at the end of day 5 i feel worse,lethargic

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
reffus1881
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at the end of day 5 i feel worse,lethargic

Post by reffus1881 » Tue Feb 07, 2012 2:31 pm

Sorry to complain so much but i do feel worse than when i started i slept 8 hours each of the last 2 nights. I know its only been 5 days but i didn't expect this. I called my sleep Doc waiting for her to call back.I don't have very many leaks and i am only waking up a couple of times a night. I did nod off in the chair this mourning for about 45 min without cpap. This forum has helped so much Thanks

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archangle
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Re: at the end of day 5 i feel worse,lethargic

Post by archangle » Tue Feb 07, 2012 3:02 pm

Even when CPAP works, sometimes your body reacts strangely at first. You may be sleeping well without oxygen deprivation and be sleeping deeply for the first time in years. It can be like being really tired, getting a really deep nap and finding you feel more tired than before.

Sometimes, feeling tired for a few days is a sign something's working. Especially if you've only got two nights of full sleep. Keep at it for a while longer and see if you feel better. If you're just catching up on sleep debt, it should get a little better pretty soon, and then slowly taper off.

Of course, something may not be right. Have you downloaded the software and looked at your results?

Do you think you're sleeping well?

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Re: at the end of day 5 i feel worse,lethargic

Post by BlackSpinner » Tue Feb 07, 2012 4:37 pm

My sleep doctor warned me that sometimes the mind can take up to a month to trust the cpap machine. For many years it stood on guard, sleeping with one eye open so to speak to keep you alive and get you breathing again. Now you stick a strange thing over it and expect it to shut up and go to sleep, but you know, it knows that the only way you stayed alive this long was for it to stay on guard and it is not stepping back so quickly.

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derek70
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Re: at the end of day 5 i feel worse,lethargic

Post by derek70 » Tue Feb 07, 2012 5:10 pm

First night I started my CPAP therapy I panicked.
I thought It was impossible breath against 12cm pressure and sleep through the night.
After 1 month therapy I sometimes check my CPAP during the night the be sure It's turned on.

I still sleep bad, even with AHI under control.
Apnea it's the first thing to fix.
It takes time to your body and brain get used to mask and pressure, I think.

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Pugsy
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Re: at the end of day 5 i feel worse,lethargic

Post by Pugsy » Tue Feb 07, 2012 5:27 pm

Your machine is fully data capable. What do your reports say? Do you have the software available so you can see what is happening in regards to the data the machine will gather? Perhaps it would be a good idea to take a look and see what is going on. Perhaps leaks are a factor or therapy is not optimal for some reason.

You can use either ResScan or SleepyHead with your machine. I have information about SleepyHead in my signature line.

ResScan information can be found in UncleBob's signature line memberlist.php?mode=viewprofile&u=38643

Tutorial for how to use ResScan http://montfordhouse.com/cpap/resscan_tutorial/

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reffus1881
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Re: at the end of day 5 i feel worse,lethargic

Post by reffus1881 » Tue Feb 07, 2012 7:14 pm

archangle wrote:Even when CPAP works, sometimes your body reacts strangely at first. You may be sleeping well without oxygen deprivation and be sleeping deeply for the first time in years. It can be like being really tired, getting a really deep nap and finding you feel more tired than before.

Sometimes, feeling tired for a few days is a sign something's working. Especially if you've only got two nights of full sleep. Keep at it for a while longer and see if you feel better. If you're just catching up on sleep debt, it should get a little better pretty soon, and then slowly taper off.

Of course, something may not be right. Have you downloaded the software and looked at your results?

Do you think you're sleeping well?
I do think my sleep is OK i think i might be over whelmed by all this. Its a huge change. Thanks

reffus1881
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Re: at the end of day 5 i feel worse,lethargic

Post by reffus1881 » Tue Feb 07, 2012 7:17 pm

Pugsy wrote:Your machine is fully data capable. What do your reports say? Do you have the software available so you can see what is happening in regards to the data the machine will gather? Perhaps it would be a good idea to take a look and see what is going on. Perhaps leaks are a factor or therapy is not optimal for some reason.

You can use either ResScan or SleepyHead with your machine. I have information about SleepyHead in my signature line.

ResScan information can be found in UncleBob's signature line memberlist.php?mode=viewprofile&u=38643

Tutorial for how to use ResScan http://montfordhouse.com/cpap/resscan_tutorial/
Thanks I will check on the soft ware. I am not up to date on all this tech.

