James Skinner

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
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Post by jskinner » Wed Aug 15, 2007 8:52 pm

goose wrote:Have you been checked for TIA's??? I don't recall what that stands for but my mom has them and they're like mini-strokes.
After about 6 months I had an MRI but it came back negative. It took another 6 months before I convinced a doctor that there was something wrong with my right side even though it has bothered me almost everyday since the first initial event (june 2006) and then with the smaller onces early in the year.

The neurologists that finally agreed there was a problem totally dismissed that it could be caused by sleep apnea. In my mind that sure sure what caused them (heck I was having total time in apenas over 30 minutes some nights) He admitted that hypoxia could cause such a thing but didn't believe me when I told him that I felt it was it. It amazes me given the hell I was going though breathing even when I was wake.

Emotionally this has been the hardest thing to deal with. Not having my right side work correctly really upsets me. I have a hard time accepting it. I have a hard time accepting that I had to sit by and know that I was injuring myself each night and not be able to get any dr to help. Its going to take a while to really get past that.

Anyway I think being shy really has hindered my ability to get help. Plus being totally zonked out from all this has made it really hard to push a lot of the time.
Last edited by jskinner on Wed Aug 15, 2007 9:03 pm, edited 1 time in total.
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Post by jskinner » Wed Aug 15, 2007 8:57 pm

One big problem right now is actually in my throat, when I lye down I seem to get a lot of goo building up in there. I constantly have to try and clear my throat, over and over. Its hard to fall sleep when one keeps feel like they are choking... It happens during the day to but doesn't seem to be as much as a problem.

I can't wait until I am better... this is hard to take some days
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Post by bones1000 » Wed Aug 15, 2007 9:08 pm

Have you tried nasel saline spray or if you can see a doc see if he will pecribe some atrovent .06%

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Post by socknitster » Wed Aug 15, 2007 9:30 pm

Oh, James, I didn't know you are shy. THat has to be tough. And being tired on top of it. It must be difficult to advocate for yourself. You surely have a tough as nails relative or friend that could go with you to see the docs and beat them into submission?

I would do it for you if I lived ANYWHERE near you. I've got a strident voice and a demanding personality (read: strong inner bitch) and I would accept nothing less than optimal care. Do you know anyone like me? Even a helpful co-worker might be coaxed to attend if you sprung for dinner?

I wish I could be more helpful. What you are going thru sucks and it really bothers me to hear that your docs are treating you so badly. Really. I think about you all the time and I don't even KNOW you.

What you are going thru reminds me so much of my battle before I found out I had allergies and then apnea, years later. I had all these crazy, disparate symptoms--imagine: depression-like symptoms, irritible bowel like-symptoms and allergic rhinitis-like symptoms. Throw in join problems and back issues (both resolved since xpap) and high blood pressure, several miscarriages--OMG, I could go on and on! All boiled down to milk allergy and apnea. Both utterly treatable (avoidance and xpap). But I was misdiagnosed for the better part of 10 years on BOTH counts.

Medicine is getting so big and so incredibly area-concentrated. The left-hand doesn't know what the right is doing. And that leads to god complexes and bad treatment. I get so sad when I read all these dme stories and bad doc stories and I've lived some of them myself. There has got to be a better way to do this!

Jen


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Post by socknitster » Thu Aug 16, 2007 10:50 am

James,

Weird timing. I just got back from a derm appt and as a side note I asked about the super-dandruff I've been trying to fight. He says it is a fungal infection of the pore/hair shaft that feeds on the natural sebum your hair makes. He made some medical rec starting with over the counter and said if nothing else worked, we could try diflucan, but that would be last resort and he would rather try everything else poss first. He said it could still come back after a round of diflucan.

So, I'm going to research natural fungal fighters and even dietary ways to fight fungus from the inside out. I'll let you know what I find out. I have heard that strong black tea can be used topically and tea trea oil, that both fight fungus, but I'll look for more ideas. Obviously you can't use these types of things on delicate mucosal tissues and would need to start with diet. I'm going to guess that eating a GI or diabetic diet and cutting out refined carbs would help, but will need to do more research to figure that out.

