OT: Test Results
OT: Test Results
I've mentioned several times having had surgery for endometrial cancer on 7 April 2008. I have to have labs every four months until the oncologist tells me it can be every six months.
Got my results for the January labs -- NEGATIVE!
Only four years and four months until I can be declared cancer-free... and take the dream vacation Harry and I have been thinking of through the Canadian Rockies... on the Rocky Mountaineer.
Got my results for the January labs -- NEGATIVE!
Only four years and four months until I can be declared cancer-free... and take the dream vacation Harry and I have been thinking of through the Canadian Rockies... on the Rocky Mountaineer.
_________________
Mask: TAP PAP Nasal Pillow CPAP Mask with Improved Stability Mouthpiece |
Additional Comments: Sleepyhead software, not listed. Currently using Dreamstation ASV, not listed |
-- Kiralynx
Beastie, 2008-10-28. NEW Beastie, PRS1 960, 2014-05-14. NEWER Beastie, Dream Station ASV, 2017-10-17. PadaCheek Hosecover. Homemade Brandy Keg Chin Support. TapPap Mask.
Min PS = 4, Max PS = 8
Epap Range = 6 - 7.5
Beastie, 2008-10-28. NEW Beastie, PRS1 960, 2014-05-14. NEWER Beastie, Dream Station ASV, 2017-10-17. PadaCheek Hosecover. Homemade Brandy Keg Chin Support. TapPap Mask.
Min PS = 4, Max PS = 8
Epap Range = 6 - 7.5
- greenvelvetdragon
- Posts: 130
- Joined: Sun Dec 02, 2007 6:01 am
- Location: Tropical Far North Queensland Australia
Re: OT: Test Results
good on ya kiralynx!!!! i love to hear news like this.
all the best
gvd
all the best
gvd
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Re: OT: Test Results
Hurray!
O.
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Forum member Dog Slobber Nov. 2023
Antoine de Saint-Exupery
Good advice is compromised by missing data
Forum member Dog Slobber Nov. 2023
Re: OT: Test Results
Kiralynx, so happy to hear this!! Do you know when they will push it to every six months?
Sounds like a wonderful trip you have planned!
Pam
Sounds like a wonderful trip you have planned!
Pam
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Machine: DreamStation 2 Auto CPAP Advanced with Humidifier |
Mask: Hybrid Full Face CPAP Mask with Nasal Pillows and Headgear |
Additional Comments: Oscar Software | APAP: 9-10 |
Re: OT: Test Results
Great news and that sounds like a wonderful trip. Hope you get to make it in a few years.
JeffH
JeffH
Re: OT: Test Results
Wonderful news, Kira. Thanks for letting us know.
Marsha
Marsha
Resp. Pro M Series CPAP @ 12 cm, 0 C-Flex, 0 HH & Opus 360 mask (backup: Hybrid) since 8/11/08; member since 7/23/08
A good laugh and a long sleep are the best cures in the doctor's book. ~ Irish Proverb
A good laugh and a long sleep are the best cures in the doctor's book. ~ Irish Proverb
Re: OT: Test Results
There is nothing in the world better to hear than the words "negative". I am a 9 year breast cancer survivor, and I do not even have to go to the oncologist anymore - my regular doctor does my yearly blood tests.
Congratulations!!!!!
Take Care
Skittles
Congratulations!!!!!
Take Care
Skittles
The world is full of doubt, indeed, but fuller still of hope.
Re: OT: Test Results
Thanks, all. I understand it will be two years of the every-four-months testing, at least. My post-surgery tests, including the lymph nodes, were negative, although the cancer had spread from the endometrium to the wall of the uterus. My four-month tests were negative. My oncologist is having me see her on alternate visits, with my regular gynecologist (who diagnosed the cancer) in between. This time was with the gyn... she said all looked well, and that perhaps I might be able to go to the every six months early, but that would be up to the oncologist, of course. I'll see her in May.
<wry grin> I got the first set of negative results the same day I got my apnea diagnosis! How's that for crazy?
My husband and I spent two weeks in the Canadian Rockies in summer of 2004. He was absolutely fascinated by the Spiral Tunnels, and I loved seeing the Rocky Mountaineer. So... a trip which combines both seems like a great idea to celebrate!
Skittles -- 9 years! Awesome! The lymphedema specialist I saw was one of my oncologist's patients eight years ago, for the exact same procedure... definitely an encouragement!
<wry grin> I got the first set of negative results the same day I got my apnea diagnosis! How's that for crazy?
My husband and I spent two weeks in the Canadian Rockies in summer of 2004. He was absolutely fascinated by the Spiral Tunnels, and I loved seeing the Rocky Mountaineer. So... a trip which combines both seems like a great idea to celebrate!
Skittles -- 9 years! Awesome! The lymphedema specialist I saw was one of my oncologist's patients eight years ago, for the exact same procedure... definitely an encouragement!
_________________
Mask: TAP PAP Nasal Pillow CPAP Mask with Improved Stability Mouthpiece |
Additional Comments: Sleepyhead software, not listed. Currently using Dreamstation ASV, not listed |
-- Kiralynx
Beastie, 2008-10-28. NEW Beastie, PRS1 960, 2014-05-14. NEWER Beastie, Dream Station ASV, 2017-10-17. PadaCheek Hosecover. Homemade Brandy Keg Chin Support. TapPap Mask.
Min PS = 4, Max PS = 8
Epap Range = 6 - 7.5
Beastie, 2008-10-28. NEW Beastie, PRS1 960, 2014-05-14. NEWER Beastie, Dream Station ASV, 2017-10-17. PadaCheek Hosecover. Homemade Brandy Keg Chin Support. TapPap Mask.
Min PS = 4, Max PS = 8
Epap Range = 6 - 7.5
Re: OT: Test Results
Congratulations!!!!!!
