what would be a good mask for facial neuropathy

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
rickyjoe48
Posts: 9
Joined: Tue Nov 20, 2018 12:46 pm

what would be a good mask for facial neuropathy

Post by rickyjoe48 » Tue Nov 20, 2018 1:13 pm

While I am not newly diagnosed, I am awaiting my first titration study so I do not have any equipment list.
I have a facial neuropathy which is an artifact of a sinus surgery. (mid-face deglovng with attendant orbital facial nerve damage). The surgery was in 1994 so I am convinced the neuropathy is permanent.
There is an area up to one inch wide on the left side of my face starting at the inside corner of my eye, extending down along the side of my nose to the top of my top lip that is highly sensitive to touch. Stimulation in this area causes headaches, pain in the area plus several of my teeth also hurt. I wear contacts most of the time because the weight of glasses becomes unbearable after a short period of time.
Does anyone have A suggestion for what type of mask to start with? I am not a mouth breather. I first tried an oral appliance and for seven months enjoyed good comfort; my blood pressure became manageable and i went from four meds to two while my subjective symptoms all got markedly better. However, at my follow up sleep study, I still have an AHI of 37 With 202 RERA’s Over the study period. Since I still have severe apnea with the OA I wonder if higher pressures will be needed for effective treatment.
Thanks I greatly appreciate any help.

_________________
Machine: DreamStation BiPAP® Auto Machine
Mask: SleepWeaver Elan™ Soft Cloth Nasal CPAP Mask - Starter Kit
Humidifier: DreamStation Heated Humidifier
Additional Comments: min Ipap-9 Max Ipap-25 Min Epap-9 Max Epap-15 PS-0 to 15

User avatar
Pugsy
Posts: 64938
Joined: Thu May 14, 2009 9:31 am
Location: Missouri, USA

Re: what would be a good mask for facial neuropathy

Post by Pugsy » Tue Nov 20, 2018 1:30 pm

Welcome to the forum.

A lot of people think that severity of the OSA will dictate pressure needs but that's not true.
People can have a really mild AHI of say 8 and need 20 cm pressure and the next person might have an AHI of 100 and only need 6 cm pressure.
It all depends on the tissues in the airway and how much pressure is actually needed to hold prevent the collapses.

For masks...look at something that touches your face as little as possible.
That is usually going to be one of the nasal pillow masks...check out the one I use (link below).
Also take a stroll through the various nasal pillow masks out there.
https://www.cpap.com/cpap-masks/nasal-pillow-cpap-mask

Pay special attention to the TapPap since you are accustomed to a mouth guard. Might be right up your alley...no headgear and just barely touches the nostrils.
https://www.cpap.com/productpage/tap-pa ... k-improved

_________________
Machine: AirCurve™ 10 VAuto BiLevel Machine with HumidAir™ Heated Humidifier
Additional Comments: Mask Bleep Eclipse https://bleepsleep.com/the-eclipse/
I may have to RISE but I refuse to SHINE.

rickyjoe48
Posts: 9
Joined: Tue Nov 20, 2018 12:46 pm

Re: what would be a good mask for facial neuropathy

Post by rickyjoe48 » Tue Nov 20, 2018 2:36 pm

Thank you Pugsy,

The TAP- PAP makes sense. I am wearing a dream TAP now and should’ve thought of that. I have been looking at the circadiance cloth masks, But since they cannot be hospital sterilized The lab was reluctant to use them. I imagine that they will have the same issue with the TAP device. Circadence Offers a 30 day return policy so I was going to order them myself for testing. Even one night of a constant headache with a hard plastic/ silicone face mask on is far from appealing, And it certainly makes sleeping a practical problem. A cloth mask also has issues over 12 cm and might be self-limiting if that is what is required. fortunately for me the nostril side of my nose is outside the affected area.

Have you heard anything about the TAP - PAP for side sleepers?

