Frustrated at my witts end.

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
nussey03
Posts: 2
Joined: Fri Dec 11, 2015 7:51 am

Frustrated at my witts end.

Post by nussey03 » Tue Dec 29, 2015 10:04 am

When does it get better? I am using a loner APAP and the provider is monitoring my progress (or lack thereof).

After more than a week of trying the Resmed with nose pillows I don't see any difference the way I feel when I wake up. I still get up 4 or 5 times a night and because of the thing in my nose I cant get back to sleep for a while.

Any advice?

nanwilson
Posts: 3463
Joined: Tue Apr 13, 2010 10:35 am
Location: Southern Alberta

Re: Frustrated at my witts end.

Post by nanwilson » Tue Dec 29, 2015 11:03 am

Advise...... don't be so quick to expect results, after all, you have had poor or no sleep for along time. It takes time to retrain your brain to accept new things. I would suggest that you do a lot of reading here on the forum and educate yourself on this therapy. Your brain is telling you it hates this mask and air blowing, change it now Relax.... and read up on what others have experienced, whomever told you that you will recover instantly from years of not getting restorative sleep is an idiot.
As I said RELAX, keep using your mask and cpap, you will get there soon enough.
Good luck
Nan

Edited to remind you to add your equipment to your profile so that we can help you with whatever problems you are having with them.
Started cpap in 2010.. still at it with great results.

PoolQ
Posts: 498
Joined: Sat Jul 11, 2015 10:41 am
Location: Silicon Valley

Re: Frustrated at my witts end.

Post by PoolQ » Tue Dec 29, 2015 11:42 am

Sorry, but most of the time CPAP is not like a light switch, boom your better and the world is good. You can get there with time AND tuning the machine to your personal liking. Most people adjust lots of things to get a good nights sleep: pillows, blankets, temperature, mattress, light levels, ear plugs....and now you have an alien sitting on your face blowing air up your nose. Depending on what machine you are using, you should have lots of what are called comfort settings, you need to be comfortable to sleep

Depending on your settings you could also have to have your therapy settings adjusted. PLEASE don't just wait for it to happen. Tell us what equipment your are using so we can help you( even if it's only information that you can talk with your Doctor about).

You are here now and reaching out, good choice!
Sleeping MUCH better now

Mudrock63
Posts: 327
Joined: Thu Oct 22, 2015 10:04 am

Re: Frustrated at my witts end.

Post by Mudrock63 » Tue Dec 29, 2015 12:06 pm

Way too early in the process to be at your wit's end. My advice is be patient, but don't just sit back and rely on the medical experts to optimize your therapy for you. Take some ownership of the problem. This is a great resource. Start reading everything you can on here. Learn about your problem. Be willing to share some of your information and people on here will help you. This has not, in my experience, been a condition that is magically cured by plugging in a machine. It's a process. Finding a mask that fits comfortably. Finding the humidity settings that work for you. Learning to use the downloadable software to monitor your progress. Educating yourself enough on the condition that you can intelligently discuss it with your doctors and equipment providers. Commit yourself to your treatment and dig in for the long haul.

_________________
Mask
Additional Comments: 560P

User avatar
Wulfman...
Posts: 6688
Joined: Mon Sep 01, 2014 6:41 pm
Location: Nearest fishing spot

Re: Frustrated at my witts end.

Post by Wulfman... » Tue Dec 29, 2015 3:06 pm

nussey03 wrote:When does it get better? I am using a loner APAP and the provider is monitoring my progress (or lack thereof).

After more than a week of trying the Resmed with nose pillows I don't see any difference the way I feel when I wake up. I still get up 4 or 5 times a night and because of the thing in my nose I cant get back to sleep for a while.

Any advice?
It's obvious that you (or someone else) set your expectations too high.
This therapy is "baby steps". It depends on how long you've had it, how long it will take to get your therapy optimized by tweaking it, how long it takes you to pay off your "sleep debt" (with more, good-quality sleep).
Under that criteria......it can be MONTHS for you to feel some benefits. It's not an instantaneous type of recovery. For most of us, it was a gradual thing.

Stick with it, get the Sleepyhead software to monitor your therapy and it will eventually pay off.


Den

.
(5) REMstar Autos w/C-Flex & (6) REMstar Pro 2 CPAPs w/C-Flex - Pressure Setting = 14 cm.
"Passover" Humidification - ResMed Ultra Mirage FF - Encore Pro w/Card Reader & MyEncore software - Chiroflow pillow
User since 05/14/05

User avatar
Cannuck 1
Posts: 166
Joined: Wed Dec 09, 2015 7:32 pm
Location: Alberta Canada

Re: Frustrated at my witts end.

