tried one night no cpap with o2 meter thoughts?

[wilsonintexas]

I recently have had such bad trapped gas that it had been making me very sick in the morning. A few days I could not get up and take care of my daughter. (an adult who is recovering from a failed operation to replace a spial implanted stim).

I finally figured it might be trapped gas from the cpap, which had been a problem in the past. But since no one else is here to help here, I need to be able to get up and do it.

After two nights with no cpap, I am much better. no problems eithr morning. The first night I did not take any sleeping pils (which I need since I had a pitutary tumor removed). I did not sleep much at all, but I cold not find the 2 mnitor and did not want to risk things going really south.

So last night I put on the o2 meter, and put the alarm on for 78. It went off once (boy is it loud, scared the !@#!@#$ out of me).

today I rev iewed the 02 report. I had some events where I got down s low as 76%. But the total time less than 82% is .4 minutes.

I have to go back and search, because I kow I posted a coment about where my wife where the dellp dr said to not worry about events where the time at less than 82 was less than something...... and I THINK (can not remember... that tumor thing) that it was much more than .4 minutes.


Anyhow, I am going to confirm withthe insurance company that they have paid for the whole machine, and if so I will consider one of two options;(both while wearing the 02 monitor)

1) I will lower the pressure to the minimum and see how things go. I may then slowly increase it to where I had it before. (I do not remember right now what that is, and when i upgraded my machine I lost the sleepy head data that was stored,s so need to reload it all and start over)

2) I am considering going without the cpap until my daughter is better (which may be moths)


On the current setings on the cpap I was at a very low ahi, many times 0.0. so I can lower the pressure some.


I did have some posts on this in th past, but this is the first time I have considered doing without cpap. I have to be able to function and the trapped gas has been so bad a few days that I could not.

[palerider]

today I rev iewed the 02 report. I had some events where I got down s low as 76%. But the total time less than 82% is .4 minutes.

I have to go back and search, because I kow I posted a coment about where my wife where the dellp dr said to not worry about events where the time at less than 82 was less than something.

you generally want to keep spo2 over 90%, or at the least, 88... opinions vary. 82 is hypoxic.

[PoolQ]

if it was me I would lower my pressure some and accept a higher AHI for a while, while still monitoring my O2. But what do I know

[archangle]

Please put your equipment in your profile. There's a link in my signature line below.

There's a youtube video about fighting aerophagia in the Useful Links in my signature line below that might help.

[palerider]

Please put your equipment in your profile. There's a link in my signature line below.

do you have that on a macro?

wilson's on a resmed ASV.

[wilsonintexas]

Thanks for the quick replies, again.
I updated my profile, sorry it was out of date.

For a long time I was on the RESMED S9.

A few months ago (not sure how many) I tried the PR for a while, but it was ot dealing with my apneas well. (I might now wis I had kept it.... oh well)

After a good trial of the PR, I switced to the RESMED and since they had released the Aircurve ASV I went to it.

I just checked my machine.

The setings hat were causing problems were:
min eap: 4
max eap 6
min ps 0
max ps 5.6

mode asv

I adjustem my machine tothe minimum seting in asv mode, which is

mn eap 4
max eap 4
min ps 0
max ps 5

I will try that for a night and see how it gows, and monitorthe 02 levels.


I have not down loaded it into sleepy head for a while, so I will try that tomorrow.

I know that during my sleep studies my o2 had dropped down to 74.

I have lost some weight, so wo knows.

I will look at the link for the trapped air (can never remember the name...)

thanks for that.

Things with my daughter keep me busy, we are usually gone most of theday to pt apoitments. but I will update this when I can.

I also suffer from central nausea after pitutary tumor and radiation. It tooked me a while to put things together. (I was better before the radiation) .

the other day when I was curled up belching and wising I could throw up. I took some liquid anti nausea medicine, and it came up, along with a lot of belchine, and things setle4d down. Then I put it together.....

I have been feeling worese in the morning, and generally felt better by the afternoon.

I had a LOT of ver loud belches especially in the morning.

But, I was getting confused because I also have a lot of "central nausea" that is motion related. This started got worse after a round of radiation to finish off a pitutary tumor. It usually gets worse if I drive, and I have been doing a lot of driving soon after I got up. In Dallas, I wold usally only drive a few days a week. here I drive every day usually for a few hours. Often soon after geting up.

I was putting some of it to the driving.

I suspected food poising. (but not 3 times in a week, especially when the first round had me so upset I did not eat for 24 hours.


Anyhow, thanks.... sorry for the ramble.

Off to look at the u tube.



ok, got wrong link..... got the alternative to CPAP...... I like it......
and that is also why I did the night without it with an o2 meter with the alarm set..... so now maybe the right one....

