Diagnosed

Sleepless on LI · Post by **Sleepless on LI** » Mon Dec 05, 2005 6:15 am

Just to set the record straight, yes, I was diagnosed on night 2/titration study with an AHI of 5.6, confirming I did have OSA. Below is the part of my study that was posted under another thread. I don't want anyone to feel angered or annoyed by the fact that when I give/gave advice, I have/had no clue what it feels like to have been symptomatic due to OSA.

Bonnie · Post by **Bonnie** » Mon Dec 05, 2005 8:46 am

Can't imagine why anyone would be angered or annoyed by your advise, I always found it to be very thoughtful, helpful and well written. Stay with us Lori, you are an asset.

(ps, I am in the process of purchasing my c-flex, it is a nightmare, but as soon as it is MINE, I will be purchasing the software. I haven't forgotten your kind offer of help. So after the holidays and as we go through the long winter months I plan a course study in "how to install, read and interpret a foreign language". I'm hoping your offer still stands!

Severeena · Post by **Severeena** » Mon Dec 05, 2005 9:11 am

Lori, I have found that you have been very helpful with advice, or letting us know what you have tried and what has worked and not worked for you.

I feel this has helped others as well.

Lori, I feel I should also be attacked because of the advice I give on the Hans Rudolph mask.

Ignore the ones that are envious. These are the ones that cannot express themselves like you do and therefore want to harm those that can.

dsg · Post by **dsg** » Mon Dec 05, 2005 9:24 am

I am going to disclose (actually paraphrase, since my memory isn't perfect) something that I said in a private conversation with Lori: I im in such need of, and so grateful for good information on OSA and CPAP, that it is of no interest to me whatsoever whether or not the person who has the advice is currently or has ever been a CPAP user, or does or does not currently suffer from OSA.

If I were to insist that the only advice I would accept had to come from people who suffered OSA, or worse, OSA as bad as mine (anyone want to see my titration results??), I'd be woefully ignorant about this terrible disorder. If I adhered to that logic, I'd only accept information about historical events from people who were actually there. Makes a lot of sense, doesn't it?

As a rule, I don't take much stock in comments and criticisms leveled by people who can't be bothered to maintain enough integrity to identify themselves, so I discount much of what appears with "guest" next to it. Lori openly identifies herself, is absolutely scrupulous about her experience being *hers* and strikes me as being utterly blameless in this whole silly affair.

Guest · Post by **Guest** » Mon Dec 05, 2005 10:23 am

Sometimes a person doesn't want to register for a username on a website to protect their privacy. Why would you discount entries made by a guest? I'd be woefully ignorant if I were to insist that the only advice I would accept had to come from people who are registered.
When I first began my Sleep Apnea trek I found this forum and was pleased to learn registration was not mandatory. I fiercely protect my anonymity on the internet and I know I am not alone in this. I will continue to believe this is an open forum for all registerd and non-registered users until I am informed to the contrary.
All message boards suffer from the occasional problem-child discussion or individual, registered or not. We are all familiar with them. They will monopolize and personalize the board focusing attention on themselves at every turn which only serves to distract from the issues at hand, and when called on it will manage to make that an issue too.
More individuals you do not know and will never know the names of would feel compelled to make an entry if given the opportunity without fear of retribution from those more prolific users who attempt to scare them away by insinuating guests are not worthy of using this board.

JimmyKSenior · Post by **JimmyKSenior** » Mon Dec 05, 2005 10:39 am

Anonymity is protected by the use of screen names and the ability to NOT publish e-mail addresses or permit others to contact you via PMs. In your case your anonymity is protected by your ignorance. If you want to be taken seriously, register and sign-in! Our point is proven over and over by the content and tone of guest posts. Please don't waste our time anymore. You need to get out more often!

Guest · Post by **Guest** » Mon Dec 05, 2005 10:43 am

to Guest,
I agree. Very well said.

dsg · Post by **dsg** » Mon Dec 05, 2005 11:09 am

Anonymous wrote: More individuals you do not know and will never know the names of would feel compelled to make an entry if given the opportunity without fear of retribution from those more prolific users who attempt to scare them away by insinuating guests are not worthy of using this board.

That's called being unclear on the concept. I neither want nor need to know the "real" name or sensitive details of users in the forum. What you call retribution is in fact frustration at being unable to properly respond to a needlessly caustic or inflammatory post, because the poster has shamefully hidden behind the convenience of a guest moniker. That is the text equivalent of throwing a fist to someone's face in a crowd and then running away before the victim can identify or confront the assailant. There's an even simpler description for that phenomenon: sucker punch.

