Help Me PLEASE!!!!!

dstrbd488 · Post by **dstrbd488** » Wed May 07, 2008 5:56 am

Hello all i have been using my res med s8 compact with swift nasal pillow mask for about a month and a half. The first 2 or 3 weeks were wonderful. I felt rested, and alert and as good as I can remember in a long time but; then it started. First I started pulling the mask off in the middle of the night only to woken up by my wife and yelled at for the snoreing. Then I started flip floping in the bed and have woken up more than once with the machine on the floor beside the bed up side down and the hose wrapped around my neck!! I called the DME who supplied my equipment since once the machine hit the floor the humidifier would not latch and said that if it hits a certain way then the latch bends and you will need a new humidifier this be to the tune of $385 So for the past three weeks I have gotten no rest!!!! Not only that but everyone says that sleep apnea is going to kill me but it seems to me that the machine is going to be my demise. My wife seems to think that this all started when i quit taking the ambein but my ent Dr would only give me a limited supply to help me get used to the machine. PLEASE HELP or i am through with this foolishness

FLIGHTYONE · Post by **FLIGHTYONE** » Wed May 07, 2008 6:37 am

I hated the machine too when I started and would wake up in the middle of the night take off the mask and turn off the machine and not even know it, but I put it on every night and every night I slept with it a little longer, and I have been on it 9 months but I dont feel like I am loving it , it is a struggle but you have to do it, they are alot of people on here, that are willing to help,
hang in there,

FLIGHTYONE · Post by **FLIGHTYONE** » Wed May 07, 2008 6:38 am

tell you doctor what you are doing, i had to go thru 3 different mask before I found one that made me comforter and stop taking the mask off at night time

ozij · Post by **ozij** » Wed May 07, 2008 6:43 am

Do you mean you're not using the setup because you can't connect the humidifier?
You can get the Resmed integerated humidifier for $260 at cpap.com https://www.cpap.com/productpage/resmed ... -CPAP.html

You can get a much better, standalone humidifier for almost half the price - $150 https://www.cpap.com/productpage/fisher ... ifier.html

Study the following subject, compiled by Rested Gal, carefully and thoroughly.

LINKS to Hose hangers and methods of managing the air hose

Use velcro straps to stabilize your machine. Or a pet box - new and unused by a pet.

Ask the sleep doctor if you had any Periodic Limb Movements on your PSG - you may need medication to keep those in check.

O.

ColinP · Post by **ColinP** » Wed May 07, 2008 6:45 am

Hi there

If your humidfier is broken, and you don't want to spend the money on a new one, you have two options - buy something second hand, either a replacement Resmed one, or a standalone, which many peple prefer anyway, or else you can give it a try without the humidifier, which might not be great but should be better than nothing.

That's the easy part dealt with. The hard part wil be getting used to wearing your mask and sleeping with it. Most people battle to begin with, so it's a case of wearing it for as much of the night as you can, and trying to go longer and longer till you are able to get through the whole night without ripping it off.

Hang in, those first few weeks should give you the encouragement that you need - at least you know what is possible if you get used to the whole thing.

Colin

p.s. I'd leave the CPAP on the floor if you're prone to pulling it off the nioghtstand - at least it can't get more damaged that way.

dstrbd488 · Post by **dstrbd488** » Wed May 07, 2008 7:39 am

I think I may have not been clear in my first post so let me try again. I relly don't think its the mask thats bothering me it seems very comfortable while i am wearing it and I have taken care of the humidifier. My main concerns are as follows:
I go to sleep pretty much no problem but at some point I start rolling around and this inadvertantly leads to one of two things. The first being if I am luckythe hose disconnects from the machine. The second is that the machine falls off the beside table ending up on the floor upside down spilling water all over the place and then the hose disconnects from the machine. Once the hose is disconnected (according to the wife) it becomes tougher to breath and at that point I pull off the mask.
But, to be perfectly honest my largest concern of all is that on several occasions I have woken up with the hose completely entwined around my neck!! This just makes me feel uneasy and really poses some safety concerns for me. I guess with all this going on i am not sure exactly who to call. Do I call the repiratory theropist? Do I call the ENT Dr who sent me to the sleep clinic, my general care Dr, or try to call the sleep center that did the test? This is one of the things that really bugs me about the way this mess is handled is that they charge out of the gate and then tell you good bye and pretty much you have to figure it out for yourself.

KansasRT · Post by **KansasRT** » Wed May 07, 2008 8:10 am

A sleep dr I respect very much once said that no one ever died being compliant with their CPAP. It is very difficult for the corrugated CPAP tubing to get wraped around your neck tight enough to impare your airway. I know that that dosen't help when you wake up with it around your neck. Have you tried to connect the tubing to your wall or headboard so that it stays out of bed with you? Most masks have built in swivels so that they will turn with you, or they make a stand alone swivel that you can add. They also make longer tubing, but I am afraid that more tubing would cause more problems. If you got a longer tube and put your machine on the floor that would stop the trouble of the mask falling on off the table. I know that CPAP is very very hard to get used to, and ALL providers from the DR's to the Therapist to the sleep tech's make it sound like you just put it on and it's all rainbows and roses from there on out. It is NOT in any way easy. I think that if the people giving out the information lets you know it is not easy that it is easier for you to handle set backs and issues. I am sorry that you are struggling. It really sucks. I promise that it will get better.

zorrro13 · Post by **zorrro13** » Wed May 07, 2008 8:11 am

To put this gently you may possibly be in denial? Everything ending up on the floor and self strangulation lead me to believe that it could be a mental problem. I speak purely from my own experience and for me fighting The machine was my biggest nightmare as I was 100% compliant however my subconscious took over nearly every night for a very long time

ozij · Post by **ozij** » Wed May 07, 2008 8:18 am

Study the following subject, compiled by Rested Gal, carefully and thoroughly.

The following text in big letters is a link, click on it:

LINKS to Hose hangers and methods of managing the air hose.

O.

Guest · Post by **Guest** » Wed May 07, 2008 8:23 am

why not try a skyhook. I have mine screwed into ceiling about halfway between bed and machine sitting on top double shelf hose goes down to humidifier from there to string. even without my humidifier is alot heavier (devillbliss heated passover )never pulled it off yet. you could screw some boards to top of table then hose would just pull out.

zorrro13 · Post by **zorrro13** » Wed May 07, 2008 8:29 am

Come to think of it since using a hose hanger I too have had no mask/hose issues. Its the answer

Needsdecaf · Post by **Needsdecaf** » Wed May 07, 2008 8:31 am

[quote="dstrbd488"]I think I may have not been clear in my first post so let me try again. I relly don't think its the mask thats bothering me it seems very comfortable while i am wearing it and I have taken care of the humidifier. My main concerns are as follows:
I go to sleep pretty much no problem but at some point I start rolling around and this inadvertantly leads to one of two things. The first being if I am luckythe hose disconnects from the machine. The second is that the machine falls off the beside table ending up on the floor upside down spilling water all over the place and then the hose disconnects from the machine. Once the hose is disconnected (according to the wife) it becomes tougher to breath and at that point I pull off the mask.
But, to be perfectly honest my largest concern of all is that on several occasions I have woken up with the hose completely entwined around my neck!! This just makes me feel uneasy and really poses some safety concerns for me. I guess with all this going on i am not sure exactly who to call. Do I call the repiratory theropist? Do I call the ENT Dr who sent me to the sleep clinic, my general care Dr, or try to call the sleep center that did the test? This is one of the things that really bugs me about the way this mess is handled is that they charge out of the gate and then tell you good bye and pretty much you have to figure it out for yourself.

Mask

Mask