AHI & CA Climbing, Mask Fit Declining, Feeling Awful

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
eyeheartny
Posts: 32
Joined: Sat Jun 09, 2018 7:05 pm

AHI & CA Climbing, Mask Fit Declining, Feeling Awful

Post by eyeheartny » Sun Sep 23, 2018 1:33 pm

I'll include as much info as seems reasonable below. I've been really struggling with therapy for the last month and feeling run down, poorly rested, and like I don't know what to change to get back to the better-rested feeling I had before. Feeling pretty desperate to get some relief and a good night's sleep again.


Stats: Male, 36 years old, 6'2", 215lbs.
Diagnosis: Mild/Moderate OSA via 2 in-person sleep studies in December 2016. Positional component to my OSA-- much worse on my back. No centrals or other complicating issues.
Therapy: started June 7 2018. Immediately noticed an increase in feeling rested. I was waking up before my alarm, noticed that I didn't feel exhausted all the time, etc. I saw my sleep specialist a month after starting therapy and everything looked good in terms of my numbers. My RXed pressures are 5-15, but as you can see below I've tweaked that a few times.

Current Issues
  • Starting in August I began experiencing poorer sleep. My numbers began to climb, and I also started suffering from sinus congestion.
  • I did not change mask types during this time.
  • My body weight has not changed either.
  • My CA index has climbed a lot as well.
  • I feel like garbage in the morning. So even though I'm waking up before my alarm, it's not because I'm feeling rested.
  • When I test my mask fit now using the Run Mask Fit option in the menu, I get the red frowny face on the INHALE, but not on the exhale. I'm not sure whether this could be caused by sinus congestion, but this was not the case earlier in my treatment. Additionally, when the pressures ramp up higher during the test, the red frowny face happens less often. So I suspect I have a mask seal/fit issue inside my nose but I can't figure out what to do.
  • I've changed hoses, headgear, pillows, and the connector piece between the main hose and the nasal pillows. All these changes in the last few weeks have not helped the fit issues.
  • I tried a different mask (Phillips Dreamwear Nasal Pillows) and saw similar leak issues on the Run Mask Fit test on the inhale portion. The ResMed mask appears to be worse at the moment.
  • I've tried treating the congestion with a Neti pot, Claritin/Allegra, Flonase and Nasalcrom spray. None of them seem to make a long-term change. I was taking Claritin/Allegra earlier in the summer when my numbers were better, so I've gone back on Allegra and will be seeing a sinus specialist to determine whether I have underlying issues.
Here are my statistics from SH on a monthly basis:
Stats.jpg
Stats.jpg (318.1 KiB) Viewed 568 times
Here is my pressure history:
Pressure Changes.jpg
Pressure Changes.jpg (383.59 KiB) Viewed 568 times
Here is my overview:
Image


Here is what last night looked like, leaving my feeling like utter garbage today:
Image

Here's an average "good" night from back in June when I was a few weeks into therapy:
Image


A few questions:
  • Why might my centrals be climbing when I wasn't initially diagnosed with central apnea?
  • How can I understand the change in mask fit, specifically why I'm getting the frowny face on the inhale but not the exhale? Is this attributable to my chronic nasal congestion I've been battling the last month?
  • What changes can I make to my therapy to try to get back to the good zone I was in in June/July?
  • Any questions I should bring to my sleep specialist/CPAP coach?
Thanks so much for any help.

_________________
Mask: AirFit™ P10 Nasal Pillow CPAP Mask with Headgear
Additional Comments: AirSense 10 Autoset
Attachments
Screen Shot 2018-09-23 at 3.47.54 PM.jpg
Screen Shot 2018-09-23 at 3.47.54 PM.jpg (831.82 KiB) Viewed 563 times
Last edited by eyeheartny on Sun Sep 23, 2018 5:34 pm, edited 2 times in total.

User avatar
palerider
Posts: 32299
Joined: Wed Dec 16, 2009 5:43 pm
Location: Dallas(ish).

Re: AHI & CA Climbing, Mask Fit Declining, Feeling Awful

Post by palerider » Sun Sep 23, 2018 4:42 pm

Please read viewtopic/t172378/Sticky--Newbies-PLEAS ... STING.html and redo your charts, so as not to waste your time further, or ours.

_________________
Mask: Bleep DreamPort CPAP Mask Solution
Additional Comments: S9 VPAP Auto
Get OSCAR

Accounts to put on the foe list: dataq1, clownbell, gearchange, lynninnj, mper!?, DreamDiver, Geer1, almostadoctor, sleepgeek, ajack, stom, mogy, D.H., They often post misleading, timewasting stuff.

eyeheartny
Posts: 32
Joined: Sat Jun 09, 2018 7:05 pm

Re: AHI & CA Climbing, Mask Fit Declining, Feeling Awful

Post by eyeheartny » Sun Sep 23, 2018 4:53 pm

palerider wrote:
Sun Sep 23, 2018 4:42 pm
Please read viewtopic/t172378/Sticky--Newbies-PLEAS ... STING.html and redo your charts, so as not to waste your time further, or ours.
Done, thanks for the heads up.

