Why do I feel bad when I feel good

cajapato · Post by **cajapato** » Wed Jan 31, 2007 1:28 pm

When I first found this site, the information and support was a God-send. Now it seems that all I hear is carping about the DME, insurance companies that don't cover stuff, primary care physicians that are know less than the patient, etc. etc. etc.
I feel really good. I am sleeping. I don't have a top line machine that gives me computer readouts. I don't need it. I don't have a DME that caters to my every whim. I have what I need.
What I do have is some good sound sleep, a tempurpedic mattress that is a dream and a damn good attitude about what I do have that's good. I feel depressed everytime I come in here and read the forum.
At this point, the only positive thing I can say is that the chatroom is positive. I've made some friends in there and it's always good to chew the fat with them.

Lyza · Post by **Lyza** » Wed Jan 31, 2007 1:41 pm

thats excellent cajapato! Please don't let the rest of our bitch sessions get you down.

You've obviously found a great setup that works for you, others of us haven't. Thats why we are here, and thats why we post to get feedback from others who have been there and know the system, and know a bit more than we do or our drs to help guide us into getting what we want or need.

Please stay with us to offer support to new pappers who can't/won't wear their masks, or offer advice to others, but if its all too negative in here, good luck with your therapy.

cajapato · Post by **cajapato** » Wed Jan 31, 2007 1:45 pm

Lyza wrote:thats excellent cajapato! Please don't let the rest of our bitch sessions get you down.

You've obviously found a great setup that works for you, others of us haven't. Thats why we are here, and thats why we post to get feedback from others who have been there and know the system, and know a bit more than we do or our drs to help guide us into getting what we want or need.

Please stay with us to offer support to new pappers who can't/won't wear their masks, or offer advice to others, but if its all too negative in here, good luck with your therapy.

Lyza,
As soon as I hit the submit button, I had buyers remorse. I failed to consider that I am in the minority. I've had quick and effective success. I apologize to those who are still struggling to find effective therapy. I in no way meant to make light of your quest. Please accept my apology and know that I will stay here and support those who still searching.
Thanks for the jolt of reality, Lyza.
Tom

scherebh · Post by **scherebh** » Wed Jan 31, 2007 2:03 pm

I too have been fortunate - terrific results from the very first night. I think I have about 2 1/2 weeks in sucking through a hose. I still check this forum daily but just to learn. I could care less what my AHI is, my O2 levels, etc. because I feel great. Having said that, my first post here was to complain about the whole process of getting started so I hope my complaint wasn't the one that pushed you over the edge!

SleepGuy · Post by **SleepGuy** » Wed Jan 31, 2007 2:12 pm

Tom, thanks for starting this thread. I am very grateful to a good doctor who decided to screen me for OSA in 2003--I thought I was going crazy I was so tired, depressed, stressed back then.

I have so much to be grateful for--that little cpap machine, with all of its irritations and problems, has certainly changed my life! Maybe I could say that it gave me a life. It's so easy to take the good for granted and focus on the negative things around us.

Thanks again!

Guest · Post by **Guest** » Wed Jan 31, 2007 2:57 pm

Hi Tom,

Reading the challenges that many people have had has made me realise how fortunate I am and not to take good therapy for granted. I had a good study, good DME and good sleep doc, but this forum has answered all of my questions and allowed me to tweak my settings confidently. Also just knowing how many people have the same problem has really helped, you don't feel so alone. I've also been able to help some people including my brother with the knowledge that I've gained here.

Cheers

Peter

pedroski · Post by **pedroski** » Wed Jan 31, 2007 3:02 pm

Hi Tom,

That last post was me, I was logged out somehow.

Reading the challenges that many people have had has made me realise how fortunate I am and not to take good therapy for granted. I had a good study, good DME and good sleep doc, but this forum has answered all of my questions and allowed me to tweak my settings confidently. Also just knowing how many people have the same problem has really helped, you don't feel so alone. I've also been able to help some people including my brother with the knowledge that I've gained here.

Cheers

Peter

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CPAPopedia Keywords Contained In This Post (Click For Definition): DME

arthuranxious · Post by **arthuranxious** » Wed Jan 31, 2007 3:48 pm

The reality is that many of us only check the board and submit messages when things are worrying or upsetting us about our OSA and CPAP. In my case that is only some of the time, I am not a real success story, I haven't been significantly less tired, less depressed, lower blood pressure, easier weight loss or any real benefit, but I tolerate CPAP. I use it every single night, all night, and I am alive and functioning. There may be some tiny benefits, I am not sure... but I am OK (as I was before being diagnosed). When I spend more than a few minutes on these boards I feel sadder and angrier, because I realize that so many others have much worse stories. An they are trying hard, and being brave....
Heaven help all of us, but on balance we are better off being diagnosed and treated than thye alternative!

gregnga · Post by **gregnga** » Wed Jan 31, 2007 5:04 pm

cajapato wrote:
What I do have is some good sound sleep, a tempurpedic mattress that is a dream and a damn good attitude about what I do have that's good.

Tom,

I noticed that you said you had a tempurpedic mattress. I have been using CPAP for a while. At first, I would still be tired in the am. Then my sleep doctor increased my pressure from 8 to 10. That helped at first, now I am back to tossing and turning again all night and I wake up tired in the morning. I don't think cpap is the problem. I think the problem may be what I am sleeping on. I wake up a lot to turn over as I am a side sleeper. I'm thinking of getting a tempurpedic. It's kind of a downer thinking that I have managed to adapt to cpap therapy, but I still don't get a good night sleep. what can you tell me about tempurpedic

Snoredog · Post by **Snoredog** » Wed Jan 31, 2007 6:20 pm

well lucky you, I'm glad for you... but as it says at the top, http://www.cpaptalk.com - A Forum For All Things CPAP

if you have a problem with your cpap therapy, equipment or even getting it procured through insurance and need an answer with not a lot of BS attached then pose a question and you'll probably get the answer you seek within minutes.

but if you are here just looking for a forum or place to chit chat and just shoot the breeze socializing about your bridge game, then try the live chat above.

and if that don't work for you, then well you know the old saying... don't let the proverbial door hit you on the ass on the way out.

