Quick Breeze Comment

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
Sleepless on LI
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Post by Sleepless on LI » Sat Jul 16, 2005 9:15 pm

tater pie writes:
I've worn my Breeze almost every night since last November and it hasn't moved a bit or lost its seal and I toss and turn all night. I've slept on my side, my back, and my stomach and it never leaks or moves around.
What are you doing to keep yours in place? Do you think it's the chin strap? Do you use the straps that came with the Breeze, also, or any other straps anywhere? I can't believe you have no problem with it being at all unstable. I wish that was happening for me. Well, tonight's another night.

L o R i
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so tired
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Post by so tired » Sat Jul 16, 2005 10:22 pm

Ok, now I have no idea what is going on with my Breeze. After I read Ozij's post about all 7 adjustment sites, I had to run and go get the damn thing to investigate!! I can't find all 7! Am I stupid?? I still am missing something , or maybe 2. But I'm afraid to try to change anything now in case I really screw it up.
LI, at first I used the medium pillows b/c I knew my dainty nose was too small for the large ones. But after a couple of nights with some leaking, I changed to the large and they are perfect! I have only had a sore nose one night so far and of course I use the Ayr Gel too. At first the fit seemed to be different each night even though I didn't change anything, then I found that the plastic thing with notches on the top, didn't stay in place. Since my straps are attached to that, I didn't know where to tape it, so i put on of those plastic ties used for keeping things fresh around the top and it seems to be staying. Also, every time I turned the hose would have to be adjusted too much. I did hook it to my iron headboard with a scrunchy and that does help a bit. I also put another one of those plastic ties further back on the headgear so the hose doesn't flop around as much. Lastly, don't forget to wash the pillows every night; I use Johnson's baby shampoo like everyone suggests.


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IWannaSleep
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Post by IWannaSleep » Sun Jul 17, 2005 1:41 am

I think head shape makes a big difference on how viable the Breeze is for someone.

The back of my head is very round, I have a bone back there that causes the Breeze to be unstable in any position for me. In every position I lay in that plastic piece that fits against the back of your head is rocking one way or the other on that round bone.



Ron

9 cm h2o

susaninct
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Post by susaninct » Sun Jul 17, 2005 2:48 am

I just got started with the Breeze nasal pillows last night too. One thing that is so hard is trying to find mask/interface that works is trying on various masks at the RTs - sitting up and then coming home and getting to lay down in bed with them - huge difference!!

I LOVED the nasal pillows when at the RTs. I have been using the ResMed Ultra Mirage Full face mask for the few weeks I have been on bi-pap therapy. I like the fact that I can mouth breath in the full face mask (tend to do that some and also open my mouth when sleeping) - however, I would wake up because my face hurt from the mask indenting into my face - sometimes pressed between my face and pillow. The RT did adjust the angle of the forehead piece and that did help with the pressure.

Well, back to the Breeze. When I got home and tried it in my bed, I was not happy - at first. What felt stable sitting up was not stable when lying down.

I discovered that adjusting the actual hard headgear helped a lot!! I pulled the back of the head gear down to shape it around the back of my head and I felt almost instant stability!! I did move the straps up to the most forward position and found they could be pretty loose and still no leaks!!

I did need to use the chin strap to keep my mouth closed - verdict is still not in on that. My nostrils did burn when I woke up this morning - morning as in 4:00am!

What is this gel people are referring to? I would appreciate any information.

I general I am getting a bit weary. I have not had a full night sleep in so long. I expected my sleep to get better not worse with treatment but I am coming to understand that it can be a long process. Just so tired of being tired and falling asleep so much in the daytime.

Susan S.


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elliejose
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Post by elliejose » Sun Jul 17, 2005 6:17 am

Ayr Gel. I could not find it at our local Wal-Mart, they only carried spray. Did find it with the nose sprays in the grocery store. So I didn't have to go to the drug store.

I use Swift. Have been using it since March. My nose was o.k. when I had a Humidaire heated humidifier. But since getting the Remstar with integrated humidifier, my nose burns terribly. Even with the gel some days. My DME says I can go back to the Humidaire, and I am thinking very seriously about it after another night of the terrible burning. When this happens, I also have a verrry sore nose that drips like a spigot all day long, and sometimes for several days. I really wanted the integrated humidifier to work because it takes up so much less space. I have to put my unit on the floor with the Humidiaire. No room on nightstand. And with unit on the floor I have hose problems.