_________________
Mask: AirFit™ P10 Nasal Pillow CPAP Mask with Headgear
Additional Comments: AirSense 10 Autoset

User avatar
Julie
Posts: 20051
Joined: Tue Feb 28, 2006 12:58 pm

Re: AHI & CA Climbing, Mask Fit Declining, Feeling Awful

Post by Julie » Sun Sep 23, 2018 5:00 pm

Have you tried turning down or off the EPR?

eyeheartny
Posts: 32
Joined: Sat Jun 09, 2018 7:05 pm

Re: AHI & CA Climbing, Mask Fit Declining, Feeling Awful

Post by eyeheartny » Sun Sep 23, 2018 5:03 pm

Julie wrote:
Sun Sep 23, 2018 5:00 pm
Have you tried turning down or off the EPR?
Hi Julie, at my best the EPR was at 3, last night I had it turned down to 1, and on Thursday I had it at 2. This is Thursday's graph.
Screen Shot 2018-09-23 at 3.59.57 PM.jpg
Screen Shot 2018-09-23 at 3.59.57 PM.jpg (833.76 KiB) Viewed 556 times

_________________
Mask: AirFit™ P10 Nasal Pillow CPAP Mask with Headgear
Additional Comments: AirSense 10 Autoset

eyeheartny
Posts: 32
Joined: Sat Jun 09, 2018 7:05 pm

Re: AHI & CA Climbing, Mask Fit Declining, Feeling Awful

Post by eyeheartny » Sun Sep 23, 2018 5:05 pm

I'm also adding this historical view if it is at all helpful.
History.jpg
History.jpg (777.11 KiB) Viewed 555 times

_________________
Mask: AirFit™ P10 Nasal Pillow CPAP Mask with Headgear
Additional Comments: AirSense 10 Autoset

User avatar
Julie
Posts: 20051
Joined: Tue Feb 28, 2006 12:58 pm

Re: AHI & CA Climbing, Mask Fit Declining, Feeling Awful

Post by Julie » Sun Sep 23, 2018 5:51 pm

Have you tried turning down the humidity - it's not 'therapy', but a convenience, and if it makes you congested, cut it out or at least down... esp. with allergies, it can help or mess up. I never use it (live close to the ocean).

eyeheartny
Posts: 32
Joined: Sat Jun 09, 2018 7:05 pm

Re: AHI & CA Climbing, Mask Fit Declining, Feeling Awful

Post by eyeheartny » Sun Sep 23, 2018 6:00 pm

Julie wrote:
Sun Sep 23, 2018 5:51 pm
Have you tried turning down the humidity - it's not 'therapy', but a convenience, and if it makes you congested, cut it out or at least down... esp. with allergies, it can help or mess up. I never use it (live close to the ocean).
Interesting, I'll try turning it off. I called the CPAP coach at the DME provider and she suggested turning it up. I live in San Diego and the air is pretty moist, but we've been running the A/C at night to make it cooler for sleeping.

_________________
Mask: AirFit™ P10 Nasal Pillow CPAP Mask with Headgear
Additional Comments: AirSense 10 Autoset

eyeheartny
Posts: 32
Joined: Sat Jun 09, 2018 7:05 pm

Re: AHI & CA Climbing, Mask Fit Declining, Feeling Awful

Post by eyeheartny » Sun Sep 23, 2018 6:02 pm

I'm looking more closely at the centrals I'm having, and I'm wondering if these look like "true" centrals or if they may be SWJ stuff. There's a similar pattern in the flow rate before all the flagged central events. Can anyone weigh in?
screenshot-20180923-165506.png
screenshot-20180923-165506.png (240.81 KiB) Viewed 534 times
screenshot-20180923-165657.png
screenshot-20180923-165657.png (231.94 KiB) Viewed 534 times
screenshot-20180923-165711.png
screenshot-20180923-165711.png (232.58 KiB) Viewed 534 times

_________________
Mask: AirFit™ P10 Nasal Pillow CPAP Mask with Headgear
Additional Comments: AirSense 10 Autoset

User avatar
palerider
Posts: 32299
Joined: Wed Dec 16, 2009 5:43 pm
Location: Dallas(ish).

Re: AHI & CA Climbing, Mask Fit Declining, Feeling Awful

Post by palerider » Sun Sep 23, 2018 6:37 pm

Every one you zoomed in on looks like post arousal

_________________
Mask: Bleep DreamPort CPAP Mask Solution
Additional Comments: S9 VPAP Auto
Get OSCAR

Accounts to put on the foe list: dataq1, clownbell, gearchange, lynninnj, mper!?, DreamDiver, Geer1, almostadoctor, sleepgeek, ajack, stom, mogy, D.H., They often post misleading, timewasting stuff.

eyeheartny
Posts: 32
Joined: Sat Jun 09, 2018 7:05 pm

Re: AHI & CA Climbing, Mask Fit Declining, Feeling Awful

Post by eyeheartny » Sun Sep 23, 2018 6:54 pm

palerider wrote:
Sun Sep 23, 2018 6:37 pm
Every one you zoomed in on looks like post arousal
Thank you. A few questions: I just reviewed all 28 clear airway events last night, and every one has that little jagged section before what's flagged as the CA event. If those look like post-arousal ones to you and that's not a "true" central event, what can that number of arousals tell us? Could it indicate issues with the equipment, or with my body (I have been having back pain lately), or an uncomfortable mattress? I'm not sure how to understand these as post-arousal events in terms of addressing them. Thanks for your help!