Jen

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Post by socknitster » Thu Aug 16, 2007 11:24 am

Check this out:

http://www.drweil.com/drw/u/id/QAA326656
Q Fighting a Fungal Infection?
What is the long-term prognosis for allergic bronchopulmonary aspergillosis? Does it shorten your life? Is there anything holistic I can do to kill the fungus in my lungs and avoid taking steroids? Are there foods I should avoid? Who can help me?
A Answer (Published 7/12/2004)

Aspergillosis is a fungal infection that usually affects the lungs, but can also settle in the ear canal or the sinuses. Sometimes the infection causes no symptoms and is discovered only with a chest x-ray. But the disease can cause alarming symptoms such as coughing up blood, fever, chest pain and difficulty breathing. The fungus that causes the disease is very common and is associated with decaying organic matter - it is found in compost heaps, air vents and airborne dust; it has even been isolated in swimming pools and saunas - but it doesn't usually affect healthy people. You are more vulnerable to aspergillosis if you have a weakened immune system. Infections can be quite serious and hard to treat, even fatal. However, if the infection is localized to a single spot in the lung, it usually progresses slowly. Because pulmonary aspergillosis can be a very serious infection, you should be treated by a pulmonologist, a doctor who specializes in lung diseases.

Treatment requires powerful antifungal drugs, such as amphotericin B, itraconazole, or voriconazole. Some forms of aspergillosis are resistant to these drugs. In these cases, a new antifungal drug called caspofungin is available. Occasionally, aspergillosis results in a "fungus ball," typically growing in a cavity in an upper lobe of a lung. If fungus balls in the lungs grow near large blood vessels, you may need surgery to remove them.

Because aspergillosis is a potentially fatal disease, I recommend allopathic medicine for primary treatment. Make sure your doctor tests you for any underlying disease of the immune system. As adjunctive treatments you might try garlic, astragalus and a probiotic. Fresh, raw garlic has powerful antifungal properties. Eat 2-3 cloves (not heads) a day. Mash or chop it finely and mix it with food or cut it into chunks and swallow the chunks like pills.

Astragalus is a good general immune-system booster. Get a standardized product and follow dosage on label or take two capsules twice a day. You can stay on it indefinitely.

Taking an acidophilus culture (it contains the lactobacillus bacteria that make milk sour) may help change the chemistry of your tissues, making them more resistant to the fungi. You can get acidophilus in health food stores, usually prepared in a milk or carrot juice base. I recommend products containing lactobacillus GG, such as Culturelle.

Andrew Weil, M.D.

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Post by socknitster » Thu Aug 16, 2007 1:02 pm

I just googled natural antifungal and came up with a lot of interesting links: here is the first of many that you should look at:

http://www.drjenine.com/antifungal.html
The Anti-Fungal Program
FUNGUS: A simple plant that lacks chlorophyl. Fungi include yeasts, rust, molds, and mushrooms. They live as either saprophytes or parasites of plants and animals (man). Some species infect and cause disease in man. - The Bantam Medical Dictionary.

#1 Starve The Fungi
#2 Move Your Bowels
#3 Repair the Damage
#4 Kill the Fungus
#5 Replace the Good Bacteria
Exercise!
Herxheimer Reaction



#1 Starve The Fungi

Starve the fungi with Doug Kaufmann's Phase One Diet (Initial Phase).

Sugar fuels the growth pattern for fungi. The Phase One diet is a low carbohydrate diet that dramatically cuts back on sugar that feeds fungi. Although carbohydrates are known to be fuel for the body, this is true only in a non-toxic individual. In a fungally-toxic individual it actually supresses energy.

The Phase One diet is also very low in mold/fungi infected foods and high in foods, such as vegetables which are known to carry out mycotoxins and inhibit their toxicity.

