I'm so tired. My Dr. increased my pressure to 11 yesterday and I'm more tired than every. My Swift irritated the bottom of my nose...it actually rubbed the skin off (ouch) that's never happened before.. Then I had a terrible nightmare that my son died and it was all my fault. It was horrible!!!! I was so upset when I woke up that I just started sobbing. My poor husband had to try and calm me down. I don't think I like a pressure of 11. It's going to be a very long day.
Amy
A bad night
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I'm right there with you!
Amy-
Hang in there. You are doing everything right! I'm not going to tell you to look on the bright side. I'm going to tell you to have a pity party for yourself. Then look on the bright side. Get a Smart Ones treat from the grocery store. The desserts are great, and not many calories. I would have one if I could leave my house today. But, I can't. Because, my oldest now has chickenpox. Yes, we must have had a different virus last week with the fevers. My oldest has chickenpox and the younger woke up at 2 vomiting. Between that and my mask leaking like crazy and my cable being out and my son shredding something important and the yellowjackets last week and me starting back to work tomorrow and needing to have my classroom ready by Monday, I am thinking about running away from home. Would you like to join me?
Anyway, all kidding and whining aside, I'm really glad you are here and you are sticking with treatment so well. By the way, did you ask the pulmonologist about your PLMD and if he thought it should be treated? Did he consider an APAP so he could follow your pressure needs for a couple of weeks? I'm sorry you are having a difficult time today. Hold on to the good days you've had and this, too, shall pass.
Take care.
Sue
Hang in there. You are doing everything right! I'm not going to tell you to look on the bright side. I'm going to tell you to have a pity party for yourself. Then look on the bright side. Get a Smart Ones treat from the grocery store. The desserts are great, and not many calories. I would have one if I could leave my house today. But, I can't. Because, my oldest now has chickenpox. Yes, we must have had a different virus last week with the fevers. My oldest has chickenpox and the younger woke up at 2 vomiting. Between that and my mask leaking like crazy and my cable being out and my son shredding something important and the yellowjackets last week and me starting back to work tomorrow and needing to have my classroom ready by Monday, I am thinking about running away from home. Would you like to join me?
Anyway, all kidding and whining aside, I'm really glad you are here and you are sticking with treatment so well. By the way, did you ask the pulmonologist about your PLMD and if he thought it should be treated? Did he consider an APAP so he could follow your pressure needs for a couple of weeks? I'm sorry you are having a difficult time today. Hold on to the good days you've had and this, too, shall pass.
Take care.
Sue
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yawn...I started my pressure at 10 then they changed it to 11 because I still wasn't sleeping well....I didn't do good on 11. I seemed to have problems with my stomach and alot of heartburn feelings, so I put it back down to 10 and have done better since....I know my stomach feels better. I also have good nights and bad. Last night was a bad night for me also. Hang in there...it can be so frustrating.
ITeach...are you still doing the chickenpox thing...gee...I remember when I babysat kids for a living and my daughter started with chickenpox and it went through all the kids I babysat..I was dealing with chickpox for over 2 months and by the end of it I was soooo sick of chickenpox I never wanted to see it again. You hang in there too...things will get better. Good luck back at school.
ITeach...are you still doing the chickenpox thing...gee...I remember when I babysat kids for a living and my daughter started with chickenpox and it went through all the kids I babysat..I was dealing with chickpox for over 2 months and by the end of it I was soooo sick of chickenpox I never wanted to see it again. You hang in there too...things will get better. Good luck back at school.
*** Linda ***
Linda-
Yep, still doing chickenpox. It wouldn't be so bad because he feels pretty good, except I have been stuck home almost all summer between ankle surgery, my shingles, and now the pox. And the youngest hasn't gotten it yet! Ugh! Thanks for your concern and encouragement.
Amy-
Sorry. Didn't mean to take away from your discussion. I just need to learn when to keep my mouth shut. You keep hanging in there!
