General Discussion on any topic relating to CPAP and/or Sleep Apnea.
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SharkBait
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by SharkBait » Fri Feb 20, 2009 8:28 am
freepostg wrote:Those that have been with this forum for quite some time realize why we're all here. "Guest" did not pop up in order to truly help but rather to provoke. If anyone takes some decent time to read through some of the stickies and various helpful unbiased threads, it's not to difficult to see where and what our intentions are. He/she comes in as guest without a profile for a reason. This is an insecure person wanting attention ...and my advice to you all is to not give that attention. We are all responding to guest only and feeding the desire for attention; where most of us here post for the sake of helping others or because we in fact need the help of others. imho
That's one theory.
Another is that if you're a sleep tech or the likes, the attitudes of this board make you somewhat obsolete. Consider that if the sleep labs only dealt with first time cases and after that only serious cases where a few CM more or less of pressure isn't all that is needed. If everyone started operating under that scenario, what percentage of the current business would these people have left?
Life is full of risks. I think every time you merge onto the interstate your risk is much higher than if you bump your CPAP pressure 1 CM for a week so you can monitor your results and see if that gets your AHI back down under 3. That frame of mind scares the crap out of someone who makes their living off of people's ignorance.
The fact that GUEST is saying "you'll fall asleep driving a fork lift" because you titrated your pressure and your AHI went from 2.1 to 3.8 is indicative that he's scared shitless of the attitudes of this board. But he really should relax. By and large people are cattle and a very small % will actually go research and find out his little secret (that he's by and large useless...)
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nobody
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by nobody » Fri Feb 20, 2009 8:45 am
I think you're right, sharkbait! But I think that if they would change their attitude they would still be needed. How many of us spend weeks and months figuring all this stuff out? Getting the diagnosis can be very overwhelming in itself, but then having to try and get a machine and figure out how to use it most effectively while you're tired is quite a feat. The sleep techs are in the best position to help patients figure this all out. It's their own demise if they continue to be secretive and controlling. This therapy is still relatively new and I think it will move more toward patient control even if we have to take that control ourselves, which many of us are demanding and doing. The sleep techs and other sleep medicine providers can work with us or not, ball's in their court as they say!
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WearyOne
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by WearyOne » Fri Feb 20, 2009 9:01 am
SharkBait wrote:
Life is full of risks. I think every time you merge onto the interstate your risk is much higher than if you bump your CPAP pressure 1 CM for a week so you can monitor your results and see if that gets your AHI back down under 3. That frame of mind scares the crap out of someone who makes their living off of people's ignorance.
The fact that GUEST is saying "you'll fall asleep driving a fork lift" because you titrated your pressure and your AHI went from 2.1 to 3.8 is indicative that he's scared shitless of the attitudes of this board. But he really should relax. By and large people are cattle and a very small % will actually go research and find out his little secret (that he's by and large useless...)
This is sort of related! Sometimes I forget just how many people out there could care less about being involved in their own treatment and/or therapy for whatever medical conditions they might have. In sitting in and--a-hem--also voicing many questions during my husband's machine education at the DME, I asked if it was okay for me to remove the card to check his data since I had the software to do so, since he was coming back in two weeks with the machine and card for them to check it, I didn't want to mess anything up. (Keep in mind, most of the questions I asked I already knew the answer to. ) Anyway, she looked at me odd, then said she had to go ask. She came back and said that was the first time in her 13 years of doing that type of work that anyone's ever asked that. I think that's scary. (It's also scary that she was told to tell me not to download the data myself because then the data wouldn't be there anymore for them to download, and that I could "get a copy of the report" that they download. This was after I told her twice I would download it and not erase the card afterward.) I'll just get what I can from the LCD---for the time being anyway.
Uh, no one's going to fall asleep driving anything because of a 3.8 AHI. If they might, then the medical community needs to change their practice of not considering anything under 5 AHI a problem.
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ozij
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by ozij » Fri Feb 20, 2009 12:45 pm
SharkBait,
Guest posts are allowed because this a forum for people with medical problems, and we want even the most shy and paranoid to have the ability to ask something as a guest. We can handle the provocators when they come - and as we could see last week, provocation can be caused be registered users as well...
O.
And now here is my secret, a very simple secret; it is only with the heart that one can see rightly, what is essential is invisible to the eye.