[palerider]

Thanks for the quick replies, again.
I updated my profile, sorry it was out of date. ... Aircurve ASV I went to it.

I'd suggest setting your machine type in your profile to nothing, since it says you have an aircurve S, not an asv, and that might confuse people who haven't been following along with your history...

just leave the machine type in your sig, as you have it.

[wilsonintexas]

ust wathced the video, sounds like good advice, I will see what I can do....


I usually end on my side he addresses that.

But I also sleep a lot on my tummy...... it was hard on the sleep study..... I figured that over the ears I had found the position that they hate you in forthesleep study, because every thing in the mouth, including the soft pallet fall forward..... yep the body knew what it liked..... and after 60 years, it really does not like changes....


ut I find it really hard to change my sleep position......

I guess I ma have to try sleeping with a hoodie on, and some bungy cord to hold my head down......

I am up in alaska ow, and my daughter turns the temp down at night..... so that might actually work.

I will try tucking my chin, but I honestly do not think that it will stay there, without something to remind me .

the several pllows on he back wold work, if I could sleep on my back. I had to for a while after the surgery, and it was a challenge.


I hope I can retrain myself before I go back to Dallas. With my lck it will be in the summer. I can just see it now, going to bed when it is 110 out with a sweat shirt and hoodie.

[wilsonintexas]

It is late, and I am not sure ofthe last update. so quick review.


First night with no cpap was in this post. time below 88 was less than one minute.

Next night, I put the asv tothelowest setting, my
A
Hi as reported by sleepy head was 2.6.

I still had some gas, but it was not denbilitating. So last night I went without it..... not so good this tme.

I did a search and found the post I made after talking to the dr about my eife. His coment was if the below 90 is more than 2% get back to him and we need to make an adjustment.....


With no cpap this time my below 88% was 0ver 10 minutes, and the below 9% was 13% of the time......


SO back on cpap, and the 02 monitor.


previousli I had tried straight cpap and gotten the pressures lower with less gas. ut I do not trust my memory to know a=what it was. I lost some ofthe sleepy head data whenI upgraded my OS.....


so here is the data on no cpap night 2....





I did look at my sleepy head data. The summary dhows that I have been having some changes in the AHI numbers.



Since I had not been tracking things lately, here is a sumary.





and the total time in apnea......





I =think that July to Sept was on my S9. Then ther was the PR1, and I started the Aircurve 10 about Nov...... I thnk.....


I may have my wife send he S9 down.

BUT even though it controlled the ahi very well.... I started looking for a differnt machne because I was having problems with gas.... and I could not adjust the
s9 low enough to get rid if the gas..... I do remember that.....

so more recent history....
I am not 100% bt I am pretty sure that on thedays that the ahi went up the pressure went up and so dod the nausea......


I guess that is what I get for thinking that it was all under control.....

I will have to start looking at this again daily and see what I can do.

I can not let the gas get so bad that it debilates me again. I have to be able to get up and care for my daughter. If I can not get up every day and help, then she will need to get some other help. so, I am willing to have some level of ahi and 02 levels. But I know it can not be as low as last night.....

so it will be some fine tuning of the pressure, and maybe I will seriously try the hoodie to keep my chin down. At this point I need something.....

I can put up with some nausea..... I have for the past 2 years (snce the pitutary surgery). ut it can not be so bad that I am doubles up in bed and can not get up.....

The level of gas theother day on the lowest cpsp seting was acceptable. So was the overal o2 levels.... That may be the fall back.


Tonight I will try cpap, and a little lower pressure. If the 02 levels are still good, I think I can get the gas a little better.


I can then try and retrain myself to a new sleep position wiht pillows under my head to bring it forward more..... If I can sleep like that, I can then go back on ASV and see if I can get the pressure back up.



I was really hoping to see a few nights like the first one when the time below 88% was less than a minute..... Oh well..... life is not fair.... never was.

sorry about the typos. I did work on this for an hour, but it is 2:00 AM and I have to get p in 7 hours and feed the dogs,
daughter has 2 apts tomorrow I have to dive her to.

[Julie]

I understand why you're trying to keep your head down, but it's completely counterproductive for OSA and cuts off your airway - many people purposely wear soft cervical collars to keep their heads up, airway more open (allowing possibly lower machine setting) and jaw more closed. And your machine settings of 4 (+4) are forcing you to breathe harder, not treating your OSA and creating new problems you may need to deal with. Have you considered taking a little swig of e.g. Diovol just before bedtime - the kind with gas fighting properties?

[chunkyfrog]

I have found that the best way to avoid a gut full of gas, air, etc., is to refrain from eating for at least 3 hours before bed.
Just a reminder; sometimes it is not cpap at all.