Re: Questions To Ask At A Support Group Meeting
Posted: Sun Jan 18, 2009 6:17 pm
I am surprised that I found 4 people at work who have OSA. Some had a CPAP machine for a few months, some were in process of
getting their machine. One person tried his mask for 2 hours each day and took it off. His OSA is serious.
Not a huge workspace. When I found out I had a mild case (sleep study) of OSA, I was determined to find
out all I could about this condition. I bought "Phantom of the Night" book, researched the internet. When I showed my Sleep
Doctor the book, he flipped thru it...the Doctor said "yes its a good book, but most of my patients don't want to know or research
this". I plan to join a support group, meeting next month. You have prepared a great list of questions. I will stir the pot. I could not even
fathom having a disease or condition and not finding out all I can about it. Somewhere on one of the posts, I saw a recommendation
for a doctor to prescribe "Mask of patients choice". I made the doctor write this in the Rx he wrote. He gave me a funny look, don't
think anyone ever asked him that before. I had two insurances, said it would not be an issue. I got the mask I wanted.
I also thought it was unusual that my critical care pulmonologist, who holds a certification in sleep medicine, and owns his own office,
would not have the software to read the results of the machine that he prescribed. I have to have the DME do it and get the results forwarded to him.
getting their machine. One person tried his mask for 2 hours each day and took it off. His OSA is serious.
Not a huge workspace. When I found out I had a mild case (sleep study) of OSA, I was determined to find
out all I could about this condition. I bought "Phantom of the Night" book, researched the internet. When I showed my Sleep
Doctor the book, he flipped thru it...the Doctor said "yes its a good book, but most of my patients don't want to know or research
this". I plan to join a support group, meeting next month. You have prepared a great list of questions. I will stir the pot. I could not even
fathom having a disease or condition and not finding out all I can about it. Somewhere on one of the posts, I saw a recommendation
for a doctor to prescribe "Mask of patients choice". I made the doctor write this in the Rx he wrote. He gave me a funny look, don't
think anyone ever asked him that before. I had two insurances, said it would not be an issue. I got the mask I wanted.
I also thought it was unusual that my critical care pulmonologist, who holds a certification in sleep medicine, and owns his own office,
would not have the software to read the results of the machine that he prescribed. I have to have the DME do it and get the results forwarded to him.