The ASAA is a supposedly non-profit organization, but don't think for one minute they are a patient advocate. You can see their stance on the issues in this single post from their Executive Director and what we have been discussing, they are against changing your own pressure, taking control over your own therapy, every aspect we despise in the current medical establishment.I believe Mike has very eloquently stated the case why we, here at the Forum and the ASAA, strongly discourage patients from adjusting the pressure on their PAP devices.
Having access to the data so a patient can monitor their treatment is important and my hope is that all devices in the future will data-accessible.
That said... this discussion is closed. Thank you to all that participated, your contributions are valuable to the many thousands who read these posts here in the United States and around the world.
Edward Grandi
_________________
Executive Director
American Sleep Apnea Association
1424 K Street, NW Ste. 302
Washington, DC 20005
202-293-3650
They don't represent me a patient, they don't represent my views and the problems I see we encounter every day with our treatment and its options.
I see the ASAA as a lobbyist organization for the established medical good ole boy network, look at where it is located, in Washington DC, it is there so it can have full access to congress? Look at who supports the ASAA, CPAP mfgs, doctors and the medical establishment, all out to "protect" their cash cow, that is keeping you the patient under the thumb of doctors, sleep labs and brick & mortar DME's.
It is like I said before it is all about money (getting yours). Every time you send a dime to the ASAA you are contributing against your own cause unless you are a doctor and/or part of the medical establishment.
If you visit and post on that site, you are shooting yourself in the foot. If they have no content they fade away.
