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Re: Tired of being tired
Posted: Sat Mar 09, 2019 8:16 am
by pizzafan
fixed *
Re: Tired of being tired
Posted: Sat Mar 09, 2019 8:44 am
by Jas_williams
pizzafan wrote: ↑Sat Mar 09, 2019 8:14 am
Slept good

Used the small nasal pillow
screenshot-20190309-091223.png
Replace the respiration graph with the pressure graph turn off the pie chart then you only need to post one screenshot
Re: Tired of being tired
Posted: Sat Mar 09, 2019 9:57 am
by pizzafan
Jas_williams wrote: ↑Sat Mar 09, 2019 8:44 am
pizzafan wrote: ↑Sat Mar 09, 2019 8:14 am
Slept good

Used the small nasal pillow
screenshot-20190309-091223.png
Replace the respiration graph with the pressure graph turn off the pie chart then you only need to post one screenshot
Fixed! Ty
Slept good

Used the small nasal pillow

- screenshot-20190309-105317.png (194.61 KiB) Viewed 8106 times
Re: Tired of being tired
Posted: Sat Mar 09, 2019 12:49 pm
by Jas_williams
pizzafan wrote: ↑Sat Mar 09, 2019 9:57 am
Jas_williams wrote: ↑Sat Mar 09, 2019 8:44 am
pizzafan wrote: ↑Sat Mar 09, 2019 8:14 am
Slept good

Used the small nasal pillow
screenshot-20190309-091223.png
Replace the respiration graph with the pressure graph turn off the pie chart then you only need to post one screenshot
Fixed! Ty
Slept good

Used the small nasal pillow
screenshot-20190309-105317.png
You might find raising the minimum pressure to 7 smooths out the pressure graph and reduces the hypopnoea but you down to tweaking at this point so if you decide to make a change leave it a few days to a week to see how the averages go
Re: Tired of being tired
Posted: Sun Mar 10, 2019 8:21 am
by pizzafan
Couldn't get to sleep, probably fell asleep around 4 am. Tossed and turned, woke up to toddler pulling the mask off my face
Also, Toddler was snoring loudly last night, and she kept tossing and turning.

Her sleep study is a week away.
funny thing. Even though I didn't sleep as long as I would have liked, and woke up with a massive headache, since using cpap I have been waking up clear headed for the most part. My brain has been "foggy" for years.

- screenshot-20190310-101935.png (204.29 KiB) Viewed 8068 times
Re: Tired of being tired
Posted: Fri Mar 29, 2019 6:22 pm
by pizzafan
Had the home sleep test done, and doctor said she couldn't see any obstructive breathing and that I did not meet the criteria for sleep apnea but that it doesn't align with my excessive daytime sleepiness. I am finally being scheduled for a sleep study along with daytime study to rule out narcolepsy. Doctor doesn't know I use a cpap, the one night without it was pure hell next day.

Re: Tired of being tired
Posted: Sun Apr 14, 2019 11:41 am
by pizzafan
Using the cpap has been awesome except for the last week. I am super sleepy all day everyday for a week and using my cpap regularly. I deep cleaned my cpap last night and noticed an improvement but still feel like the living dead today. The only difference is past 2 weeks i havent been using the clamp to keep the mask fastened. I noticed much larger leaks past week, but with that my AHI is still low. Feedback? I have a lab sleep study coupled with a daytime study on april 30th. I miss the energy and focus I had when my cpap therapy was on point! Now I just want to nap all day and that is not an option!
Re: Tired of being tired
Posted: Sun Apr 14, 2019 11:56 am
by pizzafan
Re: Tired of being tired
Posted: Sun Apr 14, 2019 2:42 pm
by Miss Emerita
Looks like your charts are not displaying OAs. If you turn that on, the experts could probably give you better advice.
Re: Tired of being tired
Posted: Thu Apr 18, 2019 6:17 pm
by pizzafan
shameless bump
Re: Tired of being tired
Posted: Fri Apr 19, 2019 2:39 am
by kteague
Just a thought - a long time ago there was a discussion on here about the criteria one must meet during their overnight sleep time to qualify for a daytime study. I personally feel like most of the time having a daytime study for narcolepsy before before treating any other sleep disorders is getting the cart before the horse. How can you be sure that any daytime daytime sleepiness is not due to sleep apnea? It seems more logical to me to see if there is an OSA diagnosis, get it effectively managed for a while, then consider more testing if one's symptoms persist. Now, if one has other symptoms of narcolepsy and not just daytime sleepiness, that's a different story.
Re: Tired of being tired
Posted: Wed May 01, 2019 4:49 pm
by pizzafan
kteague wrote: ↑Fri Apr 19, 2019 2:39 am
Just a thought - a long time ago there was a discussion on here about the criteria one must meet during their overnight sleep time to qualify for a daytime study. I personally feel like most of the time having a daytime study for narcolepsy before before treating any other sleep disorders is getting the cart before the horse. How can you be sure that any daytime daytime sleepiness is not due to sleep apnea? It seems more logical to me to see if there is an OSA diagnosis, get it effectively managed for a while, then consider more testing if one's symptoms persist. Now, if one has other symptoms of narcolepsy and not just daytime sleepiness, that's a different story.
I had a home sleep study which wasn't conclusive and not enough to diagnose me with sleep apnea. Had the lab study done last night and day study today.
Re: Tired of being tired
Posted: Wed May 01, 2019 4:51 pm
by pizzafan
I am so confused...I have been getting great results with the cpap in terms of quality sleep and life.
Would it be possible to benefit from cpap without having a high AHI/ meet the criteria for sleep apnea?
Re: Tired of being tired
Posted: Wed May 01, 2019 5:03 pm
by Goofproof
I think so, I think it can help, even if you aren't aware of it. Jim
Re: Tired of being tired
Posted: Wed May 01, 2019 6:56 pm
by Miss Emerita
Pizzafan, be sure to get copies of the written reports on your two studies. If you want to, you can then post them here and maybe get some more perspective. Be sure to black out any identifying information on your reports.