Was Getting Better APAP Results....Now Insomnia

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KayakKid
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Was Getting Better APAP Results....Now Insomnia

Post by KayakKid » Tue May 03, 2016 2:03 pm

I am trying to clear the brain fog long enough to get a somewhat coherent post on here. I have gotten 1-2 hours sleep per night for the last couple nights and it's taking it's toll on me.

Here's the short of it. Went to the Sleep Doc 1 1/2 weeks ago and she gradually had me adjust APAP pressures from 8cm-15cm to 9cm-15cm to 10cm-15cm. I was getting the longest time on the mask after these adjustments since I started 4 months ago. Then something happened a couple nights ago. I would get maybe an hour of sleep between 10PM and Midnight then I'd be WIDE awake til about 4AM or 4:30AM where I'd pass out from exhaustion for an hour or two. It doesn't matter whether I have the mask on or not. This still happens. I've tried going back to sleep after getting the kids on the bus in the morning but I just lay there and can not fall asleep. This kind of sleep schedule is not conducive with being a single Father who has to get meals prepared and kids off to school. Forget about work. Non-existent for the past week or so. Thankfully I'm self-employed so no boss to have to explain this to.

Past week or so I've tried Ambien (10mg) a few nights, Melatonin (5mg) a few nights and taking nothing for a few nights. Nothing seems to work. I lay there wide awake on 10mg of Ambien. I've tried calling the Sleep Doc but can't get her to call me back. Best they could do so far was get me an appt for this Friday morning. I don't know what kind of shape I'll be in by then.

A couple questions. Can the APAP cause insomnia? Could this be Delayed Sleep Phase? Is this related to the machine at all or something else going on in my body? Also, can anyone explain the gray bars on April 30, 2016 between 0220 and 0300? Here are a few screenshots from the past couple nights. Any suggestions would be greatly appreciated.

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Pugsy
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Re: Was Getting Better APAP Results....Now Insomnia

Post by Pugsy » Tue May 03, 2016 2:32 pm

KayakKid wrote:can anyone explain the gray bars on April 30, 2016 between 0220 and 0300?
Those gray bars mean you were in large leak during that time.

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Re: Was Getting Better APAP Results....Now Insomnia

Post by kteague » Tue May 03, 2016 2:55 pm

Are you taking any new meds or supplements that could cause sleep disruption? Are you on any old meds that could need the dosage adjusted after sleeping better?

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KayakKid
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Re: Was Getting Better APAP Results....Now Insomnia

Post by KayakKid » Tue May 03, 2016 3:14 pm

Pugsy wrote:
KayakKid wrote:can anyone explain the gray bars on April 30, 2016 between 0220 and 0300?
Those gray bars mean you were in large leak during that time.
Thank you Pugsy. . I thought so, but wasn't sure.

KayakKid
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Re: Was Getting Better APAP Results....Now Insomnia

Post by KayakKid » Tue May 03, 2016 3:19 pm

kteague wrote:Are you taking any new meds or supplements that could cause sleep disruption? Are you on any old meds that could need the dosage adjusted after sleeping better?
I've been on Amlodipine Besylate (5mg) and Valsartan /hctz (320/25) and my BP has been coming down as of late. I researched the Amlodipine, which seems to have a link to insomnia and just stopped it yesterday. I'm hoping that may be it. I monitor my BP 3x per day and will know if it's going up being off the Amlodipine. Thanks kteague.

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robysue
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Re: Was Getting Better APAP Results....Now Insomnia

Post by robysue » Tue May 03, 2016 9:02 pm

KayakKid wrote: Here's the short of it. Went to the Sleep Doc 1 1/2 weeks ago and she gradually had me adjust APAP pressures from 8cm-15cm to 9cm-15cm to 10cm-15cm. I was getting the longest time on the mask after these adjustments since I started 4 months ago. Then something happened a couple nights ago. I would get maybe an hour of sleep between 10PM and Midnight then I'd be WIDE awake til about 4AM or 4:30AM where I'd pass out from exhaustion for an hour or two. (emphasis added)
Any new stressors in your life? Anything happen in the daytime a couple of days ago?

Sudden onset of insomnia or a sudden serious worsening of insomnia symptoms is often tied to stressful events going on in your life.

Has this kind of insomnia pattern ever happened to you before?

