Turning Off Aflex and Cflex

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
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rested gal
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Re: Turning Off Aflex and Cflex

Post by rested gal » Fri Oct 24, 2008 8:32 pm

DoriC wrote:RestedGal, I know you've explained this before but can you tell me why you advise opening the max to 20, I was told here to keep the spread tighter( I'm on overload so forgot the reason why). We're set at 11-15, titrated at 13, but sometimes his 90% is at 15, so should I change the settings? We've been at these settings from the beginning, haven't changed anything because we were dealing with mask issues. The UMFF seems to be working out better now.
There's no particular reason for you to change the settings or raise the max up past 15 since your husband is doing nicely with that range of pressure and he has had quite a battle with leaks before. Glad to hear he's doing better with the mask.

If I were hitting the max pressure sometimes (as he obviously is, or the 90% wouldn't include it) I'd want to raise the max, but that doesn't mean you all should. I also believe in "if it ain't broke, don't fix it."

Ok, about "narrowing the range".... I'm gonna take a deep breath here and copy/paste part of a long email I wrote to someone recently who asked essentially the same thing. Doesn't mean my opinion is right. Everyone's different, so what I happen to think would work fine for most people (not ALL -- there are always exceptions) isn't necessarily so. I'm sure not a doctor or anything in the health care field.

From my email to someone, with some editing for clarity:

Unless a person is having massive leaks that are causing a machine to have to use more and more and more pressure to cope with the leaks, I don't think there's any particular reason for not setting the max at 20. You can see from your own data that the machine is never having to use anything even close to 20 for you. So...it doesn't matter that all that unused ceiling is "up there". It's available but isn't even being used. The "20" up there doesn't affect anything about the operation of the machine in using the pressures it has been using for you.

I think there has been a long time misperception on the message boards about what "narrowing the range" means. Most people who are given an autopap... the machine is prescribed at 4 - 20. It's that minimum pressure of FOUR that causes most people trouble...and causes an autopap (and the bipap auto if "auto bilevel" mode is turned on) to not be able to treat people well. Autopaps (and the bipap auto) can't prevent apneas well with a VERY low minimum pressure. They really need to have the minimum pressure (min EPAP for the BiPAP Auto) set high enough to keep the throat well and truly open during exhaling. A pressure of 4 is just too low to do that for most people.

Because autopaps are designed to raise and lower pressure slowly -- not yo-yo pressure changes up and down abruptly -- the autopap (or bipap auto) set with a minimum very low can run a losing race trying to reach the pressure really needed when sudden, hard apneas hit. Like if a person turns onto his/her back, or goes into REM. Or, worst case scenario, both things together...on your back AND in REM.

So... when people report better success because they "narrowed the range" (they raised the minimum pressure AND dropped the maximum pressure all at the same time), what probably REALLY gave them better results was the fact that they had raised the minimum. Dropping the max likely had nothing to do with it. They were simply dropping the unused max down into yet another area where pressures weren't being used anyway.

For example, say a person posted he was getting an AHI of 8 . And that he was using a range of 4 - 20. And the most pressure his autopap had gone up to was 13 occasionally. He had the software to see that "13" was the most the machine had ever hit with him. Ever. I'd say set the machine at 10 - 20. (No particular reason for my choosing "10"...it just happens to be the pressure that statistics have shown keep the airway open, preventing apneas, for most people.)

If the person set the machine that way --
10 - 20 (narrowing the range only by raising the minimum pressure) you can bet they'd almost surely get a lower AHI than the AHI they had been getting with the machine set at 4 - 20. And the machine probably still isn't going to go above 13.

Also, if the person set the machine at
10 - 15 ("narrowing the range from both ends") instead of 4 - 20, again you can bet they'd get a lower AHI than the AHI they had been getting. And the machine still probably isn't going to go above 13.

Any which way.... 4 - 20, 10 - 20, or 10 - 15 .... 13 is the most pressure the machine is probably going to use, so it doesn't matter whether there are two cm's of UNused pressure available up above, or 10 cms of UNused pressure available up above. Or 16...or 100.

It doesn't matter whether the max is set at 20 or at 15.... unused pressure up there is simply that...unused. The person wasn't hitting 15 before, nor will he hit 20. So, it doesn't matter if the max is set for 20.

The improvement in AHI most people will see when they "narrow" the range by raising one end and dropping the other end is most likely because of raising that minimum end up to where it could actually do better preventative work. Dropping the max down from one unused pressure to another unused pressure most likely had nothing to do with the improved AHI.

But because so many people "narrowed the range" on both ends at the same time, and saw good results.... BINGO! The idea that the top needs to be lower than 20 keeps getting talked about, when it was that bottom pressure being raised that actually created the better AHI results.