The Phase One diet is found in its entirety in any of Doug Kaufmann's books.

#2 Move Your Bowels


As fungi is killed inside your body, it is imperative that you move it out, and quickly. Doug Kaufmann recommends psyllium hulls or slippery elm as a good source of fiber to carry out colon waste. Both are excellent choices. I recommend the same, or, a new oxygen colon cleanser called Oxy-Powder. Oxy-Powder has been shown to kill fungus in the colon.

Whichever method you choose, it is imperative that you replace the healthy bacteria found in the colon that is lost through the process of cleansing the colon. I recommend taking one of the following two probiotics: Dr. Ohirra's Essential Formulas or Natren's Healthy Trinity or Trenev Trio. Remember not to take Healthy Trinity within two hours of taking psyillium, slippery elm, Oxy-Powder, antifungals, garlic, Vitamin C, and some drugs.

It is not recommended that you take cascara sagrada for the purpose of this antifungal program.

If constipation is a chronic problem for you, consider that a magnesium deficiency can be a cause of this.

#3 Repair the Damage


Repairing the oxidative damage is critical. Using a powerful free radical scavenger such as Pycnogenol, grape seed extract (see Seagate for Grape Seed Extract), the whole grape extract (see North American Herb & Spice for Resvital), or Damage Control Master Formula (see Primal Nutrition), or a pure source Vitamin C (see North American Herb & Spice for Purely C) will assist in this repair process.

#4 Kill the Fungus


Fungi can be killed with pharmaceutical drugs or natural remedies. Both work very well. Drugs such as Nystatin, Lamisil, Nizoral, Diflucan, or Sporanax may work a little faster than natural choices, however, I recommend natural remedies. Your choice may depend on the severity of the fungal infection and whether or not your doctor will cooperate in prescribing one of these antifungals.

Natural Anti-Fungals:

Olive Leaf Extract (see Seagate for Olive Leaf Extract).
P-73 Oregano (see North American Herb & Spice for P-73 Oregano)
Capryillic Acid
Pau d'Arco (click here for Pau d'Arco)
Apple Cider Vinegar (Malic Acid) (see BioActive Nutrients Apple Cider Vinegar)
Garlic - neutralizes virus and bacteria. (see BioActive Nutrients Apple Cider Vinegar/Garlic)
Carrot juice - inhibits fungal proliferation (Fresh juicing is best, but for an alternative, see Seagate for Carrot powder)
Anti-Fungal Kits are also available - see Bioactive Nutrients

#5 Replace the Good Bacteria


It is imperative to replace the good bacteria in your intestines and then stay away from those things that disrupt the balance, such as antibiotics and other immune suppressants. (Work with your doctor here, there are times where an antibiotic is the best choice but this is most likely a rare event. I am in no way indicating that one should never take an antibiotic or that this program is a substitute for necessary medical care).

Using a probitoic such as OMX 12 by Essential Formulas, or Natren's Healthy Trinity is very effective.

Exercise!



Exercise is critical in the prevention and treatment of chronic fungal disease. Exercise has an overwhelming positive impact on our health. Your commitment includes exercise. Choose an exercise appropriate for you.



Walking should not be underestimated as an appropriate exercise for anyone. It gets you moving and pumps the lymph system, and gets you breathing!

Herxheimer Reaction


As yeast and fungi, etc. are starved, you may experience what is known as “Herxheimer’s reaction”. It was Dr. Carl Herxheimer, a German dermatologist, who first described the body’s reaction to the massive killing of microorganisms. This massive killing results in a sudden load of toxins that is released into the blood stream. It is also known as “die-off”. The characteristics of this reaction can be flu-like such as aches, pains, nausea, headache, chills, a low grade fever, drop in blood pressure, hives or rash. One may even experience a temporary worsening of current symptoms when starting the Phase One diet. This is good news! It means you are on the right track. It is an indication that the Phase One diet is starving the fungi. Remember, our bodies want to be well and will do all it can to get well. Give it the right opportunity and you will see how magnificent your body is!

