No data type machines

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Dirtkicker

No data type machines

Post by Dirtkicker » Mon Dec 31, 2012 7:53 pm

I know most people want machines that track your sleep data, but are there any machines that don't let you or the doctor track your sleep?

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BlackSpinner
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Re: No data type machines

Post by BlackSpinner » Mon Dec 31, 2012 7:56 pm

Dirtkicker wrote:I know most people want machines that track your sleep data, but are there any machines that don't let you or the doctor track your sleep?
Almost all of them track number of hours used so that the DME can get paid. Otherwise there are lots of bricks around. Resmed Escapes for example.

Why wouldn't you want your doctor to track your sleep? That is like my mother going to her diabetes doctor and refusing to show her glucose numbers, kind of stupid.

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Cindy Lou Who
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Re: No data type machines

Post by Cindy Lou Who » Mon Dec 31, 2012 8:35 pm

Black Spinner, Perhaps he wants to avoid those machines that are "Bricks". Most of the models (regardless of manufacturer) only record times used. Your Dr will have to write the prescription specifically for a "fully Data-capable" machine if you want one... at least that is what I've heard from my DME. And be careful... some DME's (Durable Medical Equipment) stores/vendors may sell you something they say is data-capable when it is not.
Everyone here advises new comers to read and educate themselves before going to their DME to get their machine. Across the top of the screen you will see "New Users" and "CPAP Wiki". Both are very good places to start!
Wishing you all the best!
Cindy

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zoocrewphoto
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Re: No data type machines

Post by zoocrewphoto » Tue Jan 01, 2013 2:46 am

Cindy Lou Who wrote:Black Spinner, Perhaps he wants to avoid those machines that are "Bricks". Most of the models (regardless of manufacturer) only record times used. Your Dr will have to write the prescription specifically for a "fully Data-capable" machine if you want one... at least that is what I've heard from my DME. And be careful... some DME's (Durable Medical Equipment) stores/vendors may sell you something they say is data-capable when it is not.
Everyone here advises new comers to read and educate themselves before going to their DME to get their machine. Across the top of the screen you will see "New Users" and "CPAP Wiki". Both are very good places to start!
Wishing you all the best!
Cindy
The original posted asked for a machine that could NOT be tracked by a doctor. Doesn't sound like somebody who wants a full data machine. And Black Spinner isn't new, by any means. I thought her question was quite reasonable. Why would somebody NOT want to see their data? Why would they not want their doctor to see their data?

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Re: No data type machines

Post by Janknitz » Tue Jan 01, 2013 2:59 am

Someone who doesn't plan to use their machine regularly or who doesn't like the whole Big Brother is Watching You thing.

I remember when a friend went on CPAP years before I did being flabbergasted that someone could track your usage. It's really pretty invasive, when you think about it!
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zoocrewphoto
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Re: No data type machines

Post by zoocrewphoto » Tue Jan 01, 2013 3:41 am

Janknitz wrote:Someone who doesn't plan to use their machine regularly or who doesn't like the whole Big Brother is Watching You thing.

I remember when a friend went on CPAP years before I did being flabbergasted that someone could track your usage. It's really pretty invasive, when you think about it!
Only if I give them my card.

I understand why they check for compliance. I see a lot of barely used or brand new cpap machines on craigslist. Lots of people don't use their machine and sell it. That makes the insurance companies reluctant to pay for expensive equipment.

My DME checked my card ONCE. And I take it with me to the doctor's office. But I WANT my doctor to look at my data. If I didn't want him to, then I could simply skip going to the doctor. Or "forget" my card.

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Denial Dave
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Re: No data type machines

Post by Denial Dave » Tue Jan 01, 2013 8:04 am

A no data machine might be perfect for traveling. One less bit of electronics to go bad & possibly lower current requirements.

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Sheriff Buford
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Re: No data type machines

Post by Sheriff Buford » Tue Jan 01, 2013 8:57 am

I have an S8 Escape that will only tell you the ours used. I use it as a back up. Sheriff

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LSAT
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Re: No data type machines

Post by LSAT » Tue Jan 01, 2013 9:09 am

Most of the people on this board 'care' about their treatment and believe that a data capable machine is the only way to treat OSA. There are millions out there that don't know or don't care to monitor their data. I personally have a friend that has been on CPAP therapy for over 10 years. He saw a doctor initially and was prescribed a pressure of 10....10 years later he is still on 10 without ever seeing a doctor OR checking his auto CPAP. In another instance, my cardiologist is also a CPAP user. I asked him about checking data. He has an auto but claims he has checked his data 2-3 times this past year. I feel the same way. I have been using a 'brick' for over 4 years. I have an autoset that I use every 3 months or so for a few days to see how I am doing. I prefer my brick for daily use. It's quieter and automatically prevents rainout. As long as I am sleeping well and get up rested, I don't care about checking data. Once a year I borrow a PulsOx from my DME.I use it for a night and my DME runs a report that I share with my cardiologist. In my 4+ years on CPAP, I have never shared my CPAP 'data' with any doctor.

