DreamDiver wrote:So this machine is great for detecting centrals, but won't actually correct centrals over 10cm pressure, right? Anne, I'm glad we could get a look at your numbers. As Snoredog and others suggest, this may not be the machine for you. We've served two purposes with the thread - giving you perspective on your therapy and giving the rest of us perspective on a really super cool new machine.
DD - 2 clarifications:
1) This machine won't
correct any central's - but it will make sure not to deliver pressure above a certain preset pressure if the event is an (obstructive) apnea.
2) As for the 10cm: If you're in APAP mode, you can set the maximum pressure at which it responds to apnea's. Let's say you're running at 7-12 APAP (too wide a range IMO but useful for the example). It could be that at above 10cm of pressure,
obstructive apneas turn into central apnea's, so you can set the machine so that above 10cm, it does not respond to apnea's, and will only respond (increase pressure) when it detects hypopneas, snores, and flow limitations. 10cm is the default value for that setting. Alternately, maybe you start getting central's at 9cm -- you can then set the value for limiting responses to apneas to 9cm. Between 7 and 9 cm, it will increase pressure in response to
all events. Between 9cm and 12cm it will increase the pressure to only H's, Runs, and Snores. This is called the "command on apnea" setting in the 420E, and I assume also the Sandman Auto.
And thank you for helping out Anne and posting all that info, DD!
Anne -
Snoredog's right about the GERD.... in fact some call it "silent GERD" because it can cause sleep problems without your noticing it, and even if you don't have reflux during the day.
Personal anecdote: My therapy has felt like it wasn't working even though my AHI was acceptable - last 3 nights I've taken an acid reducer for the GERD and 2 of the nights I slept soooooo well and didn't wake up with the bad taste in my mouth in the morning.
Through some mechanism(s) I'm not yet completely sure of (but there are many posts on this topic in the forum), GERD affects OSA and OSA therapy very negatively, and it seems that people using CPAP tend to get (silent) GERD due to the air increased pressure.
So first thing I would do - go talk to your GP, or preferrably a Gastro-Intestinal specialist, about GERD. I would encourage you to also get an endoscopy/gastroscopy to make sure any GERD that you do have is not damaging your esophagus (it can lead to cancer after years of acid exposure).
Second thing to do (after hiring a hitman for your previous doc - ha ha just kidding )... and in addition to what snoredog already suggested about getting a pulse-ox (I would strongly encourage you to get your hands on one)... find another doctor and/or sleep clinic that can help you through this. If you do have complex sleep apnea, then possibly a CPAP or an APAP will not be sufficient for you.
In the meantime, I was thinking maybe you should lower your command on apnea to something like 7 or 8, and disable IFL1 (because you're shallow breathing, and my understanding is that those can also be marked as flow limitation runs, even though they're not). But I wouldn't do this unless you first have some data as to how your AHI responds when you run at 7 or 8cm straight CPAP. Have you tried that yet on the Sandman? It would be very useful to see how your CA's respond to the straight pressure, and to see how many Obstructive Apnea's you still have left at that pressure. I guess it can't be any worse than it is now???
Conventional wisdom (or recent posts??) seems to indicate that CA's produce more O2 desaturation than obstructions, and/or they are longer in duration.
In any case we are just shooting in the dark, IMO. I think you need to find a good doc that can help you with complex SDB.
Also, you still have a legal right to all your files, even from the doc you fired. Depending on how you want to approach it, either call, or write them a signature-certified letter asking for your complete files. Under HIPAA you have a right to request and receive this information, so don't feel bad or scared about asking for it!!