Panic at thought of CPAP.

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
Lucyhere
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Re: Panic at thought of CPAP.

Post by Lucyhere » Wed Mar 02, 2016 6:37 pm

Wulfman... wrote:
Susie Kay wrote:I don't like to see the time and effort of cpaptalk members squandered on a troll like this.
I've had some forum members speculating (to me) that they've thought that "Snoopchic" is actually "palerider"........

How's THAT for a conspiracy theory???


Den

.

Den.. I think you might be kidding around, but I'm not. Several people have PMed me saying the same thing. Never thought of it myself, but now thinking that's a darn good bet. It's been said that he sounds like a whinny little girl in his PR posts.
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Wulfman...
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Re: Panic at thought of CPAP.

Post by Wulfman... » Wed Mar 02, 2016 6:44 pm

Lucyhere wrote:
Wulfman... wrote:
Susie Kay wrote:I don't like to see the time and effort of cpaptalk members squandered on a troll like this.
I've had some forum members speculating (to me) that they've thought that "Snoopchic" is actually "palerider"........

How's THAT for a conspiracy theory???


Den

.

Den.. I think you might be kidding around, but I'm not. Several people have PMed me saying the same thing. Never thought of it myself, but now thinking that's a darn good bet. It's been said that he sounds like a whinny little girl in his PR posts.
Well, part of it is kidding, but I've actually gotten PMs, too. (Don't worry, the senders' identities WILL remain anonymous)
And, you and I know you weren't one of them.


Den

.
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Snoopchic
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Re: Panic at thought of CPAP.

Post by Snoopchic » Wed Mar 02, 2016 7:46 pm

It's not CBT that bothers me it's the $50. He told me there are others out there for free, but that they just won't work, and he only recommends this one. I have not thought about a bandage or something, but I will try that! The really big issue after actually getting it on was the air. I can't stand moving air. I can't handle any fans or anything, and I don't go outside when it's windy (I actually don't like to ever go outside :/) but!! I need to do one step at a time! So far I have been doing each part one step at a time. My doctor was shocked and happy that I went to the titration study, because I had cancelled it. But, I only cancelled because they wouldn't release my information to me. I told them if they would tell me my information then I would go. The doctor game me very basic information over the phone, so I held my end of the bargain. He was very offended when I told him I threw away his sales pitch on the CBT. I'm not willing to spend money on things you can find all over online :/ anyway! Point was I'm trying to do this one step at a time. But, I have not stopped trying. I'm just extremely frustrated :/

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Julie
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Re: Panic at thought of CPAP.

Post by Julie » Wed Mar 02, 2016 7:52 pm

Snoop - get this now - results of any medical tests you do at any time are absolutely your right to have by law, and I mean the copies, not just the 'talk'. You have to get those so we can know where things stand and help you. It's vital!

Second thing, would you do the CBT if you had the $50? Because I don't think that should be a huge problem... won't say more now, but would like to hear your answer.

Third thing, the air... that I think can be lessened and maybe even gotten rid of, but again not tonight...

Have other stuff to do now, but will be back eventually. Hey, you're doing great now, today, nite!! Fantastic even .

Snoopchic
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Re: Panic at thought of CPAP.

Post by Snoopchic » Wed Mar 02, 2016 8:24 pm

I want to learn what is on the CBT. I just hoped to find out the information online. That's what I was searching when I found this site, actually. I feel less panicked after talking tonight to you! I just am trying to slowly get past everything that is so daunting! Thank you so much!

Lucyhere
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Re: Panic at thought of CPAP.

Post by Lucyhere » Wed Mar 02, 2016 8:42 pm

Snoopchic wrote:I want to learn what is on the CBT. I just hoped to find out the information online. That's what I was searching when I found this site, actually. I feel less panicked after talking tonight to you! I just am trying to slowly get past everything that is so daunting! Thank you so much!
You can do this Snoopchic! One baby step at a time... just like we all did when we found out we had sleep apnea. You sound much more optimistic and I'm happy for you. If you can, google CBT... reading about it won't cost you a penny.
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Snoopchic
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Re: Panic at thought of CPAP.

Post by Snoopchic » Wed Mar 02, 2016 8:52 pm

On the test results they just keep telling me they can't release them until they have been dictated. They keep putting me off about it :/ but, I am very persistent and will not stop until I have them. I tend to over think everything and do a ton of research on every single thing in my life (that may be obvious at the point :/) I think that's what bothers me on the CBT, because I don't see a way that the same info isn't just out there online. Anyway! I will have to be calling the doctors office every single day for my results. When they get sick of it they will release them, because I know they are mine and must release them thank you for all the help! I am beyond tired and falling asleep even though my normal bed time is 2-3 hours away :/ I can hardly stay awake since the test because of the ear pain and head ache but, I'm still working to move forward

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Julie
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Post by Julie » Wed Mar 02, 2016 8:56 pm

I'm going to get you going CBT-wise tomorrow... will let you know when. Hey, you registered!

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palerider
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Re: Panic at thought of CPAP.

Post by palerider » Wed Mar 02, 2016 9:27 pm

Wulfman... wrote:
Lucyhere wrote:Den.. I think you might be kidding around, but I'm not. Several people have PMed me saying the same thing. Never thought of it myself, but now thinking that's a darn good bet. It's been said that he sounds like a whinny little girl in his PR posts.
Well, part of it is kidding, but I've actually gotten PMs, too. (Don't worry, the senders' identities WILL remain anonymous)
And, you and I know you weren't one of them. .
like I've got time for that with all the effort I'm putting in with mark and sleepyhead.

get real, dreamers.

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Snoopchic
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Re: Panic at thought of CPAP.

