Adjusted on my own..

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
User avatar
Dazzles
Posts: 37
Joined: Mon Dec 12, 2011 9:44 pm
Location: Austin, TX
Contact:

Adjusted on my own..

Post by Dazzles » Wed Dec 14, 2011 6:21 pm

I've had my machine for a total of 3 nights, laying awake at night staring at the ceiling was getting old --

My issue was that the sleep tech had set up my machine to ramp up from 4cm and I felt like I was suffocating.

I adjusted it myself to start at 8. I fell asleep within a half an hour last night. Now, it could have been sleep deprivation or the adjustment (I actually enjoyed having the machine instead of felt like I was dying).

I am just dreading the next visit to my doctor...I hope i don't get a tongue lashing for being proactive.

In addition to this, I am unsure if she is setting me up with a DME or just giving me a machine. They are very withholding of information. I'm planning to call tomorrow (if I can get through their crazy answering machine service) and I don't know how to ask for the machine I want, or what is really going on.

They are a great lab with excellent turnaround. I just can't help but wonder why they aren't giving me more information.

_________________
Mask: Swift™ FX For Her Nasal Pillow CPAP Mask with Headgear
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control
Additional Comments: Auto-Pap -- No Optimal Pressure detected during titration studies.

User avatar
LSAT
Posts: 13405
Joined: Sun Nov 16, 2008 10:11 am
Location: SE Wisconsin

Re: Adjusted on my own..

Post by LSAT » Wed Dec 14, 2011 6:43 pm

Hey...it's your life and your health. If your doctor gets upset with you feeling better....you've got the wrong doctor....Time for a change.

User avatar
RandyJ
Posts: 1673
Joined: Thu Apr 21, 2011 7:22 pm
Location: Connecticut, USA

Re: Adjusted on my own..

Post by RandyJ » Wed Dec 14, 2011 7:02 pm

A lot of people don't even use the ramp, you can turn it off if you want. I use 14 cm pressure & no ramp.

_________________
Mask: AirFit™ P10 Nasal Pillow CPAP Mask with Headgear
Additional Comments: Backup & Travel Machines: PR System One Bipap Auto, S9 VPAP Auto, S9 Autoset, Oximeter CMS-50E
Diagnosed March 2011, using APAP 14 - 16.5 cm, AFlex+ 2
Alt masks Swift FX pillows, Mirage FX nasal mask, Mirage Quattro full face mask

User avatar
apneawho
Posts: 609
Joined: Wed Jul 27, 2011 10:09 am
Location: Atlanta, GA, USA

Re: Adjusted on my own..

Post by apneawho » Wed Dec 14, 2011 7:09 pm

You can adjust your settings and you can request the machine you want. If you get a tongue lashing, find a new doctor. Please read Janknitz blog "Everything you need to know before meeeting with your DME." There is so much valuable info in there you need to know.

_________________
Mask: Swift™ FX For Her Nasal Pillow CPAP Mask with Headgear
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control
Additional Comments: ResMed Climate line tubing, Hose cozy, PurSleep Clear aroma therapy, Using latest version Sleepyhead sofware-thanks Jedimark!

User avatar
rested gal
Posts: 12880
Joined: Thu Sep 09, 2004 10:14 pm
Location: Tennessee

Re: Adjusted on my own..

Post by rested gal » Wed Dec 14, 2011 7:30 pm

Dazzles, here's a link to Jan's blog that apneawho mentioned. It really is important reading:

LINK to Janknitz's excellent - "WHAT YOU NEED TO KNOW BEFORE YOU MEET YOUR DME Part I"
http://maskarrayed.wordpress.com/what-y ... me-part-i/
ResMed S9 VPAP Auto (ASV)
Humidifier: Integrated + Climate Control hose
Mask: Aeiomed Headrest (deconstructed, with homemade straps
3M painters tape over mouth
ALL LINKS by rested gal:
viewtopic.php?t=17435

User avatar
DoriC
Posts: 5214
Joined: Sat Sep 13, 2008 9:28 pm
Location: NJ

Re: Adjusted on my own..

Post by DoriC » Wed Dec 14, 2011 10:15 pm

Welcome Dazzles. If you really want to be proactive, start reading everything you can here and come back and ask questions. Knowledge is power that will help you to successful therapy. Keep us posted.

_________________
Mask: Mirage Quattro™ Full Face CPAP Mask with Headgear
Additional Comments: 14/8.4,PS=4, UMFF, 02@2L,
"Do or Do Not-There Is No Try"-"Yoda"
"We are what we repeatedly do,so excellence
is not an act but a habit"-"Aristotle"
DEAR HUBBY BEGAN CPAP 9/2/08

User avatar
Bookbear
Posts: 1154
Joined: Tue Apr 25, 2006 7:47 pm
Contact:

Re: Adjusted on my own..

Post by Bookbear » Wed Dec 14, 2011 10:26 pm

Dazzles:
Seriously, if you truly do get a 'tongue lashing', stand up, gather your things, look the doctor straight in the eye and say, "You are the doctor, and I am the patient. It's MY insurance premiums that pay your bills, and it's MY body and MY health we are discussing. You do not talk to me that way. We are done. Good-bye." And walk out. Get set up with another doctor, get a referral through your insurance company to another doctor, do whatever it takes to get a doctor who is willing to work WITH you, not dictate TO you. Make it clear to your insurance company why you are changing doctors. File a complaint if necessary.

I am not usually this cranky, but I am getting really tired of the medical gods telling us what we can and cannot do.

