Severe mixed apnea at the age of 35

if you don't care, let me know your guess. some of you might need to start. why not you. I won't judge...

BTW do the others just read my post and reply or how are they gonna notice?

Herbert wrote: ↑

Sat Jan 28, 2023 3:42 pm

BTW do the others just read my post and reply or how are they gonna notice?

yes, others can see your posts. anyone who comes in can see your posts.

i'm sorry i don't enough knowledge to help you out. i'm also sorry that rubicon seems to be hell bent on making snappy comments instead of actually helping you.

hold on, someone will give you some help soon.

good luck!

zonker wrote: ↑

Sat Jan 28, 2023 5:07 pm

hold on, someone will give you some help soon.

good luck!

hope you're right. because after 5 months with this damn diagnosis it still feels nobody really knows what's going on. neither the doctors in the sleep lab, nor the neurologist, pneumologist, people in the online forums. really sucks...

Edit: If you know who might be able to help, maybe you can tag him or her in this thread for a notification. would be highly appreciated

my main question are probably quite obvious: what might be causing this mess and is my therapy set up right? I mean ahi dropped significantly. oxygen improved to normal levels, but I'm still not well rested and the periodic breathing is scaring me to death

Rubicon wrote: ↑

Sat Jan 28, 2023 12:53 pm

OK I'm ready with my guess. I'll give the other guys some time. RS1 should get this. Probably Jeff. Definitely none of the PR SLers.

I'll have to try to find some time to go through this whole thread. It's the last week before my classes start and we're skiing tomorrow. So don't hold up telling Herbert what you think on the account of RS1 being quiet right now.

zonker wrote: ↑

Sat Jan 28, 2023 5:07 pm

i'm also sorry that rubicon seems to be hell bent on making snappy comments instead of actually helping you.

So you need to play Big Dick, huh?. Congratulations. Take over.

I really don't know what I have gotten into here, but could we maybe just cut out all the bs and just stick to the topic?

Herbert wrote: ↑

Sat Jan 28, 2023 3:42 pm

BTW do the others just read my post and reply ...?

Yes.

Herbert wrote: ↑

Sat Jan 28, 2023 5:24 pm

If you know who might be able to help, maybe you can tag him or her in this thread

That's not how it works. there's no 'tagging'.

Herbert wrote: ↑

Sat Jan 28, 2023 6:49 am

screened for sleep apnea,

How? In lab or at home? and if at home, which type of test?

Herbert wrote: ↑

Sat Jan 28, 2023 6:49 am

despite I've never snored.

Who told you that?

Herbert wrote: ↑

Sat Jan 28, 2023 6:49 am

If you ask me, also my hypopneas are central.

And, what makes you say that?

Herbert wrote: ↑

Sat Jan 28, 2023 6:49 am

PS: I did mot yet find out how to upload Screenshots here

Read that post, you know, the very first one at the top of the forum, you know, the one that says " Newbies PLEASE READ BEFORE POSTING" and please don't use imgbb again, it provides nearly useless images.

Hi Palerider,

I did a sleep study in a sleep lab of a Hospital. The study took two days. first day I was cabled up to measure eeg, ecg, spo2, chest movements and airflow. On the second day the same only with cpap added. They told me I had an initial AHI of 58. With CPAP it went down below 5 in an instant. So I was sent home with the Resmed 10 and a pressure of 7.

Why do I think that I only have central apnea and hypopnea: In the lab they measured not a single obstructive event. Also my Resmed only showed 2 obstructive events in 5 months usage. Last but not least I have never been heard snoring. Neither by my family nor by my wife which has been sharing my bed for over 10 years. Still the lab somehow "measured" a lot of snoring - not recorded on audio. So I assume it's been measured wrong. But that's only an assumption

Coming back to my current situation: I feel not very well rested and looking to my recordings of the Resmed I have a lot of periodic breathing every night. So I'm really worried what the root cause might be e.g. an underlying condition that has not yet been found despite the several checks I had. Also I wonder if my current therapy is right for me. Don't get me wrong. Switching to ASV or similar really scares me and is nothing desirable for me, but if it might be the only way I want to know it.

