Vinny's therapy Thread 3rd sleep Doc

[Vinny V]

Thanks.

I got my present mask to be more comfortable with some tinkering.

some of the RERA's I know can't be happening during sleep because I've been looking at the charts and see some of them happening just minutes after I turn the machine back on from my getting up and I haven't even got into sleeping position yet or be asleep that fast

I will make the setting changes.

This week I have a appointment with my sleep Doctor, it will be my last since I will be getting a new insurance company and he is not part of there coverage.

I have to start looking for a new one, fresh eyes could be interesting

I wasn't happy with the noise on the nasal wisp so that's out, the person who bought it for me said it's guaranteed for 30 day trial and it can be returned..so I'll see what else to try

[Pugsy]

For a nasal mask that is quiet look for one that has the diffused venting.
The Wisp has zero diffused venting as you found out. Diffused venting equals no vent noise....very quiet.

These nasal interface masks have diffused venting...

ResMed AirFit P10 nasal pillow
ResMed AirFit N30i

F & P Brevida
F & P Pilairo Q
F & P ESON

[Vinny V]

I will definitely check them out,

Someone I know is pushing me towards the nasal pillows says they changed his life...

[Vinny V]

Second night with the re-readjusted settings, unfortunately it's not all sleep. The first 3 hours I was out like a light...

Thanks Pugsy for the suggestions I think this is a good chart....except for the broken sleep which I assume is contributing to me not feeling good yet... ( and some days feeling worse)
my friend told me that it took a few months to start feeling better, the first thing that changed for him was dreaming lots of dreams....me not really dreaming much yet..

New Settings Night 3.png (58.07 KiB) Viewed 2656 times

[Pugsy]

Actually remembering too much dreaming isn't necessarily a good thing.
We don't remember a dream unless we wake up during it or right at the end maybe and we are awake long enough to formulate a memory of the dream. We don't want wake ups and certainly don't want to wake up long enough to formulate a memory of the wake up.

Also...we can dream in any sleep stage so it doesn't necessarily mean that we are in REM like a lot of people believe.
Plus it is normal to wake up after a REM stage is completed...normally we just roll over and go back to sleep and aren't awake long enough to form a memory of the awakening.

When I see reports like yours with frequent wake ups I always assume there were even more that you don't remember.
Your OSA appears to be well treated so we have to look elsewhere for the cause of the wake ups.
Now maybe it is just the newness of all this stuff that is a factor. Let's face it, sleeping with the alien on our face and blowing air up our nose isn't exactly normal.....at least yet.
Plus there are many other potential culprits for causing sleep problems...insomnia...either going to sleep or staying asleep
and they aren't necessarily caused by things that cpap itself can fix. Maybe you do just need time to adjust to this new way of sleeping but while giving it time you might take a long look at the usual suspects just in case.
Medication side effects....other health issues....pain....sleep hygiene bad habits....alcohol...recreational drugs, etc

And you are correct....so many wake ups pretty much trashes sleep architecture and you don't get the needed sleep stages in the needed percentage in each stage for the restorative powers of sleep to work their magic.
Hours of sleep is important but even 8 hours of highly fragmented sleep with an AHI of 0.0 won't let us feel those good numbers.

[Vinny V]

I do not know why my sleep is like that, it only started about a year ago (it's worse now)
I am very ocd about my sleep hygiene. No matter what I'm out of bed the same time everyday, into bed the same every night, I keep the room dark and cool.
I don't smoke, drink, use drugs, no caffeine. I eat on schedule and leave 2-3 hours space between dinner and bed. An hour before bed I have chamomile tea. I use a white noise machine to block outside noise.

A year + ago I was on a beta blocker..my sleep problems started around that time, found out beta blockers can mess with your sleep so about 8 months ago I stopped, due to the anxiety of my medical problems I'm on a small dose of clonazepam .25 mg which I take in the am.

Before diagnosis of osa a few months ago doctors could not find any reason why I feel the way I do...I suspected something happening at night because I felt worse the more sleep I got, but Drs said it was most likely night panics because I would wake up suddenly gasping for air with my heart racing and head pounding

Brain fog, cognitive impairment, dizziness, fatigue eye pain/ vision blurred , headaches sometimes weeks straight.muscle pain chills etc.

