if it is just a coincidence.
I am cross with the company, as I think that their telling me to persevere is negligent on their part.
On the 4th day I actually did, a test I sat quietly, not talking or moving about and watched it ramp to 18 almost immediately.
On the 3 nights I used the machine I must have woken up between 9-12 times, over the 3 nights, each time I woke up it was dead on 18. and when I scrolled thru the menus it said my pressure was 18. When I woke up in the mornings pressure was always exactly on 18. So I believe the pressure was 18 all night. With that machine the pressure remained static on 18.
Thanks again
This happened about a month ago. I have had pains to my chest and lower back part of my lungs since, but it is difficult to know what may be causing this or if it is just a coincidence.
I am cross with the company, as I think that their telling me to persevere is negligent on their part.
On the 4th day I actually did, a test I sat quietly, not talking or moving about and watched it ramp to 18 almost immediately.
On the 3 nights I used the machine I must have woken up between 9-12 times, over the 3 nights, each time I woke up it was dead on 18. and when I scrolled thru the menus it said my pressure was 18. When I woke up in the mornings pressure was always exactly on 18. So I believe the pressure was 18 all night. With that machine the pressure remained static on 18.
Thanks again
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BetterBreathinBob
- Posts: 69
- Joined: Wed Dec 29, 2004 12:40 pm
- Location: Mount Prospect IL
Increasing the Pressure- Be Careful
The problem with increasing the pressure without doing it in the sleep lab is that you could start having CENTRAL APNEAS without even knowing it. We see this all the time in the lab and then we're able to make adjustments. At home the only way for you to know is that you wake up not feeling rested and you think the therapy isn't working.
If you're having problems either get a re-titration if the insurance will pay or get the auto-pap machine which will adjust all night long.
Bob
If you're having problems either get a re-titration if the insurance will pay or get the auto-pap machine which will adjust all night long.
Bob
Just what is 'Cental Sleep Apnea?'
Could someone please tell me what 'Central' is please
TKS
Peter
TKS
Peter
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wading thru the muck!
- Posts: 2799
- Joined: Tue Oct 19, 2004 11:42 am
Greetings to Alaska Gal and Fifi,
Here's what my doc said about the dangers of pressure being too high. First, if you have any heart or lung disease it will make that worse. It can cause central apneas. It will make the sleep apnea a lot worse in general. Any bloating, etc, is not dangerous, just damned uncomfortable. Nothing about blood on the tongue or back aches. Your chest and stomch may hurt, but that is also not dangerous. You most likely will wake up feeling lousy. IF the pressure feels to high even tho it was prescribed from the sleep study, he recommended to contact your DR for further follow-up. Some people do need pressures that they think are too high, but that's the only way to control their apnea. Other than the heart, lung and central apnea issues, there isn't as much danger as what I originally thought I heard him convey. If you're healthy, the very real possibilities is the central apneas.
Peter
Here's what my doc said about the dangers of pressure being too high. First, if you have any heart or lung disease it will make that worse. It can cause central apneas. It will make the sleep apnea a lot worse in general. Any bloating, etc, is not dangerous, just damned uncomfortable. Nothing about blood on the tongue or back aches. Your chest and stomch may hurt, but that is also not dangerous. You most likely will wake up feeling lousy. IF the pressure feels to high even tho it was prescribed from the sleep study, he recommended to contact your DR for further follow-up. Some people do need pressures that they think are too high, but that's the only way to control their apnea. Other than the heart, lung and central apnea issues, there isn't as much danger as what I originally thought I heard him convey. If you're healthy, the very real possibilities is the central apneas.
Peter
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