Sue
Yep, still doing chickenpox. It wouldn't be so bad because he feels pretty good, except I have been stuck home almost all summer between ankle surgery, my shingles, and now the pox. And the youngest hasn't gotten it yet! Ugh! Thanks for your concern and encouragement.
Amy-
Sorry. Didn't mean to take away from your discussion. I just need to learn when to keep my mouth shut. You keep hanging in there!
Sue
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Hi Sue and everybody else!
You win hands down....my gosh you've had a really tough summer. I missed the story about the yellow jackets...I can only imagine. You know, someday this all has to end for you and then you'll have nothing but good luck for a very long time!
I just got back from moving my daughter into college...she's my 1st to go.... I was doing ok saying good-bye...the tears started after I got in the car but they didn't last long.
I will admit that all day long,I've been dreading going to sleep tonight. I pulled out my Activa mask just in case the swift hurts too much. I'll see how tonight goes but I may have to figure out how to reduce the pressure on my machine. I talked to my hubby abou the pulmonologist I saw yesterday and he agreed that it's time to find somebody that can answer my questions. Sue, I did talk to him about plmd but he never really said much. He asked me if it wakes me up and I told him I didn't think so. He kind of dropped it after that. He really didn't do much for me.
I'm exhausted...time to face the machine and hope I have a dreamless sleep (I've been wishing for that for years....it never happens).
Good night! Amy
You win hands down....my gosh you've had a really tough summer. I missed the story about the yellow jackets...I can only imagine. You know, someday this all has to end for you and then you'll have nothing but good luck for a very long time!
I just got back from moving my daughter into college...she's my 1st to go.... I was doing ok saying good-bye...the tears started after I got in the car but they didn't last long.
I will admit that all day long,I've been dreading going to sleep tonight. I pulled out my Activa mask just in case the swift hurts too much. I'll see how tonight goes but I may have to figure out how to reduce the pressure on my machine. I talked to my hubby abou the pulmonologist I saw yesterday and he agreed that it's time to find somebody that can answer my questions. Sue, I did talk to him about plmd but he never really said much. He asked me if it wakes me up and I told him I didn't think so. He kind of dropped it after that. He really didn't do much for me.
I'm exhausted...time to face the machine and hope I have a dreamless sleep (I've been wishing for that for years....it never happens).
Good night! Amy
Amy, How was last night? I hope better! You have been such an encouragement to so many of us here. Keep at the Drs until you are happy with them. It sounds to me like this new one didn't take the time to listen to you like he should have. I still think the PLMD is something you should look into. I didn't know it was waking me up, either. But, since starting Mirapex, I am doing much better. It may not be your problem, but it doesn't sound like just bumping your pressure up is working for you. Perhaps a neurologist would be a good choice? I see one for all of my sleep issues. She seems to have a good handle on all of the elements playing a role.
Hang in there. By the way, I cried when I was left at school and my mom cried when she left. The time she is gone will go quickly for you. And, now with the internet, you won't have huge phone bills like we did!
Take care.
Sue
Hang in there. By the way, I cried when I was left at school and my mom cried when she left. The time she is gone will go quickly for you. And, now with the internet, you won't have huge phone bills like we did!
Take care.
Sue
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Janelle
Yawn, but you DID DREAM. That means you are having REM stage. But remembering it so vividly means you awakened soon after. It is better, means you have better sleep if you dream and only vaguely remember dreaming but not what about. So maybe 11 is a better pressure for you.
Too bad we can't convince these Docs that a constant pressure is not necessarily a good thing and to only prescribe APAP which can work either way.
As far as his not addressing the Leg Movement problem, I think you showed why. If they are not waking you up, he didn't feel they were important. They could only be arousing you enough to disturb a deep sleep, but they are still a problem. I think your husband is right, you need to find a different Dr.
The people on this forum are great for coming up with recommendations in various parts of the country. You never know how close some of us might live to you.
