My father passed away from sleep apnea and I don't want to so I am using BiLevel Aircurve 10 VAuto for the first time

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
RLMMG
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Re: My father passed away from sleep apnea and I don't want to so I am using BiLevel Aircurve 10 VAuto for the first tim

Post by RLMMG » Sun Dec 22, 2019 10:36 am

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Here is last night readings and again any help on the settings to hopefully make it better would be appreciate.

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Miss Emerita
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Re: My father passed away from sleep apnea and I don't want to so I am using BiLevel Aircurve 10 VAuto for the first tim

Post by Miss Emerita » Sun Dec 22, 2019 11:26 am

Hello! It’s great you’ve started therapy and started using Oscar too. It’d be helpful to know what your night-time experiences with the machine are like, and why you have frequent breaks.

Oh, and one more question: could you turn off the pie chart and then stack your graphs like this:

Events
Flow rate
Pressure
Leaks
Flow limitation
Snores.

You can squeeze everything in one screenshot by grabbing the gray horizontal line that separates the graphs and moving it up. I’d be especially interested to see what your flow limitations look like. (I think the Oscar folks will soon be giving us a one-click way to set up our charts for review. Won’t that be nice!)
Oscar software is available at https://www.sleepfiles.com/OSCAR/

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Re: My father passed away from sleep apnea and I don't want to so I am using BiLevel Aircurve 10 VAuto for the first tim

Post by RLMMG » Sun Dec 22, 2019 12:03 pm

Sure how do I turn off pie chart as I dont see the option. I didn't see it in the wiki unless I missed it I will re read it again

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Re: My father passed away and I don't want to so I am using BiLevel Aircurve 10 VAuto for the first time

Post by palerider » Sun Dec 22, 2019 12:23 pm

RLMMG wrote:
Sun Dec 22, 2019 8:30 am
palerider wrote:
Sat Dec 21, 2019 11:42 am
http://cpaptalk.com/wiki/index.php/Sleepyhead:Organize

Please read, and follow that.
Do you offer anything other than bitch, nag and complain. OMG I called it a BiPap instead of a BiLeve after just losing my father and now this. I know what group you fall in.
If you guessed that I fall in the group that wants people to get the absolute best results out of their therapy, you'd be right.

When you post crap that's a pain to read, you'll get less helpful responses. When you use the wrong terms for things, you'll get less helpful responses.

Now, since you don't want my help on anything... I'll be happy to ignore you from now on.

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Re: My father passed away from sleep apnea and I don't want to so I am using BiLevel Aircurve 10 VAuto for the first tim

Post by chunkyfrog » Sun Dec 22, 2019 1:43 pm

PR, honey; people use the wrong terminology because the manufacturers WANT them to,
As indicated by the hot mess they have created by their own insane terminology.
Like we all refer to "Kleenex", even though we studiously avoid the most expen$ive brand.
Can we accept the fact that one company's registered trademark is often used-
-even referring to their competitor's SUPERIOR product?
The really crucial word is the BRAND NAME.
(Sadly, even those are suspiciously similar.)

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Re: My father passed away from sleep apnea and I don't want to so I am using BiLevel Aircurve 10 VAuto for the first tim

Post by jsmit86 » Sun Dec 22, 2019 4:16 pm

Just a quick note to the OP.
The corrections and suggestions here were not meant to be hurtful in any way.

As was pointed out, the corrections about terminology were to avoid confusions, and bad advice to you.

Regarding formatting OSCAR, it may seem like a bit of a pain, but keep in mind that the experts here do this out of the goodness of their hearts.
I too had issues getting OSCAR to work properly on my PC, and getting the charts formatted correctly. I had to read one of the tutorials, dig around in the software, and post a couple of clinkers before I got it right.

The main point is once I did that, I got some very helpful advice. A few tweaks of pressure settings, and EPR, have made what I thought was good therapy remarkably better.
I was getting up for bathroom breaks 5 or 6 times a night. After adjusting my settings, I usually get up once, or perhaps twice at most. My AHI's are now under 1.0 most nights. So... taking the time to get the advice here was totally worth it. Don't take the critiques personally, the folks here are trying to help, but keep in mind that they can only spend so much time on the basics, and they will expect you to read the tutorials and follow the directions.

I know that if you follow the advice here, you'll have a strong likelihood of getting your therapy dialed in, and dramatically improving your health.
Best wishes to you!

