new here

Hi I just found this site , I had a sleep study done back in 2001 and was given cpap unit to use the settings were very low back then
It was helping me alot with the fatique I suffer badly with
I then stopped using it as it was giving bad sore throats and i just could not tolerate it anymore
I was feeling ok up to about 7 months ago where things got really bad , no energy at all no matter what I did
well I had a study lastnight . rititration was done
and now they say I need my settings adjusted to a 11
I am so upset with all this . I was hoping to hear I was ok in this area and that soemthing else was wrong
so I will using this time around the mask that covers the nose and the mouth
and hopfully I can tolerate it
I came hear in hope for some support as my family just does not understand what is happening to me
I cna not make plans at anytime to do anything as I never know how I am going to feel from one sec to the next
I am 46 yrs old and have many other medical issues also
Dee

do you use a heated humidifier? That might help with your sore throat.

Hello Dee
Welcome to this board, you will feel right at home here. I sure did. I got diagnosed in October and am still very new at this. But I know that sometimes a person feels very alone when they are diagnosed with something. Noone in my family quite understands this either. I suspect my father has undiagnosed apnea he has snored so loud my whole life and sleeps terrible. They say sleep apnea can be hereditary sometimes.

Anyway, others are sure to pipe in with suggestions, but I have read other posts to people that haven't used a machine for awhile suggest to see your doctor to either get a new sleep study done, because age, weight gain or loss, can change what titration you may need. plus your machine might be close to the 5 year mark and insurance companies usually will supply a new one at that time. I just got an AUTO cpap which seems wonderful so far. There are also other CPAP machines that you can buy software to download on your computer and see your results from night to night.

I use a full face mask because I tried the nasal mask and taping but I leaked with the nasal mask, and taping my lips bothered me. But everyone's face is different as well as what people can tolerate. There are many great posts about different types of masks.

Not knowing what kind of insurance you have and what considerations you may or may not have, this web site offers very reasonable equipment if you have to pay out of pocket. Browse through the posts on this board. there are so many knowledgeable people willing to share and help you.

Good Luck, hope to hear posts of success you will have.

Suzy

Hi
I just had another study done lastnight
I was using the heater also another thing thta was happening before was the hose would fill up with water and travel up into the mask so I was waking up with a mask full of water
I gave up using the cpap
But I guess I better start using it again
They told me I should have the new cpap by the end of next week
Dee

oops sorry I forgot to login as I thought I was already logged in
Dee

The water is called rainout. You can use the cpaptalk search function to read about rainout . The solution is the "Aussie Heated Hose". Click on this link:

SleepZone Heated CPAP Tube

Not only did the heated hose completely solve all my rainout problems, but I immediately began sleeping sounder and more deeply, which just accelerated my recovery from serious apnea-caused sleep deprivation.

IMO, a "must have" for every CPAP user with a heated humidifier. In fact, I really don't know why the manufacturers don't offer it at least as an option, if not standard!