Good Bye

[Ganesha]

Jay,

Sorry you didn't find what you were looking for.
The door is always open. Feel free to walk back in whenever you want.

Mark

[BlackSpinner]

I wish everyone well, but I am leaving the board. I appreciate the information and those who offered help, but think they are few and far between.

Jay

You used that information and now you slam people for not spoon feeding it to you? Since you are sleep deprived and unable to really evaluate the situation we will forgive you.

This board helps those who help themselves. You don't need 3 dozen people to feed your ego, you just need to find the info you need to help you make the therapy function. It is not rocket science and it is nothing compared to radiation treatment.

[junie]

Jay, just a few words, I'm kinda new here also I don't post much here or reply, This group has helped me in so many ways just by reading,
just by reading does help, I didn't know anything until I found this great loving and caring people, So please thing before you say good-bye

[mars]

We can....and do....help with CPAP therapy......but, we can't help with psychological therapy.

Gerald

Hi All

Having read a lot of posts in my short time in the Forum I would say that many of the posts are about "psychological" problems , such as frustration, anger, anxiety, depression etc. And most of these have been responded to by Forum members in very helpful ways. (Sometimes in ways that I can only call brilliant).

We may not be doing "Psychological Therapy", but we can help with the many emotional problems that many of us have in applying CPAP Therapy. Sharing our own experience can be very powerful in helping people deal with emotional problems.

It is sad that many of the helpful stories and suggestions I have read are often ignored, but we all know that is just being human. And, of course, very likely sleep deprived for many years.

cheers

Mars

[LoQ]

I wish everyone well, but I am leaving the board. I appreciate the information and those who offered help, but think they are few and far between.

Jay

I agree that the helpful information to any one person is sparse. I make no attempt to read every post. Heck, I don't even read 50% of the threads. I search when I have a problem to see if I can find something helpful, if not, I ask a question. Otherwise, I just don't feel obligated to read it all, because I cannot.

Maybe you would find the board more helpful if you used it in a different way?

[kopoloff]

You can please some people all of the time, and you can please all of the people some of the time, but you can't please all of the people all of the time.

And some won't be pleased.
And some won't listen
And it's their problem, not ours.

K

[jdm2857]

My gosh! If I ever feel neglected here I now know what sort of post to make for some attention.

[ozij]

My gosh! If I ever feel neglected here I now know what sort of post to make for some attention.

[freepostg]

We can....and do....help with CPAP therapy......but, we can't help with psychological therapy.

Gerald

Hi All

Having read a lot of posts in my short time in the Forum I would say that many of the posts are about "psychological" problems , such as frustration, anger, anxiety, depression etc. And most of these have been responded to by Forum members in very helpful ways. (Sometimes in ways that I can only call brilliant).

We may not be doing "Psychological Therapy", but we can help with the many emotional problems that many of us have in applying CPAP Therapy. Sharing our own experience can be very powerful in helping people deal with emotional problems.

It is sad that many of the helpful stories and suggestions I have read are often ignored, but we all know that is just being human. And, of course, very likely sleep deprived for many years.

cheers

Mars

Well said Mars

[medic117]

Well here is a follow up from me.

I posted a nice plain goodbye wile thanking people for their help and the information, I also said those people are few and far between. Well here is why I said that. I made a post about the confusion I was going through with my insurance company and their weird replacement schedules. In that post I made passing mention of my mask leaking and the possibility of getting stuff on line. Well the rest of the post seems to have been missed. No one asked about the leaking mask, just a theory that most leaking mask are the result of them not being tight enough, this is not the case. I have a leak around the elbow and I have the head gear taken in and have red marks on my face every morning.

The other reply was about getting stuff on line and telling me to do homework. I have done that, I have read all the info in the new user sticky and our wisdom sections. I have Encore Pro, smart card reader and download the data regularly and review it, I also have the analyzer program to show the trends a bit better. I have taken to the cpap experience and am sleeping better than ever. I have another sleep issue in that I can not fall asleep on a lot of nights, that is another issue I am working with my PCP and sleep doc with, a longer road to fix that the sleep apnea problem.

In the good bye responses the things that were said were hurtful and make me think this is more like a high school clique that a support forum. I was called a tough guy, and told I slammed people, and that people have helped with other posts I made. There were posts I took to imply I have psychological problems, and or emotional issues. People posted that the post was a way to get attention when feeling neglected, well that was not the case. I was trying to be grateful to those who shared information in the many posts I have read. I mentioned no names at all in my post, but it also seems that a lot of people only make comments on an infrequent basis and that even those who do help seem to be quiet of late.

Well for those of you who missed it, I have done very well on CPAP and have a very low AHI average, less than 1 and I think that is the result of the information I garnered from reading here.