All that said, I'd add this in defense of the idea of "narrowing the range" on both ends. For people who don't have the software and can't get a graphical look at their leak rate, they are flying blind, even if they can see "averages" data in the machine window. Those people that don't have software would be better to set a range about 2 cms below their single prescribed pressure and 2 or 3 cms above it.

That way, if they are having terrible leaks, the machine would be limited in how high it was going to raise the pressure. More pressure and more pressure could just make the leaks worse....like water spurting through a tiny hole in a dam making the hole bigger and bigger...same thing could happen to a mask leak if the machine thinks it's seeing a reduction in YOUR airflow and raises the pressure to try to "treat" that. More pressure might just blow out a wider leaky area. More pressure - bigger leak, and so on, to no avail.

A person who has the software can see if their leaks are controlled decently and are not driving pressure up. That can be hard to "see" on the graph .... can be like "which came first, the chicken or the egg?" If the machine moves to a higher pressure to control events, the leak rate IS going to go up accordingly. The mask's vent rate is supposed to increase as pressure increases. So, it can LOOK like a leak drove it up, when it was really a normal increase in the exhaust vent because of more pressure actually needing to be used to improve the breathing.

Anyway, you don't need to worry about the max of 20. You're never hitting anywhere even near it.

A word about "bad nights". Even if treatment settings are fine, there can be nights that are "worse"...data wise -- or even if the data looks fine, a person can feel lousy the next day. There can be tons of other health issues going on that can cause that. Pain causing micro arousals (disrupting sleep even if not waking a person up) all night can do it, even if a person had a 0 AHI on the data.

There can be soooo many factors interfering with refreshing sleep, even if "cpap" treatment is doing its part of the job like a champ.

There can also be occasional nights of terrible looking data. More often than not, leaks are the culprit, but not always.

Hope your treatment goes smoothly for you on most nights!
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DoriC
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Re: Turning Off Aflex and Cflex

Post by DoriC » Fri Oct 24, 2008 8:44 pm

Dream Driver, I guess that's what's been at the back of my mind, just couldn't describe it, but it's not only the ICU sound(Babette's description) that's bothering me, but my husband's breathing does seem to be faster than normal, as though he's playing catch-up with the machine, so that's why I've been zeroing in on the flex settings. It's a difficult situation for me because I'm not wearing the mask and I can't get much feedback from my husband, he seems to go along with any setting I try for him. I did change the setting tonight to Aflex=1, and his breathing does seem a little slower but he just fell asleep so I'll check again later. Thanks for helping.

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stacia123
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Re: Turning Off Aflex and Cflex and CRASEERS

Post by stacia123 » Fri Oct 24, 2008 8:51 pm

DreamDiver wrote: My problem with the cflex is likely due to the algorithm it uses. The pressure relief with cflex is only for the beginning of the exhale. Yes, you get immediately relief as you exhale, but the prescribed pressure comes back a little 'early' before the next expected inhale. My autonomic brain tries to match the 'early' signal whether I'm asleep or not. I call it "Cflex-Related Autonomic Sympathetic Early Exhale Response Syndrome" or CRASEERS. Because of this, I end up breathing faster than normal while wearing a mask and using cflex.
I am so glad you said this, DreamDiver. I've been noticing that while I'm still awake I can hear the C-Flex kick in and increase pressure before I'm done exhaling, and it's really distracting. Sometimes I start inhaling before I'm ready to just because I'm unconsciously matching the rhythm of the C-Flex motor. I have no idea if I do this while sleeping, though. Until I read this, I thought it was just another quirk of mine.

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DoriC
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Re: Turning Off Aflex and Cflex

Post by DoriC » Fri Oct 24, 2008 9:01 pm

RestedGal, all I can say is "Wow". You've just given me (and all the other newbies) a crash course on cpap settings. It all seems to make a little better sense to me now. That said, I will up the max tomorrow night(he's sleeping now). Since I've never changed the settings before, should I do it by half centimeters(15.5) and see what happens from there?

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Re: Turning Off Aflex and Cflex

Post by DreamDiver » Fri Oct 24, 2008 9:10 pm

@rested gal, thanks for this excellent post.
@DoriC, Your husband is so lucky to have you to help him through the walking dead stage. Don't be afraid to turn it off entirely if turning cflex to 1 shows better AHI. Setting ramp for 5 to 10 minutes from a start pressure like 7.5 or 8 would ease the transition without the feeling of a 'full nose' when the machine is turned on. If the prescribed pressure is low enough, heck you may not even need ramp.
@Stacia, thanks.

I came up with an acronym half-heartedly in jest, but as I continued writing about it, I realized it was very true. It was like I was running a marathon in my sleep - out of breath. There's no need for that. I'm not out of breath in my mask anymore. I hope the theory helps others. I also help the feedback causes respironics to think more clearly about it for future machines. CRASEERS - It's unweildy. If anyone can come up with a better acronym we can change it.

