New to CPAP and struggling (sort of)
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- Posts: 16
- Joined: Sat Aug 05, 2023 8:32 am
- Location: San Marcos Texas
New to CPAP and struggling (sort of)
I was diagnosed with sleep apnea as a teenager. Couldn't sleep on the CPAP then and quit. I had the Uvulopalatopharyngoplasty surgery and never went back to see if it was fixed.
Currently, 45 yoa, 205 lbs, 5'11" very active with 41 VO2max. Borderline hypertensive and borderline hyperlipidemia.
Tired of being tired......
Dr checkup says healthy and numbers are good (blood test)
I got a Fenix 6 pro health tracking watch. I noticed my sleeping O2 stats were in the 80's. Noticed I would wake up 8 times a night to pee and it was when my O2 stats were low (under 90).
At home sleep test says AHI of 12 and O2 in 80's. Same data the watch was recording so watch is close enough even thou it is not medical device.
Prescribed CPAP, Resmed Airsense 11 auto set with full face mask. pressures set auto from 6-12.
CPAP does not have SD card and transmits with cellular data.
I wake up multiple times a night and feel like I'm suffocating and have to remove the CPAP mask. Watch shows O2 at 84 and such.
The CPAP shows average 6-12 events per hour. I spoke with DME and they said my numbers look good????
Waking up feeling like I am suffocating takes me time to calm down and making me even more tired. The opposite of what I was hoping.
At one month of trying to adjust to CPAP. I am a mouth breather (nose with deviated septum) and can drool at night.
It feels like I am trying to suck air thru a wet paper straw.
I am so tired now that am about to just say throw it all away. Not to mention there is this compliance thing with insurance that I have to show its use or I get to pay for this device.
Sorry I did try to read the new user and apologize if I didn't follow all the rules. And if Pugsy asks three questions, I will try to answer all three.
Currently, 45 yoa, 205 lbs, 5'11" very active with 41 VO2max. Borderline hypertensive and borderline hyperlipidemia.
Tired of being tired......
Dr checkup says healthy and numbers are good (blood test)
I got a Fenix 6 pro health tracking watch. I noticed my sleeping O2 stats were in the 80's. Noticed I would wake up 8 times a night to pee and it was when my O2 stats were low (under 90).
At home sleep test says AHI of 12 and O2 in 80's. Same data the watch was recording so watch is close enough even thou it is not medical device.
Prescribed CPAP, Resmed Airsense 11 auto set with full face mask. pressures set auto from 6-12.
CPAP does not have SD card and transmits with cellular data.
I wake up multiple times a night and feel like I'm suffocating and have to remove the CPAP mask. Watch shows O2 at 84 and such.
The CPAP shows average 6-12 events per hour. I spoke with DME and they said my numbers look good????
Waking up feeling like I am suffocating takes me time to calm down and making me even more tired. The opposite of what I was hoping.
At one month of trying to adjust to CPAP. I am a mouth breather (nose with deviated septum) and can drool at night.
It feels like I am trying to suck air thru a wet paper straw.
I am so tired now that am about to just say throw it all away. Not to mention there is this compliance thing with insurance that I have to show its use or I get to pay for this device.
Sorry I did try to read the new user and apologize if I didn't follow all the rules. And if Pugsy asks three questions, I will try to answer all three.
_________________
Machine: AirSense 11 Autoset |
Mask: ResMed AirFit F30i Full Face CPAP Mask with Headgear |
Additional Comments: Integrated heated humidifier with heated tube |
Re: New to CPAP and struggling (sort of)
Go buy an SD card and use it.
Get the OSCAR software program and use it.
Only a couple of questions at this time.
How many hours of sleep (not just laying in bed) are you getting and are those hours fragmented with a lot of wake ups that you remember?
Do you take any medications at this time (even OTC) and if you do...what?
Get the OSCAR software program and use it.
I disagree....those are horrible numbers but before we can offer ideas on improvement we have to know what that AHI is composed of....that's where the software come in to play.2young2bawake wrote: ↑Sat Aug 05, 2023 9:35 amThe CPAP shows average 6-12 events per hour. I spoke with DME and they said my numbers look good????
Only a couple of questions at this time.
How many hours of sleep (not just laying in bed) are you getting and are those hours fragmented with a lot of wake ups that you remember?
Do you take any medications at this time (even OTC) and if you do...what?
_________________
Machine: AirCurve™ 10 VAuto BiLevel Machine with HumidAir™ Heated Humidifier |
Additional Comments: Mask Bleep Eclipse https://bleepsleep.com/the-eclipse/ |
I may have to RISE but I refuse to SHINE.
Re: New to CPAP and struggling (sort of)
BTW any generic SD card will work (and won't mess with the cellular transmission of data).
Any SD card....doesn't have to be a huge capacity SD Card but it's getting hard to find those smaller size cards.
Last I looked at walmart the 16 GB was the smallest available.
