So Upset about the Cpap

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
Monstrosity
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Re: So Upset about the Cpap

Post by Monstrosity » Fri Oct 04, 2013 11:40 am

ah sorry I just realized this post was started a year ago

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Last edited by Monstrosity on Fri Oct 04, 2013 12:14 pm, edited 1 time in total.

old dude
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Re: So Upset about the Cpap

Post by old dude » Fri Oct 04, 2013 11:58 am

hueyville wrote:Absolutely weird. Apnea is not an STD. Since I joined the crowd dkscovered 20% people I know are using one. Three friends died from sleep apnea just last year. One fell asleep in recliner watching television and wife found him dead after two hours. One tried to travel light for a one night visit to see the grand kids. Rather your kids see you taking care of your self or dead in bed?
Wow, pretty scary indeed!

That will certainly get one's attention and help put things in perspective...

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archangle
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Re: So Upset about the Cpap

Post by archangle » Sat Oct 05, 2013 9:06 am

hueyville wrote:Absolutely weird. Apnea is not an STD. Since I joined the crowd dkscovered 20% people I know are using one. Three friends died from sleep apnea just last year. One fell asleep in recliner watching television and wife found him dead after two hours. One tried to travel light for a one night visit to see the grand kids. Rather your kids see you taking care of your self or dead in bed?
Oh, geez.

"Little Suzie, go wake grandpa up and tell him it's breakfast time."

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NateS
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Re: Digging up old threads

Post by NateS » Sat Oct 05, 2013 11:08 am

49er wrote:
NateS wrote:There seems to be a run lately on digging up old threads, and trying to breathe new life into them.

Halloween is coming soon.

Does anyone see a connection?

Best wishes, Nate
Hi Nate,

For some reason, I enjoy seeing old threads to remind me of what has occurred in the past on this forum due to my bad memory. I know I am in the minority on this but I just wanted to let folks know there was one person who didn't mind seeing old one resurrected.

I do understand why people need to start a new subject unless the OP has replied with an update.

Don't see a connection with Halloween. But thanks for reminding me how fast time is going.

49er
Yes I agree that you have a valid point. Researching existing knowledge on cpaptalk before asking the same question again is thoughtful and wise.

I was thinking mainly about the folks who don't check the date of the post they are responding to, and end up appearing to address folks who last appeared on the forum about 5 years previously and not a word from them since! Some even seem to get irritated when they don't get an acknowledgment back from the ghost poster thanking them for their advice. Some even spend time scolding the ghost poster for expressing discouragement about their therapy, years after they appear to have "left the building."

Best wishes, Nate

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CAsleep
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Re: So Upset about the Cpap

Post by CAsleep » Sat Oct 05, 2013 11:27 am

I just posted about being a Mom of a 4 month old, and even before baby.....realllllly struggling to adapt.

Anyone have advice for me? I feel like I could have written this post. Some of the replies on the previous page were helpful to me. Someone said that if you look back, adapting to CPAP is not the hardest thing most of us have done. Hmmm. Not sure. It's been pretty rough. Been struggling with it now for about 3 years. Lots of fights with spouse over it (me asking him to set alarms, put it on me, etc).

I think what's keeping me from acceptance, is that I see the surgery as my "out." I need advice as to if I should take the plunge. Do I have valid reasons to try this other option? Or is it just me, not accepting that this will be a lifelong thing?

Then there is the practicality, that.....I really want it to work....so, why hasn't it??? So maybe I "need" the surgery? I can't figure out if I'm just not trying hard enough with xPAP. Try harder, or get the surgery. Thoughts?
Symptoms: severe daytime sleepiness and fatigue/tiredness, oversleeping and hypersomnia, dark circles around eyes, sometimes brain fog.

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Jeannh
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Re: So Upset about the Cpap

Post by Jeannh » Sat Oct 05, 2013 1:36 pm

Try harder, or get the surgery. Thoughts?
Very personal choice. For me, the choice between treatment via air or surgery without a guaranteed outcome is easy. The delivery technology will get better over time. Good luck!

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Julie
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Re: So Upset about the Cpap

Post by Julie » Sat Oct 05, 2013 2:26 pm

Hi - I'd love to point you to surgery as the magic answer, but then this wouldn't be much of a Cpap forum, we'd all be ex-OR-patients. Unfortunately, the consensus so far on most (tho' not all) operations is that they don't solve the problems and sometimes create new ones, or else appear to work short term, but within a year things revert. If e.g. dealing with nasal turbinates to help clear that part of your airway is in question, it's usually a good idea, but having e.g. uvulopalatal surgery is not. Things like jaw advancement ("MAD") work for some, tonsillectomy seems to create more trouble than it's worth. There are very new things now like phrenic nerve stimulation using thin cables under your upper chest skin, but they're still experimental (or at least not yet proven in enough people to convince most that it's 'the' answer), and may be more appropriate the those with central apnea as their trouble is not obstructive (or that only incidentally), but of the brain not triggering a breathing mechanism. Does that help at all or only confuse more?