Notably on three of the nights you posted data for, the CPAP data ends between 4:00 and 5:00. Did you finally just give up and take the mask off before you "pass[ed] out from exhaustion for an hour or two"? And what happened on the nights of Sunday, May 1 and Monday, May 2? On May 1 you turned the machine on at 10:13 and turn it off at 2:37. Did it take you another couple of hours before you fell back asleep without the mask on Sunday night? On May 2 you turned the machine on at 10:00pm and turned it off for good at 11:11pm? Were you awake all night Monday night until between 4:00 and 5:00?

Past week or so I've tried Ambien (10mg) a few nights, Melatonin (5mg) a few nights and taking nothing for a few nights.
Earlier you said that you were "getting the longest time on the mask after these adjustments since I started 4 months ago" and that something happened "a couple of nights ago". But now it sounds like you've been having the severe insomnia problems for longer than a couple of days. Can you clarify the time line for me?

What was your sleep like before you started APAP four months ago? Regular bedtime was??? Regular wake up time was??? How rested did you feel when you woke up in the morning? And did you ever have trouble falling asleep or staying asleep before you started APAP?

When you first started APAP, how was you sleep? Your writing makes it sound like you have had some real problems with either getting to sleep or staying asleep during the last four months. Is that so? But it also sounds like things were beginning to get better until earlier this week, and that everything has fallen apart quite quickly. That correct?

When was the Ambien prescribed? And did it ever work for you at all?

When did you start taking melatonin? And did the sleep doc suggest a 5mg dose? Or was that the smallest dose you could find? Finally, when do you take the melatonin relative to bedtime? At one point my sleep doc suggested that I take a 0.5-1.0mg dose of melatonin about 6 hours before my desired bedtime as a way of trying to keep my own delayed sleep phase problem under control. (Unfortunately melatonin seems to cause some unpleasant side effects for me, so I had to stop that trial.)

Nothing seems to work. I lay there wide awake on 10mg of Ambien. I've tried calling the Sleep Doc but can't get her to call me back.
When did you take the Ambien? When you went to bed at 10pm? Or after you woke up around midnight and found that you could not get back to sleep? And did you report that 10mg of Ambien did you no good at all?

Best they could do so far was get me an appt for this Friday morning. I don't know what kind of shape I'll be in by then.
It's now Tuesday night. You may get to Friday morning just fine. But if things get worse, then call the sleep doc's office every day this week if necessary telling them exactly how little sleep you seem to be getting and how it is severely affecting your ability to function in the daytime. If you are worried about whether you will be able to safely drive yourself to the appointment on Friday, mention that too.

A couple questions. Can the APAP cause insomnia?
Lots of things can cause insomnia. Could it be the APAP? Well usually insomina caused by PAPing starts right away because it's usually related to difficulty adjusting to all the new physical stimuli coming from the machine and mask making it more difficult to both get to sleep and stay asleep.

You say that after the pressure adjustments had been made you were getting more sleep than you have in the four months you've been on APAP. How bad did your sleep get immediately after starting APAP?

Could this be Delayed Sleep Phase?
Maybe. Maybe not. Most of the time delayed sleep phase manifests itself as simply not being able to get to sleep until far later in the night than you want (or need) to go to sleep. But you say that you can get to sleep (for an hour or so ) between 10:00 and midnight. And the problem is that you just cannot get back to sleep.

Is this related to the machine at all
There's nothing unusual in your data in the sense of clusters of events.

But there are long periods of time when you didn't use the machine. Of course those gaps are explained by the insomnia you are inquiring about. Likewise the usage on some nights is very low. But you already know that and you say that the severe insomnia is present even on the nights "whether [you] have the mask on or not." So that means we can assume that your insomnia was as bad on Monday night as it was on Saturday night?

So overall I don't think the machine is causing the problem---unless you are noticing a great deal of discomfort that is preventing you from getting to sleep at the beginning of the night. But if that was all that was going on, you'd expect that you'd be able to get to sleep after you take the mask off. And you say taking the mask off does not make it any easier to fall asleep between midnight and 4:00AM.

or something else going on in my body?
Maybe, maybe not. If you haven't had a physical in a while, it's certainly worth have one. But my guess is that no particular cause will be identified.

