Den,Wulfman... wrote:I could make a whole list of things I believe to be worse than "being tethered to a machine while sleeping". I was TRYING to get you to put things into perspective. It's a machine and therapy that helps you live your life better.......and you only have to use it at night when you sleep to help you breathe.CM25 wrote:I'm sorry you feel the need to lash out at my post but as you can tell from this bulletin board, everyone responds differently to the same situation. It's not helpful. Thank you.Wulfman... wrote:Garbage!CM25 wrote:I have been using a CPAP for three years and I do believe it is very possible to become depressed or at least bummed out that you have to be tethered to a machine while sleeping for the rest of your life. Of course you berate yourself for whatever is going on in your body that caused this in the first place be that facial shape or advancing age--anything is possible. I also wonder how it impacts romance. If you ask the CPAP companies they tell you things that seem to be glossing over the issues. One major thing to me that bothers me is traveling. I have not yet tried to fly with the machine but even auto trips are a problem as you have to haul distilled water to use in the humidifier and then you need special water to clean the mask parts. I have contact the maker but get the same thing that all of this is part of the process. So, why wouldn't you get bummed about about the whole situation? Makes sense to me.
You POOOOOOR thing........ Suck it up! You ain't got nothing to complain about.
Here's a quote (attributed to Helen Keller where I found it) for you to ponder........
“I cried because I had no shoes until I met a man who had no feet” ― Helen Keller
Den
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Here are a few more things that many of us have faced or dealt with.
I'll let you decide how they compare to CPAP therapy:
Eye glasses
Hearing aids
Oxygen - 24/7/365
Crutches
Leg braces
Walkers
Wheel chairs
Prosthetics
Insulin and other Diabetes medications
Blood pressure medications
Cholesterol medications
Thyroid disease
Crohn's disease
Heart disease
Kidney diseases
And.......CANCER!
This list could go on and on, but hopefully you'll get the idea.
And another thing, I had highlighted some of the things you had stated incorrectly about the water use with this therapy regarding cleaning and traveling.
Den
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As one who has alot of respect for you, I am not sure I understand why someone as smart as you seems to have a hard time understanding that everyone perceives things differently. As someone who recently started wearing hearing aids, once the audiologist found me a pair that was easy to maintain, I didn't see these as a big deal. Well ok, I am a little self conscious when the low battery warning goes off in public but that doesn't last too long.
I think if I had adapted to pap therapy initially, I would definitely have positive feelings. And during the rare times it worked, I absolutely loved it. But now I hate it because no matter what I do, my shelf life on the machine is 3 hours and not one minute more.
Last night, a bleeping breathing event seemed to have preceded my wake up even though my AHI was zero. This has happened frequently in the past. And I woke up with a completely dry and stuffed up nose that doesn't respond to any remedy or various humidity levels. So I am going to try one more thing tonight by wearing the Simplus mask and raise the pressure to accomodate the huge increase in the AHI it causes. Unfortunately, when I put it on to go back to sleep due to the elan being completely intolerable last night, another breathing event seemed to have proceeded a wakeup.
I wish to god I could throw the machine out the window as I hate it. Sorry to offend you as I didn't start off feeling that way. But when I feel everything I have tried keeps resulting in failure, it is hard not to be very frustrated.
Unfortunately, until I come up with an alternative, not using the machine is not an option as I discovered when my HR and BP go up.
49er