New User with complications

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
surfdude
Posts: 3
Joined: Sat Aug 30, 2008 2:04 pm

New User with complications

Post by surfdude » Sat Aug 30, 2008 11:24 pm

I've had the two tests-woke up 11 times in one hour (5 usual stops, but 6 stops by signals from the brain). I am getting use to the RemstarPro M series (humidifier included)which is set at 5. I've had the soft gel mask and machine for one week. I also have jerking legs at night which keeps me awake until about 2 AM. Some minor problems with the mask. I tried humidifier settings at 2 then 1 and find to much dripping in mask. The technician suggested using cold water in the unit, but not turning it on.
I have tried using ambien and sonata to get to sleep, but maybe I am now immune to them.
My doctor believes my jerking legs will get better with CPAP. Also, I have an MRI of the brain to see what is causing the signal to stop breathing. I've looked at the site and have already placed my breathing tube on the backboard of the bed. I've adjusted the mask for a nice, but not to snug of a fit. However, the mask pressure seems stronger when lying down especially around the lower part of the mask.
Anyone have combination apnea issues-and jerking legs?

marshaeb
Posts: 286
Joined: Wed Jul 23, 2008 8:57 am

Re: New User with complications

Post by marshaeb » Sat Aug 30, 2008 11:44 pm

It sounds like you're talking about PLMD...Periodic Limb Movement Disorder. Here's a whole thread about it:

viewtopic/t34413/viewtopic.php?f=1&t=34 ... 68#p293068

Marsha

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kteague
Posts: 7781
Joined: Tue May 16, 2006 8:30 pm
Location: West and Midwest

Re: New User with complications

Post by kteague » Sun Aug 31, 2008 12:12 am

I don't know how many arousals your limb movements caused during the study, but it should be on your report. When one has sleep apnea and limb movements, it can be hard to know which one is causing the sleep problems. Both can disturb sleep, but sleep apnea affects one's health in so many ways, so treating the apnea as you are is a good start. If the legs continue to be a problem, there are medications to help.

I don't know your doctor's plan for knowing that your central apneas are therapeutically treated, but hopefully there is one. If they increase or persist, there are machines designed to deal with them.

It may take a while for you and your doctor to get everything in balance, but you're off to a good start. There's so much more to your tests than what you listed. There's probably clues in there that would shed more light on your situation. I have OSA and PLMD, so I understand how it is. Hope you get things sorted out and sleeping well soon.

Kathy

_________________
Mask: TAP PAP Nasal Pillow CPAP Mask with Improved Stability Mouthpiece
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control
Additional Comments: Bleep/DreamPort for full nights, Tap Pap for shorter sessions

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Slinky
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Joined: Wed Nov 01, 2006 3:43 pm
Location: Mid-Michigan

Re: New User with complications

Post by Slinky » Sun Aug 31, 2008 6:13 am

WELCOME to the forum, SurfDude. In order for you to have a better understanding of your particular situation it would be a wise idea to ask your sleep doctor or sleep lab for a copy of both the doctor's dictated results (1-2 pages each) AND the full scored data summary report w/condensed graphs (5+ pages each) from BOTH your sleep evaluation AND your titration studies. They are part of your medical records and under HIPAA you have a legal right to copies.

Forum members can help you to understand them PLUS reading thru the information under the Yellow Lightbulb (Our Wisdom) at the top of this page will also help you understand what is going on w/you and your therapy, thereby helping you to be better prepared when you next see your doctor to know what questions to ask to understand what plans he has for your therapy. It would appear that you have at least 3 sleep disorders: Obstructive sleep apnea (OSA), Central sleep apnea (CSA) and Periodic limb movement disorder (PLMD).

I agree that you seem to be off to a very good start! You might try refitting your headgear straps AFTER YOU LAY DOWN which is when you get the best and proper fit. Our "facial geography" responds to gravity just as everything else. Lay down, life your mask off your face slightly then let it lay back down on your face and re-adjust those bottom straps. The cushion of your mask needs to fill w/air to provide the best seal and then you don't want to tighten it so tight that you loose that air filled space in the cushion.

You've got a good device w/that Respironics M Series Pro w/C-Flex. It is fully data capable and can provide information that can help your doctor tweak your therapy as further adjustments need to be made.

You might want to go to the top of the page, click on Users Control Panel and then on Profile and list your CPAP, mask & humidifier so that you don't have to keep repeating yourself and we don't have to keep asking which of them you are using when you ask a question or we are trying to provide some suggestions.

_________________
Mask: Quattro™ FX Full Face CPAP Mask with Headgear
Additional Comments: PR SystemOne BPAP Auto w/Bi-Flex & Humidifier - EncorePro 2.2 Software - Contec CMS-50D+ Oximeter - Respironics EverFlo Q Concentrator
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