Despite having been on cpap since early March, I still have a long way to go in getting a good restful nite of sleep. Hope you have better luck. Aren't we all so tired of being tired?


Sleepless on LI
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Post by Sleepless on LI » Sun Jul 17, 2005 7:30 am

SoTired,
Weird thing happened last night. I had the gear all stabilized and my large pillows in place. I went to sleep with no problem, except a bit of soreness from night #1. I woke up at 3 in the morning with the thing leaking like crazy. I couldn't stop the noise no matter what I did, and I know it's very quiet if it's not leaking.
Long story short, I had to go backward and use the medium pillows. That stopped the leaks and it worked till 9 AM. I don't understand it myself, how a smaller pillow can stop leaks better than a larger one, but it did. Yes, I was up a few times from the top adjustment moving, too, like you said. I don't know how you rigged it with one of those baggie ties. Would like more details. I think if that wasn't moving every time I turned over, I would have even slept better. When that would happen, the shell kept moving downward since it would lengthen and loosened its seal.
Overall, it was a better night's sleep than night #1 and my nose is not AS sore. The Ayr gel seems to help a little and so does the humidifier. I am not giving up yet. I will try to stabilize the front tonight so it doesn't move and see what happens on night #3.
Let me know the details, please, on how you get the front to stop moving. And thanks, all, for the input.

L o R i
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Newsgrouper
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Post by Newsgrouper » Sun Jul 17, 2005 7:33 am

LI:
I also have that head "bone" you describe. I pull the rear plastic head piece just below it and it really anchors itself well. That plastic part can extend quite far down the back of your head.

tater pie
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Post by tater pie » Sun Jul 17, 2005 7:35 am

Sleepless on LI, I do think it is the chin strap but I really don't know. Like it has been said here so many, many times before, what works for one person won't for another. I just know I never have leaks with my Breeze. I do use the straps that came with it but modify it like RG says. I also have the Ultra Mirage Full Face but I get terrible dry mouth with it and I've turned my heated humidifier up and down to the max and minimum and still get awful dry mouth when I mouth breathe. I don't take any meds that should cause dry mouth either and drinks gallons of water. It just doesn't work for me. I hope you can get the Breeze to work for you but it may not be the one for you. I've never had nose burn either. People are just different.


Janelle

Post by Janelle » Sun Jul 17, 2005 7:57 am

Well, I'm a side sleeper and I have NO trouble with the Swift after 6 months. You might have to sleep more on the edge of the pillow or you'll get that exhaust blowing on it but otherwise it is great for side sleeping. Even the side you have the hose on. Use a very sinkable type pillow like one of the imitation therapedic ones or the shapable pillow from Target which I haven't been able to find yet, and the hose sinks into the pillow. Cover it with a minihosewrap and it feels very nice against your face. Even if you get a heated hose for rainout, it will still leave the hose part of your nasal maks uncovered.
Noise. I don't think it's any noisier than the Breeze myself. only on inhale like the Breeze. And if you use a small piece of vegetable netting there is virtually none.
Rested Gal didn't like the exhaust blowing on her arm since she 's a pillow hugger. I find the warm heated humidifier air soothing in the winter and cooler air nice in the summer, so that doesn't bother me. Can always cover your arm with the sheet


Sleepless on LI
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Post by Sleepless on LI » Sun Jul 17, 2005 7:58 am

TATERPIE WRITES:
People are just different.
Amen to that...
L o R i
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JL
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Post by JL » Sun Jul 17, 2005 8:50 am

Sleepless

Sounds like you're close. Will go back to one of my earlier suggestions which really seems to "stabilize" all the adjustment settings. I found that the Breeze's hose has too much free play to move around and cause problems. To minimize this use a pony tail scrunchy (or rubber band, a strip of cloth, velcro type strap, plastic garbage bag tie, scotch tape, etc.) to provide one more hose guide support for the Breeze's hose. Put the scrunchy or whatever just behind the outrigger (Item i, pg 3 of manual).

