Update on my situation (to June 2008)

Guest · Post by **Guest** » Fri Jul 25, 2008 1:56 am

Hi James,

Regarding the 5mm targeted improvement. Do you know what is the current mm? Ask your doc for these figure (left, right sides, supine and coma position) and get back here.

ps:Every step is closer and closer. God bless.

Mckooi

Guest · Post by **Guest** » Fri Jul 25, 2008 2:16 am

Hi James,

Ask the pharyngeals improvement in mm as well (currently in all positions).

mckooi

ozij · Post by **ozij** » Fri Jul 25, 2008 4:08 am

I am defiantly better all around than I was 12 or even 6 months ago. There where times where I didn't think I was going to make it sine I couldn't breath. Apnea is pretty under control (AHI about 5-7) but my nose breathing is still not normal and CPAP use irritates it every night. By morning things are swollen up again in there. At least now things open up during the day so I can live a pretty normal life most days (with the help of sudafed twice a day)

That's the best news yet. Maybe Babs and you can meet in the afternoons...

O.

Guest · Post by **Guest** » Fri Jul 25, 2008 9:49 am

James,

Another long time follower of what you have been dealing with glad for the update; knowing that you will find the answer through your dogged efforts; and hoping/praying that it comes sooner rather than later.

TM

deerslayer · Post by **deerslayer** » Sun Jul 27, 2008 5:55 pm

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echo · Post by **echo** » Mon Jul 28, 2008 2:37 am

Hi James, I'm sorry to hear your troubles with the medical establishment.. I do hope they get it figured out soon enough and can offer you some solutions.

jskinner wrote:
Claire wrote:He used an unorthodox (according to regular allergists) way of testing for food sensitivities and hit them all on the nose.
And what is that method?

I don't know exactly what Claire is talking about, but it could be a "kinesiologist" -- using muscle testing. I had the same problem - none of the allergy tests could pinpoint any allergies - the muscle testing showed a number of things, like wheat, yeast, barley.... and when I avoid them my (perpetual) runny/stuffy nose goes away, as do migraines and muscle pains.
My sister had the same experience with milk - didn't react to any of the standard allergy tests but the kinesiologist found it and voila, here ear infections stopped and she could get the tubes in her ears removed.
You can do the test at home as well, very easy and straighforward. My dad learned the "home" version of the muscle test in Japan from some friends, actually.

We're all pulling for you!!

jskinner · Post by **jskinner** » Thu Jul 31, 2008 10:28 pm

Snoredog wrote:James: what about head and neck position to influence airflow dynamics?

In this case that position is "found" and then held in place with a special neck brace that is worn during sleep. Now I realize if you slept horizontal in a conventional bed this could be quite uncomfortable. But if the bed was elevated to compensate for the new position, it could be just enough to get you by until a surgery solution is obtainable.

Yes I have done a bit of this on my own. When things where at their worst last summer I discovered that sleeping on the sofa with my head at about a 45 degree angle helped. I slept this way for about a month. It have me bad neck cramps but was worth it. When I moved home I after sleeping in the living room on the recliner for a few weeks I got an old hospital bed and raised the head. It did help during the worst of it.

A neck brace would clearly be even better since it could hold things in place better. I'm sure you would be sore by morning though

Snoredog · Post by **Snoredog** » Fri Aug 01, 2008 1:46 am

jskinner wrote:
A neck brace would clearly be even better since it could hold things in place better. I'm sure you would be sore by morning though

Well if you go by Bab's you better hide that neck brace, I hear she's into whips and chains and that would probably give her the wrong idea

zzzzzz!! · Post by **zzzzzz!!** » Fri Aug 01, 2008 2:14 am

Snoredog wrote:
jskinner wrote:
A neck brace would clearly be even better since it could hold things in place better. I'm sure you would be sore by morning though
Well if you go by Bab's you better hide that neck brace, I hear she's into whips and chains and that would probably give her the wrong idea

On the other hand, after the whips and chains you probably wouldn't notice the soreness from the neck brace...

Guest · Post by **Guest** » Fri Aug 01, 2008 2:48 am

Unconventional, Unorthodox, Un holistic....Dr.Ruth could be the answer to all these challenges....... .....all in one solution.

Mckooi

jskinner · Post by **jskinner** » Mon Aug 11, 2008 2:45 pm

socknitster wrote:I was wondering whatever became of your trip down Candida lane.. .

Hi Jen,

Well the trip down fungal lane was quite twisting and frustrating. For those of you who don't know the whole story I got bad nasal congestion in Nov 2006 and then in Jan/Feb my GP treated me with antibiotics hoping to cure it. Instead he created a Candida outbreak on my tounge. At the same time my congestion seemed to get much much worse... You can view pictures of my tongue at various times in the following PDF http://james.istop.com/apnea/reports/Tongue.pdf

Doctors have been in complete disagreement if this is a fungal problem or not. I would say the majority of specialist dismissed and said this couldn't be the cause of my congestion. Here is a quick run down of what Drs thought.