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BlackSpinner
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Re: No data type machines

Post by BlackSpinner » Tue Jan 01, 2013 9:35 am

The big thing is, when you start xpap therapy you have really no clue how it is going to go for you. If you have no problems, feel better right away then data is just unimportant. However if there is any kind of issue the only way to really get a handle on it is to see what is happening in detail while you sleep in your accustomed bed over a period of time.
Expecting a medical person to help you while at the same time denying them access to lab data is really paranoid. "I am having problems with my diabetes but you are not allowed to see my blood glucose levels or my lab tests. What should I do?"

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Re: No data type machines

Post by chunkyfrog » Tue Jan 01, 2013 10:27 am

For what it's worth, the data- vs data-impaired machines are color coded in this article.
http://maskarrayed.wordpress.com/
Note: all machines have hours of usage, either for your insurance or for the keepers of your CDL.
Everyone wants you to be safe on the road.

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Re: No data type machines

Post by gomer » Tue Jan 01, 2013 11:44 am

BlackSpinner wrote:
Almost all of them track number of hours used so that the DME can get paid. Otherwise there are lots of bricks around. Resmed Escapes for example.

Why wouldn't you want your doctor to track your sleep? That is like my mother going to her diabetes doctor and refusing to show her glucose numbers, kind of stupid.
Years (ok decades) ago when glucometers were new I hated testing and logging my readings. Before then we called the A1C test the cheaters test, its how docs caught cheating...... Since I learned how to interpret the numbers/trends and HOW to adjust my insulin as needed on the fly I find it a useful TOOL.

I just had a regular endo apt a couple weeks ago..sad to say he was concerned about my too-good numbers. I also catch it, if I get more than a couple high numbers as well. YES there are times I would rather not face the music, or is it noise?

I view my new APAP a tool and the data as yet another TOOL. When I get blood work I always get copies ahead of time (before doc apt) so I don't get blind sided. I have LEARNED to like knowing what is going on. Knowledge is power!

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Re: No data type machines

Post by borgready » Tue Jan 01, 2013 10:02 pm

Why do you want a machine that doesn't track anything? To have a good chance at checking how you are doing with cpap you should track what is happening?

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Re: No data type machines

Post by zoocrewphoto » Wed Jan 02, 2013 1:17 am

LSAT wrote:Most of the people on this board 'care' about their treatment and believe that a data capable machine is the only way to treat OSA. There are millions out there that don't know or don't care to monitor their data. I personally have a friend that has been on CPAP therapy for over 10 years. He saw a doctor initially and was prescribed a pressure of 10....10 years later he is still on 10 without ever seeing a doctor OR checking his auto CPAP. In another instance, my cardiologist is also a CPAP user. I asked him about checking data. He has an auto but claims he has checked his data 2-3 times this past year. I feel the same way. I have been using a 'brick' for over 4 years. I have an autoset that I use every 3 months or so for a few days to see how I am doing. I prefer my brick for daily use. It's quieter and automatically prevents rainout. As long as I am sleeping well and get up rested, I don't care about checking data. Once a year I borrow a PulsOx from my DME.I use it for a night and my DME runs a report that I share with my cardiologist. In my 4+ years on CPAP, I have never shared my CPAP 'data' with any doctor.

My mom was on her second machine and second decade of cpap usage. She had a brick. She used it and never felt great. So, she would skip nights or only do part of a night. She felt no different whether she used it or not. Then she saw my new machine with the data graphs. She asked to use my machine for a couple partial nights. It turns out that even with an ahi of 3.4, she was having LONG apneas, over a minute long. She had no way of knowing that with her machine. She got a new machine, with data and a new pressure setting, and she actually feels better now.

If you are using your machine, and you feel better, then you really don't need the data. But when do you do when you DON'T feel better? Or you STOP feeling better. Our pressure needs can change over time. So, that setting of 10 may have been good 2 years ago, but not good enough now. How would you know without data?

Even somebody who doesn't need it very often may need it occasionally. Better to have it and not need it often, then have lousy treatment and no way to figure out why.

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Who would have thought it would be this challenging to sleep and breathe at the same time?

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Denial Dave
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Re: No data type machines

Post by Denial Dave » Wed Jan 02, 2013 5:05 am

We have 2 friends that have been on CPAP for more than a year now... The 2 women are computer programmers by profession & are 100% compliant in use.

Both of them have Resmed machines with SD cards. But only one of them checks her data via the card using Sleepyhead.

The other is perfectly happy to read the machines display for AHI & Leaks every so often & has no intention of self adjusting her pressure.

I think the old saying "you can bring a horse to water, but you can't make him drink" may apply to a lot of CPAP users.

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