mother of a child with heart disease and obtructive sleep ap

my son is 5 years old and i am scared and worried my son has av heart canal defect plus osa and his heart rate keeps dropping low at night please anyone else with a child like this e mail me and we can chat my e-mail is lsthutch@msn.com . [/b]

I don't blame you for being scared, I would be too. It's so hard to have a sick child. I believe you should contact your child's doctor to discuss any worries you have about your son's OSA and its effect on his heart condition.
It would be wrong of anyone without that medical background to advise you about your son's heart rate dropping at night.

You didn't mention if your little boy also has Downs Syndrome, which I know is very common in kids with CAVC. (My old neighbor's son was also born with CAVC and Down's Syndrome.) If so, there are many websites available with support groups for parents of these beautiful children!

Otherwise, there are some congenital heart defect support groups.

Click on:

http://health.groups.yahoo.com/group/co ... =136918599

or

http://pub27.bravenet.com/forum/show.ph ... 2280001798

Your son's doctor should also be able to give you information regarding local support groups in your area.

Good luck to you and your little boy!

I have no advice but will keep your little one in my thoughts and prayers.