No need for one of those large capacity fancy SD cards....save your money.
Any SD card....doesn't have to be a huge capacity SD Card but it's getting hard to find those smaller size cards.
Last I looked at walmart the 16 GB was the smallest available.
No need for one of those large capacity fancy SD cards....save your money.
_________________
Machine: AirCurve™ 10 VAuto BiLevel Machine with HumidAir™ Heated Humidifier |
Additional Comments: Mask Bleep Eclipse https://bleepsleep.com/the-eclipse/ |
I may have to RISE but I refuse to SHINE.
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- Posts: 16
- Joined: Sat Aug 05, 2023 8:32 am
- Location: San Marcos Texas
Re: New to CPAP and struggling (sort of)
So about 7 hours in bed. I can remember waking up all night long. Sometimes 4 times and others 8 plus.
OTC ... vitamin D3, vitamin K2, fish oil, b complex, sometimes zyrtec
Prescription - Dilantin 400mgs
I will pick up an SD card.
Is there any device that would pair with the CPAP that would show O2, so my Dr would be able to evaluate the therapy?
I have not had a titration study just the in home test.
OTC ... vitamin D3, vitamin K2, fish oil, b complex, sometimes zyrtec
Prescription - Dilantin 400mgs
I will pick up an SD card.
Is there any device that would pair with the CPAP that would show O2, so my Dr would be able to evaluate the therapy?
I have not had a titration study just the in home test.
_________________
Machine: AirSense 11 Autoset |
Mask: ResMed AirFit F30i Full Face CPAP Mask with Headgear |
Additional Comments: Integrated heated humidifier with heated tube |
Re: New to CPAP and struggling (sort of)
Yep there is but very, very pricey at about a grand.2young2bawake wrote: ↑Sat Aug 05, 2023 10:13 amIs there any device that would pair with the CPAP that would show O2
Most forum members just use one of those overnight recording pulse ox devices. Compatible with OSCAR but not tied to the cpap machine at all. Priced between 50 and 120 bucks depending on how fast you want it and what features you might want.
OSCAR shows a list of compatible devices in its help section.
Frequent wake ups for any reason will seriously impact how you feel with or without adequate/optimal therapy.
At this point you therapy doesn't appear to be adequate or optimal...so lets start there and see what can be done or needs to be done.
_________________
Machine: AirCurve™ 10 VAuto BiLevel Machine with HumidAir™ Heated Humidifier |
Additional Comments: Mask Bleep Eclipse https://bleepsleep.com/the-eclipse/ |
I may have to RISE but I refuse to SHINE.
Re: New to CPAP and struggling (sort of)
Does your MD have anything to say about using Dilantin with Cpap? I checked it out and it doesn't look directly problematic, but there were a couple of things mentioned which you're probably aware of and I know you probably have no choice re taking it.
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- Posts: 16
- Joined: Sat Aug 05, 2023 8:32 am
- Location: San Marcos Texas
Re: New to CPAP and struggling (sort of)
I have been on Dilantin since I was 16... On the medication I don't have seizures. I don't think the Dr's would chance changing meds when seizures are controlled.
_________________
Machine: AirSense 11 Autoset |
Mask: ResMed AirFit F30i Full Face CPAP Mask with Headgear |
Additional Comments: Integrated heated humidifier with heated tube |
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- Posts: 16
- Joined: Sat Aug 05, 2023 8:32 am
- Location: San Marcos Texas
Re: New to CPAP and struggling (sort of)
_________________
Machine: AirSense 11 Autoset |
Mask: ResMed AirFit F30i Full Face CPAP Mask with Headgear |
Additional Comments: Integrated heated humidifier with heated tube |
Re: New to CPAP and struggling (sort of)
that's not useful as it doesn't show what makes up the ahi. and the smart folk here need to see that breakdown in order to help.2young2bawake wrote: ↑Sat Aug 05, 2023 5:29 pmhttps://imgur.com/a/UIjcsL0
from oscar of the last month
please read here-
viewtopic.php?t=158560
_________________
Machine: AirCurve™ 10 VAuto BiLevel Machine with HumidAir™ Heated Humidifier |
Mask: AirFit™ P10 Nasal Pillow CPAP Mask with Headgear |
people say i'm self absorbed.
but that's enough about them.
Oscar-Win
https://www.apneaboard.com/OSCAR/OSCAR-1.5.1-Win64.exe
Oscar-Mac
https://www.apneaboard.com/OSCAR/OSCAR-1.5.1.dmg
but that's enough about them.
Oscar-Win
https://www.apneaboard.com/OSCAR/OSCAR-1.5.1-Win64.exe
Oscar-Mac
https://www.apneaboard.com/OSCAR/OSCAR-1.5.1.dmg
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- Posts: 16
- Joined: Sat Aug 05, 2023 8:32 am
- Location: San Marcos Texas
Re: New to CPAP and struggling (sort of)
I don't see any of the data like that. I even tried to use sleepyhead but it did not support the Resmed air sense 11.
