Pugsy wrote: ↑Mon Jul 05, 2021 2:47 pm
Morgoth wrote: ↑Mon Jul 05, 2021 2:29 pm
I may order a mask or something, and it could get confiscated by the customs...
Yeah...they might or they might look at it and let it pass because there is no benefit to them to steal it.
I don't know about Serbia but a few years back I sent a large box of used masks to someone in need in Romania. He had ALS and was on cpap because he needed it to help him breathe...and no money of course. So I sent masks and someone else sent a machine.
My box of masks sat in customs in Romania for 6 weeks and then they release it to the guy. The machine they released after a couple of weeks. The machine was worth a lot more than the masks. I didn't know of any pertinent laws but the guy's wife told me that theft was common in Romanian customs.
Spain also has some rather stringent medical import rules and Brazil...and Japan...so you aren't alone but yours are the most stringent I have experience with. Japan made a guy show a copy of his RX from his doctor to release a machine he bought in the US and had sent to where he lived in Japan. Lots of trips to customs office involved and he finally had the copy of the RX and they released the machine and didn't even charge and import duty. Go figure that one.
I assume your laws also prohibit such "gifts" from outside your country. ???
Looks like you need to make a little trip outside Serbia and come home with some extra "used" stuff.
Well, since US is a world for itself, I'm not sure how much are you informed about European economic-political situation... Basically there is this economic-political union of 27 countries (like Germany, France, Italy, Spain etc...) called European Union (EU), Great Britain was in EU as well but there was this BREXIT and they left . Romania is in EU as well, so as far as I know, and I'm not an expert, people and goods are flowing freely inside EU between the member states, but once something comes in from the outside of the EU I guess it's under the state's laws jurisdiction... Romania is a country that is prone to corruption problem, Bulgaria as well...
And Serbia, Serbia is like corruption heaven, everything is achieved threw corruption, and we are not an EU member... Also the state favors import lobbies and various lobbies and let the importers and distributors to rip us off with various stuff... It's not just a medical equipment, that's just a tip of the iceberg, everything is more expensive here, from clothes to gadgets, tech in general etc... The only thing I believe is not expensive is basic food, like fruit and vegetable, and that's changing as well, again because state favors import lobbies to domestic manufacturers... The most banal example is that we grow a lot of raspberries, and few years ago our raspberry growers were destroying their harvest because the redemption price was less than 2$ per kg, and if you'd like to buy some raspberries from the market you have to pay 16$ per kilogram, and a lot of times you would see that it's actually imported from somewhere, which is actually exported from here and re-imported... Everything is going threw corruption at the expense of common people for politicians pockets... So yes, the things are really screwed here...
There is this internet CPAP store based in Bulgaria cpapstore(dot)eu that has good prices on machines and masks, but they haven't responded on my mails when I asked them about some products... For example their Resmed cpap price is around 850$, so cheaper than here...
Dan_McD wrote: ↑Mon Jul 05, 2021 2:53 pm
Morgoth wrote: ↑Mon Jul 05, 2021 1:27 pm
Dan_McD wrote: ↑Mon Jul 05, 2021 1:08 pm
Morgoth wrote: ↑Mon Jul 05, 2021 4:23 am
Hi guys,
I was really struggling last night waking up, I have to get accustomed to the mask yet, I felt that I had leaks while I wasn't and was resetting it up all the time in the begging.
I had low AHI, low events but almost every time after an event I woke up. Is it possible that I was waking up every time I had this "obstructive events", is that normal ? Is it possible for a person with severe OSA not to have any ?
When you wake up are you removing your mask? I notice you have 'Smart Start' on. So when you remove your mask it shuts the machine off. What do you do for the 15 minutes to half hour that you are awake? If I am wrong on this please correct me. The reason I bring this up is this. It would be interesting to see what happens to your pressure numbers if you left your mask on.
Also I notice the 95% pressure and the max pressure is 10.80 to 11.82, but you have your max pressure set at 16. You might try a setting closer to the 95% setting just to see what the results would be, maybe set you max at 12 or 12.5 instead of the 16. And try to leave your mask on even if you wake up. That way you could see what correction the pressure would make when reacting to the obstruction. Just a thought.
Hey Dan_McD !
I'm still fairly unexperienced with all of this. So I wake up, I get up, usually I think that the mask needs a resitting, or go to bathroom, or drink water because I'm a mouth breather and it tends to get dry or something... Sometimes I try to pull in the air thew my nose and I feel this small silicon piece that separates two nostril holes gets sucked into one of my nostrils so I have to tweak the mask and I'm not sure if I broke the seal afterwards...
Yeah, I'll try with max pressure 12 tonight... Thanks !
A couple of things. If you are having dry mouth you need to bump the number up on the humidifier. The ResMed you're using goes from 0-8. The Dreamstation was 1-5. The ResMed gives you a little finer tuning on the humidifier. I also have dry mouth and snore and have to use a full mask. I noticed your humidifier is set at 4. If I were you I would try a 6 on the humidifier and see if that doesn't help your dry mouth a little. Only use distilled water also. If you have "rain out" or water in your tube at 6, You might consider buying a heated tube/hose so you can keep the humidifier number up and not have water in your hose.
The pressure settings on the ResMed will set in 10ths I think. I wouldn't go all the way down to 12 to start. See if the high setting will set at 12.5 or 12.6. Little changes vs. big changes will help you find the 'sweet' spot sooner that will work better for you. If your AHI goes up too much then you might need a 13 or 14. I would try at least 2 nights on any change you make to see if it is consistent.
There is a guy on YouTube, his name is Nick. His YouTube videos are under the name of CPAP REVIEWS. He is a Biochemist and has spent several years helping people with breathing and sleeping problems. He has a very good video on setting pressures that was helpful to me. Over time, the closer you can get your minimum and maximum pressures together the more accurate and consistent your readings will be. God Bless
Hey, I wasn't using humidifier, I mean I didn't hook up the water chamber, I don't know why is the humidifier number at 4, I wasn't touching it... I don't really like hot air to be honest, it makes my nose soft tissue more swollen and I breathe more heavy on hot air, but I'll try with your advice !
I know about Nick, I'm following his stuff, I'll check that video, thanks !
I'm wondering if Phillips Dreamwave fullface would maybe work better for me since it doesn't have that small silicon piece separating the nostrils, it's just one big hole... As I said I've been sucking that piece into my nose while breathing, or maybe should I try wide cushion ? But while I have really large nostrils, I can stuff two fingers in a nostril lol, they are not that wide, W cushion looks too wide for my nose.