Day 6 Part II: CPAP, Anger, Torture & Waterboarding

[jules]

I was in chat the other night you were told by me to see your doctor - you whined about the copay (as you have whined about copay costs overall).

You were told to contact your doctor on Thursday and now you say you weren't told that. Now which is it?

This is a support group for cpap - we are here to help others through the journey we have gone through ourselves.

WE ARE NOT MEDICAL ADVICE - if you need medical help contact your own medical people. Only you knows how much you can take.

At the bottom of the page

The information provided on this site is not intended nor recommended
as a substitute for professional medical advice.

Perhaps you need to seek out sleepapnea.org or talkaboutsleep forums. They have sections on other options besides cpap.

[elg5cats]

You left out kitten killer.

... I told them I was going to kill a kitten

That's what I think it is, actually. I'm suffering side-effects of Feline Revenge.

How could I have known that God is a Cat, when God spelled backwards is Dog?

Geeze, my sincere apology........I failed to recommend Kat Treatment.............it does work for me...I absolutely love my FELINE TREATMENT....Pets have been found to be helpful in recuperation and outcome prognosis of diseases and treatment....research has demonstrated people who have heart surgery, discharged home where a pet is involved live longer and have fewer post surgical complications.
Charles, I don't necessarily have a wish for you to go away......but I think you do need to slow down, take a breath of fresh air and do a reality check. You report horrific life threatening concerns, have seen your MD who has recommended a plan you don't appear to disagree with, and are taking a break from the CPAP....If you don't think this is sufficient for what is going on with you, then perhaps you should dial 911 or have someone to drive you to a qualified ETC for more emergent assistance.

Keep us posted.

elk5cats

[DreamStalker]

You left out kitten killer.

... I told them I was going to kill a kitten

That's what I think it is, actually. I'm suffering side-effects of Feline Revenge.

How could I have known that God is a Cat, when God spelled backwards is Dog?

Geeze, my sincere apology........I failed to recommend Kat Treatment.............it does work for me...I absolutely love my FELINE TREATMENT....Pets have been found to be helpful in recuperation and outcome prognosis of diseases and treatment....research has demonstrated people who have heart surgery, discharged home where a pet is involved live longer and have fewer post surgical complications.
Charles, I don't necessarily have a wish for you to go away......but I think you do need to slow down, take a breath of fresh air and do a reality check. You report horrific life threatening concerns, have seen your MD who has recommended a plan you don't appear to disagree with, and are taking a break from the CPAP....If you don't think this is sufficient for what is going on with you, then perhaps you should dial 911 or have someone to drive you to a qualified ETC for more emergent assistance.

Keep us posted.

elk5cats

We only have 4 cats ... but we also have 2 dogs and 2 rats. We haven't had to call 911 a single time and we try and keep our pets away from Charlies ... especially now.

[elg5cats]

DreamStalker

You left out kitten killer.

Hey, DreamStalker, Save the Kitties, leave Kat Killer out of this!!!!!

[elg5cats]

We only have 4 cats ... but we also have 2 dogs and 2 rats.

DreamStalker: I'm down to 2 kats from 5 Himmies..........These last two are KoKo's (avatar) kittens who will be 17 in June!!!! I did get the cats a rat (well, hamster) a few years ago.....an exercise plan for cats/hamster/ball......well the cats were afraid of the hamster and the human became overly attached..........this household has done more than too many 911 runs to for the pets in the last few years..............otherwise, they are very protected, loved and great for sleeping.....cats are the best role models ever for sleep hygiene!!!!!!

elg5cats.

[Pugsy]

Not one of those symptoms... not one... had the slightest thing to do with my attitude. Not the slightest thing.

Severe reactions to CPAP therapy are not psychological.

I don't recall anyone ever telling you that your unusual symptoms were all in your head. I certainly did not. We have no idea if your symptoms were caused by the CPAP tx or heightened by the CPAP tx. You obviously have come to the conclusion that the treatment is the cause and until if or when you find out for sure, no one will really know.