It's not as if the burden of a login is terribly onerous. A login gives someone a nickname/moniker that becomes their identification in that forum. Nobody's asking for your credit card number, social security number or street address. Nobody cares about that. What users WOULD like is the decency and integrity of a "guest" to take responsibility for their words with some kind of identifier so that we can all discern the wheat from the chaff. "This person has had this experience/track record of involvement, and I know I can pay closer attention/completely ignore/stop and listen more carefully/take with five pounds of salt what they have to say".

It's not rich vs. poor, sick vs. healthy, red state vs. blue state, catholic, protestant, jew or moslem. It's people trying to be real with each other about an important health issue that impacts people's lives in substantive ways. People who want to help here aren't trying to score points, and guests cannot expect respect for their words if they are unwilling to stand up and admit ownership of them.

Kemosabe · Post by **Kemosabe** » Mon Dec 05, 2005 11:33 am

Anonymous wrote:to Guest,
I agree. Very well said.

Man, I hate sock puppets.

Sleepless on LI · Post by **Sleepless on LI** » Mon Dec 05, 2005 11:39 am

dsg wrote:
Anonymous wrote: More individuals you do not know and will never know the names of would feel compelled to make an entry if given the opportunity without fear of retribution from those more prolific users who attempt to scare them away by insinuating guests are not worthy of using this board.
That's called being unclear on the concept. I neither want nor need to know the "real" name or sensitive details of users in the forum. What you call retribution is in fact frustration at being unable to properly respond to a needlessly caustic or inflammatory post, because the poster has shamefully hidden behind the convenience of a guest moniker. That is the text equivalent of throwing a fist to someone's face in a crowd and then running away before the victim can identify or confront the assailant. There's an even simpler description for that phenomenon: sucker punch.

It's not as if the burden of a login is terribly onerous. A login gives someone a nickname/moniker that becomes their identification in that forum. Nobody's asking for your credit card number, social security number or street address. Nobody cares about that. What users WOULD like is the decency and integrity of a "guest" to take responsibility for their words with some kind of identifier so that we can all discern the wheat from the chaff. "This person has had this experience/track record of involvement, and I know I can pay closer attention/completely ignore/stop and listen more carefully/take with five pounds of salt what they have to say".

It's not rich vs. poor, sick vs. healthy, red state vs. blue state, catholic, protestant, jew or moslem. It's people trying to be real with each other about an important health issue that impacts people's lives in substantive ways. People who want to help here aren't trying to score points, and guests cannot expect respect for their words if they are unwilling to stand up and admit ownership of them.

AMEN!

kurrykid · Post by **kurrykid** » Mon Dec 05, 2005 1:18 pm

Lori,

You should not let these people get to you so much. You are a valuable member of this forum and we appreciate all of your insight. I think you should just let it go (I know, easy for me to say).

I personally have never met you or even chatted with you directly but I am certainly aware of your prescence on the forum and have appreciated you advice (even though I am sure you must get paid by the word )

Stay with us Lori...there are people who do appreciate your efforts.

Another Guest · Post by **Another Guest** » Mon Dec 05, 2005 2:20 pm

...of as the mask swivels.

Will Lori go back on CPAP just to validate her diagnosis? Will she ever feel welcome or will she start another thread in the hopes of people begging her to stay? Does Lori get paid by the word? Found out this and more in LoRi's next round of scathing posts.

(barf bags available at the popcorn counter)

Mark83 · Post by **Mark83** » Mon Dec 05, 2005 2:24 pm

Lori,

I agree with Dave! I don't know you either and I have only been on CPAP for a month now, but as I read many postings I always look for YOUR responses to others postings. Your experience and insight is invaluable to many of us on here looking for support and wisdom. I could care less what your AHI or desats are......YOU were on CPAP and therefore YOU lived it!! In my book that qualifies you as 'one of us' and allows you to express your great opinions and wisdom to all of us that need the support!! So what if you are off now.......THAT'S GREAT!! It does not mean that you are any less 'qualified' to voice your experiences with us!!

Please keep posting and providing the rest of us with your great wisdom!!

MARK

Sleepless on LI · Post by **Sleepless on LI** » Mon Dec 05, 2005 3:28 pm

Thanks, guys. And we'll just ignore that sniveling little coward that still likes to hide behind the "guest" title. I think they need to get a life or stop being so interested in mine.

another_guest · Post by **another_guest** » Mon Dec 05, 2005 4:38 pm

need I say more? I did not enter this thread and if something thinks I did above they need to know I didn't -

and now we have someone trolling with my nick

the real another_guest

Diagnosed

Diagnosed

Stay tuned for another episode

please refrain from using my nick here

Mask

Mask	Humidifier