first time using OSCAR (I have UARS using CPAP)

[dudefromblink182]

Hello,

I started using my Dreamstation Auto CPAP for a week now using the dreamwear fitpack mask. I’ve been experiencing symptoms such as major brain fog, derealization, drowsiness, fatigue, headaches, sinus problems, acid reflux, tmj, feeling high or drunk, body aches, etc. I’m only 22 never had any health problems before all this started and tbh I never had sinus or allergy problems maybe once in every 2 years. For 7 months finding out what’s wrong with me I’ve visited numerous doctors, did blood, ct, and mri scans and was told NOTHING was wrong with me. This includes allergy blood test and sinus CT scan as well. I’m now feeling suicidal and just wanna stop living like this and I WANT MY BODY BACK! Been like this for 7 months and part of me thinks I have Chronic Fatigue Syndrome for no reason. I was told I just have allergies so i ended up taking weeks of antibiotics and did all the over the counter medication and sprays but nothing helps. No one in my life knows the pain I’m going through. I miss my old life 7 months ago.

I did a home sleep study WatchPat not a clinic test at my local clinic because it’s really expensive and my insurance doesn’t cover it since I have a high deductable. My WatchPat report is AHI 1 and RDI is 14 and was told NO SLEEP APNEA. I posted my results on Reddit and was told that I have Upper Airway Resistance Syndrome (UARS). I was told about BIPAP as well but my watchpat doctor wants me to try cpap first. I was told I have a small jaw, a small turbinate in one nostril, big tongue which covers my airway and uvula when I open my mouth. Here is my results from my OSCAR. My symptoms are still present nothing has changed so idk if I need to change my settings. This is so hard I am slowly giving up.

ALSO I don’t sleep during the day. I don’t know why I have a time difference on my results. I live in a different country and time zone than the US.

[dudefromblink182]

Here are the other attachments, thank you everyone

[dudefromblink182]

Here is my statistics since i don't have a ResMed i can't find my Flow Limitation Index chart /:. Also I am in a different time zone so I think I need to change the time on my OSCAR. I don't sleep during the day. Also before bed I would turn the machine on and off when trying to fix my mask so idk if that has an affect on the results. I also use a SMALL cushion mask but last night I switched to MW.

[Pugsy]

Where are you located?

The Respironics DreamStation machine doesn't do flow limitation graphs....instead it just flags any flow limitations just like it would an OA or hyponea and you see them up on the Events Graph.

UARS (if that is what you have going on and it this point we don't know) isn't easily treated with cpap because there's nothing really on the cpap gathered data points that will help us figure out what pressures are working well or not.
You have to go more on how you are sleeping and feeling and you for sure have to give settings more than a one night trial.
Typically it takes a LOT of patience and education.

Sounds like you are running extremely low in the patience department and going to dark places with your thoughts.
I strongly urge that you talk to your doctor about what is going on here. We don't even know for sure UARS is what is going on here and I don't want to ignore your mental issues while chasing unknown rabbits with tweaking your machine in an effort to try to fix a problem that may not even be fixable with the machine.

[Miss Emerita]

I want to echo Pugsy's advice. It is very difficult to get a diagnosis when the main symptoms are "subjective," which just means they can't be directly observed by someone else. This includes symptoms like brain fog, fatigue, sleepiness, and body aches.

Please call the national suicide hotline for some short-term help. The number is 800-273-8255.

You've had tests that have ruled out a number of problems, it seems, and your doctor has been concentrating on allergies and disorders of sleep breathing. Please go back to the doctor and explain that you've been compliant with the CPAP but are seeing no change. Please also explain that you sometimes think about suicide.

Before you see the doctor, think back to when all of this started. Can you remember anything out of the ordinary going on at the time? A cold or flu? A lot of stress? An injury? Travel? Weight change? Change in drinking, medication, or drug-taking? Possible encounters with ticks or other critters you might not normally come across? Inhaled a lot of dust or other particulate matter? Make a list and give it to your doctor.

Also, during the past seven months, have there been times when you felt well? If so, please also tell that to the doctor. A pattern of flares and remissions could be a clue.

Keep us posted, would you?

[msreef]

If you have UARS, I would recommend trialing a sleep apnea mouthguard in combination with CPAP. That's what I use and I feel much better that way. CPAP alone simply doesn't do it for me, neither does a mouthguard on its own. I also force myself to side sleep and wear a cervical collar. Sleep apnea mouthguards can be bought on Amazon for around ~$30.

Also, there are many causes of brain fog, fatigue etc. You should look at http://www.fixmyfog.com - enter your symptoms and get a list of conditions that could be causing them.