But, why wait on the trip?
But, why wait on the trip?
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Additional Comments: Pressure at 10, double insulated hose |
I'm still hot....it just comes in flashes...
iMob Friend Code - 179-961-093
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Re: OT: Test Results
Deb,
Why wait? Because we had an awful lot of of out of pocket expenses between my cancer surgery and now the apnea and can't afford it.
Besides, looking forward to a trip like that gives me the confidence that the tests will continue to be negative.
Why wait? Because we had an awful lot of of out of pocket expenses between my cancer surgery and now the apnea and can't afford it.
Besides, looking forward to a trip like that gives me the confidence that the tests will continue to be negative.
_________________
Mask: TAP PAP Nasal Pillow CPAP Mask with Improved Stability Mouthpiece |
Additional Comments: Sleepyhead software, not listed. Currently using Dreamstation ASV, not listed |
-- Kiralynx
Beastie, 2008-10-28. NEW Beastie, PRS1 960, 2014-05-14. NEWER Beastie, Dream Station ASV, 2017-10-17. PadaCheek Hosecover. Homemade Brandy Keg Chin Support. TapPap Mask.
Min PS = 4, Max PS = 8
Epap Range = 6 - 7.5
Beastie, 2008-10-28. NEW Beastie, PRS1 960, 2014-05-14. NEWER Beastie, Dream Station ASV, 2017-10-17. PadaCheek Hosecover. Homemade Brandy Keg Chin Support. TapPap Mask.
Min PS = 4, Max PS = 8
Epap Range = 6 - 7.5
-
- Posts: 57
- Joined: Thu Dec 11, 2008 8:41 am
- Location: Mississippi
Re: OT: Test Results
Congratulations, I was thinking the same thing as Deb, why wait?, but then you answered her. I understand completely. It is always fun to plan and look forward to a vacation and to have something to celebrate as well.
Re: OT: Test Results
Yep -- planning ahead is good. We should get a vacation that we can drive to -- we're looking at going to see my sister in Ohio over Mardi Gras, since I missed going over New Years due to a scare that the cancer had returned. We may also go up to Chicago in June for the Historical Novelists' Conference and then visit friends in Milwaukee afterwards.
But that's not staying in luxury hotels and riding on elegant trains! <g>
But that's not staying in luxury hotels and riding on elegant trains! <g>
_________________
Mask: TAP PAP Nasal Pillow CPAP Mask with Improved Stability Mouthpiece |
Additional Comments: Sleepyhead software, not listed. Currently using Dreamstation ASV, not listed |
-- Kiralynx
Beastie, 2008-10-28. NEW Beastie, PRS1 960, 2014-05-14. NEWER Beastie, Dream Station ASV, 2017-10-17. PadaCheek Hosecover. Homemade Brandy Keg Chin Support. TapPap Mask.
Min PS = 4, Max PS = 8
Epap Range = 6 - 7.5
Beastie, 2008-10-28. NEW Beastie, PRS1 960, 2014-05-14. NEWER Beastie, Dream Station ASV, 2017-10-17. PadaCheek Hosecover. Homemade Brandy Keg Chin Support. TapPap Mask.
Min PS = 4, Max PS = 8
Epap Range = 6 - 7.5
Re: OT: Test Results
If you are heading to Milwaukee, send me a PM ..
S8 AutoSet II with H4i Humid, reader + software
M Series Auto w Aflex with HH, reader + software
IntelliPAP AutoAdjust with HH, reader + software
Mirage Liberty Full Face with Nasal Pillows and Head Gear
Pursleep, Pad A Cheeks~
Started 9/12/08
M Series Auto w Aflex with HH, reader + software
IntelliPAP AutoAdjust with HH, reader + software
Mirage Liberty Full Face with Nasal Pillows and Head Gear
Pursleep, Pad A Cheeks~
Started 9/12/08
Re: OT: Test Results
Kiralynx,
I know how relieved you are every good check-up. My housemate is 3 years cancer free after surviving stage 4 throat cancer with brutal radiation and chemotherapy. Three weeks ago at his quarterly throat scan, they found a spot. Ten anxious days later we found out it was a yeast infection. You never saw a man so happy to have a yeast infection in your life!!!
I know you work hard on being cancer free by eating a healthy diet. Keepit up, your are doing great!
Bev
I know how relieved you are every good check-up. My housemate is 3 years cancer free after surviving stage 4 throat cancer with brutal radiation and chemotherapy. Three weeks ago at his quarterly throat scan, they found a spot. Ten anxious days later we found out it was a yeast infection. You never saw a man so happy to have a yeast infection in your life!!!
I know you work hard on being cancer free by eating a healthy diet. Keepit up, your are doing great!
Bev
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Mask: Mirage™ SoftGel Nasal CPAP Mask with Headgear |
Additional Comments: 3M MediporeTape, Respironics Premium chinstrap, CMS 60D Oximeter |
Diagnosed 9/4/07
Sleep Study Titrated to 19 cm H2O
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11/2/07 RemStar M Series Auto with AFlex 14-17
10/17/08 BiPAP Auto SV 13/13-23, BPM Auto, AHI avg <1
Sleep Study Titrated to 19 cm H2O
Rotating between Activa and Softgel
11/2/07 RemStar M Series Auto with AFlex 14-17
10/17/08 BiPAP Auto SV 13/13-23, BPM Auto, AHI avg <1
Re: OT: Test Results
Happy to hear about your good checkup and I hope you have much fun thinking about and planning your trip!! I took some trips I had been looking forward to after a bad time with my heart and it was worth every beautiful minute. If I never get to take another one, I will still be quite happy. I can always think back and remember the wonderful times I had
Mindy
Mindy
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"Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain."
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