College kids with OSA?

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
irishpeacock
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Re: College kids with OSA?

Post by irishpeacock » Fri Sep 19, 2008 2:40 pm

Pineapple wrote:
On CPAP a month with no relief? Something's wrong - have you told your doctor? Have you tried other masks?
Wulfman wrote:
Get a copy of your sleep study and go over it. There may be some other things in there that is being missed.
My mask is quite comfortable, I haven't had any problems with it. The problem I have is that I got diagnosed at the Stanford clinic in California over summer when I was visiting my parents. I study full time in Scotland, so it's difficult to keep in touch with my doc. I left the day after I got my machine, and didn't get a chance to go over my final study with my doc, they sent it to me in the mail. I'm trying to get into a clinic in Edinburgh, but it's a bit difficult and will take time (getting referred, paperwork, etc). I am concerned because on the study summary I got back it showed that in the 6 hours of sleep I got on the cpap there (and I felt really rested in the morning) I didn't actually get any REM. My first study I did get some, though very little stage 3/4. I think it might have had something to do with anxiety - I already take Lexapro for that. But no REM in that time, even on the Cpap? Has anyone had that? Should I be more concerned?

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fatfeminist
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Re: College kids with OSA?

Post by fatfeminist » Fri Sep 19, 2008 3:09 pm

i am still technically in college, though i dont attend right now nor do i live in a dorm.

im a female, and i was diagnosed last year at 25.

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rested gal
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Re: College kids with OSA?

Post by rested gal » Sat Sep 20, 2008 9:04 pm

-SWS wrote:Another interesting question would be how many people here think they might have had undiagnosed OSA when they were young adults.
I'm certain I've had it from at least my young teenage years, going by how many people commented on how loudly I snored.

When I was in college, every college roomate mentioned my terrible snoring. Even if "sleep apnea" had been on the radar, CPAP hadn't been invented yet. My college years were back in the long ago sixties. I never fit the popular profile for it, but I sure had it. Thank goodness for the internet and apnea message boards. Googling for "snoring" got me started on the road to good treatment. Late in life, but better late than never!!

-SWS, I agree absolutely!!!
-SWS wrote:I think college-age adults with effective apnea treatment are truly blessed.
College Girl! Good to see your post. Now if swordz and blarg would happen to notice this thread and chime in, it would be like a young'un's reunion!!
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RosemaryB
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Re: College kids with OSA?

Post by RosemaryB » Sat Sep 20, 2008 10:47 pm

irishpeacock wrote:
Pineapple wrote:
On CPAP a month with no relief? Something's wrong - have you told your doctor? Have you tried other masks?
Wulfman wrote:
Get a copy of your sleep study and go over it. There may be some other things in there that is being missed.
My mask is quite comfortable, I haven't had any problems with it. The problem I have is that I got diagnosed at the Stanford clinic in California over summer when I was visiting my parents. I study full time in Scotland, so it's difficult to keep in touch with my doc. I left the day after I got my machine, and didn't get a chance to go over my final study with my doc, they sent it to me in the mail. I'm trying to get into a clinic in Edinburgh, but it's a bit difficult and will take time (getting referred, paperwork, etc). I am concerned because on the study summary I got back it showed that in the 6 hours of sleep I got on the cpap there (and I felt really rested in the morning) I didn't actually get any REM. My first study I did get some, though very little stage 3/4. I think it might have had something to do with anxiety - I already take Lexapro for that. But no REM in that time, even on the Cpap? Has anyone had that? Should I be more concerned?
There's also a good chance that your anxiety will get better once you successfully use the cpap.

As you might already know, REM is important to remembering things, so getting this worked out will help you in school a lot. Do you have the full study with all the graphs and charts? If so you can post it here and get some feedback from some good folks. Then if you get a data capable machine and the software to use it, you can post the results here and get some information.

Most doctors know very little about cpap and the machines, how to get successful treatment, etc. I believe Stanford is an exception, from what I read on this forum anyway. But the Eninburgh doc may not know as much.

