Looking for some help...Please!

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
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Davedbd6
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Looking for some help...Please!

Post by Davedbd6 » Wed Feb 17, 2016 6:56 am

Long story short......
Been on CPAP for around 2 years. Prescribed CPAP @5cfm. Using Nuance Pro nasal mask. After about a year of not feeling much better, never having that amazing sleep, still tired, bags under eyes.... I did some research on here and changed my settings to APAP 7-15. My AHI dropped from around 3 to under 1....
All the while I was seeing A Dr, but being unsatisfied with office visits....I haven't been back in around 6 months.
Still not feeling any better...so I was hoping to get some advice from the people here.
Any feedback would be greatly appreciated.
Thanks in advance-
Dave


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Cardsfan
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Re: Looking for some help...Please!

Post by Cardsfan » Wed Feb 17, 2016 7:02 am

Can you show the flow limit chart?

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Mudrock63
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Re: Looking for some help...Please!

Post by Mudrock63 » Wed Feb 17, 2016 7:05 am

It looks like you've had a few good nights, reference your AHI. How do you feel now?

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Davedbd6
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Re: Looking for some help...Please!

Post by Davedbd6 » Wed Feb 17, 2016 7:37 am

This is all I could find referencing Flow Limitation....

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Davedbd6
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Re: Looking for some help...Please!

Post by Davedbd6 » Wed Feb 17, 2016 7:40 am

Mudrock63 wrote:It looks like you've had a few good nights, reference your AHI. How do you feel now?
I think according to my low AHI of under 1, normally around 0.75, on paper I should feel great. But I don't. I wake up tired, bags under eyes, feel like death by 3pm...etc.

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stienman
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Re: Looking for some help...Please!

Post by stienman » Wed Feb 17, 2016 8:23 am

I'm very new to this, so don't take anything I say with any authority, I'm just guessing from what little I have heard, and I could be misreading your chart as I have little experience with them.

Interesting bits include:

* You have a low AHI, but your total time in apnea is long - 4 minutes in february 15.
* You don't appear to be having obstructive or central apneas, but hypopnea, which is abnormally slow or shallow breathing.
* On your chart which shows respiration rate you're dipping below 12 breaths a minute, which could be fine, but may be suggestive of a problem.
* On one of the charts it looks like you had 2, 3, or possibly 4 REM states, and two of them ended with hypopnea - in other words, your REM was interrupted by the low or shallow breathing. These interrupted REM states could result in your tired feeling, despite a long sleeping period.

If I were you, I'd consider one or more of the following:

* get a oxygen/pulse logger (such as the CMS50f, which works with sleepyhead) and find out what your oxygen level is overnight. Compare it to the graph during hypopneas and during times of low respiration rate
* check your settings for aflex/cflex and see if modifying those helps (I see you've already jumped back and forth between the two modes and adjusted them, check out the results after you've changed them and see if there are any patterns that suggest an optimal setting)
* zoom in to graphs where the machine detects hypopnea and find out what your respiration rate, inhale/exhale, flow, and other graphs look like. There may be clues in there, or, at least, more information about what the hypopnea is for your case

If your oxygen is falling during these times, then you need to change your therapy, and how to change it should probably be consulted with a doctor. It may be that a bipap or servo machine would be useful, or supplemental oxygen, but these are probably best overseen by a doctor.

Given that you're still tired, I'd suggest focusing less on the total AHI, and looking at individual hypopneas to try and figure out why they're happening, and how to reduce them. I'm not sure, though, other than a servo machine which essentially takes over breathing for you under certain circumstances (such as hypopnea), how these would be resolved. There may be underlying causes, or it may simply be that this is what you're body is doing, and a higher functioning PAP machine is the best solution.

But first I'd look at oxygen, to make sure it's not causing dangerous drops in oxygen, then I'd look at how to resolve the hypopneas, and at this point I'd suggest a sleep expert physician would be your best bet.

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Davedbd6
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Re: Looking for some help...Please!

Post by Davedbd6 » Wed Feb 17, 2016 9:03 am

Thank You stienman...That made me a bit worried. LOL

I'm gonna try to show some zoomed in photos to see if its what I should be looking at.

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stienman
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Re: Looking for some help...Please!

Post by stienman » Wed Feb 17, 2016 9:16 am

That's interesting. I have no expertise, though, so I can't tell you what this means. It does have faint echos of what little I know about cheyne-stokes respiration, but that seems to be slightly different in repetition: https://en.wikipedia.org/wiki/Cheyne%E2 ... espiration

Perhaps others here have seen this type of hypopnea and can tell you what it suggests.

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OkyDoky
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Re: Looking for some help...Please!

Post by OkyDoky » Wed Feb 17, 2016 10:19 am

Dave here are my tips for the screenshot that is most useful to us. This allows us to see the statistics and machine info on the left. Also, did you have a sleep study that measured leg movements?

On the left side turn off the calendar by clicking on the triangle by the date.
The pie chart doesn't give us very much info so you can turn it off by going to File - Preferences -Appearance - Uncheck Show event break down pie chart
That allows us to see the machine details on the left.

The graphs that are usually helpful are:
1. Event Flags
2. Flow Rate
3. Pressure (not mask pressure)
4. Leak
5. Flow Limit (only with Resmed machine)
Put your graph in that order by grabbing, by the labels, with your mouse and dragging it where you want it.
Now grab the line between the graphs and resize them until you get them in one screenshot.

Take a screen shot after you organize your graphs. You can push F11 ( or click file - view - fullscreen toggle) on your keyboard before you take your screenshot and it makes it full screen with no ID info.
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palerider
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Re: Looking for some help...Please!

Post by palerider » Wed Feb 17, 2016 1:19 pm

Cardsfan wrote:Can you show the flow limit chart?
there isn't one on respironics.

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palerider
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Re: Looking for some help...Please!

Post by palerider » Wed Feb 17, 2016 1:20 pm

stienman wrote:That's interesting. I have no expertise, though, so I can't tell you what this means. It does have faint echos of what little I know about cheyne-stokes respiration, but that seems to be slightly different in repetition: https://en.wikipedia.org/wiki/Cheyne%E2 ... espiration

Perhaps others here have seen this type of hypopnea and can tell you what it suggests.
respironics machines DO NOT FLAG CSR, that is a bug in that version of sleepyhead,

respironics machines flag generic periodic breathing.

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