Severe mixed apnea at the age of 35

Yes I had 3 PFTs in the last 2 years. first two were due to some breathing problems that I experience once or twice were once I actually fainted. but it turned out that my lungs are healthy and lung function completely normal. The doctors suggested it was due to Hyperventilation.

PFT after covid was completely normal as well.

If covid is still a thing for me it's more likely neurological. but my neurologists couldn't find anything as well...

I will pick my poison, but question is which one is less poisonous. low o2 sat and possible impact on the heart, or periodic breathing and possible impact on the heart

BTW: what's your guess why my home studies only showed mild apnea, while the study in the hospital showed the severe result? is this common?

Herbert wrote: ↑

Fri Feb 03, 2023 5:47 am

BTW: what's your guess why my home studies only showed mild apnea, while the study in the hospital showed the severe result? is this common?

Post the home study results.

Rubicon wrote: ↑

Fri Feb 03, 2023 5:56 am

Herbert wrote: ↑

Fri Feb 03, 2023 5:47 am

BTW: what's your guess why my home studies only showed mild apnea, while the study in the hospital showed the severe result? is this common?

Post the home study results.

they didn't share the details. only overall result. Guess that won't be of much use

Herbert wrote: ↑

Fri Feb 03, 2023 6:05 am

Rubicon wrote: ↑

Fri Feb 03, 2023 5:56 am

Herbert wrote: ↑

Fri Feb 03, 2023 5:47 am

BTW: what's your guess why my home studies only showed mild apnea, while the study in the hospital showed the severe result? is this common?

Post the home study results.

they didn't share the details. only overall result. Guess that won't be of much use

Well, doesn't prevent from taking WAGs.

You have central sleep apnea with no apparent cause.

The HSTs showed mild apnea (actually could be hypopnea). Unknown if obstructive or central (and that would be REAL good information to have).

Despite your comments that the oxygen levels is Omigod I'm Gonna Die! virtually all of the levels are >90%, tests, treatment, everything. Bunches of 3-4% desats, but the actual saturations are nothing to die for (literally).

In re: atrial fibrillation, that's not really a big deal either...

...until you get to the blood clot thing. So stick with me here...

Based on the information available, you had CSA and it is a recent development.

Check out the incidence of sleep apnea following strokes.

Then, check out the incidence of negative MRI following strokes.

IMO there is still some respiratory instability.

You might want to put a timeline together of all these events (including passing out due to hyperventilation).

At some point you should consider retest NPSG w/o CPAP. If the cause of this had a recent start, it could also have a resolution. You might be thinking "Oh boy let's just do some oximetry!" I don't think that's helpful because Wellue is too Flintstone, there are unexplained confounding desats now, and anyway you're looking for PB and CSA to be sure.

is it even possible to REALLY distinguish central and obstructive events with a HST? because if it is, I will ask for this Information.

With the rest of your statement your really touching the core of everything. Is all the apnea stuff really a recent event or did I have if for years or maybe ever? The point is: I'd wish is was recent, but actually I can't tell. I've never woken up gasping for air in my life just until I was diagnosed, which for me points more in a psychological direction. What I actually did have is that I had to go to the toilet at night 2 to 3 times as long as I can think. as I just recently learned this can be caused by apnea and its effects on the heart. and since I have therapy most nights it only one time left. so.... chicken or egg? I would really love to know, but I guess I never will.

For stroke theory: yes the is a clear chance that this is what caused the breathing misery. As you've been in the medical field: Are there more detailed test one could take to identify a past stroke that doesn't show in MRI?

About the possible sudden stop... I'd give a million dollars if that would be a serious option. I will do another sleep study in another hospital this year. I found a doctor that is more "focused" on csa than my recent hospital. so this is already planned.

and one final question for today: My current sleep doctor said I should consider getting an Ablation for the afib. chances are high that after that also my PB night be gone. Do you confirm this? I can't imagine how it should work, since my afib is only sporadic but PB seems to be ongoing every night.

