Software results and a little brag

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
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Pugsy
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Software results and a little brag

Post by Pugsy » Wed Jun 10, 2009 10:23 am

The newbies need something to read besides stuff about spelling and I wanted to brag just a little. So here goes.

My leak rate was my best so far last night but my AHI was better night before last being at 1.5 when my leak rate wasn't as good (and I had used the Poligrip). Just goes to show you that the least little thing can impact your results. Those of you wondering what you get with Respironics software this is one of the graphs that is available and the one I find most useful.

I only used the chin strap (ResMed) last night and it was a short night because we had some major thunderstorms and I didn't want to lose power and have my mouth taped or glued shut. Plus woke up early because my daughter and grandson are arriving today and I was excited. I woke up rested and again without the headache that tells me if I have had a good night or not. Since increasing my minimum pressure from 8 cm to 10 cm a little over a week ago, zero headaches and that is a major improvement. All in all I am thrilled with progress so far and it all started when I received the software and I could finally see why I wasn't feeling any initial improvement despite on screen data not being that bad.

Saturday night will only be my 3rd week mark on using the machine. My overall energy level is slowly creeping upwards and my desperate need for naps is pretty much non existent. Now I can say that I had a good week instead of just a good day. I now will really be able to enjoy grandson's 3 week visit as this was the impetus for me to get the software and not waste anytime sorting out why I wasn't showing improvement initially.

I will continue my battle with my big mouth but it is early in the war and I have not yet exhausted all my battle implements.
Brenda

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Gerald
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Re: Software results and a little brag

Post by Gerald » Wed Jun 10, 2009 10:32 am

Pugsy....

You might want to drop the high end pressure from 20 down to about 15.....so that your machine is working in a narrower range. My understanding is that it's better able to react to your needs when it's adjusted that way.

Also.....you need to do everything possible to solve the leak problem......both mask and mouth. You're doing well....but, you need to straighten out the leak line a bit....and get the AHI score below 2.5 if at all possible.

I know that the medical industry and the insurance racket says that anything below an AHI of 5.0 is "normal"....but, my honey and I find that we can't maintain 93% O2 saturation unless we keep the AHI below 2.5.

Gerald

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Re: Software results and a little brag

Post by drubin007 » Wed Jun 10, 2009 10:54 am

numbers are looking good Brenda... im jealous.

One of these days I will invest in the card reader or usb thing for mine and we can compare numbers...

enjoy the family!

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Pugsy
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Re: Software results and a little brag

Post by Pugsy » Wed Jun 10, 2009 10:56 am

I hear you Gerald. The 20 cm ceiling is a 2 week experiment and I have about one more week of it to see how it goes, then I will drop it down to about 15 and give that a couple of weeks. Then I may give straight CPAP a shot and see what happens.

At 12 cm my mask has a 33 L/min intentional leak so I haven't been too far off. Even on nights where I have taped or used poligrip I seem to have a bit of irregular leak line (but no snores) so I am assuming that my tossing and turning may dislodge the pillows a bit. I am trying to keep my variables at a minimum so I can directly attribute improvements or disasters to a specific change.

I seem to still have little "clusters" of apneas and when I have some more money (all tapped out since I paid for machine and software myself this month) I want to get a recording pulse ox to monitor desats. I dropped to 73% in my initial sleep study. I am just curious. Just something to satisfy another data "need".

Before last night my AHI's were 1.5, 2.2, & 2.3 even with my less than perfect leak rate. I know they will improve even more as I find a workable solution for that battle. I am watching the cpap auction for maybe a gently used hybrid of sorts that might fit me to try out. I really wish I could find one that secured the lower area without a strap that starts at the base of the skull and comes straight forward. So if anyone knows of such a mask let me know. I found a picture of an old Devilbiss hybrid that had a different securing mechanism (came up over ears and not forward to chin) but I cannot find it for sale anywhere.

Wish someone had a small hybrid of sorts that I could test drive. The ResMed hybrid product simply puts my rather inflexible cervical spine in such a bind that it is painful and even though I might get better results with it in theory, I cannot sleep with it do to neck pain so those "theory" results are useless if I can't sleep. Hence my journey to make the pillows work. The pillow headgear doesn't hurt my neck. So even though it isn't perfect, it is better to get some decent sleep therapy than no sleep and thus no therapy.

Suggestions anyone on a hybrid type of mask that won't put pressure on the base of the skull and upper C spine?

Ooops, gotta go to the airport. Fun time begins.

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Re: Software results and a little brag

Post by ozij » Wed Jun 10, 2009 11:00 am

Congratulations, Brenda - you've earned you bragging rights! I doubt there's any problem in keeping the maximum pressure wide open, in your case. The machine only uses that high ceiling when it needs it - the ceiling has no impact on the response to events occurring in lower pressure.
Enjoy your family visit!

