My Doctor's staff are not happy...

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
trekwars2000
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Re: My Doctor is not happy...

Post by trekwars2000 » Mon Aug 06, 2018 9:07 pm

palerider wrote:
Mon Aug 06, 2018 8:57 pm
jim22 wrote:
Mon Aug 06, 2018 8:48 pm
Last I checked, 7 is between 5 and 20. You did good, and I bet the doctor is actually fine with it. How is your typical 90% pressure, higher than 7?
But, the machines *settings* were changed from 5-20 (a stupid value) to 7-20 (a more reasonable value. We're talking min/max auto pressures here. And someone got their panties in a wad about it.
Its funny, the default seems to be 5-20 right? They don't change it much.

After sleep study they were going to write an Rx with a CPAP constant pressure at 15. I called and got them to change it and we talked through the pressures looking at my sleep study together. We both agreed 10-17 seemed reasonable. I've been using my APAP for 10 days now and the highest I've gotten to is 14.4, my average is 11.03 and 90% is low/mid 12s. I've bumped up the starting ramp pressure from 4 to 6 and now again to 7.

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palerider
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Re: My Doctor is not happy...

Post by palerider » Mon Aug 06, 2018 9:26 pm

trekwars2000 wrote:
Mon Aug 06, 2018 9:07 pm
palerider wrote:
Mon Aug 06, 2018 8:57 pm
jim22 wrote:
Mon Aug 06, 2018 8:48 pm
Last I checked, 7 is between 5 and 20. You did good, and I bet the doctor is actually fine with it. How is your typical 90% pressure, higher than 7?
But, the machines *settings* were changed from 5-20 (a stupid value) to 7-20 (a more reasonable value. We're talking min/max auto pressures here. And someone got their panties in a wad about it.
Its funny, the default seems to be 5-20 right? They don't change it much.

After sleep study they were going to write an Rx with a CPAP constant pressure at 15. I called and got them to change it and we talked through the pressures looking at my sleep study together. We both agreed 10-17 seemed reasonable. I've been using my APAP for 10 days now and the highest I've gotten to is 14.4, my average is 11.03 and 90% is low/mid 12s. I've bumped up the starting ramp pressure from 4 to 6 and now again to 7.
I think you meant 4-20... which is the default on most auto machines.

Yeah, basically 5-20 is the new 4-20 too lazy/dumb/ignorant to give the patient a *decent* pressure setting.

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flightco
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Re: My Doctor is not happy...

Post by flightco » Mon Aug 06, 2018 9:47 pm

Do you think it was actually the Dr's office calling? It sounds more like it was the DME calling, they get their panties in a wad over this but the doctors don't really seem to care, they are glad you are being compliant since most are not

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Muse-Inc
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Re: My Doctor is not happy...

Post by Muse-Inc » Tue Aug 07, 2018 1:22 am

trekwars2000 wrote:
Mon Aug 06, 2018 9:07 pm
...been using my APAP for 10 days now and the highest I've gotten to is 14.4, my average is 11.03 and 90% is low/mid 12s. I've bumped up the starting ramp pressure from 4 to 6 and now again to 7.
Does your machine report a median? If so, IMHO, your starting should be below but near that number so it doesn't have to work so hard to stop events.
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trekwars2000
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Re: My Doctor is not happy...

Post by trekwars2000 » Tue Aug 07, 2018 7:47 am

Muse-Inc wrote:
Tue Aug 07, 2018 1:22 am
trekwars2000 wrote:
Mon Aug 06, 2018 9:07 pm
...been using my APAP for 10 days now and the highest I've gotten to is 14.4, my average is 11.03 and 90% is low/mid 12s. I've bumped up the starting ramp pressure from 4 to 6 and now again to 7.
Does your machine report a median? If so, IMHO, your starting should be below but near that number so it doesn't have to work so hard to stop events.
I think the median is actually 11.03. This was from two nights ago. I think the numbers are coming down a bit as I get more used to sleeping with the mask. For the first few nights, when I rolled to the side I got a large leak. I rigged the hose to come from above my head as opposed to directly off the machine to the side and since then the leaks are much lower.
screenshot-20180807-064414.png
screenshot-20180807-064414.png (224.44 KiB) Viewed 1132 times

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Nick Danger
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Re: My Doctor is not happy...

Post by Nick Danger » Tue Aug 07, 2018 8:00 am

I can't imagine a decent doctor being unhappy with this result. The things I get from this graph is that 7 might be too low for your minimum pressure, but it doesn't seem to be getting in the way of treatment. I bet the pressure spikes, increased leaks, increased snoring, and flow limits result when you turn over to sleep on your back, but again, there are essentially no events. How did you feel after you woke up this morning?

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Midwest_non_sleeper
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Re: My Doctor is not happy...