Herbert wrote: ↑

Fri Feb 03, 2023 5:45 am

I will pick my poison, but question is which one is less poisonous. low o2 sat and possible impact on the heart, or periodic breathing and possible impact on the heart

Again, O2 sats are not too low, but there are some desats. Here's that first block, I can't tie them to respiratory events:



How many desats does O2 Insight Pro show?

And PB is essentially resolved.

Herbert wrote: ↑

Fri Feb 03, 2023 11:21 am

is it even possible to REALLY distinguish central and obstructive events with a HST? because if it is, I will ask for this Information.

Depends on the HST, and there are plenty of them that do.

and one final question for today: My current sleep doctor said I should consider getting an Ablation for the afib. chances are high that after that also my PB night be gone. Do you confirm this? I can't imagine how it should work, since my afib is only sporadic but PB seems to be ongoing every night.

When I say I have NFI, I mean I REALLY have NFI. I mean I have NFI that I could even have NFI. I have NFI how I would even go about having a FI.

Rubicon wrote: ↑

Fri Feb 03, 2023 11:29 am

When I say I have NFI, I mean I REALLY have NFI. I mean I have NFI that I could even have NFI. I have NFI how I would even go about having a FI.

To clarify that point:

Ich habe keine verdammte Ahnung

Rubicon wrote: ↑

Fri Feb 03, 2023 11:29 am

Herbert wrote: ↑

Fri Feb 03, 2023 11:21 am

is it even possible to REALLY distinguish central and obstructive events with a HST? because if it is, I will ask for this Information.

Depends on the HST, and there are plenty of them that do.

and one final question for today: My current sleep doctor said I should consider getting an Ablation for the afib. chances are high that after that also my PB night be gone. Do you confirm this? I can't imagine how it should work, since my afib is only sporadic but PB seems to be ongoing every night.

When I say I have NFI, I mean I REALLY have NFI. I mean I have NFI that I could even have NFI. I have NFI how I would even go about having a FI.

yeah me too so that's that. I thought maybe this was a thing in the sleep medicine field likenshared wisdom. but if you never heard of it, I guess it's just a wfg of my sleep doctor.

Rubicon wrote: ↑

Fri Feb 03, 2023 11:32 am

Rubicon wrote: ↑

Fri Feb 03, 2023 11:29 am

When I say I have NFI, I mean I REALLY have NFI. I mean I have NFI that I could even have NFI. I have NFI how I would even go about having a FI.

To clarify that point:

Ich habe keine verdammte Ahnung

thanks, but meanwhile I understand your abbreviations but you german is getting serous

Herbert wrote: ↑

Fri Feb 03, 2023 11:33 am

I guess it's just a wfg of my sleep doctor.

One more WAG, WTH, they're free--

The MDs have all the tools and data. We do not.

You can't ablate what doesn't need ablating.

The Wellue Heart Rate doesn't make sense if you're in NSR.

MDs, for the most part, aren't completely whacked.

You know what would explain everything?

You are now, and have been, in A.fib all along.

Rubicon wrote: ↑

Fri Feb 03, 2023 12:09 pm

Herbert wrote: ↑

Fri Feb 03, 2023 11:33 am

I guess it's just a wfg of my sleep doctor.

One more WAG, WTH, they're free--

The MDs have all the tools and data. We do not.

You can't ablate what doesn't need ablating.

The Wellue Heart Rate doesn't make sense if you're in NSR.

MDs, for the most part, aren't completely whacked.

You know what would explain everything?

You are now, and have been, in A.fib all along.

Afib all along would be conveniently easy. but it's just not the case. I have a smartwatch which can do 1 channel ecg, my holster and study nights were free of afib. and I mean completely... so that's just not it.

Herbert wrote: ↑

Fri Feb 03, 2023 1:08 pm

I have a smartwatch which can do 1 channel ecg...

Great! Can you run a strip of about a minute or so?

Rubicon wrote: ↑

Fri Feb 03, 2023 1:15 pm

Herbert wrote: ↑

Fri Feb 03, 2023 1:08 pm

I have a smartwatch which can do 1 channel ecg...

Great! Can you run a strip of about a minute or so?

no only 30 sec at a time. but as often as I want after each other. but hownwould that help?

Edit: An ecg of this night is in your mailbox