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KayakKid
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Re: Was Getting Better APAP Results....Now Insomnia

Post by KayakKid » Wed May 04, 2016 11:49 am

robysue...Thank you very much for your responses. I will try to answer your questions as best as I can. I'm not quite sure what happened last night but I was able to sleep from about 1030PM to 630AM with only a few minor breaks in between. I am not sure if it was due to the fact that I stopped taking the Amlodipine Besylate Monday or that I just passed out due to sheer exhaustion. Hopefully tonight will be the same. I am going to respond in underlines because I can not figure these quotes out.
robysue wrote:
KayakKid wrote: Here's the short of it. Went to the Sleep Doc 1 1/2 weeks ago and she gradually had me adjust APAP pressures from 8cm-15cm to 9cm-15cm to 10cm-15cm. I was getting the longest time on the mask after these adjustments since I started 4 months ago. Then something happened a couple nights ago. I would get maybe an hour of sleep between 10PM and Midnight then I'd be WIDE awake til about 4AM or 4:30AM where I'd pass out from exhaustion for an hour or two. (emphasis added)
Any new stressors in your life? Anything happen in the daytime a couple of days ago?

Sudden onset of insomnia or a sudden serious worsening of insomnia symptoms is often tied to stressful events going on in your life.

Has this kind of insomnia pattern ever happened to you before?
No new stressors in my life that I know I can think of. The only thing different during the day was that I mowed my lawn for about 3 hours on Saturday. Push mower so it was pretty strenuous. First exercise I have had in a little over a week. I have not had the energy or ambition to do so. I tried not taking the Ambien Saturday and Sunday nights to see if I could get to sleep on my own but that did not work. I think this insomnia pattern pretty much is always there but it is masked when I take the Ambien.

robysue wrote:Notably on three of the nights you posted data for, the CPAP data ends between 4:00 and 5:00. Did you finally just give up and take the mask off before you "pass[ed] out from exhaustion for an hour or two"? And what happened on the nights of Sunday, May 1 and Monday, May 2? On May 1 you turned the machine on at 10:13 and turn it off at 2:37. Did it take you another couple of hours before you fell back asleep without the mask on Sunday night? On May 2 you turned the machine on at 10:00pm and turned it off for good at 11:11pm? Were you awake all night Monday night until between 4:00 and 5:00?
I did just "give up" and took the mask off. On May 1 at about 1245AM I woke and read for a few hours. I put the mask back on from around 2AM to 230AM but could not fall back asleep. I was done after that. I slept an hour or two after 4AM with the mask off. May 2 was a lost night. I had the mask on for a little over an hour and ended up reading for about 5 hours that night (one positive out of all this -- I'm reading more than I ever have). I finally fell asleep around 430AM without the mask on but woke around 530AM in somewhat of a panic knowing I had to get up at 630AM to get my kids off to school. Never went back to sleep and frankly not sure how I drove that morning.

Past week or so I've tried Ambien (10mg) a few nights, Melatonin (5mg) a few nights and taking nothing for a few nights.
robysue wrote:Earlier you said that you were "getting the longest time on the mask after these adjustments since I started 4 months ago" and that something happened "a couple of nights ago". But now it sounds like you've been having the severe insomnia problems for longer than a couple of days. Can you clarify the time line for me?
I have had insomnia problems for about 3 years now, but by taking Ambien those problems have been masked, although obviously not corrected. I get to the point in my mind where some sleep, even though Ambien induced, is better than no sleep.
robysue wrote:What was your sleep like before you started APAP four months ago? Regular bedtime was??? Regular wake up time was??? How rested did you feel when you woke up in the morning? And did you ever have trouble falling asleep or staying asleep before you started APAP?
My sleep was pretty good, but it was pretty much Ambien induced. My blood pressure was up and I started taking BP meds. I did not feel very rested at all when I woke up. I would go to bed around 1030PM and wake up around 630AM. Prior to 3 years ago I would put my head down on the pillow and would go right to sleep and stay asleep.
When you first started APAP, how was you sleep? Your writing makes it sound like you have had some real problems with either getting to sleep or staying asleep during the last four months. Is that so? But it also sounds like things were beginning to get better until earlier this week, and that everything has fallen apart quite quickly. That correct?
My sleep when I first started APAP was horrible. I could not get comfortable with the mask on my face. I'm on my fourth one, which seems to be working the best. Things were good for a few days after I saw the Sleep Doc and went from CPAP to APAP. It's so hard to pinpoint exactly what is going on.

When was the Ambien prescribed? And did it ever work for you at all?

About 3 years ago. It does work, but lately I have been in a really bad Ambien fog during the day. That is why I have tried getting off of it, but nothing else seems to work to get me asleep.