My Ottawa GP Jan 2007 - Thought the problem might be fungal and started me on antifungals and antibiotics.

Pharmacist in Ottawa June 2007 - thought it was a fungal problem for sure.

GP in NS outpatients - said it was just coated tongue and nothing to worry about.

ENT in Ottawa - Completely dismissed the idea the problem was fungal. Said it was geographic tounge and nothing to worry about.

GP in NS - Thinks it is fungal and prescribes Nystatin

ENT in NS Aug 2007 - Was unsure what it meant. Was willing to put me on antifungals but was skeptical.

Internal Doctor in NS Sept 2007 - Thought it was nothing to worry about

Infections Disease Dr in HJ Jan 28 - Says its not fungal

ENT in Kingston, ON Feb 2008 - Said it was coated tongue and nothing to worry about.

MMA Surgeon in Halifax - article indicates swollen tounge is due to too small oral cavity.

Allergist in NYC March 2008 - Thinks it is fungal. Puts me on Nystatin and when that doesn't clear it up recommends a dermatologist.

Allergist in Halfiax May 29 - Says its not fungal and says to stop taking antifungals until I have proof.

Allergist in NS - Says its fungals but has no proof.

As you might expect I am pretty confused at this point! I've kinda given up on it for now. Unless someone can prove to me with a test one way or the other I don't have an opinion. What I can say is that when going on Amphotericin B nasal rinse was the first time I saw any nasal improvement and the Itraconazole reduced the post nasal drip.

Below is a list of the antifungals I took. Oral antifungals make you feel _really_ bad after a while. Both oral and topical gave me really bad muscle aches after a while.

Jan 26, 2007 Lamisil 10 days
Feb 12, 2007 Nystatin, Lamisil 10 days
July 6 - Nov, 2007 Amphotericin B nasal spray 100mcg/ml x2
Aug 9, 2007 Nystatin
Aug 27, 2007 Itraconazole capsules 100mg x2 for 2 weeks,
Sept 21-Nov 30, 2007 Itraconazole capsules
Nov 30-Jan 2008 Ketoconazole nasal spray 2%
March – April, 2008 Nystatin 5ml 4x daily
April – May 15, 2008 Amphotericin B 250mg nasal irrigation

What I do know is that my tongue does not look normal...

Julie · Post by **Julie** » Mon Aug 11, 2008 4:14 pm

Just reading through that list now, it does strike me that the consensus seems to lie with 'nothing to worry about' (not fungal, or fungal, but...). Is fungus the only alternative? Have you tried i.e. a gluten free diet, for instance (your note isn't really clear on that)? When is the last time you actually just took (for a couple of nights in a row) something like Claritin or Reactine before bed? I'm not suggesting any of these answers as being 'answers', but just trying to eliminate stuff.

Snoredog · Post by **Snoredog** » Mon Aug 11, 2008 6:18 pm

Below is a list of the antifungals I took. Oral antifungals make you feel _really_ bad after a while. Both oral and topical gave me really bad muscle aches after a while.

Jan 26, 2007 Lamisil 10 days
Feb 12, 2007 Nystatin, Lamisil 10 days
July 6 - Nov, 2007 Amphotericin B nasal spray 100mcg/ml x2
Aug 9, 2007 Nystatin
Aug 27, 2007 Itraconazole capsules 100mg x2 for 2 weeks,
Sept 21-Nov 30, 2007 Itraconazole capsules
Nov 30-Jan 2008 Ketoconazole nasal spray 2%
March – April, 2008 Nystatin 5ml 4x daily
April – May 15, 2008 Amphotericin B 250mg nasal irrigation

LOL and they worry about us changing our pressure up or down a little bit, perfect example of prescription pads gone wild

You would have thought that Hydrogen Peroxide gargle would have done the job

jskinner · Post by **jskinner** » Mon Aug 11, 2008 6:30 pm

Snoredog wrote:You would have thought that Hydrogen Peroxide gargle would have done the job

Actually the Infections Disease Dr said he was going to recommend back to my ENT exactly that, Hydrogen Peroxide rinse. My ENT never mentioned it. Now that's its been brought to my attention (I had forgotten about it) I think I will give it a try for a while... I don't have much to loose at this point.

Slinky · Post by **Slinky** » Mon Aug 11, 2008 9:07 pm

Wouldn't that be a real pisser if SnoreDog just came up w/the CURE that works????!!!!

Machine	Mask

Additional Comments: straight cpap 12.20 AHI avg.0.79