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rested gal
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Re: Turning Off Aflex and Cflex

Post by rested gal » Fri Oct 24, 2008 9:27 pm

DoriC wrote:Since I've never changed the settings before, should I do it by half centimeters(15.5) and see what happens from there?
Please don't take my opinions as anything more than the opinion of another "cpap" user. I'm no doctor or health professional of any kind. I'm just another "cpap" user. I can certainly be wrong in my opinions. With that said (and I really mean it...I've been wrong many a time) I personally like to make changes in whole cm's, if I'm going to change a pressure setting on one of my machines.

So many factors can make "AHI" results look different from one night to another even if not a single thing is changed. So making nickle and dime little changes (like creeping up or down a half cm at a time) probably isn't going to make much difference...not enough to know if it was "the tiny change" that did it, or not. A full cm change might show a difference somewhat better -- for better or worse.

Unless a change in settings produced something absolutely unacceptable, I'd leave the change in place for at least three or four days, preferably a week. The other thing to remember about making pressure changes (imho) is that you shouldn't change other things during the experiment with a new setting -- no changes in mask, humidification setting, flex setting if any, ramp if any, sleep hygiene habits, meds, usual foods/drinks, pillow ... you get the idea.
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abinder
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Re: Turning Off Aflex and Cflex and CRASEERS

Post by abinder » Fri Oct 24, 2008 11:27 pm

DreamDiver wrote:Not everyone on CPAP has CRASEERS. However, I suspect there are more of us out there with CRASEERS than Respironics would care to admit. If you've hit a wall in your therapy, try turning off cflex altogether for a week. If you see a significant drop in AHI for that week, you have CRASEERS.

Edit - originally used 'inhale' as part of the acronym - it should actually be 'exhale'.
Yup. I've tried using Aflex and Cflex without much luck. Cflex worked better for me than Aflex. Aflex, seemed to want to 'control' my breathing - when I would inhale, it seemed like it would all of a sudden drop the pressure before I was done inhaling thus 'forcing' my to stop the inhale sooner than I normally would. This would cause my breathing to be faster than normal also.

Now that I don't use Cflex or Aflex, I've finally starting to be able to sleep longer periods of time using the CPAP. It's just nice knowing that with my Auto machine, I have to option of either using the Cflex, the Aflex, or nothing at all. (just have to access it through the 'clincians' menu).

Allen

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Re: Turning Off Aflex and Cflex

Post by Snoredog » Fri Oct 24, 2008 11:56 pm

DoriC wrote:We don't use ramp or HH anymore so that's OK. I will change the Aflex to 1 for a few nights and then to Off and see what happens. Can you tell me what your Apap settings are so I have a reference point?

RestedGal, I know you've explained this before but can you tell me why you advise opening the max to 20, I was told here to keep the spread tighter( I'm on overload so forgot the reason why). We're set at 11-15, titrated at 13, but sometimes his 90% is at 15, so should I change the settings? We've been at these settings from the beginning, haven't changed anything because we were dealing with mask issues. The UMFF seems to be working out better now.
What are you trying to fix?

The "type" of flex (Aflex or Cflex) is selected in Setup mode by Selecting Aflex/Cflex, then setting the default flex settings of: Off, 1, 2, or 3).

From the User button settings, you can only select 1, 2 or 3, you cannot turn it off from that mode. Aflex is the most comfortable but using the highest settings can cause your therapy to go down hill (at least for me it did). If you make a change, you have to sleep with them a while to notice the difference.

If it was my spouse, I'd let them find their own comfort settings. I would start at 2 with either flex. I also had to bump my Minimum pressure up by 1 cm going from Cflex to Aflex. If I use my 420e it is a full 1 cm lower than the Aflex. Both machine have been calibrated with a manometer for pressure delivery.

Before Aflex I would have said flex had no impact on therapy at all, but when I tried Aflex over a series of months it gradually returned to pre-CPAP days. Bumping pressure up by 1 helped, I couldn't stay at Aflex=3 but more than about an hour, it left me feeling very uneasy, setting 2 is just fine.
someday science will catch up to what I'm saying...

abinder
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Re: Turning Off Aflex and Cflex

Post by abinder » Sat Oct 25, 2008 5:51 am

rested gal wrote:Please don't take my opinions as anything more than the opinion of another "cpap" user. I'm no doctor or health professional of any kind. I'm just another "cpap" user. I can certainly be wrong in my opinions. With that said (and I really mean it...I've been wrong many a time) I personally like to make changes in whole cm's, if I'm going to change a pressure setting on one of my machines.
I personally appreciate your opinions though. Being a newbie, it's greatly appreciated to have your input!!!