When did you start taking melatonin? And did the sleep doc suggest a 5mg dose? Or was that the smallest dose you could find? Finally, when do you take the melatonin relative to bedtime? At one point my sleep doc suggested that I take a 0.5-1.0mg dose of melatonin about 6 hours before my desired bedtime as a way of trying to keep my own delayed sleep phase problem under control. (Unfortunately melatonin seems to cause some unpleasant side effects for me, so I had to stop that trial.)

I take Melatonin very rarely. Only when I try to get off the Ambien and lay awake for hours in bed do I then try the Melatonin. It never really seems to work. 5mg was smallest I could find and the one I bought. Sleep Doc said Melatonin is OK, but never really gave me any guidance as far as dosage. I have had some REALLY STRANGE dreams on it and don't like to take it for that reason.

Nothing seems to work. I lay there wide awake on 10mg of Ambien. I've tried calling the Sleep Doc but can't get her to call me back.
When did you take the Ambien? When you went to bed at 10pm? Or after you woke up around midnight and found that you could not get back to sleep? And did you report that 10mg of Ambien did you no good at all?

I normally take the Ambien around 10PM and give it about a half hour to kick in. AS I said above, the 10mg last night worked. Either due to discontinuing the Amlodipine or from shear exhaustion.
Best they could do so far was get me an appt for this Friday morning. I don't know what kind of shape I'll be in by then.
It's now Tuesday night. You may get to Friday morning just fine. But if things get worse, then call the sleep doc's office every day this week if necessary telling them exactly how little sleep you seem to be getting and how it is severely affecting your ability to function in the daytime. If you are worried about whether you will be able to safely drive yourself to the appointment on Friday, mention that too.

I have told the Sleep Docs office staff that I can not function the past couple days and driving is definitely an issue. None of that seems to illicit a return phone call from the Doc. It's very frustrating and disconcerting because she seemed to be the one doctor I have seen so far that is well versed in all this.

A couple questions. Can the APAP cause insomnia?
Lots of things can cause insomnia. Could it be the APAP? Well usually insomina caused by PAPing starts right away because it's usually related to difficulty adjusting to all the new physical stimuli coming from the machine and mask making it more difficult to both get to sleep and stay asleep.

You say that after the pressure adjustments had been made you were getting more sleep than you have in the four months you've been on APAP. How bad did your sleep get immediately after starting APAP?

Horrible. Could not get used to having the mask on at all.

Could this be Delayed Sleep Phase?
Maybe. Maybe not. Most of the time delayed sleep phase manifests itself as simply not being able to get to sleep until far later in the night than you want (or need) to go to sleep. But you say that you can get to sleep (for an hour or so ) between 10:00 and midnight. And the problem is that you just cannot get back to sleep.

Is this related to the machine at all
There's nothing unusual in your data in the sense of clusters of events.

Would it make sense to drop my Max Pressure down to 12cm or 13cm, since it seems that I am spending 95% around those #'s? Could there be any benefits to making these adjustments?

But there are long periods of time when you didn't use the machine. Of course those gaps are explained by the insomnia you are inquiring about. Likewise the usage on some nights is very low. But you already know that and you say that the severe insomnia is present even on the nights "whether [you] have the mask on or not." So that means we can assume that your insomnia was as bad on Monday night as it was on Saturday night?

Yes. It was the worst Saturday, Sunday and Monday nights.

So overall I don't think the machine is causing the problem---unless you are noticing a great deal of discomfort that is preventing you from getting to sleep at the beginning of the night. But if that was all that was going on, you'd expect that you'd be able to get to sleep after you take the mask off. And you say taking the mask off does not make it any easier to fall asleep between midnight and 4:00AM.

or something else going on in my body?
Maybe, maybe not. If you haven't had a physical in a while, it's certainly worth have one. But my guess is that no particular cause will be identified.
I have had a physical within the past month. The one thing that came up that was never there before was elevated Cholesterol & Triglycerides. The doctor said that could be a result of the OSA. From reading online that does look like a possibility.

