Thanks CPAP'ers for all the help....I'm curious about titrat

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
-SWS
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Post by -SWS » Fri Mar 02, 2007 2:28 pm

Goofproof wrote: It's hard for them to cross the Road, before the Egg's hatch, unless the mother chicken lay's the Egg's on a road with a Hill. Jim
Ah! How very clever of these baby chickens: using gravity of all things to cross the road... let alone while still inside the egg!!

Thanks for confirming yet another one of my sneaking suspicions about these baby chickens, Jim. They can be quite clever---even downright devious---whenever it suits their purposes. In this poignant case study, Jim points out that some of the more clever baby chickens team up with their own mothers and gravity to cheat in a road race. These baby chickens are much more cunning than even I had given them credit.

Note to self: Watch these baby chickens very closely throughout every stage of the experiments. Some may find ways to cheat.

Alisha
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Post by Alisha » Fri Mar 02, 2007 8:47 pm

Vdol52, if I could install the Encore Pro software I'm sure anyone can. I followed the thread from Sleeping-in-AL that OCO mentioned - through Step 29. Then I went to:

http://james.istop.com/EncoreProAnalyzer/download

and downloaded James Skinner's EPA instead of My Encore. IMHO, James' EPA provides great info. For instance, it doesn't just give AHI, OAI, and HI. It tells you how many apneas, how many minutes/seconds you were in apnea status during the night, the average seconds apneas lasted, how many hypopneas, and much much more.

I later installed My Encore, too, but uninstalled it after I saw how much more info and better stats EPA provided, IMHO.

Even after you are satisfied with the results you're getting, it will be useful if and when you try a new mask, suffer congestion, etc., to compare readings.

Regards,

Alisha


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Goofproof
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Post by Goofproof » Fri Mar 02, 2007 10:45 pm

sleepinginseattle wrote:
I agree with what you're saying but not the analogy that you draw with glucose meters.

Glucose meters are consumer products (in other words, designed for patients). They are designed to give information to diabetes sufferers and to be used after the patient has received training from a diabetes educator.
I am a treated diabetic, have been for over 20 years, and the Dr.s that treated me knew as much about diabeta and the people that treat me for apnea know about apnea. They don't have first hand knowledge about the problem, some have book learning tainted by the drug indrusty.

My treatment for diabeta, with drugs has left me with poor health and feet that are more dead than alive, sure I'm also to blame for this. I had a family to raise, that became my priority, I did the treatment with drugs and they didn't work, as is normal for most people, that really have diabetes. (Most Dr.s even the ones that specialize in it don't have a working idea about how to manage it, except with drugs. Now it's easy to be get a diabetic label without having the disease.

Anyway to bring this to a ending, I have two Dr's treating me for it, each giving me a different type of Insulin, and I mix it according to my needs, kinda like I used to mix explosive charges, in the mines. "By the seat of my pants." As Captain Kirk, Told Spock, "He would, rather trust His guess, than most peoples logic."

The treatment for most normal Apnea, doesn't involve Rocket Science, We just need to be able to breath air, while we sleep. For most of us lucky people that just takes adding a little air pressure to out throats to hold our airways open. With a good blower and common sense, it's not very dangerious, if you add the use of software to monitor your progress. It's a lot less risky than my guessing the loadof Insulin, and I'm still here on both counts. Jim

Actually, blowing up rocks, is safer than insulin, you usually knew what you were going to get from a certain weight of ANFO, you can never be sure how the body will react to a dose of Insulin, so most of the time you have to error with a lower dose.
Use data to optimize your xPAP treatment!

"The art of medicine consists in amusing the patient while nature cures the disease." Voltaire

-SWS
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Post by -SWS » Fri Mar 02, 2007 11:27 pm

Vdol52, put me down as also thinking it's a great idea to watch your own treatment stats via software. Not a lot to be said for "flying blind" in my opinion.

As if you couldn't tell, I'm not a fan of soon-to-be hatched chickens rolling around the roads blind either. In both cases I think it's fair to see just where you're heading.

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Wulfman
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Post by Wulfman » Fri Mar 02, 2007 11:40 pm

sleepinginseattle wrote:CPAP software, on the other hand, is not a consumer product. It is sold with the explict warning, "Software is intended for use by Sleep Labs and DMEs. We do not provide technical support for software purchases." The conclusion I draw from this warning is that the publishers don't want to market their software to patients. That's reason enough for me to avoid it.

Cale
Oooooh.......lets not get carried away with the scary rhetoric.
Yes, that's the quote from CPAP.COM's product description for Encore Pro.
Doesn't sound like a "warning" to me......more like a disclaimer.
If it really was that restricted, we'd have to prove that we were a medical professional to buy it.
Respironics KNOWS the XPAP users are using it. They don't care.....they're making money from it.....and they don't have to support it at the end-user level. That's a Win-Win situation for them......AND.....CPAP.COM.
Besides, I doubt if MOST of the DMEs, RTs or Sleep Doctors have it.....and those that do only use it to determine compliance. AND, if those people get hold of your card, it'll surely be erased when they give it back to you.....they don't know about the "Don't erase data after download" feature.

Almost two years ago, I had a personal phone conversation with one of the "clinical" employees at Respironics about the software and its accuracy (because my sleep doctor had questioned it). During that conversation, I strongly urged him to try to get the company to come out with a more user-friendly version for the actual users.
They were also aware of Derek's MyEncore program because he was in contact with them during its development (according to him).

SO.....don't use it......if you're comfortable not knowing how your therapy is progressing. But DON'T try to advise or scare others into not using it. Your reasoning doesn't "compute".

Den

(5) REMstar Autos w/C-Flex & (6) REMstar Pro 2 CPAPs w/C-Flex - Pressure Setting = 14 cm.
"Passover" Humidification - ResMed Ultra Mirage FF - Encore Pro w/Card Reader & MyEncore software - Chiroflow pillow
User since 05/14/05

sleepinginseattle
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Post by sleepinginseattle » Sat Mar 03, 2007 8:53 am

Goofproof,

Here's an article that connects OSA with diabetes. http://www.sleephealth.com/PDF_files/sl ... ly2006.pdf

Sorry about all your health concerns.

Sleep well.

Cale
Disclaimer: I am not a doctor and any opinion I might offer is not to be considered advice. If you want advice, ask your doctor.

taterbug
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Location: Northern Kentucky

Post by taterbug » Sat Mar 03, 2007 10:52 am

Wulfman wrote:
sleepinginseattle wrote:CPAP software, on the other hand, is not a consumer product. It is sold with the explict warning, "Software is intended for use by Sleep Labs and DMEs. We do not provide technical support for software purchases." The conclusion I draw from this warning is that the publishers don't want to market their software to patients. That's reason enough for me to avoid it.

Cale
Yes, that's the quote from CPAP.COM's product description for Encore Pro.
Doesn't sound like a "warning" to me......more like a disclaimer.