brandnew cpap user

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
char

brandnew cpap user

Post by char » Sun Apr 10, 2005 7:41 pm

Hi all. Am 30 years old and just started using a cpap two nights ago. Kinda hard to take it but am hoping it will help. Didn't last too long the first night but went well night #2. Can't seem to get enough sleep right now. Seems like i'm making up for lost time!!! My 5 year old was kinda freaked out by me needing to wear a mask to bed, but seems to be better. Any comments from veteran users would be appreciated.

chrisp
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Post by chrisp » Sun Apr 10, 2005 7:47 pm

Get an auto unit, a good mask such as a Resmed activa or ultra mirage, A heated humidifier and stick with it. Read past posts. Never give up. It works. Beware of the Evil DMEs

cheers,

Chris

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rested gal
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Post by rested gal » Sun Apr 10, 2005 7:51 pm

Welcome to the message board, char. You've found the right place to start figuring out how to make your new treatment more comfortable....and maybe even more effective.

Spend as many hours as you can pouring back through previous posts. Also use the "Search" button at upper left for words about things like "water dripping", "mask hurts bridge of nose", etc. You might be surprised at how many hints and suggestions you'll come across in previous discussions...hints that make a lightbulb go off...."Oh, so THAT's how people deal with THAT!"

Do ask any question you might have....doesn't matter if it's a question that's been asked and answered before. And doesn't matter if it's a very basic one. Heck, that's what the message board and people posting here are for - to get support and non-doctor advice from each other.

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LDuyer
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Post by LDuyer » Sun Apr 10, 2005 7:55 pm

Char,

Welcome!
Feel free to tell us more about your treatment, the type of cpap machine, type of mask you have, etc. The more we know, the better people here can suggest things for you.

How long have you had symptoms? It may take time for your body to catch up with you. But you're doing the right thing. Seems like a bizarre way to live, but it really does help. If you struggle with it, give it a chance. Best thing you can do is not give up. But if problems persist, it's not you, it's something else, either the equipment, the mask, the prescribed pressures, something. Or, if everything is OK, it just may take you time to adjust. Hang in there, and feel free to keep in touch.

Linda

jashmir3
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Post by jashmir3 » Sun Apr 10, 2005 8:07 pm

Thanx for the feed back everyone. As far as my equipment I am using a Resmed S7 Elite. The mask is the Resmed Mirage Swift Pillows. I get claustrophobic so I needed smallest I could get. I actually felt rested for a while this am while I was getting ready for the day, but it didn't last long. Symptoms have been for a long time. I have had people complain about my horrible snoring for years, and tell me about not breathing at night. It wasn't until this last year or so that it started taking it's toll on me really bad. After Reggie White passed away and was thought to be sleep apnea or complications with his heart because of it did it really sink in. My machine pressure is at 8. After my sleepstudy, and the tech told me I stopped breathing 45.5 times an hour on average did I realize that this is serios. No wonder I am sooooooo tired. Thanx again for your feedback.

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auntiebeccaneedssleep
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WELCOME

Post by auntiebeccaneedssleep » Sun Apr 10, 2005 8:10 pm

Hello Char and welcome!

I am not a veteran, but I can relate to you. I have had my cpap for a couple weeks, and I 30 as well. For the most part, I can now sleep the whole night with the cpap (usually) occasionally I just can't get it to stop leaking and I will tire and remove it, but then I am much more tired when I wake up. If anything, I try to put it back on if I wake up a couple hours before I have to be up.
As I am sure you may have realized this road can be long and depressing at times. You might even wish that you didn't ever get diagnosed with OSA so you could 'sleep normally'. Trust me, it was good that you came to this forum. I get so encouraged every time I check out the posts (10 to 15 times a day sometimes ). It helps to know there are others who really know what I am going through. Plus it will prolong my life being diagnosed with OSA and getting treatment for it.
Your son may be freaked out by your mask, but at least you are alive to freak him out. Not accepting treatment could have caused you to have serious problems, and we are glad you made the right choice.
So sit back and check out the different topics. Some are related to OSA and the equipment that has become out lifeline, and others are there to bring a smile to your face. There are SO many creative and friendly people here. You will be glad you took the time to check it out.
If you have any problems or questions, please ask here. I am sure someone will have the answer you need.
Have a great day!

Auntie
Hi Ho, Hi Ho, It's off to sleep I go......

Sleeping With The Enemy
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Post by Sleeping With The Enemy » Sun Apr 10, 2005 8:13 pm

Welcome,

We are glad to have you here. I have small kids as well. My 3 year old calls my mask "ski mask", its so cute.

The other night my five year old came into bed. I was kidding around with him in the morning. I told him the funniest thing happened last night. I woke up and looked over and he had stolen my CPAP and mask and was wearing it.