This healing crisis is a natural reaction and is very individualistic. It can be mild to severe. If it is overwhelming, consider adding some foods that are on the Phase Two diet for a meal or two, such as brown rice, or sweet potatoes, and of course making sure you have plenty of pure water.
So, while I think most sites with information like this are a little over the top, I do believe there is some truth to this and making some easy changes to diet and routine could be helpful. You might see if other sites have better/more useful info. I'll leave you alone for a while!

Jen


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Post by socknitster » Thu Aug 16, 2007 1:42 pm

Ok, if that last site wasn't scientifically oriented enough, here is a scientific study:

http://www.ebi.calpoly.edu/senior_proje ... cio_SP.pdf

Sounds like Grapefruit Seed Extract, which is actually a common ingredient in home soapmaking and readily available at health food stores is the strongest of the natural remedies tested. I'm going to make a grapefruit seed extract rinse for my hair based on this data and will aim for 100-120 ug concentration. My husband is a chemist so he can help me figure out how to make this concentration--I have forgotten some of my chem 101.

Jen

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Post by JimW » Thu Aug 16, 2007 9:26 pm

Briefly, along the lines of probiotics - when a fungus or yeast multiplies following the use of antibiotics, it's because the bacteria which naturally reside in our bodies and benefit them have been killed off. It's really common to replace those bacteria in the digestive system via probiotics.

My dad is currently having to have IV antibiotics (Vancomycin) for an extended period of time, and I asked the infectious disease physician about a probiotic mix my daughter had been using. He looked at the mix, said it would not cause any harm, and then mentioned that one of the bacteria was used as part of a treatment for C. difficile; the probiotic bacteria evidently establish themselves and compete with the C. difficile. (The mix here is one produced by the 'Maker's Diet' folks.)

Wondering if the use of probiotics would help to combat whatever is dwelling in your sinuses, James. (Jen's information would seem to point in that direction.) I'm thinking taken orally, but am also wondering whether there is any merit (or any hazard) to moving some probiotics directly into your nose/sinuses, perhaps even by your nifty new power washer. You'd have to check this out carefully and proceed very cautiously if you thought it had any merit. Nice thing is, while it might be good to pass this by some medical people, you don't need a prescription for this, and it's not outrageously expensive.

Resmed S8 Vantage - integrated humidifier
Mirage Swift nasal pillow system
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Post by socknitster » Thu Aug 16, 2007 10:07 pm

You know, when my son last took antibiotics and developed some tummy trouble, his pediatrician, who is sharp as a whip, by the way, told me to head to the health food store and buy him some Kefir. Kefir is a yogurt-like drink that comes in typical yogurt flavors like peach, rasberry and strawberry and has 11 strains of probiotics. Whenever he takes antibiotics, he gets kefir now. We call it "yogurt juice" around here! He actually consumes about as much of this as regular milk. I'm actually thinking of looking into culturing my own to save money. It is available at health food stores, Trader Joes and even some good groceries these days. Look in the dairy section near milk or yogurt.

After my surgery I had to take some very strong antibiotics. I took a probiotic in pill form since I'm allergic to milk. Fresh sauerkraut (if you are German like me, you may have a taste for this) has natural probiotics too, but you don't see this being made too much anymore. My grandfather, a Kraut born in the old country, sometimes made it at home. I recently discovered these vegetable probiotic starter packets on amazon. Kraut may make a comeback!

Try Kefir--it can't hurt and it is yummy according to my son!