For those who wish to know here is a little back ground, I have severe PTSD from a career as a paramedic, that is the cause of my sleep issue that prevents me from falling asleep, so I am sleep deprived but not because of anything related to apnea. I am actively working with my primary care doc, and my sleep doc to get that controlled as I do not want to take medication every night just to sleep.

I have remained a registered member as I am waiting for information on how to delete my profile, and after I posted the "goodbye" I was sending a private message to someone who had contacted me privately. I am sorry to say that this has been an adventure for me and I wish you all luck with your journey.

In closing Thank you to those who helped in giving information, whether in a sticky or in posts.

Jay

[mindy]

Jay,

Unfortunately posts are not the same as talking face-to-face. In the past two years I've been on xPAP, I've noticed that sometimes I get incredible responses and sometimes I don't. It doesn't mean that folks aren't interested but we can't always be on the forum and none of us has time to read every post. As an example, for the past few months I haven't been able to be on the forum except for a few rare instances. It's not that I don't care ... I just couldn't. So I logged on when I could and looked for topics that had no or few responses to see if I had anything to add.

I understand also the challenges with PTSD since I also suffer with that. I find that it affects the way I respond to people and they see me in a very different light than I see myself. It has taken a lot of work with some great help from a professional for me to begin to understand how I come across.

This forum may not be the "right" venue for you but I hope you'll still visit when you need help and hopefully will find what you need.

I wish you good info and help with your sleep problems.

Mindy

[BlackSpinner]

Well the rest of the post seems to have been missed.

First of all this is not a professional answer board - we don't get paid to do this. You should be up in alt to have gotten the responses you did. People took their precious free time to help and all you do is bitch that it wasn't good enough - that is called a sense of entitlement, many people get over it when they get past puberty.
You are responsible for your own reactions and emotions. Enjoy your snit.

[LinkC]

You GO, girl!

I spent the past half hour composing TWO different responses; both of which I ended up deleting as being too harsh.

You have captured the essence of what I think about this, but in much more civil terms. Thank you.

[jules]

As a person who did reply to Jay's previous post - now how much is whining about insurance and how much does he want help with leak issues?

Hello,

Well it has been 3 months and my mask is starting to leak more and more, so I called the insurance company to ask how often they will pay for a replacement. I was told 4 times a year I can get a new mask, or so I thought. I called the DME, who I have had almost no contact with other then making a payment, and the rep tells me I am not eligible, and can only get one a year. I say I will call the insurance company back and hang up. While on hold with the insurance company when the DME calls and gives me the billing codes. I talk to the rep and she is very helpful, tells me that I am eligible for 4 masks per 12 months and 2 head gear, go so far as to tell me that the DME has never billed for a mask.

I call the DME back and get a bit of a run around, put on hold and then told, well the masks and head gear are a unit so we will not replace the mask until the head gear can be replaced. I did tell them that the mask is leaking more, and she tells me Sept. 19 you are eligible for a new one as far as we are concerned, call back then. Well another call looking for help to the insurance company, I get the same answer about being eligible, but they will not help me with getting a replacement, or working with the DME to get a replacement, heck the DME got 24.09 for the head gear, I would have paid that if they billed for the mask. Seems the DME uses the head gear code to bill. I finally get a manager who understands the issue and he agrees that if these are sold as a unit then I should be getting the benefits on an equal basis.

He is submitting the policy for internal review to get the powers to be looking at this. Not much help right now, I am now looking for another provider to get supplies from, but I am stuck with this place as the insurance company is renting the machine from them. I am not too keen on pushing the issue with them on a new mask due to the rental issue, once I own it however!!!

The manager told me that right now I can still get 4 masks and 1 head gear based on the codes used to bill so far. I may be going out of network which is paid at 70% of the cost of the items. The down side is who knows how long it will take to get the claim processed and a payment back.

On a good note, I am tolerating it well and sleep fine, when I can sleep but that is another story. Average AHI is 1.3 Average HI 0.5 so I am doing ok I guess.

Thanks

Jay

He didn't listen to Ozij and kteague on this other thread (viewtopic.php?p=354878#p354878 either) about leak rates and deceptively low AHI. Okay - too much time spent on this guy who doesn't want to listen anyhow.

[DoriC]

We can....and do....help with CPAP therapy......but, we can't help with psychological therapy.

Gerald

Jay, If you're still here, it looks like Gerald put his finger on some of your issues. PTSD is a psychological problem and I'm sure that having OSA must be an added burden for you. I hope you will stay with us or even lurk and see that we have a very knowledgeable and compassionate group here, and there are many "experts" here willing and able to support you. Sometimes the board is quiet, life is going on, but most of the time it's hard to even keep up with all the new threads and responses. Just take a peek at some of the other apnea boards and you'll see what I mean. Hope to see you. Dori