And DO read Janknitz post. Also, click on the "CPAP Wiki" icon above for a further wealth of information.

Good luck!

_________________
MachineMask
Additional Comments: Avg. AHI .4
Getting old doesn't make you 'forgetful'. Having too damn many things to remember makes you 'forgetful'.

User avatar
Lizistired
Posts: 2835
Joined: Tue Dec 14, 2010 10:47 pm
Location: Indiana

Re: Adjusted on my own..

Post by Lizistired » Wed Dec 14, 2011 10:38 pm

Dazzles, Ditto on what the others have said. What machine did they "just give you'? Please list your equipment. You don't want to get stuck with a substandard machine.

_________________
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control
Additional Comments: Swift FX sometimes, CMS-50F, Cervical collar sometimes, White noise, Zeo... I'm not well, but I'm better.

Mary Z
Posts: 1493
Joined: Wed Oct 28, 2009 9:55 am

Re: Adjusted on my own..

Post by Mary Z » Fri Dec 16, 2011 8:27 am

Of course you get to adjust your machine on your own. I wouldn't anticipate a longue lashing. My doc was surprised, but not unhappy when I told him I knew everything about making adjustments on my machine.

_________________
Mask: Wisp Nasal CPAP Mask with Headgear - Fit Pack
Additional Comments: PR System One Remstar BiPap Auto AS Advanced.
Last edited by Mary Z on Fri Dec 16, 2011 12:22 pm, edited 2 times in total.
Dog is my copilot

User avatar
JeffL
Posts: 507
Joined: Fri Sep 16, 2011 10:02 pm
Location: Los Angeles
Contact:

Re: Adjusted on my own..

Post by JeffL » Fri Dec 16, 2011 10:57 am

I think you are worried for nothing. I can't imagine a doctor giving you any grief over changing your ramp setting. It's not a hidden control, and it's there to be adjusted for your comfort. I turned my off too because I didn't feel as if I was getting enough air until it was all ramped up.

_________________
MachineMask

pap4life
Posts: 207
Joined: Tue Jan 25, 2011 12:08 pm
Location: Florida

Re: Adjusted on my own..

Post by pap4life » Fri Dec 16, 2011 11:16 am

I turned off the ramp within the first 2 hours of having the thing on my face..

Its a comfort setting just like the EPR or Flex settings. they are for the users comfort.

Mary Z
Posts: 1493
Joined: Wed Oct 28, 2009 9:55 am

Re: Adjusted on my own..

Post by Mary Z » Fri Dec 16, 2011 12:21 pm

I changed my mind about calling the doc. it's really not a big deal. Be comfortable so you can use the thing.
Good luck

_________________
Mask: Wisp Nasal CPAP Mask with Headgear - Fit Pack
Additional Comments: PR System One Remstar BiPap Auto AS Advanced.
Dog is my copilot

User avatar
archangle
Posts: 9293
Joined: Sun Mar 27, 2011 11:55 am

Re: Adjusted on my own..

Post by archangle » Fri Dec 16, 2011 3:22 pm

It's highly unlikely they'll look at anything other than the number of hours you used the machine. That's called "compliance hours" and determines whether the insurance pays or not.

There's a series of exercises that help you in dealing with the stress of tongue lashing.

Hold your hand up with the palm facing you. Fold your first finger down, extend the next one, and fold the last two ones. Repeat until the stress goes away.

Dazzles, fill in your equipment on your profile and you'll get better help here. There's a link in my signature line on how to fill out your profile.

_________________
Mask: Swift™ FX Nasal Pillow CPAP Mask with Headgear
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control
Additional Comments: Also SleepyHead, PRS1 Auto, Respironics Auto M series, Legacy Auto, and Legacy Plus
Please enter your equipment in your profile so we can help you.
Click here for information on the most common alternative to CPAP.
If it's midnight and a DME tells you it's dark outside, go and check for yourself.

Useful Links.

User avatar
BlackSpinner
Posts: 9742
Joined: Sat Apr 25, 2009 5:44 pm
Location: Edmonton Alberta
Contact:

Re: Adjusted on my own..

Post by BlackSpinner » Fri Dec 16, 2011 4:06 pm

archangle wrote:
There's a series of exercises that help you in dealing with the stress of tongue lashing.

Hold your hand up with the palm facing you. Fold your first finger down, extend the next one, and fold the last two ones. Repeat until the stress goes away.
I developed a new product to help with that. It is a pin. The fingers are adjustable. It sold well at the craft fair.
Image
hands by lenabreijer, on Flickr

_________________
Machine: PR System One REMStar 60 Series Auto CPAP Machine
Additional Comments: Quatro mask for colds & flus S8 elite for back up
71. The lame can ride on horseback, the one-handed drive cattle. The deaf, fight and be useful. To be blind is better than to be burnt on the pyre. No one gets good from a corpse. The Havamal

User avatar
DoriC
Posts: 5214
Joined: Sat Sep 13, 2008 9:28 pm
Location: NJ

Re: Adjusted on my own..

Post by DoriC » Fri Dec 16, 2011 6:16 pm

Lena, I love them, especially the black pair!

_________________
Mask: Mirage Quattro™ Full Face CPAP Mask with Headgear
Additional Comments: 14/8.4,PS=4, UMFF, 02@2L,
"Do or Do Not-There Is No Try"-"Yoda"
"We are what we repeatedly do,so excellence
is not an act but a habit"-"Aristotle"
DEAR HUBBY BEGAN CPAP 9/2/08