You came to a forum where laypeople try to offer ideas and suggestions along with moral support. Not one person professed to be a medical professional. You asked questions and you got answers and ideas. Okay, some of the answers you didn't agree with. That is well within your right. All comments here are merely ideas and suggestions and not meant supercede good common sense or physician's orders. You have final control over your body and what suggestions you wish to implement or not. This is where "attitude" comes in. To make myself perfectly clear here, I am not talking about loving your mask or hating something or toughing it out. I am talking about the attitude that comes with taking control of your life/treatment/diagnosis/prognosis/symptoms, etc. How do you wish to face these challenges. That is the attitude that I am talking about.

Your first comments to me were full of sarcasm. You don't feel like you were putting words in my mouth. So be it. I feel like you were insinuating that I thought all those horrible things about you when I never even approached any of that. Where in the blazes did wife beating ever come into the equation?

I am sorry if I touched any nerves to cause you to expend so much energy being responding to my comments in such a manner. I do see your point (but no I do not agree with it) and won't insult you by saying that I understand what you are going through. I won't bother you any more. We obviously cannot see eye to eye and you need to concentrate on doing what is needed to improve your health and well being and not expend your energy nit picking what I say and justifying yourself. I truly do pray that you find what is needed for success in your treatment.
Brenda

[CharlesVer]

I was in chat the other night you were told by me to see your doctor - you whined about the copay (as you have whined about copay costs overall).

You were told to contact your doctor on Thursday and now you say you weren't told that. Now which is it?

This is a support group for cpap - we are here to help others through the journey we have gone through ourselves.

WE ARE NOT MEDICAL ADVICE - if you need medical help contact your own medical people. Only you knows how much you can take.

At the bottom of the page

The information provided on this site is not intended nor recommended
as a substitute for professional medical advice.

Perhaps you need to seek out sleepapnea.org or talkaboutsleep forums. They have sections on other options besides cpap.

I have been in the chat several nights, not just one night. I do recall, on one night, one person saying I should go to the doctor. That may have been you. That wasn't what the majority said.

Honestly, with all the sleep deprivation, the last week is a blur, so I can't tell you, "This is exactly what was said on Tuesday and this is exactly what was said on Wednesday and this is exactly what was said on Thursday, and this is the order in which each thing was said."

I do recall a general consensus the first night being, "Don't stop, not even to take a break, whatever you do!"

I pointed out, truthfully, that I am doing everything I can to bring my costs down because I'm going through a rough time financially.

I'm going my best. I'm not trying to burn bridges and make enemies. I am going through a very rough time, and have been since before the CPAP started, and especially during the CPAP process. I've done my best not to be rude..

and by the way, getting off the subject of my health and CPAP issues, if you took a look at my financial situation, you'd whine just at having to LOOK at it... please don't call my distress over my current situation "whining."

I get the general sense that you don't like me. That's fine. You don't have to like me. I'm going my best. That's all.

[CharlesVer]

You left out kitten killer.

... I told them I was going to kill a kitten

That's what I think it is, actually. I'm suffering side-effects of Feline Revenge.

How could I have known that God is a Cat, when God spelled backwards is Dog?

Geeze, my sincere apology........I failed to recommend Kat Treatment.............it does work for me...I absolutely love my FELINE TREATMENT....Pets have been found to be helpful in recuperation and outcome prognosis of diseases and treatment....research has demonstrated people who have heart surgery, discharged home where a pet is involved live longer and have fewer post surgical complications.
Charles, I don't necessarily have a wish for you to go away......but I think you do need to slow down, take a breath of fresh air and do a reality check. You report horrific life threatening concerns, have seen your MD who has recommended a plan you don't appear to disagree with, and are taking a break from the CPAP....If you don't think this is sufficient for what is going on with you, then perhaps you should dial 911 or have someone to drive you to a qualified ETC for more emergent assistance.

Keep us posted.

elk5cats

On the feline stuff, thanks for making me smile.