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Pugsy
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Re: at the end of day 5 i feel worse,lethargic

Post by Pugsy » Tue Feb 07, 2012 7:54 pm

I mention using the software because when I first started therapy I felt horrible, horrible. Back then I had to buy the software and a special card reader and it took me a couple of weeks to get it all together.
One look at the reports showed that my pressure was not optimal and I was still having way too many events. This may or may not be your problem but you need to rule it out before investigating other possible reasons.

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Mr Bill
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Re: at the end of day 5 i feel worse,lethargic

Post by Mr Bill » Tue Feb 07, 2012 8:29 pm

BlackSpinner wrote:My sleep doctor warned me that sometimes the mind can take up to a month to trust the cpap machine. For many years it stood on guard, sleeping with one eye open so to speak to keep you alive and get you breathing again. Now you stick a strange thing over it and expect it to shut up and go to sleep, but you know, it knows that the only way you stayed alive this long was for it to stay on guard and it is not stepping back so quickly.
This yes! It took me 3-4 months and I still sleep very lightly.

Also, if you were really sleep deprived, for some time, you may find yourself unable to sleep deeply for some time because getting just a little sleep feeds into insomnia. Your old brain thinks its got enough sleep. It takes time to fix that. And, finally, it takes time for physiological changes to happen where your heart and brain adjust to expecting higher blood oxygen saturation.
EPAP min=6, EPAP max=15, PS min=3, PS max=12, Max Pressure=30, Backup Rate=8 bpm, Flex=0, Rise Time=1,
90% EPAP=7.0, Avg PS=4.0, Avg bpm 18.3, Avg Min vent 9.2 Lpm, Avg CA/OA/H/AHI = 0.1/0.1/2.1/2.3 ... updated 02/17/12

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Starlette
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Re: at the end of day 5 i feel worse,lethargic

Post by Starlette » Tue Feb 07, 2012 8:55 pm

Mr Bill wrote:
BlackSpinner wrote:My sleep doctor warned me that sometimes the mind can take up to a month to trust the cpap machine. For many years it stood on guard, sleeping with one eye open so to speak to keep you alive and get you breathing again. Now you stick a strange thing over it and expect it to shut up and go to sleep, but you know, it knows that the only way you stayed alive this long was for it to stay on guard and it is not stepping back so quickly.
This yes! It took me 3-4 months and I still sleep very lightly.

Also, if you were really sleep deprived, for some time, you may find yourself unable to sleep deeply for some time because getting just a little sleep feeds into insomnia. Your old brain thinks its got enough sleep. It takes time to fix that. And, finally, it takes time for physiological changes to happen where your heart and brain adjust to expecting higher blood oxygen saturation.
@ Blackspinner - You're the first person on the forum whose stated what I've gone through "sleeping with one eye open." Can I tell stories on that!
I can most certainly testify to that one! Oh, and let's not forget about adding a FFM mask to the mix, you're covering all oxygen receiving airways It doesn't get any scarier than that! Yes, there is DEFINITELY a trust issue that needs to be established. I consider it becoming one with your xpap. It's an individual thing when that trust is achieved.

As I'm also thinking...You may want to do a word search on "Sleep Debt". This may also be what you're experiencing.

Pugsy is correct, you need something (software) to check your data. When you get that going, forward the a copy to the forum for review.

Starlette

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kteague
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Re: at the end of day 5 i feel worse,lethargic

Post by kteague » Tue Feb 07, 2012 10:28 pm

reffus1881 wrote:Sorry to complain so much but i do feel worse than when i started i slept 8 hours each of the last 2 nights. I know its only been 5 days but i didn't expect this. I called my sleep Doc waiting for her to call back.I don't have very many leaks and i am only waking up a couple of times a night. I did nod off in the chair this mourning for about 45 min without cpap. This forum has helped so much Thanks
Not saying there's nothing else that needs addressed, just would like to point out that 8 hours is for many people considered enough for basic maintenance sleep. You are in recovery phase, and in general when one is recovering from any illness or bodily injury, extra rest is advised. I think that once the mind realizes it really can sleep, it desires more of it until it is no longer needed. I'm an advocate of getting extra sleep in the beginning. You body may be telling you that 8 hours isn't enough right now.

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Re: at the end of day 5 i feel worse,lethargic

Post by Sachin1 » Wed Mar 07, 2012 8:43 am

People i felt the same way.........my doctor told me to stop usuing the humidifier.........problem solved!!!!!