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robysue
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Re: Was Getting Better APAP Results....Now Insomnia

Post by robysue » Thu May 05, 2016 9:34 pm

KayakKid wrote:
Has this kind of insomnia pattern ever happened to you before?
No new stressors in my life that I know I can think of. The only thing different during the day was that I mowed my lawn for about 3 hours on Saturday. Push mower so it was pretty strenuous. First exercise I have had in a little over a week. I have not had the energy or ambition to do so. I tried not taking the Ambien Saturday and Sunday nights to see if I could get to sleep on my own but that did not work. I think this insomnia pattern pretty much is always there but it is masked when I take the Ambien.
It's not so much the Ambien has been "masking" the insomnia; it's been treating it---i.e. it has made it easier for you to get to sleep.

robysue wrote:Earlier you said that you were "getting the longest time on the mask after these adjustments since I started 4 months ago" and that something happened "a couple of nights ago". But now it sounds like you've been having the severe insomnia problems for longer than a couple of days. Can you clarify the time line for me?
I have had insomnia problems for about 3 years now, but by taking Ambien those problems have been masked, although obviously not corrected. I get to the point in my mind where some sleep, even though Ambien induced, is better than no sleep.
Again, I would say the Ambien has be treating, rather than masking, the insomnia. It may not be treating very effectively however.

robysue wrote:What was your sleep like before you started APAP four months ago? Regular bedtime was??? Regular wake up time was??? How rested did you feel when you woke up in the morning? And did you ever have trouble falling asleep or staying asleep before you started APAP?
My sleep was pretty good, but it was pretty much Ambien induced. My blood pressure was up and I started taking BP meds. I did not feel very rested at all when I woke up. I would go to bed around 1030PM and wake up around 630AM. Prior to 3 years ago I would put my head down on the pillow and would go right to sleep and stay asleep.
What happened 3 years ago to trigger the insomnia?

And again, if the Ambien was allowing you to sleep from 10:30 to 6:30, it was doing its job. The continued fatigue during the last three years was likely caused by the untreated OSA.

When was the Ambien prescribed? And did it ever work for you at all?


About 3 years ago. It does work, but lately I have been in a really bad Ambien fog during the day. That is why I have tried getting off of it, but nothing else seems to work to get me asleep.
Yes, I understand the Ambien fog. That's part of why my sleep doc switched me to Belsomra about a year ago.

As for getting off the Ambien all together, there are ways to do it. Going cold turkey may not work so well. You could first try cutting down to 5mg and see if that allows you to get to sleep better, but have less of the Ambien fog.

Also, until you are sleeping longer with the PAP, you're going to continue to feel like your sleep is highly fragmented (from all the CPAP stuff), and that too is going to increase the fog.

Nothing seems to work. I lay there wide awake on 10mg of Ambien. I've tried calling the Sleep Doc but can't get her to call me back.
When did you take the Ambien? When you went to bed at 10pm? Or after you woke up around midnight and found that you could not get back to sleep? And did you report that 10mg of Ambien did you no good at all?
I normally take the Ambien around 10PM and give it about a half hour to kick in. AS I said above, the 10mg last night worked. Either due to discontinuing the Amlodipine or from shear exhaustion.
You may be waiting to long before going to bed after taking the Ambien. When I was on Ambien, my sleep doc was insistent that I take right before going to bed. In other words, I wasn't supposed totake it and then give it a half hour to kick in. (The Belsomra instructions however to indicate that it's ok to take it about 30 minutes before going to bed. I find that's too long, however. It seems much more effective if I go to bed immediately rather than wait for it to kick in.

Best they could do so far was get me an appt for this Friday morning. I don't know what kind of shape I'll be in by then.
Do give us an update after that meeting with the doc.

You say that after the pressure adjustments had been made you were getting more sleep than you have in the four months you've been on APAP. How bad did your sleep get immediately after starting APAP?
Horrible. Could not get used to having the mask on at all.
Can you be more specific? Was it the feel of the mask on your face? Or was it the feeling of air being pushed down your throat? Or was it dealing with the hose? Or was it noise related? Or more than one of these? Or something else?

In order to fix the problems you are encountering with trying to use the PAP, you've got to be able to describe the problems in enough detail for people here to make suggestions that you can try.

I know that's hard, however: The problems occur in the middle of the night and it feels like you're all alone in trying to make this crazy therapy work. Just remember you do have support from the folks here.

Is this related to the machine at all
There's nothing unusual in your data in the sense of clusters of events.
Would it make sense to drop my Max Pressure down to 12cm or 13cm, since it seems that I am spending 95% around those #'s? Could there be any benefits to making these adjustments?
Yes, it might make some some sense to drop your Max pressure down to 13cm---particularly if you are bothered in any way by the air being blown down your throat. In other words, if you are more uncomfortable when the pressure gets above 13cm than you are when it is lower, lowering the max pressure to your 95% may make it a bit easier to tolerate the machine while still providing enough pressure to treat your apnea.

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