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Re: My father passed away from sleep apnea and I don't want to so I am using BiLevel Aircurve 10 VAuto for the first tim

Post by zonker » Sun Dec 22, 2019 5:10 pm

jsmit86 wrote:
Sun Dec 22, 2019 4:16 pm
Just a quick note to the OP.
The corrections and suggestions here were not meant to be hurtful in any way.

As was pointed out, the corrections about terminology were to avoid confusions, and bad advice to you.

Regarding formatting OSCAR, it may seem like a bit of a pain, but keep in mind that the experts here do this out of the goodness of their hearts.
I too had issues getting OSCAR to work properly on my PC, and getting the charts formatted correctly. I had to read one of the tutorials, dig around in the software, and post a couple of clinkers before I got it right.

The main point is once I did that, I got some very helpful advice. A few tweaks of pressure settings, and EPR, have made what I thought was good therapy remarkably better.
I was getting up for bathroom breaks 5 or 6 times a night. After adjusting my settings, I usually get up once, or perhaps twice at most. My AHI's are now under 1.0 most nights. So... taking the time to get the advice here was totally worth it. Don't take the critiques personally, the folks here are trying to help, but keep in mind that they can only spend so much time on the basics, and they will expect you to read the tutorials and follow the directions.

I know that if you follow the advice here, you'll have a strong likelihood of getting your therapy dialed in, and dramatically improving your health.
Best wishes to you!
+1

yeah, i know, it's kind of obnoxious to quote the whole thing, than just ass +1.

so i'll say more. it's very hard for a newbie to get those charts lined up correctly. at least, it was for me. i reckon it's because most of us come here for help and don't really USE a computer. at least, not like in the "old days" when you pretty much had to know what you were doing to get things done.

now with apps and mobile computing, seems like things are easier. than wham! you have to figure out a program like sleepyhead or oscar.

a lot of us are in that middle ground. i'm lucky enough that i started computing long enough ago to sort of make my way about.

anyway, just wanted to say i really appreciate how you spoke to the issue of oscar!
people say i'm self absorbed.
but that's enough about them.
Oscar-Win
https://www.apneaboard.com/OSCAR/OSCAR-1.5.1-Win64.exe
Oscar-Mac
https://www.apneaboard.com/OSCAR/OSCAR-1.5.1.dmg

RLMMG
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Re: My father passed away from sleep apnea and I don't want to so I am using BiLevel Aircurve 10 VAuto for the first tim

Post by RLMMG » Sun Dec 22, 2019 5:31 pm

chunkyfrog wrote:
Sun Dec 22, 2019 1:43 pm
PR, honey; people use the wrong terminology because the manufacturers WANT them to,
As indicated by the hot mess they have created by their own insane terminology.
Like we all refer to "Kleenex", even though we studiously avoid the most expen$ive brand.
Can we accept the fact that one company's registered trademark is often used-
-even referring to their competitor's SUPERIOR product?
The really crucial word is the BRAND NAME.
(Sadly, even those are suspiciously similar.)
I couldn't agree with you more. I am so new to this and only started this past week since I lost my father who passed away in his sleep when his heart stopped at the age of 74. I may be a little slow as I am trying to learn. I post my pics of everything and I still have no idea as my settings or anything. I truly pray that you or anyone else here dies of sleep apnea but my Dad did and I have 3 children my youngest 7 and 2 identical twin sons 15 that we had later in life and I really want to live a better life than my father.

It would be nice if someone can give me technical info on my sleep and what can be done to make it better in the settings and if anyone feels that they can be adjusted

Again I truly appreciate the condolsense from everyone but please can someone look at what I posted and give me some feedback

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Re: My father passed away from sleep apnea and I don't want to so I am using BiLevel Aircurve 10 VAuto for the first tim

Post by palerider » Sun Dec 22, 2019 7:07 pm

chunkyfrog wrote:
Sun Dec 22, 2019 1:43 pm
PR, honey; people use the wrong terminology because the manufacturers WANT them to,
As indicated by the hot mess they have created by their own insane terminology.
Like we all refer to "Kleenex", even though we studiously avoid the most expen$ive brand.
Can we accept the fact that one company's registered trademark is often used-
-even referring to their competitor's SUPERIOR product?
The really crucial word is the BRAND NAME.
(Sadly, even those are suspiciously similar.)
NO, my very lovely frog, we can't.

Because if you search online for Kleenix, and you go out and buy the wrong brand of nose blowers.... you're out a couple bucks.

If you search for the wrong thing, and buy the wrong thing in a cpap, you might be out hundreds, possibly thousands of dollars.

Sometimes, words matter.