Hope this helps

Jim

9-11 cm Remstar Auto w/C-Flex off,
Heated Humidifier & Hose...Breeze, Activa, Ultra Mirage FF, Hybrid
Encore Pro w/MyEncore enhancements

4Katie
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Post by 4Katie » Sun Jul 17, 2005 9:03 am

What is this gel people are referring to? I would appreciate any information.
It's a nasal gel, which provides comfort for the nose. Most people are familiar with the brand name Ayr because of their nasal sprays.

I had trouble finding it, til the pharmacist at Target (who doesn't even sell it) told me most stores have it behind, or right in front of, the pharmacy counter. Sure enough, we found it at the Safeway pharmacy.

I hightly recommend it. It's very comforting, and really does help the seal.

One soft, sweet song's just enough to clear my head...

Sleepless on LI
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Post by Sleepless on LI » Sun Jul 17, 2005 9:17 am

Jim,

Thanks for the input again. You really are hanging in there with me and I really appreciate that. I did do that extra ponytail bracing on the hose on night #1 and, believe it or not, it works better for me w/out that. The problem is, when I turn from one side to the other, I put pressure against the back of the headgear and for some reason it pushes the whole thing forward, causing the front to slide down and the shell to loosen the pillows from my nose. I have to figure out the best way to stop the front piece from sliding (the adjustment part of it). I end up clicking it back up into its proper setting and then I'm fine again. I just asked my husband to go get me some medical tape because it's not that sticky, or so I don't think. I am hoping he can find the cloth type that sticks to itself and maybe that will work. If you or anyone else has a better idea on how to stop that adjuster piece from sliding when you don't want it to, I'm all ears. Or should I say eyes? That I think may be the one last thing that is stopping me from getting a great night with this Breeze. The headband secured the side to side movement a lot, but the forward push hasn't been eliminated yet.
Maybe Taterpie will give me detailed instruction on how she secured hers with a tie strap. I can't figure that one out. Don't know if she meant a tie strap or a twister tie. A bit confusing to me.

Oh, if only we could get the perfect mask for our perfect faces...

L o R i
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so tired
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Post by so tired » Sun Jul 17, 2005 9:41 am

LI:
Ok, I got out my diagram for the Breeze. The thing I use to keep the *clip* from moving is one of those plastic garbage bag ties that has notches. It doesn't mess up the apparatus with any goo but seems to hold securely. I put one directly behind the clip (#5 on the diagram), and another just behind the outrigger (#8 on the diagram). I had tried putting the second one at the very back just before the cradle (#11 on the diagram), but it made turning worse. I still put the rest of the hose through the scrunchie halfway up my headboard.

I got my Ayr Gel at CVS in the nasal spray section.

Hope this helps!


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ufo13
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Help for Lori-sleepless on LI

Post by ufo13 » Sun Jul 17, 2005 9:41 am

Lori:

sorry you are having so much trouble with the breeze. yes, what works for one doesn't always work well for another but it seems to me you are having way to MUCH trouble with just one part of the therapy (mask)! i have been on cpap therapy for 11 years and i found through experience that when it relates to the mask and i have had many, that when you find a good one it will feel pretty good and comfortabe right off the bat and from there just a little tweaking and it's usually OK. did you read my comments to "artwood"? the advice from Janelle this morning is right on the money, i beleive! i also have had the swift since january (see my comments to "artwood") and it is a GREAT mask in my opinion! have used almost every mask that came down the pike including the breeze. i also sleep on my back and also on my sides. as Janelle says try different pillows it makes a difference! i use the anti-ache type of pillow which is thicker on top than on the bottom which gives plenty of room for your face and mask. as Janelle says i also can sleep in any position even with the feeder tube over my head and to the right , but i don't sleep on my right side otherwise the air flow of exhaust would blow directly on my wife. the swift is also one of the quietest masks i have ever used, but then all the new gear for cpap is much quieterthan when i started machines included!
what kind of cpap machine are you using, do you have a humidifier, what is your pressure setting etc? knowing this info might help us to give you better or more helpful advice also. ALL of us know what you are going through and will be here to HELP YOU SUCCEED and you will!

ufo13


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Additional Comments: Also use ResMed N30 and ResMed P30i