(Aside from jokes, not only do I not strangle cats, I'm an animal lover and have been known to rescue an animal or two in danger.)

Breath of fresh air would be nice. Reality check... well, reality has a way of biting me on the arse, and it's not paranoia if the whole world is really out to get you. (Yes, that was a joke.) Actually, while I'm very concerned about my physical health, and don't have total recall of all events and conversations, I do think I have a good grip on reality, but also have a lack of information that is disconcerting but will ultimately be resolved.

I'm not on death's door, don't need 911 (right now) but I do have fears regarding the cause of the pain in my lungs, fears I think are legitimate. I'll find out more when I see the specialist.

[jules]

When is the appt?

Have you started your list of problems / questions for them yet?

[ozij]

I am certainly interested in hearing how things turn out - and I'm sure anyone who has posted on this thread is.
We post because we care about other people - we don't stop caring.
And we also learn from each update.


O.

[CharlesVer]

No one here caused this.....when you shared the details, you were told (and I don't have time to find the quote...) that what you described was outside (either in intensity or detail) the garden variety speed bumps, and that you really should be having your docs investigate. Now.

Other conversations came between those times, in the evening, in the chat rooms. I don't remember everything that was said -- and some very nice people provided me with some great information -- but many people were urging me not to stop even while I was describing serious problems (and one person did say doctor, but I was dealing with so many conversations at once I think I missed it.) Then there were before-and-after times (especially after since my early stuff didn't get so deep) here when, for the few suggestions of doctor, there would be many others suggesting it's psychological, attitude, etc.

Honestly, though, I think at this point it would be best for all of us to move forward however.

Let me state for the record:

To all:

If I misrepresented anything you said, or the order in which things were said, I apologize.

Now, I hope we can all leave the "things said" in the past.

I will suggest (friendly request having nothing to with "things said in past" but with the future) that the stuff I said about "always advise doctor" to be a word to the wise, a word many of you follow anyway and may have already followed with me.

I'm really not a bad person, but those of you still not liking me, you don't know me, so what can I say about that, not much...I hope some people here are still okay with me...

I'm calling my doctor later, he should have contacted the specialist. Still have to write everything down, will do so before doctor visit thanks.

I'll check those other sites in the evening when possible... for now, I'm signing off, as always best to all...

[DreamStalker]

...
We post because we care about other people - ...

O.

... and kittens!

[elg5cats]

Honestly, though, I think at this point it would be best for all of us to move forward however.

Let me state for the record:

Uhm, something to be said about moving forward.........nice gesture .......but then the follow up.....getting the last word in before flight.

Actually, Charles. I am very interested to hear what the outcome of your situation is.... perhaps there is something to learn. I do hope you keep the group informed of the process and outcome of your situation.

elg5cats

[CharlesVer]

...
We post because we care about other people - ...

O.

... and kittens!

So I suppose you can't help if I tell you my Beagle snores and I'm concerned he might have Dog apnia?

(Lovely kittens picture though!)

[CharlesVer]

Honestly, though, I think at this point it would be best for all of us to move forward however.

Let me state for the record:

Uhm, something to be said about moving forward.........nice gesture .......but then the follow up.....getting the last word in before flight.

Actually, Charles. I am very interested to hear what the outcome of your situation is.... perhaps there is something to learn. I do hope you keep the group informed of the process and outcome of your situation.

elg5cats

Um... the follow up was an apology for anything I may have previously said.

Then just a friendly word about doctors, that I said wasn't about anything previously said, 'cause it wasn't.

All right, I'll respond to myself for apologizing.

Hey, CharlesVer, how dare you apologize!! You kitten strangling, hose-taker-offer, snake in the grass! CharlesVer, you lousy, no-good, rotten, sneaky, person you! And don't tell me what to say to people, you $^&*( And I say this with your best intentions at heart!

There. I flogged myself. But it was tough self-love.

(Wow. I do not like the way that last sentence sounded. It sounded like... never mind.)

Now we can put everything in the past.