Too bad we can't convince these Docs that a constant pressure is not necessarily a good thing and to only prescribe APAP which can work either way.
As far as his not addressing the Leg Movement problem, I think you showed why. If they are not waking you up, he didn't feel they were important. They could only be arousing you enough to disturb a deep sleep, but they are still a problem. I think your husband is right, you need to find a different Dr.
The people on this forum are great for coming up with recommendations in various parts of the country. You never know how close some of us might live to you.
Hi Sue, I pretty much collapsed into bed last night. The Swift hurt my nose too much so I reluctantly switched to the Activa. Sometimes I find the Activa bothersome when I sleep on my side but it was ok last night. Still had disturbing dreams...very vivid...I've had them for years though so I guess I'll just have to accept them. They're just so bizarre. Anyway, I slept well until 5:30. Got up for a quick potty run...jumped back into bed and couldn't refasten my mask. I tried and tried and tried. I was getting so mad I finally threw it all on the ground. I laid in bed fuming and then thought....this is stupid...why am I so mad. Get up and have a cup of coffee...so I did.ITeach wrote:Amy, How was last night? I hope better! You have been such an encouragement to so many of us here.!
I want to thank you for the compliment. It's really nice to know that I've helped others. Lately I feel like all I do is complain about all of this. I think I just have too much going on in my life.. My daughter was sick yesterday when we brought her to college. I kept worrying about her and then finally just called her. Luckily she was feeling much better....phew! How are your kids doing? Did you go back to school?? I just started a job as a secretary in an elementary school...I just love seeing those little kids...they're so cute!! I really struggled to stay awake today though...that's so frustrating for me. I ended up drinking more caffeine that I wanted just to try and keep my eyes open.
Oh well..I'm rambling. Thanks for your note!
Amy
Thanks for the encouragement Bill!! Hope you get home soon.WAFlowers wrote:Amy, I'm sitting in my hotel room playing catchup on all the messages posted.
Hang in there girl! If your night was that bad then somewhere ahead there is a good night waiting to happen.
That's my philosophy and I'm sticking to it!
Amy
Amy-
Kids are getting better. I've had meetings for 2 days then school starts on Monday. I'm glad to hear your daughter is doing better. I'm sorry you are so frustrated with your treatment. How has your weather been lately? I find I'm much more tolerant of my mask when it is cooler out. Okay, I'm more tolerant of my life when it's cooler out. I'm glad you enjoy the kids at school. Hopefully you will remember them when their parents call yelling at you. Or, maybe they don't do that in Indiana? Anyway, hang in there. You're doing great. It will get better with time.
Sue
Kids are getting better. I've had meetings for 2 days then school starts on Monday. I'm glad to hear your daughter is doing better. I'm sorry you are so frustrated with your treatment. How has your weather been lately? I find I'm much more tolerant of my mask when it is cooler out. Okay, I'm more tolerant of my life when it's cooler out. I'm glad you enjoy the kids at school. Hopefully you will remember them when their parents call yelling at you. Or, maybe they don't do that in Indiana? Anyway, hang in there. You're doing great. It will get better with time.
Sue
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Hey Sue,
HHH...Hot, Hazy and HUMID!!!!!!!!!!!! The weather's lousy. We're supposed to get storms tonight and tomorrow and then hopefully, a cold front. I hate to see summer end but I've had enough humidity.
Parents in Indiana do yell and complain....a lot!! I live in an affluent town so the more money they have, the more complaining they do. I don't care....I'll just smile and listen...what else can I do.
Amy
HHH...Hot, Hazy and HUMID!!!!!!!!!!!! The weather's lousy. We're supposed to get storms tonight and tomorrow and then hopefully, a cold front. I hate to see summer end but I've had enough humidity.
Parents in Indiana do yell and complain....a lot!! I live in an affluent town so the more money they have, the more complaining they do. I don't care....I'll just smile and listen...what else can I do.
Amy
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