Its not a "journey".

[Noctuary]

Its a forced march through jungles and deserts, leading to labor camps or a ravine.

[BlackSpinner]

No it is a trek to Shangrila and there are Sherpas to carry the load for you.

[Sir NoddinOff]

Things not going well Noctuary ? Maybe you'd like to share with the CPAPtalk members.

[robysue]

Its a forced march through jungles and deserts, leading to labor camps or a ravine.

and

No it is a trek to Shangrila and there are Sherpas to carry the load for you.

I think for most newbies, it's between the two.

When I was a newbie, it was definitely a forced march through hell and back. And for a very long time, it didn't fell like I'd ever get back from hell.

Noctuary, if you're having difficulties and you just want some sympathy, feel free to send me whiny PMs about whatever the heck is bugging you.

[palerider]

Its a forced march through jungles and deserts, leading to labor camps or a ravine.

and having a crappy attitude just makes it much worse.

[robysue]

Its a forced march through jungles and deserts, leading to labor camps or a ravine.

and having a crappy attitude just makes it much worse.

Sometimes the crappy attitude is a result of slogging through a truly bad situation where it seems like the "light at the end of the tunnel" never materializes.

In my case, I did my best to "keep my chin up and stay positive." But at the same time, I was dealing with some very severe and nearly debilitating symptoms that started after I started CPAP. For the first 6 months of PAPing, I felt more tired and exhausted than I have ever felt in my entire life. I'd never been very sleepy during the daytime pre-CPAP; within 1 week of starting CPAP I was so sleep deprived from adjustment problems that I was scared to death of falling asleep while driving that I had to have my husband drive me everywhere. I was literally falling asleep while teaching mathematics standing at the board. Colleagues were asking me why I looked like death warmed over and I had to resign from several department and college committees because I just could not function. Yes my adjustment really was that bad. And at 3:00 and 4:00 AM when I was unable to get to sleep due to severe aerophagia and I was angry enough to scream bloody murder and throw the machine across the room, it was not possible to get rid of my "bad attitude" that this therapy really sucked and was ruining my life.

There are only two reasons I made it through those first six months of hell and the second six months of purgatory:

1) My husband: God bless him for putting up with my screaming, crying, temper tantrums at 3:30AM, driving me everywhere, and dealing with the phone tag with the sleep doc's office.

2) The kind folks here: Folks who let me whine when I needed to without making fun of me or accusing me of being a troll or telling me that I needed to just try harder. I was getting more than enough "Just Try Harder" from the PA in my first sleep doc's office at the time and I didn't need more of it from the folks here. I also got a lot of help from folks who continually gave me high quality suggestions to try when I described my sometimes bizarre sounding adjustment problems, and who didn't seem to mind when I would explain why their suggestions didn't work for me. And folks who told me just how lucky I was to have such a wonderful spouse who was willing to put up with all the crap I was dishing out at the time due to severe sleep deprivation. And folks who repeatedly simply tried to cheer me up on my worst days, sometimes with funny stories of their own difficult adjustments.

[Diamondminek]

It's not pc to say someone suffers from an illness anymore (in the uk) - they are a person with sleep apnoea, not a sleep apnoea sufferer, a person with diabetes, dementia etc not a sufferer of a condition. But if you have a chronic health condition, suffering comes with the territory! Realism and validation of your feelings/ experiences is important.

[Noctuary]

Its a forced march through jungles and deserts, leading to labor camps or a ravine.

and having a crappy attitude just makes it much worse.

Its hard to be cheerful when you wake up feeling the way you should feel at the end of the day. Two years now of this "journey". Lost my job, nothing to look forward to but days rolling on days of unending fatigue. I have no idea how I'm supposed to live the rest of this crappy life. I hope it mercifully ends soon. I hung in there; it didn't get better.

[LSAT]

Its a forced march through jungles and deserts, leading to labor camps or a ravine.

and having a crappy attitude just makes it much worse.

Its hard to be cheerful when you wake up feeling the way you should feel at the end of the day. Two years now of this "journey". Lost my job, nothing to look forward to but days rolling on days of unending fatigue. I have no idea how I'm supposed to live the rest of this crappy life. I hope it mercifully ends soon. I hung in there; it didn't get better.

You have a great machine and the availability to use Sleepyhead to share your data with members. If you don't use the help you have available...Don't Complain.

[Noctuary]

Its a forced march through jungles and deserts, leading to labor camps or a ravine.

and having a crappy attitude just makes it much worse.

Its hard to be cheerful when you wake up feeling the way you should feel at the end of the day. Two years now of this "journey". Lost my job, nothing to look forward to but days rolling on days of unending fatigue. I have no idea how I'm supposed to live the rest of this crappy life. I hope it mercifully ends soon. I hung in there; it didn't get better.

You have a great machine and the availability to use Sleepyhead to share your data with members. If you don't use the help you have available...Don't Complain.

No, I don't have the availability to use "sleepyhead". It crashes, every time. But even when I did have use of it for MONTHS it was of no benefit.

[CaptainRaven40]

Hmmmm. Sleepyhead was of no use? Or you didn't know how to use it properly? Not trying to be an ass and not trying to say you are not intelligent. It is just something that could be hard and or tricky for some people. But if you want it to work you really have to keep working at it. Which means finding a way to get your data and to get it to people on here who would be able to help you. Where there is a will there is a way. But you have to really want it. Right now it sounds like you are in the stages of giving up. You have to get past that and remember this is your health and you have to do what you have to for it to be better. If you want to die. Then die. We can't stop you. But people are here to help if you want it and really fight for it. Good luck.

[chunkyfrog]

For me, using the software was a bit more fuss than I had the time for.
I had the S9 Autoset, and the on-screen data was enough to keep track of trends.
I would do the Sleepyhead thing for geeky happiness and charming my sleep doc.
I have yet to D/L Sleepyhead for my Airsense, as my only Windows pony
in my computer stable came up lame, and we had to shoot it.
My journey began April 10, 2010; and it has been an adventure, with no shortage of
inconvenience, frustration, and expense--but I chose to use my denial on my hurdles, not my therapy.
--------"I can fly!" (In my dreams, of course)

[Noctuary]

Hmmmm. Sleepyhead was of no use? Or you didn't know how to use it properly? Not trying to be an ass and not trying to say you are not intelligent. It is just something that could be hard and or tricky for some people. But if you want it to work you really have to keep working at it. Which means finding a way to get your data and to get it to people on here who would be able to help you. Where there is a will there is a way. But you have to really want it. Right now it sounds like you are in the stages of giving up. You have to get past that and remember this is your health and you have to do what you have to for it to be better. If you want to die. Then die. We can't stop you. But people are here to help if you want it and really fight for it. Good luck.

I use to post sleepyhead screenshots regularly. Now it doesn't work at all. I've installed and uninstalled a dozen or more times.

If you want to die. Then die.

I do. But you'd be surprised how difficult it is, when you look into it.

[Sir NoddinOff]

Don't listen to all the 'grumps'. You took the first step regarding your current problems and, make no mistake, it's a BIG step... you shared what's going on with your life and now you can get help and move forward. I know, it's just words, but looking over some of your earlier posts I think you can do this. I know because I went thru some serious depression early last year and managed to plow thru it and started to feel better day by day.

[chunkyfrog]

Noctuary, may I urge you to ask your doctor for help or a referral to a specialist for your depression.
Wanting to die is a very bad sign. Our culture has for way too long viewed suicide as a sin; but it is
REALLY a tragic outcome of the disease of depression. Please get help. Love, froggie.