Herbert wrote: ↑

Sun Jan 29, 2023 2:51 am

Hi Palerider,

I did a sleep study in a sleep lab of a Hospital. The study took two days. first day I was cabled up to measure eeg, ecg, spo2, chest movements and airflow. On the second day the same only with cpap added. They told me I had an initial AHI of 58. With CPAP it went down below 5 in an instant. So I was sent home with the Resmed 10 and a pressure of 7.

Do you know which other pressures were tried during the titration study?

Why do I think that I only have central apnea and hypopnea: In the lab they measured not a single obstructive event.

Hypopneas can be obstructive.
The charts that you posted have indications of obstructed breathing: when you zoom in you can see the breath flow often being ragged, not not nice and round.

Also my Resmed only showed 2 obstructive events in 5 months usage.

Maybe your ResMed only showed 2 full ostructive apneas. But you have no reason to assume - apriori - that your hypopneas are not obstructive. As I said, your charts do give indications of obstructed breathing.

Last but not least I have never been heard snoring. Neither by my family nor by my wife which has been sharing my bed for over 10 years. Still the lab somehow "measured" a lot of snoring - not recorded on audio. So I assume it's been measured wrong. But that's only an assumption

You don't trust the original sleep study.
That in itself should be a source of deep concern. Try to get the doctor to explain what those "snores" are. Is it possible that they were describing flow limited breathing unaccompanied by audible snores?

Coming back to my current situation: I feel not very well rested and looking to my recordings of the Resmed I have a lot of periodic breathing every night. So I'm really worried what the root cause might be e.g. an underlying condition that has not yet been found despite the several checks I had.

And because of a sleep study you basically distrust.

I already asked but the doctors were not to eager to explain to me how they measured the snoring. I can try again to get a reply.

This means you interpret the flow limitations as being obstructive. What would be the implications that follows? do I need to increase pressure? But I assume that would probably lead to more CAs.

Do you have a guess what might be causing my periodic breathing?

The other pressures setting that they have tested was 5,6 and 8. With 7 my results were the best.

Herbert wrote: ↑

Sun Jan 29, 2023 4:21 am

I already asked but the doctors were not to eager to explain to me how they measured the snoring. I can try again to get a reply.

This means you interpret the flow limitations as being obstructive.

Yes.

What would be the implications that follows?

I'm not sure, which is why I didn't suggest anything at this point.

do I need to increase pressure? But I assume that would probably lead to more CAs.

You don't have that many CA's at all. certainly not recently.

Do you have a guess what might be causing my periodic breathing?

I wish I had but I don't know enough to make an educated guess...

The other pressures setting that they have tested was 5,6 and 8. With 7 my results were the best.

How long did you sleep at 7? What happened at 8?

I slept ca 2 hours with each pressure setting.shortest with pressure of 5, because then I had still lots of central apneas and hypopneas. With 6 and 7 it looked best. with 8 hypopneas started to increase again.

are there any professionals or experts for my kind of problems on this board?

Herbert wrote: ↑

Sun Jan 29, 2023 5:17 am

are there any professionals or experts for my kind of problems on this board?

The closet to a pro that is here now is Rubicon and he is a retired professional.

Why does ASV scare you?

Pugsy wrote: ↑

Sun Jan 29, 2023 7:31 am

Herbert wrote: ↑

Sun Jan 29, 2023 5:17 am

are there any professionals or experts for my kind of problems on this board?

The closet to a pro that is here now is Rubicon and he is a retired professional.

Why does ASV scare you?

Well, then I hope at some point he will share his wisdom with me.

I'm scared of asv because it's way more invasive than cpap. with the forced backup breathing etc. doesn't sound comfortable at all. I already had problems to adjust to cpap