Antoine de Saint-Exupery
Good advice is compromised by missing data
Forum member Dog Slobber Nov. 2023
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rested gal
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by rested gal » Fri Feb 20, 2009 1:32 pm
ozij wrote:SharkBait,
Guest posts are allowed because this a forum for people with medical problems, and we want even the most shy and paranoid to have the ability to ask something as a guest. We can handle the provocators when they come - and as we could see last week, provocation can be caused be registered users as well...
O.
Exactly. I agree. I have no problem with seeing Guest posts allowed on this board.
My thought in this thread:
viewtopic/t11345/viewtopic.php?p=94604#p94604
What is your preference regarding allowing "Guest" postings?
July 2006
I wrote:
Pitching my two cents in with Den... before it costs more!!
I also agree with Bonnie:
"When I read post from a guest and it is articulate, thoughtful and informational do I really care that the person wishes to be a guest? No."
I think allowing guests to post is a good thing on this board. Registering may seem like a simple thing to do for those of us who are accustomed to using the internet and participating in message boards. However, I can see where a person who might not be very comfortable with "internet stuff" - perhaps all they ever do is email and look at a couple of favorite websites - might be very reluctant to "register" for ANYthing on the internet.
If they've found this message board in a desperate search for help before dropping out of treatment completely, I believe the easier it is for them to make their first post, the better.
Oops, the meter sez I went over 75 cents!
ResMed S9 VPAP Auto (ASV)
Humidifier: Integrated + Climate Control hose
Mask: Aeiomed Headrest (deconstructed, with homemade straps
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roster
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by roster » Fri Feb 20, 2009 5:08 pm
DreamStalker wrote:Guest wrote:Dreamstalker- perhaps you need to change your blood pressure meds because you are self adjusting your PAP pressure(s) and your apnea is no longer treated effectively, which in turn, is adversely effecting your blood pressure.
You are an anonymous ass! You don't know anything about me or my treatments and here you are making wild assumptions online about my apnea not being treated effectively and having adverse blood pressure. You should be shot by your own standards for medical professionalism.
Now there is a great reason for allowing Guest posts: I thoroughly enjoy reading DreamStalker's reply.
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rested gal
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by rested gal » Fri Feb 20, 2009 6:37 pm
rooster wrote:Now there is a great reason for allowing Guest posts: I thoroughly enjoy reading DreamStalker's reply.
*snicker* I did, too.
ResMed S9 VPAP Auto (ASV)
Humidifier: Integrated + Climate Control hose
Mask: Aeiomed Headrest (deconstructed, with homemade straps
3M painters tape over mouth
ALL LINKS by rested gal:
viewtopic.php?t=17435
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SaltLakeJan
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by SaltLakeJan » Fri Feb 20, 2009 7:56 pm
Hi Everyone.
I was disturbed about an issue in my sleep study. In Technologist Comments, he noted the ECG lead had a poor connection so it was difficult to access the HR. Recording start time was 22:05.25. Lights Off Time: 22:36.55. Sleep latency was 67.5 minutes.
Should the time lapse have given the Technician ample opportunity to check the integrity of all leads? I was the only patient, there were two technicians. I did include High Blood Pressure and Diabetes in medical history.
Perhaps a sleep technician can give an informed answer. As a layperson, I think the Heart Rate would be an important consideration.
SaltLake Jan
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SharkBait
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by SharkBait » Fri Feb 20, 2009 8:24 pm
rooster wrote:DreamStalker wrote:Guest wrote:Dreamstalker- perhaps you need to change your blood pressure meds because you are self adjusting your PAP pressure(s) and your apnea is no longer treated effectively, which in turn, is adversely effecting your blood pressure.
You are an anonymous ass! You don't know anything about me or my treatments and here you are making wild assumptions online about my apnea not being treated effectively and having adverse blood pressure. You should be shot by your own standards for medical professionalism.
Now there is a great reason for allowing Guest posts: I thoroughly enjoy reading DreamStalker's reply.
Touche...
Encore Pro 1.8.49; Encore Pro Analyzer 0.8.9 by James Skinner
SnuggleHose - Got the 8 foot and cut it down to 6, used the rest for mask hoses.
Memory Foam Pillow - Cut my own out of my Tempur-pedic pillow. (works great!)
Hose Mgmt - Velcro Tie Strap
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SaltLakeJan
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- Location: Salt Lake City, Utah
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by SaltLakeJan » Fri Feb 20, 2009 10:12 pm
Hi everyone
I posted off-topic about my sleep study - The topic was Ajust Your own Pressure: I don't know where my brain was at that momment - It may have taken a vacation, because it wasn't with me. Sorry about that.
Jan