Who's not happy with their Aura?

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
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rock and roll
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Who's not happy with their Aura?

Post by rock and roll » Sat Sep 17, 2005 1:55 pm

I want to hear both sides. We have four or five here who are very happy, are their any that are not? If so, why not?

Sleepless on LI
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Post by Sleepless on LI » Sat Sep 17, 2005 2:27 pm

I know WillSucceed is one. He got rid of his to Rested Gal, if I'm not mistaken. Perhaps he can weigh in on the discussion. I will bow out gracefully from this thread, although I will be, as Old Sea Rock said, "lurking" in the background, watching every word...
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rested gal
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Post by rested gal » Sat Sep 17, 2005 2:30 pm

Not to steal their thunder...perhaps they will jump in and tell you, but as best I remember from previous posts...

Some that didn't like the Aura were:

WillSucceed and th - too much condensation formed in the nasal hoop. th was even using the Aussie heated hose to control rainout.

th's wife couldn't use it - headgear too big for her.

Derek - leaked for him, possibly attributed to very large nares and no "extra large" pillows available.

LCM (Lorraine) - thought it was causing her hair to break.

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wading thru the muck!
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Post by wading thru the muck! » Sat Sep 17, 2005 3:52 pm

I hate the aura because it's just too darn good. It's just way too comfortable. I've heard that cpap therapy is a real pain in the butt, so my aura must not be working because it is just so easy to use. It's also too simple to clean. Just one piece to twist off and run under the faucet with some soap. It also allows me too many sleep positions. I toss and turn all night trying to decide.. should I sleep on my back... should I sleep on my side... should I sleep on my stomach. I don't know any reason why someone would want to use such a perfect interface.

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Last edited by wading thru the muck! on Sat Sep 17, 2005 6:30 pm, edited 1 time in total.
Sincerely,
wading thru the muck of the sleep study/DME/Insurance money pit!

Sleepless on LI
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Post by Sleepless on LI » Sat Sep 17, 2005 4:15 pm

Wading,

Loving it!!!
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Guest

Post by Guest » Sat Sep 17, 2005 4:27 pm

The Aura would not seal at higher titration levels. I am at a constant 14 cm. The wires were not stiff enough to apply enough pressure to keep it from leaking. Fortunately I bought it from "the other place" that took it back for a full refund. The Activa is still my favorite. Even side sleeping with the mask pushed up by the pillow it still seals.


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Post by Sleepless on LI » Sat Sep 17, 2005 4:31 pm

uh-oh, guest, I hear a debate coming...

I can't say what happens at higher pressures. I keep my auto at 8-12 and it never goes over 9 anymore, if it goes that high. Sorry to hear you didn't have success with it, but great that you got a full refund. When does that ever happen in this field?

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elliejose
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Post by elliejose » Sat Sep 17, 2005 5:58 pm

Who else uses Aura with higher pressures? I was titrated at 14 but have found my auto as high as 17. I am thinking seriously about getting an Aura. Like Lori, I want all the information I can get before buying. Thanks to all you folks with all the knowledge and experience.


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rock and roll
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Post by rock and roll » Sat Sep 17, 2005 6:03 pm

Good question, I am 10-12 myself.

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OldSeaRock
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Post by OldSeaRock » Sat Sep 17, 2005 6:17 pm

Thanks for starting this thread, R&T.. I'm a 14/10 and needless to say, pressure is an issue.
People don’t care what you know until they know that you care.

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rested gal
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Post by rested gal » Sun Sep 18, 2005 1:29 am

I've experimentally turned the pressure all the way up to a straight 20 to see if the Aura's nasal pillows would seal for me "up there". I had to put a (yes, RnR!!.....) PANTYHOSE TIGHTS LEG around the nasal part -- not snugly at all -- just "there" as a tiny bit more support.

The material went across the front of the nasal "hoop", down at the nostrils, and around the back of my head. Worn like a sweat band, but down low at the nostrils. Tied it behind my neck at the base of the skull. Used a "double start knot" to keep the material flat back there.

Worked comfortably and sealed perfectly at the straight pressures I tried of 17, 18, 19, and 20. Could toss and turn -- back, side, tummy, all without leaking. I couldn't stand those high pressures long, but the Aura with "tights" leg sure could.

This was with the Aura's own headgear and only the addition of that soft homemade strap (NOT PULLED TIGHTLY) across the nasal hoop and around to the back of the head.

A double start knot can be seen here:

http://www.fieggen.com/shoelace/doublestartknot.htm

Using the soft stretchy material of pantyhose "tights", that kind of knot holds securely all night long, but is easy to undo in the morning by simply grabbing both sides at your cheeks and giving the sides an outward tug. It's easy to "adjust" too, if you want to loosen it just a bit during the night. Simply use that same outward tug at the cheeks, but very gently.

There's no real "knot" to have to untie in the morning. Nor will there be any annoying knot under the back of your head while you sleep. A double-start knot lays very flat.


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Post by Sleepless on LI » Sun Sep 18, 2005 8:47 am

In reply to those two links left by the last guest (good find, guest, for those on this thread, thanks), I just wonder if these people were aware of the adjustment wire in the triangular part that holds the pillows. When I first got the Aura and tried it on in the daytime to see how it worked, I was starting to get upset because no matter how I adjusted the headgear or straps, it was leaking like a sieve. Then by luck I found the wire that you can turn and mold any way you want and, voila, leak free.

When I hear that it leaks like that no matter what, I wonder if it's just a matter of adjusting that wire. If not, it could be, as RG said in one of those posts in the linked thread, that these people do, indeed, need an extra large set of pillows. But we all know masks of any type don't work for everyone. That's why I always include that disclaimer in my opinions about a mask. I have used it now for five nights and there are absolutely no leaks. I was shocked when I woke up this morning at 10 AM!!! I never sleep that late. I am also now starting to back sleep, which is not great for snoring, but my index is always under 0.something. I'm very, very pleased with Aura so far, five out of five nights. It has a perfect track record with me.

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sir_cumference
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Post by sir_cumference » Sun Sep 18, 2005 8:56 am

My hardly used Aura is for sale! PM me if you want it!
sir_cumference

NB Obviously I didn't get on with it too well or I wouldn't be selling it. I use the breeze (Lori's old one) and love it! I find that the Aura although very comfortable gives me a feeling of restriction on the flow of air, whereas the breeze is the exact opposite, not quite as comfortable, but loads of air always there LOL


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Post by Sleepless on LI » Sun Sep 18, 2005 9:00 am

SC,

Welcome back! Either I haven't visited any posts you've written in awhile or you've been ignoring us all. Hope all is well with you.

So the old Breeze is still your favorite, eh? I will bet you will sell this Aura in no time. There are a few people out there thinking about getting one. I know you said it was too hot to wear in your opinion in warm weather, but I didn't know you had any other problem with it than that. Sorry to hear you're unhappy with yours.

Hope things are okay by you and that we see more of you again on the boards. Take care.

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