He thinks I'm crazy, he's not to far from the truth!!!

Stay tuned, we will help you through this...it gets better.

Heidi

jashmir3
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Re: WELCOME

Post by jashmir3 » Sun Apr 10, 2005 8:34 pm

you are right about being alive to freak out my child. By the way she's a girl. Were you surprised to have it so young? The clinic I went to was very surprised by my age and by my size.They said I am not the typical patient. Char.
auntiebeccaneedssleep wrote:Hello Char and welcome!

I am not a veteran, but I can relate to you. I have had my cpap for a couple weeks, and I 30 as well. For the most part, I can now sleep the whole night with the cpap (usually) occasionally I just can't get it to stop leaking and I will tire and remove it, but then I am much more tired when I wake up. If anything, I try to put it back on if I wake up a couple hours before I have to be up.
As I am sure you may have realized this road can be long and depressing at times. You might even wish that you didn't ever get diagnosed with OSA so you could 'sleep normally'. Trust me, it was good that you came to this forum. I get so encouraged every time I check out the posts (10 to 15 times a day sometimes ). It helps to know there are others who really know what I am going through. Plus it will prolong my life being diagnosed with OSA and getting treatment for it.
Your son may be freaked out by your mask, but at least you are alive to freak him out. Not accepting treatment could have caused you to have serious problems, and we are glad you made the right choice.
So sit back and check out the different topics. Some are related to OSA and the equipment that has become out lifeline, and others are there to bring a smile to your face. There are SO many creative and friendly people here. You will be glad you took the time to check it out.
If you have any problems or questions, please ask here. I am sure someone will have the answer you need.
Have a great day!

Auntie

jashmir3
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Joined: Sun Apr 10, 2005 7:20 pm
Location: wisconsin
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Post by jashmir3 » Sun Apr 10, 2005 8:38 pm

[quote="Sleeping With The Enemy"]That is cute. My daughter will be ok. She is too stubborn not to be!!!! lol



The other night my five year old came into bed. I was kidding around with him in the morning. I told him the funniest thing happened last night. I woke up and looked over and he had stolen my CPAP and mask and was wearing it.

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LDuyer
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Re: WELCOME

Post by LDuyer » Sun Apr 10, 2005 8:44 pm

jashmir3 wrote:you are right about being alive to freak out my child. By the way she's a girl. Were you surprised to have it so young? The clinic I went to was very surprised by my age and by my size.They said I am not the typical patient. Char.
You may not be typical, but you're not alone.
Just the other week I was at a sleep apnea lecture. Several of us got together thinking we might start a support group. We were all sizes, shapes and ages. One young fellow looked so gosh darn slim and very healthy and energetic, I embarrassed myself by saying to him, "You're too healthy looking to be a sleep apnea sufferer!" But he is, and he suffers greatly. So you are not alone, not by a longshot.

Linda

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auntiebeccaneedssleep
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young

Post by auntiebeccaneedssleep » Sun Apr 10, 2005 9:51 pm

I am not too surprised. I have been gaining weight for awhile and I can't seem to get any rest, so I was relieved when I was diagnosed. As a teen, I had my tonsils and adenoids removed and had nose surgery to fix my nose breathing (bone obstructed it).
My technician said he has had people of all shapes and ages, including little babies in for testing for OSA.
I am bummed about having to wear the mask as I am still single, and it's not exactly the way I want my future husband to see me our first night, but that's the it works sometimes I guess.
My best friends husband has OSA and his 3 year old now grabs the mask and hands it to him saying "Here's your nose thing daddy." He isn't bothered at all now. Your daughter will get used to it in no time.

auntie
Hi Ho, Hi Ho, It's off to sleep I go......

Guest

Post by Guest » Mon Apr 11, 2005 5:29 pm

Thanks again. It's nice to know I am not a freak!!!!! I really don't have much support here. Noone really understands it. Char.

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dankazoo
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Post by dankazoo » Mon Apr 11, 2005 10:24 pm

Actually, the only reason I'm on CPAP is to learn to breathe through my nose so I can make good kisses last longer.

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Mikesus
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Post by Mikesus » Tue Apr 12, 2005 4:51 am

dankazoo wrote:Actually, the only reason I'm on CPAP is to learn to breathe through my nose so I can make good kisses last longer.

Ummm I think that is an Off Label use and is not covered by insurance.

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Tampa Tom
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Post by Tampa Tom » Tue Apr 12, 2005 7:34 am

DANG! You mean CPAP's gonna make me a better kisser?!?

I'd better alert my wife!
Take off you hoseheads!
---- Bob McKenzie (Strange Brew - 1983)

Remstar Auto with CFlex (5 - 15)
Swift Mask with Medium Nasal Pillows