O.

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Pugsy
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Re: Software results and a little brag

Post by Pugsy » Wed Jun 10, 2009 11:05 am

BTW for the newbies general information. My initial LCD screen data showed AHI averaging 5 to 8 range and I was still feeling like total crap. Headache, tired, wanting to nap. This was at the prescribed 8 cm minimum. It simply was not enough pressure to prevent the events. Sleep titration studies are not the gospel.

5 AHI average for me was not good enough to feel better despite the "5 AHI and less" goal.

So.... if you are new and still feeling like crap, start looking for a reason because there is one somewhere whether it be mask leak, pressure too low or whatever.

Climbing down off soap box and leaving now.

To Drubin007: Thank you for the kind words but I still won't remove the voodoo doll pins. Even though I won't be around as much the next few days I want you to stick with it till you get the card reader and figure out what is going on with you. Sorry but I am a firm believer in tough love.

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Re: Software results and a little brag

Post by DreamStalker » Wed Jun 10, 2009 11:14 am

Keep your settings for one or two weeks and then see what your "average" AHI is. If it stays the same, you may be able to lower AHI further by raising minimum pressure to 11 cm.
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Re: Software results and a little brag

Post by klockemy » Wed Jun 10, 2009 11:18 am

Pugsy wrote:I hear you Gerald. The 20 cm ceiling is a 2 week experiment and I have about one more week of it to see how it goes, then I will drop it down to about 15 and give that a couple of weeks. Then I may give straight CPAP a shot and see what happens.

At 12 cm my mask has a 33 L/min intentional leak so I haven't been too far off. Even on nights where I have taped or used poligrip I seem to have a bit of irregular leak line (but no snores) so I am assuming that my tossing and turning may dislodge the pillows a bit. I am trying to keep my variables at a minimum so I can directly attribute improvements or disasters to a specific change.

I seem to still have little "clusters" of apneas and when I have some more money (all tapped out since I paid for machine and software myself this month) I want to get a recording pulse ox to monitor desats. I dropped to 73% in my initial sleep study. I am just curious. Just something to satisfy another data "need".

Before last night my AHI's were 1.5, 2.2, & 2.3 even with my less than perfect leak rate. I know they will improve even more as I find a workable solution for that battle. I am watching the cpap auction for maybe a gently used hybrid of sorts that might fit me to try out. I really wish I could find one that secured the lower area without a strap that starts at the base of the skull and comes straight forward. So if anyone knows of such a mask let me know. I found a picture of an old Devilbiss hybrid that had a different securing mechanism (came up over ears and not forward to chin) but I cannot find it for sale anywhere.

Wish someone had a small hybrid of sorts that I could test drive. The ResMed hybrid product simply puts my rather inflexible cervical spine in such a bind that it is painful and even though I might get better results with it in theory, I cannot sleep with it do to neck pain so those "theory" results are useless if I can't sleep. Hence my journey to make the pillows work. The pillow headgear doesn't hurt my neck. So even though it isn't perfect, it is better to get some decent sleep therapy than no sleep and thus no therapy.

Suggestions anyone on a hybrid type of mask that won't put pressure on the base of the skull and upper C spine?

Ooops, gotta go to the airport. Fun time begins.
I have a hybrid that I only used a couple night (has all three cushions and pillows), that I will let you use, if you would like. Please PM me and let me know. (Non smoking and no pets house).

Kevin

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Re: Software results and a little brag

Post by cassaro » Wed Jun 10, 2009 11:24 am

Brenda,

In an attempt to reduce my leaks with the same mask I ended up taping the stiff side straps to my cheeks. I would dislodge the pillows if I slept on my side but the taping eliminated that issue. So, you might want to try that...can't hurt

Chuck

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Re: Software results and a little brag

Post by dwood003 » Wed Jun 10, 2009 2:23 pm

Pugs

Ace Hardware web site or store has a Power Out Warning Alarm THP 207 that plugs into a receptical, a light comes on when it alarms so its easy to find.
I do the polygripe strips, blue tape and chin strap and it wakes me imediatly also I flatern out my leak line by doing as some one else suggested by taping the head gear to the chin strap about at eye level (as opposed to taping to the cheeks). I use the 3m Micropore which I found to strong to tape my mouth. I peel it off and stick it on the mirror and reuse it a dozen times. At some ones suggestion I started a few days ago cutting the poligripe stipe the long way with a razor blade. I run them under the running water and lay them criss crossed on my bottom lip and gently close my mouth. I have none of the problems discribed by some members. In the morning I fill the basin with warm soapy water and wash with a face cloth and it usually falls off in one peice.

