changing pressure settings on my machine

Guest · Post by **Guest** » Thu Jul 24, 2008 1:01 pm

SNoredog - get bent.

Captain_Midnight · Post by **Captain_Midnight** » Thu Jul 24, 2008 9:34 pm

TD writes...SNoredog - get bent.

(Methinks that someone needs a higher pressure setting.)

.

mark0680 · Post by **mark0680** » Fri Jul 25, 2008 3:25 am

JayC wrote: I am not sure how one goes through months of data for the tracking I want to do. Like, do my high pressures relate to the nights I kept having kinks in the hose?

Does the smart data he'll receive before our next appointment drill down to each night, or is it more trends at that point?

My Doctor didn't go in depth with any Smart Card information. That info was used by the folks at Blue Mountian Medical who changed the air pressure. They just looked at hours used.

The Doctor only kept increasing the pressure when I went in. I went up to 18 on the Bi-PAP. Their only answer for taking the mask off in the middle of the night was to increase air.

This might be more of what you are looking for. I did not know they had this for the end-user. Here are a couple of links for you. The first one is to software you can buy that will read the information from the Smart Card.

Here is a short quote from the discription of the software:

"The information in the reports includes occurrences of flow-limitation events like snores, hypopneas or apneas, time at specific pressure levels (on auto CPAPs and BiPAPs), event histograms and mask leaks."

http://www.sleeprestfully.com/proddetai ... %2D1047351

The second link is for the reader itself. You will need something to read the card and transfer it to the software.

http://www.cpap-supply.com/CPAP-Softwar ... m-s/46.htm

Hope this helps.

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CPAPopedia Keywords Contained In This Post (Click For Definition): hose, auto, Smart Card

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CPAPopedia Keywords Contained In This Post (Click For Definition): hose, auto, Smart Card

mark0680 · Post by **mark0680** » Fri Jul 25, 2008 3:53 am

Anonymous wrote:Snoredog - what do you know? How can YOU make such irresponsible random statements about how adjusting pressure "couldn't possibly" affect you? Do YOU know the medical history of every patient you, again, irresponsibly encourage to set their own pressure by providing instructions? What if this guy is a COPD patient that can't tolerate certain pressures? What about a Cheyne-Stokes patient? Yeah, great, change your pressure but don't facilitate it with others you don't know!

In my situation I started off with a CPAP machine. Loved it to begin with. Then after a week couldn't keep the mask on. The only therapy the Dr did was ask me each time I went in how things were going and how did the mask feel. I told him what was going on and he would write a prescription to up the pressure by one point. We did that several times (several appointments). Then we tried a full faced mask to see if that would help, and the mask still came off.

So he recommended going to a Bi-PAP. The same therapy ensued. Each time I went in to get an adjustment the primary focus was how does it feel.
It wasn't about looking into any technical data to stay within any medical information based on sleep study it was well let's try and increase the pressure by one more point.

When I would inhale the Bi-PAP would cut the breath off to quickly and I would feel like I couldn’t breath. When I went back the answer was, you guessed it. increase pressure.

Finally I stopped using it for several months because they couldn't figure it out. Then decided to go back to C-PAP again after being tired of not getting good night sleep.

The point to all of this is that the only real therapy they give is to increase or decrease pressure based off of how you feel. From going to all those appointments I learned that this was not rocket science and I wished for the longest time I could do it on my own. Now we can and I want to figure this out daily until I get it right.

Hopefully more people will do this who are not using the CPAP for the same frustrations I had. Maybe they can take ownership over the therapy and be on their way to using the CPAP fulltime.

echo · Post by **echo** » Fri Jul 25, 2008 4:02 am

That sounds like my sleep doc, who said to go to 4cm of pressure when I complained of mouth breathing (I was at 7 to 10 cm). Or when I said I couldn't use my nasal mask due to a cold congestion so I wanted a FFM, he said that the "effects of CPAP last a few days so you'll be OK not using it for a few days"... I had 6 colds in just a matter of 3 months so that was a LOT of nights of no CPAP before cpap.com saved the day... sigh.

I just got a copy of my sleep doc's files the other day... they put in their files that I was mouth taping and that I said it was helping with my dry mouth and that I was sleeping better. No judgement At the appointment when I told them that, they looked at me incredulously but didn't say anything much.

mark0680 · Post by **mark0680** » Fri Jul 25, 2008 5:56 am

[quote="echo"]
I just got a copy of my sleep doc's files the other day... they put in their files that I was mouth taping and that I said it was helping with my dry mouth and that I was sleeping better. No judgement At the appointment when I told them that, they looked at me incredulously but didn't say anything much.

echo · Post by **echo** » Fri Jul 25, 2008 6:02 am

mark0680 wrote:
echo wrote: I just got a copy of my sleep doc's files the other day... they put in their files that I was mouth taping and that I said it was helping with my dry mouth and that I was sleeping better. No judgement At the appointment when I told them that, they looked at me incredulously but didn't say anything much.
Bet you were surprised when you first saw that in the file. How crazy is that. Wow...

LOL, I *was* very surprised when I saw that in the file.

There were many other comments from my other consultations too, about how I said I was feeling this (emotionally not physically) or saying that or whatever .. Like they said that my insomnia was probably psychosomatic because I got " a little emotional" about my dad who died 3 years ago (they totally missed the point that i was angry at the doc's who ignored his complaints for years and when they did an endoscopy it was too late)... and that *I HAD* the same complaints and that *I TOO* had been ignored by many doc's with my complaints, INCLUDING MY sleep complaints.

Woah this is getting way OT. sorry for the rant!!!!! I AM STILL emotional about it but it doesn't keep me from falling asleep! Surfing on this forum in the middle of the night does that just fine for me

mark0680 · Post by **mark0680** » Fri Jul 25, 2008 6:09 am

echo wrote: Woah this is getting way OT. sorry for the rant!!!!! I AM STILL emotional about it but it doesn't keep me from falling asleep! Surfing on this forum in the middle of the night does that just fine for me

No worries, it's all good.

changing pressure settings on my machine

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