I think young people with OSA are way underdiagnosed. That roomate who snores, that guy who falls asleep in class all the time, that student who cannot concentrate or remember things. . . I think a sleep disorder should be considered in all those cases. I'm much older than you, but suspect I had it most of my life. I remember dreams in early childhood that I was drowning and could not breathe. Because I wasn't overweight and was a woman, the first doctor I asked said I didn't have it. This was based on a stereotype, and age is another one of those things. Finally a different doctor sent me to be tested, but I wasted 5 years. You may eventually have more company than you think, once the doctors catch on. . .
- Rose

Thread on how I overcame aerophagia
http://www.cpaptalk.com/viewtopic/t3383 ... hagia.html

Thread on my TAP III experience
http://www.cpaptalk.com/viewtopic/t3705 ... ges--.html

numom1
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Re: College kids with OSA?

Post by numom1 » Sun Sep 21, 2008 4:10 pm

Well, I'm a newbie to this forum and cpap in general, as I just started using the machine about a month or so ago. I do know that I've probably had OSA at least as long as the beginning of college (about 18 years ago now). I don't know how many classes I had where I had to literally fight to stay awake and how much driving I did where I was fighting the same thing constantly. This was especially a problem as I commuted during some of my college years. I've always been overweight but wasn't too considerably overweight during those years - no, that happened after having 3 kids... My OSA improved considerably after I had my tonsils out at age 31, but as per my presence here, still didn't fully go away, but did get better. My grandmother and my father also both have OSA and cpap machines so it definitely runs in my family.

Laura

looking4zzzz
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Re: College kids with OSA?

Post by looking4zzzz » Sun Sep 21, 2008 7:34 pm

I can't give you any personal help, because I am WAYYYYYY past college age, but I can tell you you are not alone. Last night our local television station, that runs a monthly medical info series on different conditions did their feature on sleep disorders with a heavy emphasis on sleep apnea. There was a high school athlete who spoke about how much CPAP had helped him. There were even a few really young kids shown in the sleep studies. Like someone said, OSA knows no age boundaries. The rest of us may not be as young as you are, but we can definitely relate to what you're going through. Good luck.

JayC
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Re: College kids with OSA?

Post by JayC » Mon Sep 22, 2008 12:37 am

SDB since puberty....according to my assessment. And multiple insomnias prior to age 8....although, back at 8, I didn't wake up foggy.

In my mid/late 20s, I went to doc SPECIFICALLY to get fatigue/fogginess investigated...... "...for whatever reason you are not getting restorative sleep...<shoulder shrug> (literally!!)"......this was after some lab/blood work and taking history. Sent me home without even a lead about sleep hygiene!!

So, here I am, in my late 40s..... finally getting XPAP for nightly desats(mid 80s), although few to none apneas (unless I am sleeping on my back.....little mouth, and big tongue I was told after one sleep study) (can't remember if they even recorded o2 stats on that one 6 years ago....?? )
And, so, here I am still working on a college degree..... anf finally, slowly addressing the sleep debt of 30+ years. And moving towards founding/running a stained glass business.

Get tested, get treated, and ENJOY your life........you have treatment options which did not exist for many of us. And get your power options worked out so you can even take your XPAP camping.....I'm saving my $$ to do just that....


J

irishpeacock
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Re: College kids with OSA?

Post by irishpeacock » Mon Sep 22, 2008 3:33 am

JayC wrote: In my mid/late 20s, I went to doc SPECIFICALLY to get fatigue/fogginess investigated...... "...for whatever reason you are not getting restorative sleep...<shoulder shrug> (literally!!)"......this was after some lab/blood work and taking history. Sent me home without even a lead about sleep hygiene!!
I had the same thing with the NHS here. They wouldn't do anything and basically told me I wasn't trying hard enough to sleep well. I went to California to get diagnosed over summer after I had to withdraw from my studies 2 terms in a row from sleep deprivation.

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dmstangu
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Re: College kids with OSA?

