Looking for a recommendation for a sleep center in US

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
art11
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Looking for a recommendation for a sleep center in US

Post by art11 » Sun Mar 23, 2014 6:08 pm

I've been seeking treatment for about 4 month now for severe fatigue due to poor sleep, but have not made much progress in determining the cause (the main theory is UARS right now) or finding a treatment that helps. Non-surgical treatments haven't helped and it's hard to make a decision about surgeries, if I'm not even sure I've a breathing disorder. The biggest challenge has been finding a doctor who would be willing to spend some time to learn about my history and analyze the sleep study data. So, at this point I'm willing to travel anywhere in the US and stay there as long as it takes (on leave from my job now). If anybody here had a good experience with their sleep specialist, I would really appreciate your help. It's easy enough to check education, research activities, accreditation, etc, but what I really care about is conscientiousness and willingness to dig a little deeper for ambiguous cases.

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avi123
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Re: Looking for a recommendation for a sleep center in US

Post by avi123 » Sun Mar 23, 2014 6:27 pm

No problem.

Barry Krakow, M.D. (pronounced Kraiko)

Link:

http://www.nightmaretreatment.com/about ... rakow-m.d/

Becoming a Patient


Some people will benefit from more personalized or directed treatment programs. You may wish to visit our center in Albuquerque, New Mexico to become a patient at Maimonides International Nightmare Treatment. Or, you may want to use some other pathway such as telemedicine or distance medicine, which might involve phone or video conferencing. For some patients, email communication may be sufficient.

As there are many ways to initiate treatment through our facilities, the best way to start is by contacting either of the two main resournces below. Once we know a little bit more about your goals, we can direct you to the best treatment pathways.
•Nightmare Health Educator, Linda Trujillo at 505.998.7219
•Office Manager, Marianne Porter at 505.998.7208

If at any time, you are certain you want to visit us at the center in New Mexico for on-site care, then click on our sister site, http://www.sleeptreatment.com and then click on the green Patients button in the upper right hand corner. This will take you to an area to show you how to register on-line as the first step in becoming a patient at our center.

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Last edited by avi123 on Sun Mar 23, 2014 7:33 pm, edited 2 times in total.

JDS74
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Re: Looking for a recommendation for a sleep center in US

Post by JDS74 » Sun Mar 23, 2014 6:51 pm

Dr. Mithri R. Junna
Mayo Clinic
Rochester, Minnesota

They have an excellent sleep lab and she is a conscientious and caring doctor.
Their system allows their doctors to do internal referrals for complex cases.
Their costs are very competitive to local centers.

I hope you get an answer somewhere.

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library lady
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Re: Looking for a recommendation for a sleep center in US

Post by library lady » Sun Mar 23, 2014 8:31 pm

My sleep center is also at the Mayo Clinic - Rochester; I had a different doctor, but as the previous poster said, the docs at Mayo can do internal referrals to other departments.

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TheDuke
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Re: Looking for a recommendation for a sleep center in US

Post by TheDuke » Sun Mar 23, 2014 10:50 pm

I don't know where you live , so that complicates suggestions for seeking treatment. I believe that we can find good treatment at smaller, regional centers as well as at the nationally famous medical centers.

I had excellent experience from Dr. Bradley Bittle at St Francis Sleep Center in Cape Girardeau, Missouri, and their sleep lab was very thorough and helpful.. Dr. Bittle was willing to spend time reviewing my sleep test data and made excellent suggestions regarding equipment.

TheDuke

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Re: Looking for a recommendation for a sleep center in US

Post by Guest » Mon Mar 24, 2014 1:46 am

search this forum or google for dr park
he is in nyc and does some leading sleep research

library lady
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Re: Looking for a recommendation for a sleep center in US

Post by library lady » Mon Mar 24, 2014 7:29 am

I'm sure all of these people and places are very good. Like TheDuke said, it isn't necessary to go to a large famous clinic like the Mayo Clinic, Cleveland Clinic, etc. so a lot depends on where you live. I live in Rochester, so Mayo Clinic is where I get all of medical needs taken care of, but there are many good places to go.

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JeffH
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Re: Looking for a recommendation for a sleep center in US

Post by JeffH » Mon Mar 24, 2014 8:00 am

I agree with this one. His treatment saved my butt. I had been on CPAP for several years and started having troubles and Dr. K got to the bottom of things and put me on ASV. Absolutely life changing.

Barry Krakow, M.D. (pronounced Kraiko)

Link:

http://www.nightmaretreatment.com/about ... rakow-m.d/

JeffH

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IheartCPAP
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Re: Looking for a recommendation for a sleep center in US

Post by IheartCPAP » Wed May 28, 2014 2:25 pm

Hi Jeff,

Did you actually go out to D. Krakow's sleep center in New Mexico for a sleep study?

What was his reasoning on changing you from CPAP to ASV?
JeffH wrote:I agree with this one. His treatment saved my butt. I had been on CPAP for several years and started having troubles and Dr. K got to the bottom of things and put me on ASV. Absolutely life changing.

Barry Krakow, M.D. (pronounced Kraiko)

Link:

http://www.nightmaretreatment.com/about ... rakow-m.d/

JeffH

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Bill44133
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Re: Looking for a recommendation for a sleep center in US

Post by Bill44133 » Wed May 28, 2014 5:35 pm

I used the Cleveland Clinic for my sleep Doctor and studies:
Dr. Jessica Vensel-Rundo http://my.clevelandclinic.org/staff_dir ... orID=13991
Cleveland Clinic
Cleveland, OH

http://www.clevelandclinic.org/lp/sleep ... 7AodhFUArA

I wish you Good Luck!

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JDS74
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Re: Looking for a recommendation for a sleep center in US

Post by JDS74 » Wed May 28, 2014 6:25 pm

Art:

Have you contacted any of the suggested centers yet?
Any of the ones suggested seem to me to be capable of dealing with most problems.

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Mask: Oracle HC452 Oral CPAP Mask
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Additional Comments: EverFlo Q 3.0 Liters O2 PR DSX900 ASV
Oracle 452 Lessons Learned Updated
DSX900 AutoSV with HC150 extra humidifier and Hibernite heated hose
Settings: EPAP Min-10.0, EPAP Max-17, PS Min-3, PS Max-10, Max Pressure-20, Rate-Auto, Biflex-1.
Sleepyhead and Encore Pro 2.21.