_________________
Mask: AirFit™ P10 Nasal Pillow CPAP Mask with Headgear
Additional Comments: AirSense 10 Autoset

User avatar
palerider
Posts: 32299
Joined: Wed Dec 16, 2009 5:43 pm
Location: Dallas(ish).

Re: AHI & CA Climbing, Mask Fit Declining, Feeling Awful

Post by palerider » Sun Sep 23, 2018 7:29 pm

eyeheartny wrote:
Sun Sep 23, 2018 6:54 pm
palerider wrote:
Sun Sep 23, 2018 6:37 pm
Every one you zoomed in on looks like post arousal
Thank you. A few questions: I just reviewed all 28 clear airway events last night, and every one has that little jagged section before what's flagged as the CA event. If those look like post-arousal ones to you and that's not a "true" central event, what can that number of arousals tell us? Could it indicate issues with the equipment, or with my body (I have been having back pain lately), or an uncomfortable mattress? I'm not sure how to understand these as post-arousal events in terms of addressing them. Thanks for your help!
That stuff is bothering your sleep, No issues with the equipment... but pain can certainly explain it... you're in pain, that rises to a level enough that you have to shift position, take a few bigger breaths, you move, settle, during that time you're holding your breath either because those bigger breaths drove your co2 down a little too far, or you're turning over, etc... and you get a central recorded.

Post arousal 'central's are just the machine recording your breathing stopped *AFTER* something else, non breathing related, bothered your sleep.

_________________
Mask: Bleep DreamPort CPAP Mask Solution
Additional Comments: S9 VPAP Auto
Get OSCAR

Accounts to put on the foe list: dataq1, clownbell, gearchange, lynninnj, mper!?, DreamDiver, Geer1, almostadoctor, sleepgeek, ajack, stom, mogy, D.H., They often post misleading, timewasting stuff.

eyeheartny
Posts: 32
Joined: Sat Jun 09, 2018 7:05 pm

Re: AHI & CA Climbing, Mask Fit Declining, Feeling Awful

Post by eyeheartny » Sun Sep 23, 2018 7:51 pm

palerider wrote:
Sun Sep 23, 2018 7:29 pm
That stuff is bothering your sleep, No issues with the equipment... but pain can certainly explain it... you're in pain, that rises to a level enough that you have to shift position, take a few bigger breaths, you move, settle, during that time you're holding your breath either because those bigger breaths drove your co2 down a little too far, or you're turning over, etc... and you get a central recorded.

Post arousal 'central's are just the machine recording your breathing stopped *AFTER* something else, non breathing related, bothered your sleep.

Thanks. The next thing I need to figure out is the large leak events. Any idea why when I run the mask fit it shows the red frown on inhale but not exhale? What doesn't make sense is that if the mask is fitting poorly, I would imagine there would be a bigger leak on the exhale. Is there any way to tell from SH data whether the leaks are open mouth or a mask fit problem? Or could the nasal congestion be interfering with the mask seal in some capacity?

_________________
Mask: AirFit™ P10 Nasal Pillow CPAP Mask with Headgear
Additional Comments: AirSense 10 Autoset

User avatar
Julie
Posts: 20051
Joined: Tue Feb 28, 2006 12:58 pm

Re: AHI & CA Climbing, Mask Fit Declining, Feeling Awful

Post by Julie » Sun Sep 23, 2018 8:19 pm

The machine only knows there's a leak, but not from where.

And congestion may interfere with any stage of breathing in general of course... try low or no humidifier for a couple of nights (to give it a chance to get better). If your local climate is not - now - relatively dry, why use it? If when the weather changes and you feel a need for the hum., try it again, but don't just use it 'because'.

eyeheartny
Posts: 32
Joined: Sat Jun 09, 2018 7:05 pm

Re: AHI & CA Climbing, Mask Fit Declining, Feeling Awful

Post by eyeheartny » Sun Sep 23, 2018 8:24 pm

Julie wrote:
Sun Sep 23, 2018 8:19 pm
The machine only knows there's a leak, but not from where.

And congestion may interfere with any stage of breathing in general of course... try low or no humidifier for a couple of nights (to give it a chance to get better). If your local climate is not - now - relatively dry, why use it? If when the weather changes and you feel a need for the hum., try it again, but don't just use it 'because'.
Thanks Julie. Will do. I've also turned off EPR to see how that works for me for a few nights. I'm feeling a little more relieved that what appear to be centrals may just be post-arousal events rather than a treatment-caused central issue. Any other suggestions based on my charts? Pressure changes, taping my mouth, etc? I'm desperate to get good sleep.

_________________
Mask: AirFit™ P10 Nasal Pillow CPAP Mask with Headgear
Additional Comments: AirSense 10 Autoset