Post by Snoopchic » Wed Mar 02, 2016 9:43 pm

Posting is so much easier after registering! I don't know what I did the other day, I thought I had registered! But, I did it as soon as you let me know I hadn't done it thank you again for not giving up on me! This has been such a rough road for the last week or 2!! I just need support to figure out what to do!

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Julie
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Re: Panic at thought of CPAP.

Post by Julie » Thu Mar 03, 2016 5:11 am

Hi, will send you a PM this a.m.

Snoopchic
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Re: Panic at thought of CPAP.

Post by Snoopchic » Thu Mar 03, 2016 8:52 pm

I found out today that to buy the machine straight out would actually only be $240. The other company lied to me :/ BUT, I called my insurance company today to check on it because it seemed fishy. It was. I am going to attempt to rent it, since there is such a high chance I won't be able to stand it, and that will be much cheaper. I won't know until they get the information and contact me back. The doctor still refuses to release my study information, and the office claimed it would be "several weeks" before he would sign off of them so I can't have them. BUT, the company I talked to today knows he will release it to him (I'm sure he's refusing me because I told him I was not going to pay $500 for it) ANYWAY, they are going to give me the study after I come back!

kell420
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Re: Panic at thought of CPAP.

Post by kell420 » Fri Mar 04, 2016 2:28 am

Snoopchic wrote:Sorry, I forgot. He also said he's sure I have other sleep issues, but it not willing to do anything until after I have spent crazy money on this. More of what leads me to believe what a scam it is. What's stupid is I'm not a negative person by nature, I just hate being taken advantage of. So, I'm back to not sleeping at all at night, and falling asleep while driving :/ I hope they all feel good about it, and taking $300 of my money for nothing.


It's one thing to refuse treatment for sleep apnea and if your O2 is dropping to 83% your breathing is stopping because there is no other way not to get o2 except breathing risking your own health is your right but to get behind the wheel of a car and fall asleep is another your putting the public at risk. Just think how you would feel after running a child over in a cross walk because you fell asleep and didn't stop at a traffic light or stop sign. Please don't drive if you are not able to stay awake. My sister in law's brother was killed 20 years ago from someone who fell asleep behind the wheel and hit him head on. He probably had sleep apnea but at that time who knew my sister in law's family was devastated his kids grew up without a father.

mariejeanne
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Re: Panic at thought of CPAP.

Post by mariejeanne » Fri Mar 04, 2016 6:51 am

palerider wrote:[quote="Snoopchic"Now the whole test is a total waste.
the whole thing is a total waste *cough*enchanter*cough*[/quote]

My thoughts exactly.

SleepyStar
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Re: Panic at thought of CPAP.

Post by SleepyStar » Fri Mar 04, 2016 12:11 pm

Hey Snoopchic!

Glad to see you registered and you are giving this a try. That is a big step towards feeling better!

So, I really have had some problems with closed in feelings and the air at first bothered me too. Full face masks and I were not friends. Still aren't really goood friends if you know what I mean, but I have gotten to a mutual respect with my full face mask. Took trying about a dozen different full face masks, but one just came out in the last 6 months that fits my face and doesn't set me off. So I wanted to let you know it *is* possible to get to the point where you can handle more mask and different pressures.

I also have GAD and have had a lot of panic attacks in the past. And I work with my therapist. But I know you are saying money is tight, which I totally get. I had gotten my sleep study when I was between jobs, and still living with mom and dad right after graduating...they were able to help with a place to stay and since it was the same price to insure my brother as it was to insure him and me they helped me with that, but I had to pay all the copays and deductibles and stuff myself for my medical stuff. This is a book my therapist and I have been using when she gives me therapy homework.

https://www.newharbinger.com/anxiety-an ... workbook-0

I have seen older editions at my public library, take a look and see if it is there. A free way to get going could really help, I think, and that workbook has been pretty helpful for trying to tame those jerky brain loops that get all panicked and freaked out and then you start panicking and...yeah. That book helped me identify the loops and help me see when I was getting caught in one way sooner. And my therapist helped me come up with non-medication ways to get back out of them too. One thing that helps me is visualization. For me? A beach is my grounding calming happy place. Yours might be a room by the fire in snow. Or a bouncy house....whatever floats your boat. So then the idea is to focus on recreating the scene in your mind. The sights, the feel, the smell, the sounds...focus on that, and it can distract your brain enough to get the loop stopped. One of those quick round phone games like bejeweled blitz helped too in that regard, or a round of Tetris.

If you like the beach? Well, your cpap with a mask is now snorkel gear. That flip in mindset and thinking of going to some really cool beach in Australia or the Caribbean and the mask is allowing me to go underwater and see some cool fish is a nice way to fall asleep. It took a lot of tries. I will be honest.

Another thing is maybe on the website here the Pur-sleep aromatherapy. Instead of smelling the plasticy hose smell, you can smell oranges or bubble gum or strawberries or whatever you like. That helped me get used to it too...my own personal strawberry field smell to sleep in, Another nice visualization idea. Or an orange grove. A hose cosy so you feel less plastic and more fuzzy helps too. These are things not required by any means but they do help the transition be easier.

Are you ok with glasses around your ears? The Swift FX with Bella Loops might be a nice mask for you. No headgear on the top of your head, the little prongs don't go in your nose much at all, I put my glasses back on after masking up and then I can watch tv with the mask on to have a thing to fall asleep to...and That has been my primary mask since i got started. It also doesn't mess up your hair. A nice bonus to not have headgear hair with curly hair

Just gonna toss a few ideas out that have helped me, and I hope the book or something helps you too!

And feel free to PM me My inbox is open and I have email alerts set up.

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