I'm very glad you brought up that paper, Dennis, one I have often referred to in this context.
Among the authors of the quoted paper Teschler and Berthon-Jones are among the invetors of the Resmed Autoset and ASV algorrithms.
The caveat quoted is
not emphasised in the original. It is customary, when adding one'sown emphasis to a quote to note it was yours. You also did not quote the paragraph immediately following your quote, Dennis.
Here's the original for everyone to see:
There is an urgent clinical need for a safe and effective
method for preventing mouth leaks during bilevel ventilatory
support. Taping was used in this study in preference to
other ways of sealing the mouth such as a full face mask,
because existing full face masks have higher deadspace,
leak, and discomfort than nosemasks, and arousal data
would be uninterpretable. However, the authors do not at
this stage advocate taping the mouth for indiscriminate
long-term home use, because of the risk of asphyxia in the
presence of nasal obstruction, machine or power failure, or
regurgitation.
Since performing the present study, ~30 carefully chosen
patients, relying on nocturnal support for ventilation but
unable to be satisfactorily treated due to mouth leak, unable
to tolerate a full face mask, highly alert, with no history
of regurgitation, and faced with the alternatives of
tracheotomy or untreated respiratory insufficiency, have
elected to use tape at home for periods of up to 6 months.
The tape is well tolerated and no adverse events have been
observed. In one patient, taping the mouth caused the
Ptc,CO2 to fall acutely from 8.91 kPa to 5.32 kPa (67
mmHg to 40 mmHg), and it was necessary to reduce the
ventilator settings to compensate.
And here is the quote again, all added emphasis mine:
Taping was used in this study in preference to
other ways of sealing the mouth such as a full face mask,
because existing full face masks have higher deadspace,
leak, and discomfort than nosemasks, and arousal data
would be uninterpretable. However, the authors do not at
this stage advocate taping the mouth for indiscriminate
long-term home use, because of the risk of asphyxia in the
presence of nasal obstruction, machine or power failure, or
regurgitation.
Since performing the present study, ~30 carefully chosen
patients, relying on nocturnal support for ventilation but
unable to be satisfactorily treated due to mouth leak, unable
to tolerate a full face mask, highly alert, with no history
of regurgitation, and faced with the alternatives of
tracheotomy or untreated respiratory insufficiency, have
elected to use tape at home for periods of up to 6 months.
The tape is well tolerated and no adverse events have been
observed. In one patient, taping the mouth caused the
Ptc,CO2 to fall acutely from 8.91 kPa to 5.32 kPa (67
mmHg to 40 mmHg), and it was necessary to reduce the
ventilator settings to compensate.
30 patients, about 180 nights per patient, that's 5400 nights of taping in
carefully selected and observerd patients with
no adverse events. None.
Here's my checklist:
- carefully chosen -- yep, that's me. I very carefully and discriminately chose myself.
- unable to be satisfactorily treated due to mouth leak - check
- unable to tolerate a full face mask - couldn't even tolerat a nasal mask when I started taping!
- highly alert - check
- with no historyof regurgitation - check
- faced with the alternatives of tracheotomy or untreated respiratory insufficiency - check
- have elected to use tape at home - check
After 4.5 years of taping I had to stop because of congestion. I now can tolerate a Hybrid.
And now here is my secret, a very simple secret; it is only with the heart that one can see rightly, what is essential is invisible to the eye.
Antoine de Saint-Exupery
Good advice is compromised by missing data
Forum member Dog Slobber Nov. 2023