_________________
Machine: DreamStation BiPAP® Auto Machine
Mask: SleepWeaver Elan™ Soft Cloth Nasal CPAP Mask - Starter Kit
Humidifier: DreamStation Heated Humidifier
Additional Comments: min Ipap-9 Max Ipap-25 Min Epap-9 Max Epap-15 PS-0 to 15

User avatar
Pugsy
Posts: 64938
Joined: Thu May 14, 2009 9:31 am
Location: Missouri, USA

Re: what would be a good mask for facial neuropathy

Post by Pugsy » Tue Nov 20, 2018 3:03 pm

I actually used the TapPap for a little over a year with great success.
I am primarily a side sleeper but like most people do spend a little time on my back. I try to keep it minimal because sleeping on my back causes a lot of back pain.
I changed to the P10 for a couple of reasons.
1...the P10 venting is silent and doesn't annoy my husband
2...at the same time the P10 was released I was also having some dental work done on a couple of very old crowns that needed repair so I couldn't really use the mouth guard for a while. Good time to try the newly released (back then) P10 and I liked it so well I just never went back to the TapPap.

Once I got used to the mouth guard (never even had braces or used anything like that) the TapPap pretty much disappeared on my face.
The pillows don't have to be super snug to seal. You can easily sleep in any position you wish...I even did some sleeping on my stomach with it. I woke up some mornings and couldn't feel the mask, or mouth guard or even the machine blowing air. Sort of like I wasn't even using them but I was.

_________________
Machine: AirCurve™ 10 VAuto BiLevel Machine with HumidAir™ Heated Humidifier
Additional Comments: Mask Bleep Eclipse https://bleepsleep.com/the-eclipse/
I may have to RISE but I refuse to SHINE.

User avatar
kteague
Posts: 7781
Joined: Tue May 16, 2006 8:30 pm
Location: West and Midwest

Re: what would be a good mask for facial neuropathy

Post by kteague » Tue Nov 20, 2018 5:23 pm

+1 on the TapPap suggestion if you meet dental requirements. I am at times prone to being easily agitated by sensations and when I get like that I don't want headgear touching me. My teeth felt a bit sore the first week or two but in the years since then it has been the most easy to forget and leak free mask. If you do decide to go with this mask, you might want to read up on prior tips on here. The one I'd consider most important is the instruction to wiggle it while fitting to loosen it a bit. My first time I tried I had it on so tight I was holding warm water in my mouth trying to soften the mouthpiece enough to get it off. Lesson learned. :) Outside that mask, maybe viewing the other options would reveal one that has headgear that does not press on your problem area.

_________________
Mask: TAP PAP Nasal Pillow CPAP Mask with Improved Stability Mouthpiece
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control
Additional Comments: Bleep/DreamPort for full nights, Tap Pap for shorter sessions

TropicalDiver
Posts: 350
Joined: Sun Nov 04, 2018 11:29 pm

Re: what would be a good mask for facial neuropathy

Post by TropicalDiver » Tue Nov 20, 2018 8:30 pm

At the other end of the spectrum, how about something like the FitLife Total Face?
Machine: Aircurve 10 Vauto (Prior S9 VPAP)
Mask: Quattro Air FFM and AirTouch F20 FFM

User avatar
chunkyfrog
Posts: 34545
Joined: Mon Jul 12, 2010 5:10 pm
Location: Nowhere special--this year in particular.

Re: what would be a good mask for facial neuropathy

Post by chunkyfrog » Tue Nov 20, 2018 8:57 pm

Or think about a cloth mask? (Sleepweaver)

_________________
Mask: AirFit™ P10 For Her Nasal Pillow CPAP Mask with Headgear
Additional Comments: Airsense 10 Autoset for Her

rickyjoe48
Posts: 9
Joined: Tue Nov 20, 2018 12:46 pm

Re: what would be a good mask for facial neuropathy

Post by rickyjoe48 » Thu Nov 22, 2018 4:13 pm

thanks everybody, i think i’ll try the cloth mask first. lots of good ideas, the full face mask might be something to explore if nothing else works though

_________________
Machine: DreamStation BiPAP® Auto Machine
Mask: SleepWeaver Elan™ Soft Cloth Nasal CPAP Mask - Starter Kit
Humidifier: DreamStation Heated Humidifier
Additional Comments: min Ipap-9 Max Ipap-25 Min Epap-9 Max Epap-15 PS-0 to 15