LDuyer · Post by **LDuyer** » Wed Jan 31, 2007 6:30 pm

When you really think about it, the best thing about these forums is for someone to come, get answers so they can get the setup working right, then move on. That can be the best compliment for a forum. Afterall, we started cpap in order to get our lives back. So it makes sense that those who find their answers move on -- they're embarked on living that life they wanted back so desperately.

As cajapato showed us, not everyone has the same needs or the same exact experiences when it comes to cpap therapy. One might reason that if everyone got their cpap working properly right away, noone would visit a forum. But that's not true, because one of the greatest things about forums is that they offer a place for people to relate to others who share the same condition, there's comfort in that.

Linda

cajapato · Post by **cajapato** » Thu Feb 01, 2007 5:55 am

Tom,

I noticed that you said you had a tempurpedic mattress. I have been using CPAP for a while. At first, I would still be tired in the am. Then my sleep doctor increased my pressure from 8 to 10. That helped at first, now I am back to tossing and turning again all night and I wake up tired in the morning. I don't think cpap is the problem. I think the problem may be what I am sleeping on. I wake up a lot to turn over as I am a side sleeper. I'm thinking of getting a tempurpedic. It's kind of a downer thinking that I have managed to adapt to cpap therapy, but I still don't get a good night sleep. what can you tell me about tempurpedic

We have had a variety of mattresses. From middle of the road to the best Sealy posturpedic. They have all eventually sagged leaving us both with miserable backaches every morning. We then started making trips to the sleep number bed store. They found our "magic" number and we lay there for awhile. With all the people stopping and staring, we felt like John and Yoko. Anyways, we just couldn't convince ourselves to buy the sleep number. So we went and lay on the tempurpedic deluxe. It felt a little to firm. I felt like it was holding me to high. But, in a matter of minutes, the mattress had sort of absorbed me. I settled into it, there were no pressure points and I had no pain. We bought it. Make no mistake, it's not a cheap mattress. But, for the first time in years, I can sleep on my left hip. Neither of us have backaches and unless a leak wakes me up, I flat out get some ZZZZZZ's. Oh yeah, if you get it, make them throw in an pillow or two. The price of the mattress is controlled by the Tempurpedic company so there is only a $200 margin for the store to give you. That's unless the company themselves have a better offer running.
Tom

cajapato · Post by **cajapato** » Thu Feb 01, 2007 6:14 am

Snoredog wrote:well lucky you, I'm glad for you... but as it says at the top, http://www.cpaptalk.com - A Forum For All Things CPAP

if you have a problem with your cpap therapy, equipment or even getting it procured through insurance and need an answer with not a lot of BS attached then pose a question and you'll probably get the answer you seek within minutes.

but if you are here just looking for a forum or place to chit chat and just shoot the breeze socializing about your bridge game, then try the live chat above.

and if that don't work for you, then well you know the old saying... don't let the proverbial door hit you on the ass on the way out.

Snoredog,
All you have said is true. That's why I immediately apologized for my near-sighted and insensitive remarks. There are people who are still struggling with therapy and need support and help. I lost sight of that.
My misguided approach was actually seeking the success stories. I still believe that they can offer a form of encouragement and support as well as pure data does. I went about it in a totally wrong fashion.
I wasn't looking for a bridge game since I don't play. I do like pinochle though.
I'm just a very optimistic person. I have MVP, glaucoma and skin cancer to compliment my OSA. It's just my way of life and I don't let it get me down. It's nothing conscious I do, it just happens.
Thanks for showing the door but I choose to stay here. I have benefited from cpaptalk.com and intend to try to share and help others.

So, once again I apologize.

Tom

cajapato · Post by **cajapato** » Thu Feb 01, 2007 6:40 am

gregnga wrote:
cajapato wrote:
What I do have is some good sound sleep, a tempurpedic mattress that is a dream and a damn good attitude about what I do have that's good.
It's kind of a downer thinking that I have managed to adapt to cpap therapy, but I still don't get a good night sleep. what can you tell me about tempurpedic

I seem to be spamming this thread. Some other stuff I forgot. The mattress cannot be used on box springs. It comes with a solid foundation platform that fits your bed frame.
Some people say they feel warmer on it. We've not experienced that.
It's guaranteed for 20 years so that's a good offset for the price.
Standard linen fits it just fine.

Guest · Post by **Guest** » Thu Feb 01, 2007 6:58 am

We purchased the Select Comfort (sleep number) bed about a year ago, so I set my side however firm I like it that day. (Mostly I just leave it alone), my husband has is own setting. I love a featherbed, so I have one of those on top. So, my bed is like a little slice of heaven to me. There is a pillow available from Target; I forgot the name, that is for cpap users that makes a LOT of difference for me; it's like night and day using that pillow; someone here will know the name or you could just search for pillow. There is another called the PAPillow, I don't know anything about it, but some folks swear by it.
I have heard good and bad about the temperpedic (sp??), I tried a pillow once, and it was so hot I couldn't take it, not to mention it was like sleeping with my head on a bag of sand. Of course many love it. It is very expensive, make sure you get a chance to lay on one a time or two before you make your decision.
Good luck!

Why do I feel bad when I feel good

Why do I feel bad when I feel good

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