We are giving you lots of great ideas, James! At least it is something positive to try!

jen

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Post by jskinner » Fri Aug 17, 2007 10:05 am

bones1000 wrote:Have you tried nasel saline spray or if you can see a doc see if he will pecribe some atrovent .06%
I have used saline spray for months. I also tried atrovent in in both nasal spray form and inhaler, both didn't help.
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Post by jskinner » Fri Aug 17, 2007 10:15 am

socknitster wrote: THat has to be tough. And being tired on top of it. It must be difficult to advocate for yourself.
Yep thats been very hard and part of the problem. Especially though the Nov-April time frame I was so tired and exhausted that even trying to do anything was though, let at alone push for help.
socknitster wrote:You surely have a tough as nails relative or friend that could go with you to see the docs and beat them into submission?
I have tried that a bit. In Ottawa I had a friends wife go with me to a few appointments but didn't really seem to help much. My sister came up from Ohio a few times to try and help but she isn't much more aggressive than me.

When I went to see ENT #4 I did take someone who was much more aggressive. After the first visit my family and friends kept calling the ENTs office because they where so worried about me (May time frame). When I saw the ENT the second time she decided she didn't want me as a patient since she said she didn't even think I had sleep apnea and that she had never had a patient that called her so much!!! I can't tell you how defeated I felt after that... So now I am a bit scared to have family and friends push to hard.
socknitster wrote:What you are going thru reminds me so much of my battle before I found out I had allergies and then apnea, years later.
I feel like I am reliving the struggle to get diagnosed with sleep apnea all over again as well. It too me *years* to get Drs to look into the problem even though I kept saying I think there is something wrong with my sleep.

Its unbeleiveable really.
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Post by Bogof » Fri Aug 17, 2007 10:19 am

Try cutting out dairy from your diet entirely. I've seen people clogged up go mucous free in 2 weeks. If you insist on milk, swap the cow for a goat. Much easier on the system. Milk has the same components in it that glue has. It literally glues your sinusses shut.

Next idea is to step up from a nasal spray to proper sinus irrigation. Try something like the Hydropulse. i used it when I had problems and it really works wonders. See here for info:

http://www.pharmacy-solutions.com/hp.htm

Unlike nasal sprays, its pulsatile system helps the body to move the goo away. It's to do with the nasal cillia. It encourages the body AND helps it. A nasal spray JUST flushes. This flushes AND trains the body to attack the goo itself. Besides the CPAP, it was the best money I ever invested in health.


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Post by jskinner » Fri Aug 17, 2007 10:29 am

socknitster wrote:Treatment requires powerful antifungal drugs, such as amphotericin B, itraconazole, or voriconazole.
Amphotericin B is the medication that I have been taking as a nasal solution in my nose for the last month (its normally taken orally). Its the only thing that has improved things in the last 6-8 months that I have been fighting this. It produced a _lot_ of white goo for the first 2-3 weeks 9 (which I saw as a positive sign that it was doing something) Now after having been on it for a month my nose is better than its been in months, though still not great.
socknitster wrote:As adjunctive treatments you might try garlic, astragalus and a probiotic. Fresh, raw garlic has powerful antifungal properties.
I have taken probiotics almost daily since I was on the antibiotics back in Feb. I have also taken a number of other things that a natural clinic recommended. I have also tried to different over the counter fungal kits. Once was called Yeast busters and the other was threelac.

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Post by jskinner » Fri Aug 17, 2007 10:35 am

socknitster wrote:
Natural Anti-Fungals:

Olive Leaf Extract (see Seagate for Olive Leaf Extract).
P-73 Oregano (see North American Herb & Spice for P-73 Oregano)
Capryillic Acid
Pau d'Arco (click here for Pau d'Arco)
Apple Cider Vinegar (Malic Acid) (see BioActive Nutrients Apple Cider Vinegar)
Garlic - neutralizes virus and bacteria. (see BioActive Nutrients Apple Cider Vinegar/Garlic)
Carrot juice - inhibits fungal proliferation (Fresh juicing is best, but for an alternative, see Seagate for Carrot powder)
Anti-Fungal Kits are also available - see Bioactive Nutrients
The natural place that I went to (http://www.nutrichem.com/) had me on Oregano, Grapefruit seed Extract nasal spray, and the Anti-Fungal Kits.

I think a natural approach might be good for maintenance but if this really is a bad fungal problem then pharmaceuticals might be needed initially to get it under control.
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