Post by dmstangu » Mon Sep 22, 2008 12:05 pm

Eh... I just wish I had been diagnosed when I was 20... Maybe I wouldn't be struggling now, 13 years later, with 100lb of extra weight and high blood pressure... One thing that gives me hope and motivates me a little is the KP commercial here http://www.youtube.com/watch?v=P7O693mzp6M "Things are lookin' up!" Cracks me up every time

DMS
"Better to remain silent and be thought a fool, than to speak up and remove all doubt..." - A. Lincoln

knathdrak
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Re: College kids with OSA?

Post by knathdrak » Mon Sep 22, 2008 2:59 pm

Pineapple wrote:Irishpeacock,

On CPAP a month with no relief? Something's wrong - have you told your doctor? Have you tried other masks? Your mask is the holy grail to your treatment. If it's not right you don't succeed. I agree with Wulfman about the Data Capable machine, I took a turn for the worst about 6 weeks into treatment. Forget about my doctor, he didn't seem interested in helping me, and wouldn't write me a script of a data capable machine. My DME tried to help by trying different masks. I finally gave up and purchased a data capable machine out of pocket on auction. I don't regret it - I now have my mouth leaks and pressure under control.

In answer to SWS's question - I have been symptomatic for OSA since I was 7 and I'm old enough to be Irishpeacock's Mom.
Deffinatly will second the motion to get a data capable machine.
I was just diagnosed about 3 months ago (I'm also 26, I'm 5'11" and about 200 so i'm a tad overweight but back to working on it). Having that data to be able to talk to your Dr with (if you have a good one that cares) or being able to use the forums here and research what others are doing to help will GREATLY increase the effect of your treatment.

Its really handy to have the notes every morning to find out what happened during the night for my sleeping.
In just the last 4 days with the data capable machine i've taken my AHI from 4.3 to .7 and my leak from .33 to .05 (I'm back to taping again so now time to find a good FFM that might work for me).

Now If I can just loose the weight and get my Gerds Under control

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ichitumi
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Re: College kids with OSA?

Post by ichitumi » Mon Sep 22, 2008 3:44 pm

I was only recently diagnosed recently, though I'm pretty sure I've had it most if not all my life. I kept going to my doctor and telling him that I'm tired all the time and my snoring is ruining my relationships. He just told me to lose some weight and sleep on my side.

With searches on the internet on my own, I did a bit more research on OSA and ask him to send me to a sleep study a few months ago (that and the time when I went to the hospital to visit my dad and the sleep study clinic just happened to be on the floor there). I told my doctor that I think I have sleep apnea and wanted to have a sleep study done. He got my appointment arranged pretty quickly and I got my results within a week afterwards. Getting information from my insurance company and getting the actual equipment actually took longer and I ended up getting them on my own out of pocket instead.

I've been on cpap for 3 weeks now and have just started to see some difference and benefits. For some strange reasons ... anyone know when dreams occur (as in what stage of sleep it usually happens?) I've started to dream more now too. (my sleep report said that I practically skipped over stage 2 and went straight to REM sleep after about 25 minutes ... average time is about 1.5 hours).

I wish I had been able to start treatment a lot sooner. Perhaps I would have done better at school ... (I fell asleep during an exam once).

Good luck with your treatment.

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roster
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Re: College kids with OSA?

Post by roster » Mon Sep 22, 2008 6:50 pm

irishpeacock wrote: ....... I think it might have had something to do with anxiety - I already take Lexapro for that. ............
So why do you have anxiety? Are you aware that obstructive sleep apnea is a major cause of mental illnesses, specifically anxiety disorders and depression?

From personal experience and information I have collected, I believe that in the U.S. more than half of patients taking antidepressants and anti-anxiety medications have undiagnosed sleep apnea. These patients need to get cpap treatment for sleep apnea and then work on getting rid of the medications. One of my doctors agrees with this assessment and has stated it on a local TV health program.

You need to get a good cpap therapy going and then work with your doctor to see if Lexapro can be discontinued.

I hope you visit the forum often for help. I am not sure I would be alive today without the good people here helping me.

Good luck,
Rooster
I have a vision that we will figure out an easy way to ensure that children develop wide, deep, healthy and attractive jaws and then obstructive sleep apnea becomes an obscure bit of history.https://www.youtube.com/watch?v=0ycw4uaX ... re=related