I've had multiple MRI's, CAT scans of the head, neck and inner ear. sonogram of the blood vessels in my neck, 24hr eeg of the brain. Multiple hormone work ups, auto immune works up.multiple eye exams , heart workup 24 halter monitor dozens of blood test..Lyme test .with the exception of reactive hypoglycemia ( had for decades) they have found nothing wrong....one told me that at 50years old my test were better than some of her younger patients
Every test was done twice...over the course of a year..

The only test that had a negative results was the sleep test....so it's either the sleep issues that are causing my problems or ......I'm insane and imagining every thing

[Midwest_non_sleeper]

I do not know why my sleep is like that, it only started about a year ago (it's worse now)
I am very ocd about my sleep hygiene. No matter what I'm out of bed the same time everyday, into bed the same every night, I keep the room dark and cool.

I was going to ask you if you slept with a TV on, but the bolded underlined part tells me probably not.

I went through a phase in which my OSA was treated very well, but I was still experiencing many wake ups. I couldn't figure out why. This went on for weeks. Then one night, I woke up and the TV in the bedroom was on. The light actually hurt my eyes. I turned it off and went back to bed. The next night, I made sure the TV was off before sleep, and I slept way better, no wake ups. This has been consistent.

My wife likes to sleep with the TV on, so when she falls asleep, usually after me because she reads for longer, she just turns the volume down and leaves the TV itself on. That was what was causing my wake ups, like clockwork.

I banish any electronic devices from my sight (with the exception of that treacherous TV) an hour or so before bed, at which point I typically read a book - a physical book, not an E-book. Reading Solzhenitsyn's The Gulag Archipelago right now, and holy smokes, what a terrible book. Not the book itself, but the story...yikes.

[Vinny V]

I banished my wife because she snored and used to wake me up all the time..

I have sleep apnea and don't snore.
Funny

[Midwest_non_sleeper]

I banished my wife because she snored and used to wake me up all the time..

I have sleep apnea and don't snore.
Funny

...maybe she should be tested for sleep apnea

[Vinny V]

Ok something is going on with my machine,,, I have noticed ever increasing sections of data missing from my sleepy head reports,
The largest was last night I turn the machine on as soon as my light is off..most nights I'm asleep within 5-10 minutes so the machine was on from 9 pm I woke around 1:15 could not fall back asleep so I turned the machine off around 1:30, checked the machine to see how my numbers were and noticed it said 3 hours of usage..But I shut it off at 1:30.....that is 4 1/2 hours....

You can see from the image below a large section of data missing. My memory is not so good so I'm trying to remember if I turned the machine off
or it was off already or it turned itself off or it was on and didn't record data..

Now it's another thing to worry about at night and give me problems with my sleep.

Edit: based on the amount of water left in the humidifier I am thinking the machine is shutting itself off because since I have been using the machine the humidifier is always empty in the morning. And this morning is just about half full....

[Vinny V]

Can anyone offer any advice

[palerider]

The only way to see if it's something in your machine, or a bug in sleepyhead, is to load the data into encore.

[Vinny V]

You mean I might have a ghost in the machine.

What is encore,

As a test i have noted the blower hours and I will check them in the morning to see what they read.

Thanks

[palerider]

You mean I might have a ghost in the machine.

What is encore,

As a test i have noted the blower hours and I will check them in the morning to see what they read.

Thanks

Encore is the software that Respironics supplies to the medical community, it's the "official" software.

If it shows gaps, there's either a problem in your machine, or on the SD card. If it doesn't show gaps, then the problem is a bug in sleepyhead, or some corrupted data.

[Vinny V]

You mean I might have a ghost in the machine.

What is encore,

As a test i have noted the blower hours and I will check them in the morning to see what they read.

Thanks

Encore is the software that Respironics supplies to the medical community, it's the "official" software.

If it shows gaps, there's either a problem in your machine, or on the SD card. If it doesn't show gaps, then the problem is a bug in sleepyhead, or some corrupted data.

I

My sleepy head screen shot is a few posts above
There is a big gap in the data
But even the cpap screen it's self is showing me less hours then im.really doing
The machine says I barely hit 5 hours last night and my accounting say it should be closer to 7+hours

Plus I usually have an empty humidifier in the morning and this time it was still half full and my room is very dry...