Don

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Re: Software results and a little brag

Post by SaltLakeJan » Wed Jun 10, 2009 8:12 pm

Brenda, I've been reading your posts, and I am impressed with your results --- so soon. I see you are a creative thinker, both for yourself and for all the newbies.

And, I am going to try Don's formula for polygrip. I have tried moistening it with my tongue - You don't want to hear the mess that made.

Jan

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Re: Software results and a little brag

Post by Pugsy » Wed Jun 10, 2009 8:36 pm

SaltLakeJan wrote:And, I am going to try Don's formula for polygrip. I have tried moistening it with my tongue - You don't want to hear the mess that made.

Jan
Hi Jan,
I also have been following your saga and I anxiously await the results of last night's study. When I look at your trials and difficulties that is when I figure that my minor stumbling blocks aren't worth mentioning. I was going to offer you my support over in your thread but this will have to do for now.

I am lucky and I post my minor issues to show the other newbies that things can be sorted out with just a bit of detective work and maybe something I have worked through will help someone else. Also to show the newbies that everyone here on this forum will chime in with bits of wisdom, ideas or support. No problem is too small to warrant an attempt to be solved. I am still learning as I go and I fully expect this to continue for a long time because our bodies always like to throw little curves.

I couldn't find the Polident strips at my local grocery so I got the Polygrip paste. I used way too much of it the first time I tried it. I liked to never got it all washed off the next morning but man did it ever seal good. Next night I used too little and had a few snores which meant I mouth leaked just a bit. Still haven't found that happy medium yet. I have had the best luck with the cheap blue painter's tape.

Your positive attitude is your strength. Many could learn a valuable lesson from you. I hope that there will be some good light at the end of your tunnel very soon.
Brenda

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Re: Software results and a little brag

Post by SaltLakeJan » Thu Jun 11, 2009 6:03 pm

Brenda,
I especially enjoy reading your posts, you have the caring spirit as the CpapTalk.com Pro's do. I appreciated it when I "accidentally" found this site, and the forum veterans gathered round me & answered my questions. I didn't know that my previous UPPP surgery would complicate my cpap therapy. But, here I have found the help and encouragement I needed.

Pugsley wrote:
Hi Jan, I've also have been following your saga and I anxiously await the results of last night's study.
Brenda, I won't know the results of the CPAP study for a while. I never prepared for my previous sleep studies, but for this new study, I trained for it, like it was an athletic event. Beginning about a month before the study, I concentrated on getting exercise on an increasing level, for 5 days each week. But the big training for me was working to improve my sleep. I followed the guidelines Muffy gave Bleeping Beauty. When you go to a sleep study, they put you to bed about 9 P.M.. In my previous studies I have had very little Rem Sleep, & the longer you sleep gives you more opportunity for Rem, so I went to bed before it was really dark. I totally changed my sleeping habits. We will know how well the changes worked when I get the results back.

This was my fourth sleep study, but the first done in a Sleep Lab Accredited by the American Academy of Sleep Medicine (AASM). I was surprised by the expertise of the technician who monitored my sleep, compared to my 12-2008 sleep study technicians. Those guys worried me - I was the only patient at the sleep lab that night, & it was as though they were in a comedy race to see which one could get the most equipment attached in the least amount of time. " In the final analysis, the technican noted," The ECG lead came & could not access the HR, & other limitations were noted."

I think because the new study was done under AASM regulations, & the technician had been trained to a higher level, that I have a better chance of getting accurate sleep information. A sleep study is flawed to begin with - you are not sleeping under normal conditions with wires attached from your head to your legs. However, if the study is done under optimum circumstances, it can be a beginning point for us to improve on through data capable machines, oximiters, etc.

Brenda wrote:[quote I post my minor issues to show the other newbies that things can be sorted out with just a bit of detective work and maybe something I have worked through will help someone else. Also to show the newbies that everyone here on this forum will chime in with bits of wisdom, ideas or support.[/quote]

Brenda. I agree with you that this forum is unique among other internet sleep sites. The members of CpapTalk.com are genuine in their desire to help others get a get start with their sleep therapy. And, for most of the people who begin Pap therapy, they are just opening a wonderful window of opportunity for themselves. By working through the hard places at the beginning of Pap therapy, they have that chance to feel so much better, & improve their lives and relationships.

Brenda wrote:
Your positive attitude is your strength. Many could learn a valuable lesson from you. I hope that there will be some good light at the end of your tunnel very soon.
I can't claim credit for having a positive attitude, I think I am a naturally optimistic person. For me, it just seems a lot easier, to feel "Up" about things, rather than "Down".

I hope you have a wonderful time with your daughter and grandchild. Our family all lives away from us, and I know how precious the moments are when we are reunited.

My very best to you.

Jan

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