Post by Cannuck 1 » Wed Dec 30, 2015 11:05 am

Your health takes time to cure and doing other things to improve your sleep like a diet change.(drinking one less cup of coffee at a certain time might save one arousal time instead of sleeping.)
All the best

_________________
MachineMask
Additional Comments: OSCAR 1.1 software, Rescan 5.9,ceiling pressure max 11CM +Floor Min pressure 8 CM range,EPR-3

User avatar
Okie bipap
Posts: 3567
Joined: Thu Oct 15, 2015 4:14 pm
Location: Central Oklahoma

Re: Frustrated at my witts end.

Post by Okie bipap » Wed Dec 30, 2015 12:58 pm

As Wulfman said, it is usually not an instant thing. After three or four months, I began to notice I could sit and work the crossword puzzle in the paper, watch TV or read and not fall asleep. I continue to have a few arrousals (usually less than two an hour), but this is much better than the 49 or so I was having prior to treatment.

_________________
Machine: AirCurve™ 10 VAuto BiLevel Machine with HumidAir™ Heated Humidifier
Mask: Evora Full Face Mask - Fitpack
Additional Comments: IPAP 20-25, ps 4, OSCAR software
Growing old is mandatory, but growing up is optional.

User avatar
lindalam89
Posts: 118
Joined: Wed Sep 23, 2015 2:12 pm

Re: Frustrated at my witts end.

Post by lindalam89 » Wed Dec 30, 2015 1:08 pm

nussey03 wrote:When does it get better? I am using a loner APAP and the provider is monitoring my progress (or lack thereof).

After more than a week of trying the Resmed with nose pillows I don't see any difference the way I feel when I wake up. I still get up 4 or 5 times a night and because of the thing in my nose I cant get back to sleep for a while.

Any advice?
It may not get easier to sleep on them but have you noticed subtle ways the machine has improved your functioning?

I complained a lot to my doctors and respiratory therapists about not acclimating to the machine. After a year, I still could not love my machine. I even alternated days to make sleep easier. But after not sleeping on cpap for over a week, I noticed a relapse in heart attack like events. This was a wake up call. Although I sleep like crap on the machine, I cannot live without my apap. My apap literally saved me from having frequent arousals that felt like my heart was going bonkers. Not trying to scare you but I wanted to put things in perspective. Many users here often report about better sleep, and I find that discouraged me a lot even though it meant to motivate me. I felt like I was alone in my struggle to get sleep on cpap. But I later discovered there are many cpap users who use the machine, and do not sleep well on it, but it does improve their cognitive function. I think it is better to be able to think and be sleepy, than be both sleepy and feeling like you cant think.

It's not a easy transition but things will get better.

Have you tried different masks? a Hose cozy? Or putting the machine below your bed? Or even a mask liner? A nasal pillow is not always the best mask for everyone. I thought it was but when I switched to full face, I realized breathing became more normal on a full face than with a pillow. There is a noise trade off. But if breathing normally is a struggle, I would try out a minimal contact full face mask
ResMed AirSense 11
AutoSet For HerModel
PAP Mode: Auto for Her
Min 7.2 Max 12.6 (cmH2O)
humidifier: 8
Amara view face mask
99% mask fit

otrpu
Posts: 88
Joined: Fri Jan 11, 2008 8:50 pm
Location: Colorado

Re: Frustrated at my witts end.

Post by otrpu » Wed Dec 30, 2015 1:43 pm

nussey03,
Don't give up. When you become acclimated to the therapy it will be worth it. Just have to stick with it.
Cheers,
otrpu

_________________
Machine: ResMed AirSense™ 10 AutoSet™ CPAP Machine with HumidAir™ Heated Humidifier
Additional Comments: ResMed Oxi, ClimateLine w/sock

nussey03
Posts: 2
Joined: Fri Dec 11, 2015 7:51 am

Re: Frustrated at my witts end.

Post by nussey03 » Thu Feb 04, 2016 8:31 am

Thank you thank you thank you all for those words of encouragement. I gave it one more shot and found that the Resmed Airfit P10 suited my needs. I also went back to my original old Resmed tango set at 9.5 on the advice from my physician.

Nigh time arousals are less frequent and I wake up ready for my treadmill exercise.

No longer a lost cause
Nussey03

herefishy
Posts: 1012
Joined: Sun Oct 30, 2005 8:24 am

Re: Frustrated at my witts end.

Post by herefishy » Thu Feb 04, 2016 9:06 am

Glad you're on the right track.

_________________
Mask: Mirage Activa™ LT Nasal CPAP Mask with Headgear
Additional Comments: pressure 10-12