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Re: My father passed away from sleep apnea and I don't want to so I am using BiLevel Aircurve 10 VAuto for the first tim

Post by jim22 » Sun Dec 22, 2019 7:41 pm

RLMMG wrote:
Sun Dec 22, 2019 5:31 pm

Again I truly appreciate the condolsense from everyone but please can someone look at what I posted and give me some feedback
I'm not sure what went on around midnight, maybe you were actually awake. Your data other than that doesnt look too bad. If you are comfortable raising the starting pressure you might try 11. You could raise it a little each day for a few days. How do you FEEL? How well do you think you are sleeping? Anything in particular making you unhappy with your setup?

Jim

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RLMMG
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Re: My father passed away from sleep apnea and I don't want to so I am using BiLevel Aircurve 10 VAuto for the first tim

Post by RLMMG » Sun Dec 22, 2019 7:55 pm

jim22 wrote:
Sun Dec 22, 2019 7:41 pm
RLMMG wrote:
Sun Dec 22, 2019 5:31 pm

Again I truly appreciate the condolsense from everyone but please can someone look at what I posted and give me some feedback
I'm not sure what went on around midnight, maybe you were actually awake. Your data other than that doesnt look too bad. If you are comfortable raising the starting pressure you might try 11. You could raise it a little each day for a few days. How do you FEEL? How well do you think you are sleeping? Anything in particular making you unhappy with your setup?

Jim

Thanks Jim really Thank You

I sleep terrible always up and sleep then up again. Always feeling exhusted needing naps. I need to take a few a day. Its been years since I sleep through the night. Even now I have the Bi Level CPAP machine on and I am awake for a while before I sleep. I do seem to be doing better when I had my sleep study in the hospital I was at an AHI of 29.1 so I have went down on my AHI but just still feel tired. By 9pm I need to go to bed and yet I dont have to get up to 7AM and still can't get enough sleep

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Re: My father passed away from sleep apnea and I don't want to so I am using BiLevel Aircurve 10 VAuto for the first tim

Post by RLMMG » Mon Dec 23, 2019 7:19 am

Boy what a weird feeling when you tip over your machine while your sleeping and wake to a drowning feeling in your mask. I may skip the humidifier from now on. I have dry mouth with or without using the humidifier anyway. I was able to use a neck pillow and turned it around and tried it out as a collar it seemed to work and something is better than nothing. It was such ashame until about 4am I was having what seemed to me being my best night sleep until all that water came into my mask. Still having AHI and looking at the AHI on my chart seemed to last a while.
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Re: My father passed away from sleep apnea and I don't want to so I am using BiLevel Aircurve 10 VAuto for the first tim

Post by ChicagoGranny » Mon Dec 23, 2019 8:56 am

Your formatting of the chart is much better. This makes it easier for members to analyze what is happening. Your therapy looks very good. You only had two obstructive apneas all night - excellent!
RLMMG wrote:
Mon Dec 23, 2019 7:19 am
when you tip over your machine while your sleeping and wake to a drowning feeling in your mask
RLMMG wrote:
Mon Dec 23, 2019 7:19 am
all that water came into my mask
Can you explain this a little better? Did you actually tip over the machine spilling the water? If you did and the water came into your mask, you must have the machine placed higher than your head. It's not clear what actually happened.

Tip on using OSCAR: Click on the Events tab and you will get lists of each type of apnea, the time of occurrence and the length of the event.

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Re: My father passed away from sleep apnea and I don't want to so I am using BiLevel Aircurve 10 VAuto for the first tim

Post by ChicagoGranny » Mon Dec 23, 2019 9:00 am

RLMMG wrote:
Mon Dec 23, 2019 7:19 am
I was able to use a neck pillow and turned it around and tried it out as a collar it seemed to work and something is better than nothing.
A good many of us use foam cervical collars or collar-like devices. Properly fitted and properly worn, they keep the neck in the ideal position for airway patency. (Dropping the chin down toward the chest tends to constrict the airway.)

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Re: My father passed away from sleep apnea and I don't want to so I am using BiLevel Aircurve 10 VAuto for the first tim

Post by RLMMG » Mon Dec 23, 2019 11:00 am

I thought my CPAP was save and it never fell on the floor. However I am a restless sleeper always moving and my CPAP tipped over and all this water came through the tube and into my mask. I will make safety precautions so this doesn't happen again. I pulled out the humidifier and turned it on to blow out the water. I turned off the humidifier and turned it back on and Thank God it seems to be working fine. I was so nervous as I don't want to break it as it was a challenge and I am so thankful that I was able to get this unit. Is there anything else I can do to make sure that I didn't cause any damage

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