So on 8/4/23 ... AHI 6.10, H 2.40, OA .40, CA 3.4
8/3/23 ... AHI 12.40, UA 2.10, H 1, OA 1.O CA 7.3
8/2/23 ... AHI 5.80, UA .2, H .4 , OA .4, CA 3.9
_________________
Machine: AirSense 11 Autoset |
Mask: ResMed AirFit F30i Full Face CPAP Mask with Headgear |
Additional Comments: Integrated heated humidifier with heated tube |
Last edited by 2young2bawake on Sat Aug 05, 2023 6:47 pm, edited 1 time in total.
Re: New to CPAP and struggling (sort of)
The SD card MUST be in the machine for someone to see/get their detailed data.
Right now your old data is just the summary data that is stored on the machine itself.
Any of the good detailed stuff has to be written directly to the SD card while in use.
So that's why you don't have any detailed data or more useful graphs....nothing to see....if the machine doesn't write to the SD card all you get are summary numbers.
Doesn't matter what software you use....if the machine doesn't put the data on the card then the software can't make it up.
Right now your old data is just the summary data that is stored on the machine itself.
Any of the good detailed stuff has to be written directly to the SD card while in use.
So that's why you don't have any detailed data or more useful graphs....nothing to see....if the machine doesn't write to the SD card all you get are summary numbers.
Doesn't matter what software you use....if the machine doesn't put the data on the card then the software can't make it up.
_________________
Machine: AirCurve™ 10 VAuto BiLevel Machine with HumidAir™ Heated Humidifier |
Additional Comments: Mask Bleep Eclipse https://bleepsleep.com/the-eclipse/ |
I may have to RISE but I refuse to SHINE.
-
- Posts: 16
- Joined: Sat Aug 05, 2023 8:32 am
- Location: San Marcos Texas
Re: New to CPAP and struggling (sort of)
OK, that was my mistake, thank you. It will be in the machine tonight and from now on. 

_________________
Machine: AirSense 11 Autoset |
Mask: ResMed AirFit F30i Full Face CPAP Mask with Headgear |
Additional Comments: Integrated heated humidifier with heated tube |
Re: New to CPAP and struggling (sort of)
2young2bawake wrote: ↑Sat Aug 05, 2023 6:49 pmOK, that was my mistake, thank you. It will be in the machine tonight and from now on.![]()

_________________
Machine: AirCurve™ 10 VAuto BiLevel Machine with HumidAir™ Heated Humidifier |
Mask: AirFit™ P10 Nasal Pillow CPAP Mask with Headgear |
people say i'm self absorbed.
but that's enough about them.
Oscar-Win
https://www.apneaboard.com/OSCAR/OSCAR-1.5.1-Win64.exe
Oscar-Mac
https://www.apneaboard.com/OSCAR/OSCAR-1.5.1.dmg
but that's enough about them.
Oscar-Win
https://www.apneaboard.com/OSCAR/OSCAR-1.5.1-Win64.exe
Oscar-Mac
https://www.apneaboard.com/OSCAR/OSCAR-1.5.1.dmg
Re: New to CPAP and struggling (sort of)
Of course it shows the breakdown of the AHI - but that breakdown isn't informative enough. Because we need to know when and at which pressure each type of event happens.zonker wrote: ↑Sat Aug 05, 2023 5:42 pmthat's not useful as it doesn't show what makes up the ahi. and the smart folk here need to see that breakdown in order to help.2young2bawake wrote: ↑Sat Aug 05, 2023 5:29 pmhttps://imgur.com/a/UIjcsL0
from oscar of the last month
please read here-
viewtopic.php?t=158560
What we know is that you still have obstructive events every night, that you have Clear Airvway breathing stops every night - the reason for which we don't know at this point, and that you seem to be hitting your maximum pressure every night, and for long periods. You can check each of my statements by placing the curser on the relevant colored column.
No wonder you feel bad.
_________________
Mask: AirFit™ P10 Nasal Pillow CPAP Mask with Headgear |
Additional Comments: Machine: Resmed AirSense10 for Her with Climateline heated hose ; alternating masks. |
And now here is my secret, a very simple secret; it is only with the heart that one can see rightly, what is essential is invisible to the eye.
Antoine de Saint-Exupery
Good advice is compromised by missing data
Forum member Dog Slobber Nov. 2023
Antoine de Saint-Exupery
Good advice is compromised by missing data
Forum member Dog Slobber Nov. 2023
-
- Posts: 16
- Joined: Sat Aug 05, 2023 8:32 am
- Location: San Marcos Texas
Re: New to CPAP and struggling (sort of)
_________________
Machine: AirSense 11 Autoset |
Mask: ResMed AirFit F30i Full Face CPAP Mask with Headgear |
Additional Comments: Integrated heated humidifier with heated tube |