Allen

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Re: Turning Off Aflex and Cflex

Post by SeaPappy » Sat Oct 25, 2008 8:15 am

DreamDiver,
I do believe you just may have put your finger on my higher AHI. When I first got this machine, I had turned off the BiFlex (a/c-flex counterpart) because it bothered me and my AHI dropped to 1.4. I came down with the flu and turned BiFlex back on for more comfort with pressure release, and since then my AHI has been around 3 and I can't seem to reduce it. Now that you have reminded me of where I took the wrong turn, I may be able to lower my AHI again. It seems that CRASEERS has been driving me CRAZIER than h*ll for the last 3 weeks.
Thanks for the reminder.

James
When I woke up this morning my girlfriend asked me, 'Did you sleep good?' I said 'No, I made a few mistakes.'
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DoriC
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Re: Turning Off Aflex and Cflex

Post by DoriC » Sat Oct 25, 2008 2:29 pm

Just to update, I did turn the Aflex down to 1, and hubby's breathing was much slower, normal and quieter as was the machine, his AHI was 0.9 and he stayed at 11-12 pressure all night. So all in all a good night. I followed your advice RestedGal and did not change anything else, kept settings at 11-15 which I'll stay with. Now if I can just figure out how to stop some Large Leaks that occur towards morning after about 7 hrs of sleeping, we'd be on our way. I'd like to use the Mack's Earplugs to see if that helps, if someone can explain how and where to apply it. My husband has no recollection of what is happening during the night. He says he slept well . He really cannot give any input into this process, he's much too overwhelmed by the whole thing and doesn't quite "get it", so I'm working in the dark on this, but thanks to all of you here, we're getting a handle on it and are starting to see the light.

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Re: Turning Off Aflex and Cflex

Post by Snoredog » Sat Oct 25, 2008 3:23 pm

DoriC wrote:Just to update, I did turn the Aflex down to 1, and hubby's breathing was much slower, normal and quieter as was the machine, his AHI was 0.9 and he stayed at 11-12 pressure all night. So all in all a good night. I followed your advice RestedGal and did not change anything else, kept settings at 11-15 which I'll stay with. Now if I can just figure out how to stop some Large Leaks that occur towards morning after about 7 hrs of sleeping, we'd be on our way. I'd like to use the Mack's Earplugs to see if that helps, if someone can explain how and where to apply it. My husband has no recollection of what is happening during the night. He says he slept well . He really cannot give any input into this process, he's much too overwhelmed by the whole thing and doesn't quite "get it", so I'm working in the dark on this, but thanks to all of you here, we're getting a handle on it and are starting to see the light.
can't beat a AHI of 0.9, give him a thumbs up from me!

and it's a guy thing
someday science will catch up to what I'm saying...

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Re: Turning Off Aflex and Cflex

Post by stacia123 » Sun Nov 02, 2008 2:52 pm

Wow Dori, 0.9 is great!

I wanted to thank you all for this thread, and for another thread where I got a lot of advice about leaks as well. I've been adjusting the C-Flex which the DME recommended be on the highest flex of 3. I dropped it down to 2 and my AHI went from around 4.0 to 2.6. Still not as good as I'd like it, so I'll drop it down to 1 for a week and see what happens. I may need to change pressure from 7 to 8 as Snoredog suggested.

As for the leaks, I've got the rate down to 29.1 (and 25 is what the chart says is the normal leak/exhaust rate) which I'm really happy about. Last night it was higher, probably because I found myself sleeping face down with my mask ajar

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Re: Turning Off Aflex and Cflex

Post by grandmma » Sun Nov 02, 2008 4:14 pm

I'm not mechanically minded (more software-oriented really) so I'm not sure why my c-flex suddenly has an "X" showing on the screen, and I cannot activate it again - at least not that I'm aware of.

It's made no difference to my treatment, the breathing is much the same, although I have noticed the machine is quieter. My #s have been lower since I switched from a Swift II (AHI 1.8 or so) to my Activa (0.5 or so). Presumed it was the mask swap, and although I've no idea when the c-flex switched off, I do think it is the mask. I love the lightness of the Swift, but can't get the damn thing to seal well no matter which pillow size I try. Leaks are always the same regardless of mask, c-flex, etc, so you've given me pause for thought!

PS Thanks Dream Diver & RestedGal, those great posts & information have really helped.
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Re: Turning Off Aflex and Cflex

Post by djrecon » Sat Nov 29, 2008 10:50 pm

Hi there,

My father has a BiPAP®Auto M Series with Bi-Flex machine, and asked me to go online and see if I could adjust the comfort settings as he feels the air is coming out to strong of his mask at night. We adjusted the Bi-Flex setting to 2 and then 3 (it was initially set on 1) and he feels it is still too strong. I read on this forum that it might be good to disable Bi-flex and adjust the "rise comfort" setting to accommodate this. Unfortunately this setting cannot be accessed until Bi-flex is disabled. And I have looked everywhere, and can't find a way to disable Bi-flex. Can someone please help? Thanks alot.

Erik Sorensen