Post by Midwest_non_sleeper » Tue Aug 07, 2018 8:14 am

palerider wrote:
Mon Aug 06, 2018 8:44 pm
Midwest_non_sleeper wrote:
Mon Aug 06, 2018 6:10 pm
ChicagoGranny wrote:
Mon Aug 06, 2018 4:07 pm
Midwest_non_sleeper wrote:
Mon Aug 06, 2018 2:40 pm
a call today from my Neurologist's office
Midwest_non_sleeper wrote:
Mon Aug 06, 2018 2:40 pm
The nurse told me "ooooh, you can't do that"
I'm surprised you said "Doctor" in the title. He may have no idea what "the office" and "the nurse" have done.
Because she indicated that he knew. I'm assuming that they saw the numbers and got in touch with him.

I'm not worried about it, what are they gonna do? Send the CPAP police to my house?
4:30am: *CRASH*
"WTH was that???"
"CPAP POLICE, PUT YOUR MASK DOWN, YOU'RE UNDER ARREST!"
"well, shit"
"Wait! Before you take me away...can I at least import this session into SH really quick and take a look?"

The funniest thing about that statement is that...I'm a career law enforcement officer. I wonder if the CPAP Police credentials supercede my own? :lol:
Last edited by Midwest_non_sleeper on Tue Aug 07, 2018 8:22 am, edited 1 time in total.

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Midwest_non_sleeper
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Re: My Doctor is not happy...

Post by Midwest_non_sleeper » Tue Aug 07, 2018 8:21 am

flightco wrote:
Mon Aug 06, 2018 9:47 pm
Do you think it was actually the Dr's office calling? It sounds more like it was the DME calling, they get their panties in a wad over this but the doctors don't really seem to care, they are glad you are being compliant since most are not
It works a little differently here. I do not use a "normal" DME. The way it's set up here is that the hospital itself runs its own program, so there's no DME involvment on my end. They work with the DME for supplies so that I don't have to. Since my Doc works for the hospital group, it's easy to see how the information is known to all entities, since they're essentially the same. I suppose it can be at least as efficient this way as just the patient/DME, even though it's adding a middleman into the mix. Basically, I call them with questions/requests for different or new equipment/etc, and then they get the stuff from DME.

D.H.
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Re: My Doctor is not happy...

Post by D.H. » Tue Aug 07, 2018 10:04 am

Is there really a threat to take any action that is adverse to you?

I'm wondering if the doctor - or his office - just want to protect themselves from any potential liability.

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Goofproof
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Re: My Doctor is not happy...

Post by Goofproof » Tue Aug 07, 2018 10:12 am

D.H. wrote:
Tue Aug 07, 2018 10:04 am
Is there really a threat to take any action that is adverse to you?

I'm wondering if the doctor - or his office - just want to protect themselves from any potential liability.
What liability? It's not against any law to set the pressure on a XPAP, more so if you own it. Jim

If you rent a car, is it against the law to push on the gas pedal to make it move!
Use data to optimize your xPAP treatment!

"The art of medicine consists in amusing the patient while nature cures the disease." Voltaire

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chunkyfrog
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Re: My Doctor is not happy...

Post by chunkyfrog » Tue Aug 07, 2018 10:27 am

If the patient were prohibited from altering a prescription, all our pills would come in
robotic, timed dispensers, with automatic features to notify the authorities if a pill is missed
or any attempt was made to tamper with the dispenser.
Just imagine how expensive that would be.

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Midwest_non_sleeper
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Re: My Doctor is not happy...

Post by Midwest_non_sleeper » Tue Aug 07, 2018 10:42 am

D.H. wrote:
Tue Aug 07, 2018 10:04 am
Is there really a threat to take any action that is adverse to you?

I'm wondering if the doctor - or his office - just want to protect themselves from any potential liability.
There was no threat, only the exclamation of "You can't do that". They did not expound on why or what would happen.

Well, I did. Sorry for their luck.

We'll see how it goes when I actually go in and explain what I did and why I did it with the Doc. I'm confident that it'll be ok, and if not, then I guess I'll wander over that bridge when I get to it.

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Re: My Doctor is not happy...

Post by chunkyfrog » Tue Aug 07, 2018 10:57 am

The manufacturers make it fairly easy for anyone to get into the REAL menu,
because they know DMEs are rarely smarter than the rest of us. :shock:
Silly fools think that taking the REAL manual out of the package
guarantees them exclusive access to our treatment parameters,
and assures they will be the sole providers of supplies.
Silly geese!

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HoseCrusher
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Re: My Doctor is not happy...

Post by HoseCrusher » Tue Aug 07, 2018 11:09 am

Screw the doctor, is the patient happy?

It sounds like the feeling of suffocation borders on "doing harm." What happened to "first do no harm?"

Data and results often are more important than an educated guess. Bring your data print outs and make your case. The doctor may learn something.

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Goofproof
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Re: My Doctor is not happy...

Post by Goofproof » Tue Aug 07, 2018 11:47 am

HoseCrusher wrote:
Tue Aug 07, 2018 11:09 am
Screw the doctor, is the patient happy?

It sounds like the feeling of suffocation borders on "doing harm." What happened to "first do no harm?"

Data and results often are more important than an educated guess. Bring your data print outs and make your case. The doctor may learn something.
Maybe their take on "Do No Harm", means " Do Nothing" to them! :roll: Jim
Use data to optimize your xPAP treatment!

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